(all times approximate)

11:00AM (EDT): Welcome Faye Ginsburg, PhD - President, FD Foundation

Lanie Etkind - Executive Director, FD FoundationBoaz Kotik - Israeli Familial Dysautonomia Organization

11:10AM: Clinical Update

Horacio Kaufmann, MD - Director, NYU Dysautonomia CenterBat-El Bar Aluma, MD - Pediatric Pulmonologist, Sheba Medical Center

Alex Gileles-Hillel, MD- Pediatric Pulmonologist, Hadassah University Medical CenterAlberto Palma, MD - Assistant Director, NYU Dysautonomia Center

Clinical Q&A

Lucy Norcliffe-Kaufmann, PhD (moderator)Bat-El Bar Aluma, Alex Gileles-Hillel, Horacio Kaufmann, Alberto Palma

12:30PM: Dystinguished Awards

Lucy Norcliffe-Kaufmann, PhD

12:40PM: Research UpdateAdrian Gilbert, PhD - Co-Chair, Scientific Advisory Board

Frances Leftcort, PhD - Co-Chair, Scientific Advisory Board

Lucy Norcliffe-Kaufmann, PhD - Associate Director, NYU Dysautonomia CenterSue Slaugenhaupt, PhD - Scientific Director, Mass General Research Institute

Frances Lefcort, PhD - Professor, Cell Biology and Neuroscience, Montana State University Miguel Weil, PhD - Department of Cell Research and Immunology, Tel Aviv University

Bat El Bar Aluma, MD - Pediatric Pulmonologist, Sheba Medical Center

Research Q&AAdrian Gilbert (moderator)

Frances Lefcort, Lucy Norcliffe-Kaufmann, Sue Slaugenhaupt, Miguel Weil

1:50PM: Closing RemarksLanie Etkind

SPEAKERS

FD Day 2020

Boaz KotikFaye Ginsburg

PhD

SCHEDULE

Lanie Etkind

Horacio KaufmannMD

Bat-El Bar Aluma MD

Alex Gileles-Hillel MD

Alberto PalmaMD

Lucy Norcliffe-Kaufmann PhD

Frances Leftcort PhD

Sue Slaugenhaupt PhD

Miguel WeilPhD

Adrian Gilbert PhD

Ezra KressMara ClawsonKarin BlumenfeldYehuda Blonder Beni Vaisbih