dr lisa curtice director, scottish consortium for learning disability (scld)
TRANSCRIPT
Obtaining the views of people who use forensic services
Dr Lisa CurticeDirector, Scottish Consortium for Learning Disability (SCLD)
To assess quality of services through the perspectives of people who experience them
To make policies robust through research and evaluation
To ensure representation in consultations
To develop skills
Reasons for obtaining these views
Obtaining the views of people with learning disabilities
an adaptation of good research practice
Information and consent
Accessible information in different formats
Time taken to check out consent
Interview schedule
Relevant to person’s situation
Flexible – follow stories if necessary
Check out understanding
Allow for wide range of verbal engagement
Conduct of interview
Identify communication needs first
Consider role of proxy/supporter
Allow for interruptions
Give permission to stop
Recording not a sufficient record
Framework analysis can be used to identify and reflect on themes
Analysis
Topic
Theme a) Theme b)
case summary summary
case summary summary
Clear agreement with interviewee◦Any limits to confidentiality◦Use of their information◦ Form of reporting◦What feedback they will get
Storage of information◦Sample details locked and passworded◦ Identifying information stored separately from interviews◦ Limited access to data
Reporting◦Care with data linkage ◦Attention to details that may identify
Confidentiality and reporting
Characteristics of people interviewed
Status of people interviewed
The setting
Particular features of research in forensic settings determined by:
access is challenging background information and corroboration can be
absent balance between empowerment and support in
the interview situation need for particular care with disclosure and
confidentiality
Specific features of forensic settings
Example of ‘The same as you?’ evaluation
Conducted on behalf of Scottish Government
Methodology
Inclusive Research Methodology
Evidence Scoping
Interviews with people with learning disabilities and family carers
Consultation
Who did we want to speak to?
People with learning disabilities
Family carers
50 people in total A range of ages Men and women Different living
situations A range of different
needs
50 people in total A range of different
needs
18 in family home22 living independently
or with support5 group home4 forensic services
Living situation – people with learning disabilities
Experiences can help identify what information and support is needed
“ I’m trying to get out. I don’t know what to do..or somewhere that helps you with people with learning difficulties..no one has talked to me about it.”
Views and experiences
User and Carer Forum brings together people with a wide range of experiences◦ They have developed resources such as “Supporting You
to Support Us”
Tier 4 Services in Greater Glasgow and Clyde have a service redesign forum
A member of this forum sits on the national Modernising Learning Disability Nursing group
Forums
Hearing other views Working in a group Staff may see people differently Peer support Growth in confidence – experience of having views
heard Opportunity to develop skills – getting views across in
different ways Views can make a difference if forum is respected by
managers May open other doors
Benefits of forums
Lisa CurticeChloë Trew
[email protected] 418 5420
www.scld.org.uk
and images from Talk for Scotland toolkit
Consider joining the Scottish inclusive learning disability research network