Download - TRINNODD Survey
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TRINNODD Survey
PortugalFebruary, 2009
Maria João Gonçalves, Maura Faro, Sónia Fontes
FENACERCI
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Implementation
• The tool – Translated to Portuguese– Included a support document explaining
target group, delivery strategy and with Qol topics concepts and examples
– Pre-tested with one professional, family member and person with Dual Diagnosis (PDD)
– Modifications were incorporated, mainly related to language and explanations
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Implementation
• Delivery strategy– The questionnaires where sent by e-mail to
the Associates– Support was requested for the fulfilment of the
questionnaires regarding DD sample– Support workers were advised to request
general data about the services to their coordinators
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Implementation
• Collection of data– Among the 51
FENACERCI’s associate members
– In the total we received 128 questionnaires.
• 56 professionals• 31 families• 41 persons DD
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Implementation
• Sample– Seven associates participated in this survey
• CERCIAZ (Oliveira de Azeméis)• CERCIZIMBRA (Sesimbra)• CERCISA (Corroios)• CECD (Mira Sintra)• CERCITOP (Sintra) • CERCIBEJA (Beja)• CERCIESPINHO (Espinho)
– Furthermore 5 associates are collecting questionnaires but those aren’t yet available for this report
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Implementation
• Feedback– Difficulties in understanding some issues addressed
in the questionnaire – Support workers don’t have knowledge on what are
the theoretical grounds– Lack of existence of DD evidences/medical reports
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Support Workers
n=56
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Questionnaire for support workers
1) Gender
2) Age
Male Female Total
7 49 56
13% 88% 100%
Range Nº %
22-26 4 7%
27-31 7 13%
32-36 12 21%
37-41 8 14%
42-46 9 16%
47-51 6 11%
52-56 7 13%
57-60 2 4%
> 60 1 2%
Total 56 100%
Average: 40,39 years
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Questionnaire for support workers
3) Training Nº %
4 years of schoolariship 4 7%
9 years of schoolariship 13 23%
11 years of schoolariship 2 4%
12 years of schoolariship 5 9%
High degree 25 45%
No answer 7 13%
56 100%
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Questionnaire for support workers
4) Current OccupationNº %
Psychologist 6 11%
Psychomotor Rehabilitation technician 4 7%
Monitor 11 20%
Assistant 20 36%
Social worker 3 5%
Director 2 4%
Psychopedagogue 2 4%
Occupational Therapist 3 5%
Physiotherapist 1 2%
Teacher 1 2%
Other 2 4%
No answer 1 2%
56 100%
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Questionnaire for support workers
5) How long have you being doing this job?
6) Groups of clients
Nº %
0-5 16 29%
6-10 16 29%
11-15 13 23%
16-20 8 14%
21-25 2 4%
26-30 0 0%
31-35 1 2%
Total 56 100%
Nº %
Intellectual Disability 53 95%
Intellectual Disability and Psychiatric Disorders 54 96%
Psychiatric Disorders 5 9%
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Questionnaire for support workers
8) Definition of work with DD Nº %
It is a job like any other 2 4%
It is an occupation implying great responsabilities 45 80%
It is a job of great value 32 57%
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Questionnaire for support workers
9) Topics for daily work
Physical and psychological being
Autonomy issues
Training in DD
Behavior modeling
Communication
Daily life activities
Enjoy the work
Occupational activities
Professional Development
Social Skills
Multidisciplinary work
Psychological Support
Quality of life
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Questionnaire for support workers
10) Theoretical grounds
Basic notions on DD
Psychological problems
Presentation of symptoms
Educational perspective
Multidisciplinarity
Evidence-based practice
Psychodynamic
Medication
Therapeutic methods
Life span approach
Quality of life
Ecological model
Other (specify)______________________
Yes 29 34 48 52 54 46 8 38 37 41 55 44 0
% 52% 61% 86% 93% 96% 82% 14% 68% 66% 73% 98% 79% 0%
No 10 6 3 2 0 3 30 3 4 1 0 3 0
% 18% 11% 5% 4% 0% 5% 54% 5% 7% 2% 0% 5% 0%
NA/NR 17 16 5 2 2 7 18 15 15 14 1 9 0
% 30% 29% 9% 4% 4% 13% 32% 27% 27% 25% 2% 16% 0%
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Questionnaire for support workers
11) Professionals Professionals, Services and persons Team Community
Assistant (helps the educator in activities of daily life, but has no educational function)
Moniteur/Instructor/Coach (helps and supervises the educator during the activity)
Educator/Teacher (manages the educational plan) Consultant Psychiatrist for adult for child and adolescent Psychologist Nurses General specialist manager Social Workers Consultant Doctors General Physician Specialist Therapist Occupational Speech and Language Physiotherapist Music, Art, Dance, etc Psychomotor Rehabilitation Technician Families of persons with DD Local Entrepreneurs City Hall professionals Other professional (specify):
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Questionnaire for support workers
12) Qol topics adopted by team
Clients
Physical being
Psychological being
Spiritual being
Physical belonging
Family connections
Social Inclusion
Practical Becoming
Leisure time
Personal Growth and Development
Advocacy/Self Representation Rights
Yes 55 55 20 50 50 43 43 55 55 41 35
% 98% 98% 36% 89% 89% 77% 77% 98% 98% 73% 63%
No 0 0 35 0 1 13 13 0 0 13 17
% 0% 0% 63% 0% 2% 23% 23% 0% 0% 23% 30%
No Answer 1 1 1 6 5 0 0 1 1 2 4
% 2% 2% 2% 11% 9% 0% 0% 2% 2% 4% 7%
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Questionnaire for support workers
12) Qol topics adopted by team
Families
Physical being
Psychological being
Spiritual being
Physical belonging
Family connections
Social Inclusion
Practical Becoming
Leisure time
Personal Growth and Development
Advocacy/Self Representation Rights
Yes 17 52 13 25 40 35 36 20 12 16 33
% 30% 93% 23% 45% 71% 63% 64% 36% 21% 29% 59%
No 36 0 36 21 6 14 15 29 37 30 14
% 64% 0% 64% 38% 11% 25% 27% 52% 66% 54% 25%
NA 3 4 7 10 10 7 5 7 7 10 9
% 5% 7% 13% 18% 18% 13% 9% 13% 13% 18% 16%
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Questionnaire for support workers
13) Qol topics adopted by community
Clients
Physical being
Psychological being
Spiritual being
Physical belonging
Family connections
Social Inclusion
Practical Becoming
Leisure time
Personal Growth and Development
Advocacy/Self Representation Rights
Yes 31 32 23 38 32 32 25 48 25 25 30
% 55% 57% 41% 68% 57% 57% 45% 86% 45% 45% 54%
No 6 1 17 2 1 1 2 0 2 2 2
% 11% 2% 30% 4% 2% 2% 4% 0% 4% 4% 4%
No Answer 19 23 16 16 23 23 29 8 29 29 24
% 34% 41% 29% 29% 41% 41% 52% 14% 52% 52% 43%
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Questionnaire for support workers
13) Qol topics adopted by community
Families
Physical being
Psychological being
Spiritual being
Physical belonging
Family connections
Social Inclusion
Practical Becoming
Leisure time
Personal Growth and Development
Advocacy/Self Representation Rights
Yes 13 12 17 19 8 28 21 31 6 4 24
% 23% 21% 30% 34% 14% 50% 38% 55% 11% 7% 43%
No 19 15 17 15 15 0 0 8 16 16 1
% 34% 27% 30% 27% 27% 0% 0% 14% 29% 29% 2%
No answer 24 29 22 22 33 28 35 17 34 36 31
% 43% 52% 39% 39% 59% 50% 63% 30% 61% 64% 55%
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Questionnaire for support workers
14) How much trainning
Basic notions on DD
Psychological problems
Presentation of symptoms
Educational perspective
Multidisciplinarity
Evidence-based practice
Psychodynamic
Medication
Therapeutic methods
Life span approach
Quality of life
Ecological model
not at all 25 21 26 20 22 31 32 34 25 26 21 32
% 45% 38% 46% 36% 39% 55% 57% 61% 45% 46% 38% 57%
a little 19 28 19 26 20 16 14 12 16 15 23 10
% 34% 50% 34% 46% 36% 29% 25% 21% 29% 27% 41% 18%
somewhat 4 4 5 4 7 5 2 2 4 8 4 6
% 7% 7% 9% 7% 13% 9% 4% 4% 7% 14% 7% 11%
quite a lot 0 2 1 1 0 0 0 0 3 1 1 0
% 0% 4% 2% 2% 0% 0% 0% 0% 5% 2% 2% 0%
No answer 8 1 5 5 7 4 8 8 8 6 7 8
% 14% 2% 9% 9% 13% 7% 14% 14% 14% 11% 13% 14%
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Questionnaire for support workers
15) Topics for training Basic notions on DD
Sex education
Quality of life
Psychological Problems
Differential Diagnosis
Multidisciplinary work
Stress management
Behavior Modeling
Life span approach
Presentation of symptoms
Therapeutic methods
Psychology
Guidelines for specific interventions
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Questionnaire for support workers
16) Emotional support received
17) Training to manage work stress
n %
Not at all 35 63%
A little 16 29%
Somewhat 1 2%
Quite a lot 0 0%
NA/NR 4 7%
n %
Not at all 42 75%
A little 12 21%
Somewhat 0 0%
Quite a lot 0 0%
NA/NR 2 4%
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Families
n=31
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Questionnaire for families
1) Gender
2) Age– Average age: 41.72
Male Female Total
12 17 29
41% 59% 100%
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Questionnaire for families
3) Qol topics adopted by team
Physical being
Psychological being
Spiritual being
Physical belonging
Family connections
Social Inclusion
Practical Becoming
Leisure time
Personal Growth and Development
Advocacy/Self Representation Rights
Yes 29 28 14 25 28 13 24 28 19 14 9
% 94% 90% 45% 81% 90% 42% 77% 90% 61% 45% 29%
No 2 0 6 0 1 12 3 3 6 6 9
% 6% 0% 19% 0% 3% 39% 10% 10% 19% 19% 29%
NA/NR 0 3 11 6 2 6 4 0 6 11 13
% 0% 10% 35% 19% 6% 19% 13% 0% 19% 35% 42%
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Questionnaire for families
3) Qol topics should been adopted by team
Physical being
Psychological being
Spiritual being
Physical belonging
Family connections
Social Inclusion
Practical Becoming
Leisure time
Personal Growth and Development
Advocacy/Self Representation Rights
Yes 21 18 19 16 16 20 18 22 24 15 12
% 68% 58% 61% 52% 52% 65% 58% 71% 77% 48% 39%
No 10 11 7 11 11 6 10 8 6 7 12
% 32% 35% 23% 35% 35% 19% 32% 26% 19% 23% 39%
NA/NR 0 2 5 4 4 5 3 1 1 9 7
% 0% 6% 16% 13% 13% 16% 10% 3% 3% 29% 23%
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Questionnaires for PDD
n=44
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Questionnaire for PDD
1) Gender
2) Age– Average age: 30.53
Male Female Total
24 17 41
59% 41% 100%
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Questionnaire for PDD
3) Qol topics adopted by team
Physical being
Psychological being
Spiritual being
Physical belonging
Family connections
Social Inclusion
Practical Becoming
Leisure time
Personal Growth and Development
Advocacy/Self Representation Rights
Yes 20 18 18 17 18 18 19 18 19 16 5
% 49% 44% 44% 41% 44% 44% 46% 44% 46% 39% 12%
No 1 1 1 2 1 1 0 2 0 0 2
% 2% 2% 2% 5% 2% 2% 0% 5% 0% 0% 5%
No answer 20 22 22 22 22 22 22 21 22 25 34
% 49% 54% 54% 54% 54% 54% 54% 51% 54% 61% 83%
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Questionnaire for PDD
3) Qol topics should been adopted by team
Physical being
Psychological being
Spiritual being
Physical belonging
Family connections
Social Inclusion
Practical Becoming
Leisure time
Personal Growth and Development
Advocacy/Self Representation Rights
Yes 10 7 6 6 6 7 10 16 9 8 4
% 24% 17% 15% 15% 15% 17% 24% 39% 22% 20% 10%
No 11 13 13 13 13 12 9 5 12 11 13
% 27% 32% 32% 32% 32% 29% 22% 12% 29% 27% 32%
No answer 20 21 22 22 22 22 22 20 20 22 24
% 49% 51% 54% 54% 54% 54% 54% 49% 49% 54% 59%