Download - The Caregiver Journey

The The CaregiverCaregiver Journey Journey

“When one is sick, two need help”

http://www.wellspouse.org/


TODAY’S FAMILY CAREGIVERS...

Provide 80% of all long term careProvide 80% of all long term care

Include 52 million caring for adultsInclude 52 million caring for adults29.2 million help ill or disabled adults aged 29.2 million help ill or disabled adults aged 18+ with activities of daily living 18+ with activities of daily living

8.9 million care for someone aged 50+ with 8.9 million care for someone aged 50+ with dementiadementia

Will increase by 85% by the year Will increase by 85% by the year 2050 2050

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From the hospital to the home...

Medical advancesMedical advances

Shorter hospital staysShorter hospital stays

Limited discharge Limited discharge planningplanning


Family caregivers provide Family caregivers provide $350 billion $350 billion dollarsdollars of care a year – for “free” of care a year – for “free”

Paid home healthcare -- Paid home healthcare -- $32 billion$32 billion

Nursing home services -- Nursing home services -- $92 billion$92 billion

Care for Alzheimer’s patients costs Care for Alzheimer’s patients costs families approximately $23,436families approximately $23,436

The cost of care...


Higher mortality rateHigher mortality rate

Depression affects 30-59% of Depression affects 30-59% of family caregiversfamily caregivers

Increased risk for chronic Increased risk for chronic conditions such as coronary heart conditions such as coronary heart disease, cancer, and diabetesdisease, cancer, and diabetes

The physical and emotional toll on caregivers...


Acute IllnessAcute Illness

AccidentsAccidents

Chronic IllnessChronic Illness

When Illness and/or Disability Strike...


ShockShock

Denial/MinimizationDenial/Minimization

Emotional OverdriveEmotional Overdrive

Life is put on hold to deal with Life is put on hold to deal with crisiscrisis

Impact of the Initial Diagnosis –The Acute Emotions


Sadness, grief, depressionSadness, grief, depression

DreadDread

Anger, anxietyAnger, anxiety

GuiltGuilt

Loneliness, isolationLoneliness, isolation

Impact of the Initial Diagnosis –The Chronic Emotions


The Heroic StageThe Heroic Stage

The Ambivalence StageThe Ambivalence Stage

The “New Normal”The “New Normal”

Three Stages –Three Stages –

Download - The Caregiver Journey

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