ADDRESSING THE HOUSING CRISIS FOR PEOPLE WITH INTELLECTUAL DISABILITIESUSING MINIMAL GOVERNMENT ASSISTANCE

By Peggy Welker, MSWDecember 1, 2015

PWD

FACTS & FIGURES (GRAPHIC REPRESENTATION NEXT SLIDE)

Missouri Current State of Affairs: 76% of people with disabilities live with their caregiver (68,367 in MO) 26% of them are living with caregivers 60+ years of age (17,633 people)

WHY DON’T THEY MOVE OUT? The average person with a disability (85% of them are unemployed) receives $725 in SSDI

monthly The average rent for a 1-bedroom apartment is $758 HUD spends .08 of 1% on Sec 202 & .0028 of 1% on Sec 811. The St. Louis County wait list is

10,000+WHAT CAN WE DO?

Help parents create a consortium of 4 parents with an endowment to sustain their expenses Use university students in a glorified R.A. position as light daily support Give the person with disability more of their monthly income & create opportunities for

enrichment, self-determination and social development

CURRENT STATE OF AFFAIRS

17, 633 live with family members 60+ years of age.

WHY DON’T THEY

MOVE OUT?

REVIEWING THE STATISTICS

Average Home ValueSt. Louis County$171,000

Average Savings50-64 yr professional$181,000

Asking Price: $188,800 1478 sq. ft. living space. 4 bedrooms. 2 bathrooms. 6 rooms total.

HOUSING

Create a financially self-sustaining home that can be passed onto future clients with disabilities

The home would have 4 people with disabilities and 2 university students

It would be in a walkable neighborhood where community ties could be formed.

The property would be managed by the families or an agreed upon management &/or maintenance team.

Family #1

$250K

Family #2

$250K

Family #3

$250K

Family #4

Buy the house

4 family consortium

$750K in Money Market @ 4% =

$30K/year income

HOW DO WE PAY FOR IT?HOUSING COSTS

Family #1

$250K

Family #2

$250K

Family #3

$250K

Family #4

Buy the house

4 family consortium

$750K in Money Market @ 4% =

$30K/year income Home ExpensesHomeowners Insurance

$ 1,420Property Taxes

$ 2,780Maintenance Budget ($1/sq. ft.)

$ 1,500Required Reserve (2% home value)

$ 3,760FIXED HOUSING EXPENSES

$9,460TOTAL DISCRETIONARY BUDGET$42,100

Overall IncomeMoney Market Income

$30,300Rent per person x 4 PWD

$18,000Household food budget per person x 4PWD*

$ 3,276TOTAL FIXED INCOME

$51,576

The excess in the endowment fund furnishes the capital necessary to balance this budget

WHAT ABOUT SUPERVISION? Natural supports such as a college student

can help a person with a disability have a role model to emulate.

Having a college student as a natural support gives them an opportunity to learn how to respectfully interact with and motivate a person with a disability in their future profession.

Having a university student handle a great amount of the supervision, it creates an opportunity to promote friendships while reducing expenses for the university student.

WHAT ABOUT SUPERVISION?FOR THE PERSON WITH DISABILITIES?

Sunday

Mon.

Tues.

Wed.

Thurs.

Fri. Saturday

12am-6am

Private pay

2R.A.s

2R.A.s

2R.A.s

2R.A.s 2R.A.s

Private pay

6am-8am

Private pay

2R.A.s

2R.A.s

2R.A.s

2R.A.s 2R.A.s

Private pay

8am-4pm

Private pay

1 DSP

1 DSP

1 DSP

1 DSP 1 DSP

Private pay

4pm-6pm

Private pay

1 R.A.

1 R.A.

1 R.A.

1 R.A. 1 R.A.

Private pay

6pm-12am

Private pay

2R.A.s

2R.A.s

2R.A.s

2R.A.s 2R.A.s

Private pay

Days per week: 5Hours per day: 18(24 hr – 6 hrs sleep’g)TOTAL COVERAGE: 90

PLB FundedDSP

-40

R.A.s mandatedcoverage: per R.A.30 hrs/week

60

OVERALL COVERAGE ATTAINED

WHAT ABOUT THE PERSON’S LEARNING?

WORKING OR VOLUNTEERING The library Any non-profit organization such as the Humane Society

LEISURE & COMMUNITY ACTIVITIES Such as St. Louis Arc’s The Artist in Me or joining St. Louis

County library’s book clubs or Meet-Up Photography group SELF-DETERMINATION SKILLS

Taking classes on healthy relationships Taking classes on making decisions and life plans for yourself

ROLES & RESPONSIBILITIESFamily Person with

DisabilityUniversity Student Case Manager

Role: provider of funds

Role: to be a good roommate

Role: light housework, coordinate easy meal prep in the evenings

Role: to keep track of the student schedules & PCA schedules

Role: weekend support as needed

Role: to learn & contribute within their talents & abilities (light housework, easy meal prep, etc.)

Role: sleep at residence & oversee safety in case of fire/tornado 5 days per week

Role: to monitor and develop goals

Responsibility: to allow PWD to live independently & support that decision

Responsibility: to treat others respectfully

Role: to take PWD shopping occasionally, to interact in a friendly/respectful manner

Responsibility: to keep case notes up to date & to ensure all programming is working toward stated personal goals

Responsibility: to be role model; to bring friends into the environment as well

ALTERNATIVE SCENARIOSOVERVIEW OF BUDGET

Household Discretionary Income

MortgagePayment

Food + DSP + Activity Fee + Case Mgr.

Cost of R.A.

Final Total

Scenario #1$250K invest +RA stipend

$ 42,100 $ 0 $ 24,900 $ 7,200 $ 10,000

Scenario #2$125K invest + RA stipend

$ 27,000 $ 7,200 $ 24,900 $ 7,200 - $12,300

Scenario #3$125K investNo RA stipend

$ 27,000 $ 7,200 $ 24,900 $ 0 - $5,100

HOUSEHOLD DISCRETIONARY BUDGETBY THE NUMBERS

Household Food budget

Direct Service Provider for the

weekends

Activity Fee for all 4 clients

Case Manager to oversee schedules

& personality conflicts

$273 per month $125/day for 8 days = $1,000 per month

$50 per month, meant to offset the cost of activities

$9,000 per month based on $36,000 annual rate

R.A.s would be paid a stipend of $150 per month per R.A. There is an assumption that R.A.s will be year round since they are the backbone of general supervision for the people with disabilities.

HOW WE MEASURE SUCCESS IN EACH AREA

Group to measure

Measurement Tool What it measures

Parents & Families Application • Gives financial information to begin process

• Signature declares they understand/agree to housing options & finances needed to

participateParents & Families Parent Empowerment Scale To determine parent “buy-in” & motivation

Parents, Families, PWD

Arc Self-Determination Scale

To get a baseline of self-determination skills

Person with Disability

Reiss Aggression/Personality tool

To determine introvert/extrovert, aggression/passivity

Person with Disability

Work Readiness Inventory To assess existing work skills and interest area

University Student R.A. Interview worksheet Same questions that future university R.A.s are asked

University Student Leadership Awareness Scale

To gauge the level of assertiveness in difficult situations

University Student Myers-Briggs personality test

To evaluate compatibility and flexible thinking

THE ASKAre families interested in the current models?Are there more sustainable scenarios?Does the cost of the family consortium depend upon the

values of the houses and areas being sought?How many families are interested in this? How many

families could be served by this model? What would the impact be upon the disability community?

17,600 PWD live with

caregiver 60+ yrs.