fshd - muscular dystrophy uk...fshd between 10-20 percent of people with the condition eventually...

94,276 visited our online forum to support each other and talk about the things that matter to them 9,059 understand more about their condition after downloading info factsheets 985 cases were supported by our advocacy team Facioscapulohumeral (FSHD) muscular dystrophy is a genetic muscle-wasting condition that causes muscles to weaken and waste over time leading to increasing disability. We believe everyone living with a muscle-wasting condition should have what they need to live full and independent lives. Here are some of the ways we supported people during 2019/20: FSHD Between 10-20 percent of people with the condition eventually require a wheelchair FSHD mostly causes weakness in muscles of the face, shoulders and upper arms. However, weakness in muscles of the trunk, hips and legs can also develop over time HERE FOR YOU Several generations of a family are often affected by the condition 3,225 requests were made for support through our helpline and clinics 81,764 new users joined our TalkMD forum www.musculardystrophyuk.org Muscular Dystrophy UK, 61A Great Suffolk Street, London SE1 0BU Registered Charity No. 205395 and Registered Scottish Charity No. SC039445 FSHD muscle weakness is often asymmetrical (one side of body affected more than other) Physiotherapists, occupational therapists and podiatrists can help people to live well with the condition There is currently no treatment available targeting the underlying genetic causes of FSHD although there is much research taking place Severity and age of onset are variable for people with FSHD AWARENESS DAY 20 JUNE 2020 THERE ARE ABOUT 2,500 PEOPLE IN THE UK LIVING WITH FSHD

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94,276 visited our online

forum to support each other and talk about

the things that matter to them

9,059 understand

more about their condition after

downloading info factsheets

985 cases were supported by our advocacy team

Facioscapulohumeral (FSHD) muscular dystrophy is a genetic muscle-wasting condition that causes muscles to weaken and waste over

time leading to increasing disability.

We believe everyone living with a muscle-wasting condition should have what they need to livefull and independent lives. Here are some of the ways we supported people during 2019/20:

FSHD

Between 10-20 percent of people with the condition eventually require a wheelchair

FSHD mostly causes weakness in muscles of the face, shoulders and upper arms. However, weakness

in muscles of the trunk, hips and legs can also

develop over time

HERE FOR YOU

Several generations of a family are often affected by the condition

3,225requests were made for support through

our helpline and clinics

81,764 new users joined

our TalkMD forum

www.musculardystrophyuk.org

Muscular Dystrophy UK, 61A Great Suffolk Street, London SE1 0BU

Registered Charity No. 205395 and Registered Scottish Charity No. SC039445

FSHD muscle weakness is often asymmetrical (one side of body affected more than other)

Physiotherapists, occupational therapists and podiatrists can help people to live well with the condition

There is currently no treatment available targeting the

underlying genetic causes of FSHD although there is

much research taking place

Severity and age of onset are variable for people with FSHD

AWARENESS DAY 20 JUNE 2020

THERE ARE ABOUT 2,500 PEOPLE IN THE UK LIVING WITH FSHD