from the mission director, nhm from the joint mission ...the national leprosy eradication programme...
TRANSCRIPT
NLEP Newsletter Publication of National Leprosy Eradication Programme (NLEP) – Meghalaya.
Biannual Newsletter, Vol. I, Issue I, October 2019
From the Mission Director, NHM
Shri. Pravin Bakshi, IAS, Secretary, Health &
Family Welfare Department cum Mission
Director, NHM.
Greetings,
I am delighted to introduce the
first edition of the newsletter of
Leprosy Division of NHM, Meghalaya.
We intend to make it a regular
publication and to keep you in touch
with news and development of the
National Leprosy Eradication
Programme (NLEP) and its
implementation. I am impressed by
the progress made by NLEP division in
the last four years and we still have a
good scope for improvements.
Finally may I thank all of you
who have contributed to the
launching of the e-newsletter of NLEP
division, Meghalaya and I wish each
and every one of you the very best.
From the Joint Mission Director,
NHM, Meghalaya
Dr. L.M Pdah, Director of Health Services
(MCH&FW) cum Jt. Mission Director, NHM
Greetings,
Welcome to the first issue of e-
newsletter of NLEP division, NHM,
Meghalaya. Our goal on producing
the newsletter is to keep imparting
the latest development of NLEP
programme in the state. The NLEP
programme encountered challenges
and stigma in the community.
However, intensive and targeted
efforts through use of innovative
social mobilization helped in building
the awareness and knowledge of
community to bring down the
incidence of Leprosy in the state. I
wish the e-newsletter success in all
future publications.
From the Editor
Dr. (Mrs.) B Decruse, State Leprosy Officer
It is my privilege to state that
the National Leprosy Eradication
Programme (NLEP), Meghalaya has
taken this new initiative of launching
a newsletter. It is indeed our first
step of using newsletters as a
medium for dissemination of
information.
Newsletter is a very useful tool
to provide our reader with
information, guidelines and
innovations of the programme. We
still need to travel a long way to
reach out to the unreached.
I believe this newsletter will be very
useful for the programme. Every
effort will be made to sustain the
momentum and further broaden the
contents by inviting articles and news
updates from the districts, blocks and
facility levels.
I hope readers find this issue
informative and I look forward for
your feedback and suggestions.
NLEP Newsletter Publication of National Leprosy Eradication Programme (NLEP) – Meghalaya.
Biannual Newsletter, Vol. I, Issue I, October 2019
Contents
1. Epidemiological situation
from 2010 - 2018
(graphical)
2. Sparsh Leprosy Awareness
Campaign
3. Leprosy Case Detection
Campaign
4. Screening Camps
5. Disability Prevention &
Medical Rehabilitation
Camp
6. Training
7. Success Story
Editorial Board
Advisor – Shri. Pravin Bakshi, IAS, Secretary, H&FW
department cum Mission Director, NHM
Editor in Chief – Dr. L.M Pdah, Director of Health
Services (MCH&FW) cum Jt. Mission Director, NHM
Executive Editor – Dr. B Decruse, State Leprosy
Officer cum Programme Officer, NLEP
Editorial Board –
Dr. B Decruse, State Leprosy Officer
Dr. P Lamare, Zonal Leprosy Officer
Dr. R.R Lanong, Consultant NLEP-NE States cum NE
Coordinator, AIFO.
Dr. A.R Marak, Sr. M&HO i/c Leprosy, Ri Bhoi
Dr. H Uriah, MO i/c Leprosy, West Jaintia hills
Dr. A. Marak, MO i/c Leprosy, East Khasi hills
Dr. B.G Momin, MO i/c Leprosy, West Garo hills
Dr. R Laloo, MO i/c Leprosy, West Khasi hills
Dr. H Barman, District Leprosy Officer, East Garo hills
Dr. Jacob Marak, MO i/c Leprosy, South Garo hills
Dr. R Toi, MO i/c Leprosy, East Jaintia Hills
Dr. R.M Debnath, MO i/c Leprosy, North Garo hills
Dr. L M Marak, MO i/c Leprosy, South West Garo
hills
Dr. A Lyngdoh, MO i/c Leprosy, South West Khasi
hills
Technical Support -
Shri. B Dkhar, Statistical Assistant, O/o DHS (MI)
Smt. C.B Kynta, District Health Education Officer
Shri. K Hynniewta, Data Entry Operator, NLEP.
Epidemiological situation from 2010 - 2018
Sparsh Leprosy Awareness
Campaign
Leprosy is a chronic infectious
disease known to mankind from
ancient times and is still stigmatized
persons affected with it until these
days. The disability caused by leprosy
due to late treatment affects not only
the ability of the person affected but
also affects the entire family
particularly if the person affected is
an earning member of the family or a
child who needs to study and this is
added by stigma and discrimination
to the person affected including the
family members. To reach out to the
community on the issue of high level
of stigma attached to Leprosy and to
increase awareness about the
disease, the Central Leprosy Division
has introduced the nationwide
campaign known as Sparsh Leprosy
Awareness Campaign under NLEP on
30th January 2017 being the Anti
Leprosy Day. The campaign continues
for a forth night and the main
activities undertaken are:-
1. Messages from District Magistrate
on Leprosy
2. Appeal from Headman to the
community to end discrimination
against Persons Affected with
Leprosy
3. Undertaking of a Pledge by all
members present at the community
hall.
4. Question – answer session on
Leprosy conducted by Health
Workers (ANMs/ASHAs/MPWs)
5. Felicitation of Persons Affected by
Leprosy if available in the village
2019 is the year that the nation
commemorates the 150th birth
anniversary of the Father of the
Nation, Mahatma Gandhi i.e. 2nd
October 2019. Mahatma Gandhi has
done tremendous work to fight
against stigma associated with
Leprosy and hence Sparsh leprosy
Awareness Campaign – 2019 w.e.f
30th January 2019 – 13th February
2019 was conducted in a befitting
manner to remember the great work
of the father of the Nation. In
Meghalaya the activities conducted
were as follows:
Sparsh’s Pledge read by Deputy Commissioner,
East Khasi hills, 2019
IEC done during Anti Leprosy fortnight at
Nazareth Hospital, 2019
SLAC 2019 campaign at Nongthymmai, East
Khasi hills.
Stickers for SLAC 2019 done by East Khasi hills
and distributed to Local and private vehicles.
Role play of Mahatma Gandhi contribution to
the fight against Leprosy done at South Garo
hills, 2019
Role play of Mahatma Gandhi contribution to
the fight against Leprosy done at West Garo
hills, 2019
Reading of Pledge and IEC done at Ri Bhoi
district, 2019
SLAC 2019 campaign at West Khasi hills
Reading of Pledge during Anti Leprosy Day
(SLAC 2019) at Shantivan Rehabilitation
Centre, Nongpoh, Ri Bhoi
The activities were conducted
by the Village Health Sanitation
Committee where Medical Officers,
ANMs, MPWs, ASHAs, Anganwadi
Workers and others took active
participation. In Meghalaya, out of
6839 no. of villages, 3930 villages
conducted Sparsh Leprosy Awareness
Campaign this year. The graphical
percentage coverage for the last 3
years is shown below.
0.00%
10.00%
20.00%
30.00%
40.00%
50.00%
60.00%
2017 2018 2019
Coverage of SLAC in Meghalaya
Coverage ofSLAC
Leprosy Case
Detection
Campaign
Leprosy Case Detection
Campaign is one of the 3 pronged
strategy of NLEP for active case
detection. It is unique in its approach
as various committees are formed at
each level, i.e. National, State,
District, Block to plan and implement
the activities. Intensive IEC activities
through various media are conducted
before and during the campaign.
During the campaign the
trained teams comprising of 1 ASHA
and 1 male volunteer visited each
and every household as per micro
plan prepared for local areas and
conduct physical examination of
every person of house visited. The
teams are trained to identify suspects
and refer to Medical Officers for
confirmation. Supervision done
through identified trained field
supervisors.
In Meghalaya, LCDC was
conducted in 2 phases in 2 identified
districts, i.e. East Khasi hills and Ri
Bhoi district based on Grade II
disability (G2D) > 3% and absolute
number of G2D cases more than 2.
The 1st phase was conducted
from 12th – 27th November 2018 and
the 2nd phase was done from 6th –
23rd February 2019.
Launching of the 1st Phase of LCDC by Shri. A.L Hek, Hon’ble Minister of Health & Family
Welfare, Govt. of Meghalaya
Launching of the 2nd Phase of LCDC by Dr. L.M Pdah, Director of Health Services (MCH & FW)
cum Jt. Mission Director, NHM.
Proportion of population examined (%) in LCDC in Meghalaya
79.989
11399
0
20
40
60
80
100
120
Phase I Phase II
East Khasi
Ri Bhoi
1
358
Confirmed cases of Leprosy in Phase I - LCDC
in East Khasi hills
Confirmedcases inPhase I -LCDC
Suspectsscreened
1
232
Confirmed cases of Leprosy in Phase II - LCDC in East
Khasi hills
Confirmedcases inPhase II -LCDC
Suspectsscreened
1
602
Confirmed cases of Leprosy in Phase I - LCDC in Ri Bhoi
Confirmedcases inPhase I -LCDC
Suspectsscreened
0
170
Confirmed cases of Leprosy in Phase II - LCDC
in Ri Bhoi
Confirmedcases inPhase I -LCDC
Suspectsscreened
Screening Camp of underprivileged
children at Laitkor in collaboration
with Reach Shillong Ministry
A screening camp cum IEC was
organized by District NLEP and
supported by State NLEP and Reach
Shillong Ministry at Laitkor on 23rd of
July 2019 for the under privileged
children. The school is run by Reach
Shillong Ministries under Sarva
Shiksha Abhiyan. The programme
started at 10 am with an introductory
programme where information was
given about Hansen’s disease in a
very basic way to the children. Later
on a drawing competition was
organised for children class V and
above & for children below class V, a
question answer session was done in
a playful manner and prizes was
distributed to the winners of both
quiz and drawing competition. Also a
screening camp was organised for all
the children. In total 147 children
were screened of which 70 were
males and 77 were females. No
leprosy case was detected. The camp
was attended by Dr. (Mrs) B Decruse
(State Leprosy Officer), Dr (Mrs) P
Lamare (Zonal Leprosy officer), Dr A
Marak (I/c Dist Leprosy officer) EKH,
Mr L Syiemlieh (NMS) and other
support staff. Various screening
camps from time to time are being
organised for under privileged
children in urban Shillong.
Also in the month of 15th July 2019 a
screening camp was organised among
CRPF personal at the 67th battalion
stationed in Polo, Shillong. In total 79
personnel were screened for various
skin ailments. The programme was in
coordination with NLEP and NPCDCS
where apart from skin screening
other parameters like random blood
sugar, blood pressure and free
consultation were given.
Various screening camps from
time to time are being organised for
under privileged children as well as
for the community in urban and rural
areas of EKH.
Skin screening camp for
underprivileged children at
Nongmensong in collaboration with
Reach Shillong Ministry
A skin screening camp was held on
18/4/2019 in Umkdait, Nongmynsong
at 2:00 pm for the under privileged
children supported by Reach Shillong
Ministries. The camp was organised
by NLEP, East Khasi Hills, Shillong
supported by NLEP, Meghalaya State,
AIFO and Reach Shillong Ministries.
The camp was attended by DR R.R
Lanong (consultant AIFO), Dr. (Mrs) B
Decruse (State Leprosy Officer), Mr L
Syiemlieh (NMS) and other support
staff. In total 43 children of various
age group were screened for various
skin ailments and other diseases
including worm infestation. Of the 43
children 23 were males and 20 were
females out of which no leprosy case
was detected.
Disability Prevention & Medical
Rehabilitation Camp at Tura Leprosy
Colony
Under NLEP, the District Health
Society ,West Garo Hills in
Collaboration with AIFO, the DPMR
Camp was held on 17.5.19. at Leprosy
Colony ,Tura. This Camp was
recommended by Dr Manimozhi AIFO
during his visit to Garo Hills. Dr
Manimozhi , Dr R.R. Lanong, Dr
Denisa G. Momin (Ophthalmologist)
Dr Lucybeth Sangma ( Dermatologist
), Dr. Athen (Surgeon), Dr Inbert C.
Marak (ENT Specialist ), Shri Riknang
Sangma (Physiotherapist ), Dr.
Beterin Momin ( Medical & Health
Officer, Leprosy Colony), Smt. Vijaya
Lakshmi & team, Shri Bichitra Hajong
(Urban Leprosy Worker) Shri Biplob
Bhattacharjee (Non-Medical
Supervisor) were present in the
camp.
Eighteen people affected with leprosy
from the colony and others availed
the services of the camp. Dr
Manimozhi gave brief introductory
speech on DPMR , and motivated the
doctors to share their experiences in
their respective field of Leprosy.
necessary materials for the camp
were arranged. Dr. Manimozhi and
Dr. Lanong supervised the activities
of Ulcer care, and made it interesting
and cheerful. Some patients were
found to be hearing impaired ,some
patients were found to be having
Cataract and refractive errors There
was no cases of lepra reaction or
relapse. Post camp followed up of
patients were done and patients
with hearing impaired got hearing
aids from DDRC and one cataract
patient will be operated soon. Thank
you all.
Ulcer care training for leprosy
patients held at Shantivan Nongpoh
on the 20th May 2019
A one-day training on “Ulcer care for
leprosy patients” was held at
Shantivan Nongpoh on the 20th May
2019.The training was organised by
District Leprosy society Ri Bhoi in
collaboration with AIFO India. The
programme started with Dr. (Mrs.)
A.R.Marak Senior Medical and Health
Officer in-charge Leprosy welcoming
the participants especially the
Resource persons.
Dr.Manimozhi Consultant NLEP
started the introduction on Ulcer care
in leprosy patients and why it is
“Special”. He talked about the various
aspects of the ulcer care
management, his experience on
working with patients, what his
patients taught him, the innovation
they introduced in ulcer care. He had
emphasised a lot on the human
approach and how to bring a change
in the patient’s perception.
Dr.R.R.Lanong consultant ILEP
delivered a brief talk on Ulcer care,
the clinical reasoning and the
practical aspects of management. He
also shared his experience and
photographic evidences on how
simple instructions can drastically
change a patient’s perception
towards “self-care”
Dr. Manimozhi examined and then
demonstrated the clinical findings in
a patient with Leprosy. Smt.
Vijaylakhsmi and Shri Bishwanth both
Physiotherapist of AIFO and Shri
Shngainki Pyrbot Physiotherapist LCU
then gave a practical demonstration
on ulcer care in Leprosy
patients.Demonstration was given on
the basic aspects of Soaking-
scrapping-oiling-Dressing(SSOD).Then
it was followed by a Hands-on
approach where the participants
were allowed to demonstrate on
Leprosy Patients.
During the session several questions
were asked, and there was active
participation by all those who
attended the training. A total of
Thirty-nine (39) Participants attended
which included Five Staff Nurses,
Twenty-Four District Leprosy Staff
and Ten Staff of Shantivan Leprosy
Colony.
The training concluded with a Vote of
thanks from Dr. (Mrs.) A.R.Marak.
Medical Officer training on NLEP
2 days training of Medical Officers
and AYUSH Physician of South Garo
hills was conducted by the O/o State
Leprosy Officer and O/o District
Leprosy Office, South Garo hills in
collaboration with AIFO at the
conference hall of Baghmara Civil
hospital w.e.f 7th and 8th August 2019
where 16 Medical Officers and 6
AYUSH Physicians of South Garo hills
attended the training. The resource
persons were:
1. Dr. B Decruse, State Leprosy
Officer
2. Dr. R.R Lanong, NLEP
Consultant
3. Dr. P Lamare, Zonal Leprosy
Officer
4. Dr. Jacob B Marak, Medical
Officer i/c Leprosy, South Garo
hills
Two days training of Medical
Officers and AYUSH Physician of Ri
Bhoi district was conducted by the
O/o State Leprosy Officer and O/o
District Leprosy Office, Ri Bhoi district
in collaboration with AIFO at the
conference hall of Nongpoh Civil
hospital w.e.f 13th to 14th August
2019 where 10 Medical Officers and
12 AYUSH Physicians of Ri Bhoi
district attended the training. The
resource persons were:
1. Dr. B Decruse, State Leprosy
Officer
2. Dr. R.R Lanong, NLEP
Consultant
3. Dr. A Marak, Sr. Medical &
Health Officer i/c Leprosy , Ri
Bhoi district
4. Dr. P Lamare, Zonal Leprosy
Officer
5. Shri. S Pyrbot, Physiotherapist
Success Story I
Bringing back dignity of leprosy patient
from rejection and discrimination by the
family to acceptance after treatment and
management of ulcer
There was a suspected case of
Hansen’s disease with auto
amputation of both lower limbs
under Shella PHC. The case was
informed to Dr. A Marak, DLO, East
Khasi hills. The DLO also informed Dr.
W.D Phira, State Leprosy Consultant
and Dr. R.R Lanong, Consultant NLEP.
The DLO along with the State
Consultant and the team from East
Khasi hills went to the village on 11th
April 2017. On reaching the spot it
was found out that the suspected
person was staying in the outskirt of
the village in a tent made of bamboo
and coconut leaves. On examination
no lesion or patch was found on his
body but there was numbness and
tingling sensation in the lower limbs.
When asked about the history of his
sickness it was found out that 10
years ago he had a small cut while
working in the jungle and as time
passed by the wound became bigger
and bigger. He visited the doctors for
checkup but his condition did not
improved and later his limbs got auto
amputated.
Later he was found out by a
Health Worker during house to house
pulse polio immunization and
referred to Shella PHC. After
thorough examination by Dr. W.D
Phira and Dr. R.R Lanong, he was
advised to start MDT. MB (A) MDT
was started on the 25th April 2017 for
12 months. After proper counseling
to him and the family members, he
was advised to visit Shantivan,
Nongpoh, Ri Bhoi district for ulcer
care. But the family members
informed that they could not afford
to go to Shantivan. Then the DLO
assured that all travelling expenses
will be looked after by the office.
Then they took him to Shantivan by
the ambulance of Shella PHC. Now he
has completed his medications and
the ulcer also has improved. The DLO
lead the team to visit him at his home
after he returned back from
SHANTIVAN and found that he was
accepted back in his house and
staying with his family in the house
not in the tent anymore.
Dr. A Marak,
DLO, East Khasi hills district.
Success Story II: Success Case history
of Mr. Orland
Mr. Orland (name changed) lives in
his own house in a remote village of
Meghalaya. He is in his late seventies
and has a number of children,
grandchildren and great
grandchildren.
He was healthy till about 10 years
back when he started having tingling
and numbness of hands and feet. He
had gone to a number of Doctors and
hospitals where he was diagnosed as
having Diabetes and Hypertension for
which he was given treatment which
gave him some relief but the tingling
and numbness remained and slowly
develop deformity of his hands and
feet followed by ulcer of both the
feet.
He has gone to a District hospital but
there was no further diagnosis except
Hypertension and Diabetes. He then
consulted a quack and was under the
quack’s treatment for some time but
did not get relief. He then consulted a
doctor in a NGO hospital from where
he was referred to NEIGRIHMS and
finally diagnosed as Leprosy over and
above Hypertension and Diabetes.
He was put under MDT w.e.f. the
20th June 2016 and later referred to
the DLO and finally to the nearby PHC
to continue treatment from there
and he continued treatment from
that PHC.
A Team consisting of Consultant
NLEP, SLC, District NMS and staff
from the PHC went to review the case
in his house on the 6th March 2017.
He was found having bilateral claw
hands and bilateral planter ulcer. He
was counseled and motivated and
taught self-care. He was very
cooperative. He was given Self-care
Kit and MCR footwear. The S/N from
the PHC was given charge of the
patient and she promised to pay him
a regular visit (which she did so
regularly though the patient’s house
is more than 10 kms away from the
PHC). He was thankful to the Team
that paid a visit to his house and
taught him self-care. The Team again
reviewed the case on the 28th July
2017. It is glad to see that the healed
ulcers. When asked how the ulcers
healed, he honestly replied that “I did
nothing more and nothing less than
what you had told me to do” utilizing
the self-care kit and MCR footwear
provided. He was again provided with
fresh pack of Self-care Kit and told
him to continue self-care.
Dr. R.R Lanong,
Consultant NLEP-NE States
cum NE Coordinator, AIFO.
Orland Before Self care 06-03-2017
Orland Before Selfcare 06-03-2017
Orland After Self care 28-07-2017
Orland After Self care 28-07-2017
Online version of NLEP Newsletter is
available on
http://nrhmmeghalaya.nic.in/news
Address: Health Complex, Directorate
of Health Services, Laitumkhrah, Red
hill road, Shillong - 793003,
Meghalaya
Disclaimer: The editorial board does
not hold any responsibility for the
materials contained in this
publication, which is based on the
information available from various
sources. Reproduction of material
from the NLEP newsletter, in part or
in whole, is encouraged, as long as
credits and acknowledgement are
given.