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West Texas Cancer Survivors Network – Phase 2
CPRIT Grant #PP130071
Program Director: Katherine Chauncey, PhD, RDN Program Co-Director: Barbara Pence, PhD Associate Director: Janet Basom, RDN, LD
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• CPRIT – Cancer Prevention and Research Institute of Texas
• Established in 2007 by the overwhelming approval of Texas voters
• Goals are: To expedite innovation and commercialization in
the area of cancer research To enhance access to evidence-based prevention
programs and services
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Cancer Survivors• More than 14 million in the United States
Testament to early detection and treatment• The Downside,
Increased risk for second primary cancers Increased risk of comorbidities e.g. cardiovascular
disease, diabetes, osteoporosis Increased risk functional decline
• Cancer survivors in rural West Texas often lack access to healthcare services and support groups that can improve their health outcome
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WTCSN – Phase 2 “Connecting Cancer Survivors for Better Health”
• WTCSN- Phase 1 ended August 2012• CPRIT moratorium delayed renewal 12/01/2013• Funded for 3 years; ends December 2016• Phase – 2 is an initiative to expand and enroll
West Texas cancer survivors in a network – To provide cancer survivor information, To enhance quality of life To encourage healthy habits To reduce cancer recurrence and prolong survival
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We are looking for cancer survivors!
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WTCSN Accomplishments• Enrolled 485 enrollees from predominantly rural
areas in two years• Established infrastructure to support recruitment
to the network Expanded Cancer Nutrition Network for Texas (CNNT)
website to accommodate WTCSN• Educational resources & online enrollment form• Website tracking established for evaluation purposes• Qualified for HONCode certification• Expanded Nsights newsletter to enrollees and partners
Activated toll free and fax numbers to facilitate enrollment, questions, and resources
Developed Cancer Nutrition Toolkit for network enrollees
• English and Spanish language versions• Resources from NCI, ACS, AICR, CNNT Passport, DVD, CD
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WTCSN-Phase IIRenewal Grant Goals
• Maintain current WTCSN and expand it to the entire TTUHSC Service Area (aka West Texas)
• Design and implement a Cancer Survivorship Care Plan (SCP) to be used by the survivor and their primary care physician (PCP) to monitor his/her post-treatment care
• Develop, pilot test, and implement tailored health communication messages to improve lifestyle behaviors among cancer survivors
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West Texas (TTUHSC Service Area)
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TTUHSC Health Service Area
• 108 counties; 50% of Texas land mass• Home to over 2.8 million people or 11.2% of the population of
Texas • 98 counties are rural and 49 of those are considered frontier
counties with fewer than 10 people per square mile• Served by eight metropolitan centers: Abilene, Amarillo, El
Paso, Lubbock, Odessa/Midland, San Angelo, and Wichita Falls• Contributes 81% of the oil (on-shore); 92% of the wind
energy; 86% of the cotton; over 88% of the wheat, sunflower seeds, peanuts; 66% of the cattle; and over 60% of the wine-producing grapes, sheep, and corn to the rest of the state
• Failure to distribute cancer nutrition information and develop survivorship services to this area creates a major obstacle in Texas’ effort to diminish cancer mortality
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WTCSN-Phase 2 Specific Aims• Re-establish the Network by reaching counterparts of
existing WTCSN partners and developing new partnerships
• Establish a system of “active referral” with providers, community cancer centers, & partners
• Demonstrate knowledge and utilization of SCPs in post-treatment care by Network enrollees
• Establish baseline knowledge & behaviors of Network enrollees in terms of nutrition, diet, physical activity, QoL, and health status
• Demonstrate positive changes in knowledge & behaviors of Network enrollees in terms of nutrition, diet, physical activity, QoL, and health status
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WTCSN-Phase IISurvivorship Care Plans
• Significant addition to our educational mission• Key Element in the 2012 Texas Cancer Plan• Recommended by both the American Cancer
Society, the Institute of Medicine, and other advocacy organizations
• Inform the survivor and make them aware of their post-treatment care
• Individualized to the survivor’s type of cancer and stage of survivorship
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WTCSN-Phase IITailored Health Messages
• Focused on nutrition/diet, physical activity, and quality of life (QoL)
• Tailored to 4 parameters: Stage of cancer survivorship Type of cancer Whether overweight or obese Level of physical activity
• Significant in that it has never been attempted in a general population of diverse cancer survivors
• Can impact cancer recurrence and survival
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Outreach Tools
Websitewww.ttuhsc.edu/wtcsn
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Outreach Tools
Network
Enrollment
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Outreach Tools
Agreement to be Contacted for Research
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Outreach Tools
Patient Newsletter
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Outreach Tools
Professional Newsletter
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Cancer Nutrition Toolkit
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WTCSN-Phase IINew & Expanded Partnerships
• American Cancer Society (Regional Affiliates)• Association of Community Cancer Centers (ACCC)• F. Marie Hall Institute for Rural and Community
Health• West Texas Area Health Education Centers (AHECs)• Texas AgriLife & Cancer Specialists• Texas Rural Health Association (TRHA)• UMC Southwest Cancer Treatment & Research
Center• TTUHSC Depts. of Family Medicine & Pathology
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WTCSN- Phase 2Mutually Beneficial Partnerships
• What we need from partners – Recruitment - Assistance in finding and recruiting
cancer survivors to the Network Health Messages - Development and dissemination
of health messages: Nutrition/Diet; Physical Activity; Quality of Life
Survivorship Care Plan - Promotion of the SCP to the cancer survivor to monitor post-treatment care
• How can we assist you?
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Contact Information
Kathy Chauncey, PhD, [email protected]
Barbara Pence, PhD [email protected]
Janet Basom, RDN, LD [email protected]
Telephone: 806-743-6153
Website: www.ttuhsc.edu/wtcsn
Email: [email protected]