ftci london: hiv asset and gap analysis
TRANSCRIPT
Contact information: [email protected]
FTCI London: HIV Asset and Gap Analysis Presentation by Pathway Analytics
13 July 2018
The HIV Asset & Gap Analysis (AGA) will form a key input into the FTCi strategic plan for London HIV
• The purpose of the Asset & Gap Analysis is to work with all key stakeholders across London to better understand the following:
1. Existing HIV services and activities (assets) already in place across London in 2018
2. Highlight failures and weak points (gaps) in the current HIV London ‘eco-system’
3. Identify ‘lost’ communities who are falling through these gaps
• An essential part of this work is capturing feedback from a wide range of stakeholders on what they think is & isn’t working in London HIV
• In this next AGA session today, we would like to invite you to help us to think about all our HIV-related assets as well as potential gaps in the London HIV ‘eco-system’ è to help us ‘peel back the lid’ and surface the amazing support activities that are being delivered on the ground by front-line staff, volunteers and PLHIV, as well as think about some of the failings in the system that may be partially - or totally - hidden from view
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A brief introduction to the Pathway Analytics team
• As a team, we are passionate about the field of Sexual Health and HIV having worked in this area – both individually and together - for many years. We bring together complementary skillsets:
– Bella Grant: health strategist & economist with extensive experience in funding, pathway redesign and health economics projects across all fields of SH & HIV.
– Vikki Pearce: experienced NHS manager with a background in service development & commissioning, 20+ years in SH and expertise in service redesign and stakeholder mgt.
– Charles Hewitt: specialist in data analytics, complex modelling & design of web-based tools
• We are excited about the prospect of helping the London Fast Track City initiative develop a ‘Towards Zero HIV’ strategy for London and view the AGA work as a key input: knowing what is in place, what is working and what is not working is a critical basis for the formulation of this HIV strategy.
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October June July August September
As you may already know, the timelines to conduct the FTCi AGA work are extremely tight…
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Participation in workshops, community & stakeholder events
Final Report for FTCi Leadership Group: • Summary of research findings • Overview of identified assets
• Case studies • Ax. of gaps as measured vs. best practice • Ax. of opportunities to reduce inequalities • Themes for consideration by the Steering
Group
Draft findings to include: • Asset map(s)
• Summary of key themes from interviews with HIV Champions
& subject experts Incorporation of feedback
on draft findings to be presented at FTCi Leadership Group
Presentation to FTCI Stakeholder Engagement Event incl:
• Intro to AGA: project remit, process, outputs
• Framework to facilitate best/poor practice & pathway gap
discussion
Attend project kick-off meeting at weekly FTCI
Kickstart Group
Key AGA Outputs vs. High-Level Timeline
Images for illustration purposes only, stock phots posed by models
Placing Londoners at the heart of the London HIV asset and gap review for the Fast Track Cities initiative for London HIV
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“As the spouse of a PLHIV, are there services I can access for help & info?”
“As a Londoner living without HIV, do I have access to information,
condoms, PrEP, PEP to support me?”
“Am I being listened to, is my voice being heard? Do I
have a voice?”
“As an YP, are there services in place to
support my transition into adult HIV services?”
“Are my HIV-related clinical AND non-clinical
needs being met?”
“Are my basic needs being met to enable me
to live well with HIV?”
“As a PLHIV over 60, am I able to access broader
services without experiencing stigma/ lack
of joined-up support?”
“Are there Mental Health services that I can
access?”
“Is it easy to self-test for HIV – are services and
support in place?”
“ What untapped strengths could I use to give back to
support others?”
“How do I overcome stigma within my
community?”
Images for illustration purposes only, stock phots posed by models
Placing Londoners at the heart of the London HIV asset and gap review for the Fast Track Cities initiative for London HIV
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“As the spouse of a PLHIV, are there services I can access for help & info?”
“As a Londoner living without HIV, do I have access to information,
condoms, PrEP, PEP to support me?”
“Am I being listened to, is my voice being heard? Do I
have a voice?”
“As an YP, are there services in place to
support my transition into adult HIV services?”
“Are my HIV-related clinical AND non-clinical
needs being met?”
“Are my basic needs being met to enable me
to live well with HIV?”
“As a PLHIV over 60, am I able to access broader
services without experiencing stigma/ lack
of joined-up support?”
“Are there Mental Health services that I can
access?”
“Is it easy to self-test for HIV – are services and
support in place?”
“ What untapped strengths could I use to give back to
support others?”
“How do I overcome stigma within my
community?”
“The challenge in London will be to look beneath these figures and
ensure that there are no excluded communities which are not
benefiting from this progress. We will be unable to make real
progress without also eliminating HIV stigma and discrimination,
which permeates all areas of life for those at risk of and living with HIV.”
Images for illustration purposes only, stock phots posed by models
Non-Londoners
39k Londoners living with HIV
8.7m Londoners living without
HIV
HIV affected communities
HIV affected families
Vulnerable Londoners
PIWD
Homeless
Lost Voices
?k undiag./ not in care/
not VS
33k diagnosed, in care, VS
c.4k undiagnosed
1k diagnosed, not in care
1k diagnosed, in care w/ active virus
9k diagnosed, in care, VS
What are Londoner’s HIV-related needs? Who is a ‘Londoner’ in the context of the HIV ‘eco-system’?
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Londoners living without of HIV
Londoners living with HIV which is undiagnosed
Londoners living with HIV, diagnosed but not
in care
Londoners living with HIV, diagnosed, in care with active
virus
Londoners living with HIV in care and virally
suppressed
Non-Londoners living with & without
HIV
Assets: what do we mean by London’s HIV Assets? Thinking about ‘Assets’ as services and support across the City – here are some ideas…
8 Images for illustration purposes only, stock phots posed by models
Condom Distribution
GUM/ HIV clinics
Specialist Nurses
SH/ HIV Networks
Church Groups
Drugs / Consumables
Think Tanks
P2P Networks
Online
Welfare Services
PrEP/ PEP
Non-HIV Hospital
Therapists Community/ Outreach
Volunteers
NGOs
Primary Care
Social Care
Mental Health
Education
Media
Clinical Research
London Mayor
Pan Ldn Networks
Commissioners
Clubs
Dating Apps
Arts Groups
FTCi
Theatres
Other?
Other? Other?
Other?
Asset Working Session Steps
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1. Brainstorm Assets (post-it notes)
2. Discuss & Place on Asset Posters (col 1)
3. Discuss Evidence/ Examples (col 2)
4. Add Contact Details (col 3)
Individually
Table Discussion
Gaps: what do we mean by London’s HIV Gaps? Thinking about gaps as unmet needs…
• Different needs for different cohorts, not straight-forward:
– Needs fully met
– Needs partially met
– Needs not met
• Assets may be targeted in specific geographical areas and need to be spread more widely
• Assets may be targeted at specific groups of people and need to have a wider reach
• Red flags: what is not working?
• ‘Lost Voices’: are they lost or just unheard?
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Gap Working Session Steps
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1. Brainstorm Gaps (post-it notes)
2. Discuss & Place on Gap Posters (col 1)
3. Discuss Evidence/ Examples (col 2)
4. Add Contact Details (col 3)
Individually
Table Discussion
Shifting our view forward to the UN Aids Strategic Aims for 2030: where is London today?
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0% 0% 0%
Stigma New Infections Deaths UNAIDS STRATEGIC AIMS London 2030? 100%
PLHIV Well
H M L
Stigma New Infections Deaths
M
PLHIV Well How is London currently doing?
Positive Voices Survey (PHE 2016/ 2017)
Evidence?*
Cause of deaths among people with HIV (NHSE 2016)
New Infections data (PHE 2016) Late Diagnosis data
(PHE 2016)
Qualitative
Quantitative
What assets/ good practices do you know about?
For example/ evidence
Who to contact to find out more?
LONDON’S AMBITIONS
Stigma New
Infections
Deaths PLHIV Well
Example/ Evidence Contact
Example/ Evidence Contact
H/M/L H/M/L
H/M/L
Can you rate the impact of this asset on
achieving FTCi aims?
H/M/L
H/M/L H/M/L
H/M/L H/M/L
Rating Assets Against The Achievement of FTCi Strategic Aims for 2030
0% 0% 0% 100%
ASSET
ASSET
Rating Gaps Against The Achievement of FTCi Strategic Aims for 2030
What gaps/ challenges do you know about?
For example/ evidence
Who to contact to find out more?
LONDON’S AMBITIONS
Stigma New
Infections
Deaths PLHIV Well
Example/Evidence Contact
Example/Evidence Contact
Can you rate the impact of this Gap on
achieving FTCi aims?
Moderately detrimental
Highly detrimental
Critical
0% 0% 0% 100%
GAP
GAP
Thank You!
• A BIG thank to you all for your time today to discuss the asset & gap analysis for London HIV FTCi
• Next steps for the asset & gap analysis : working with a wide range of HIV stakeholders to build up a comprehensive picture of HIV services and support in place in 2018 and to understand the gaps better – do contact us if you would like to take part via our online survey:
Link to the survey: www.pathwayanalytics.com/FTCi - select AGA Survey (in drop-down box)
• Next steps for the Lost Voices case studies : identify Londoners/ representatives from vulnerable groups and set up workshops – do contact us if you would like to be involved:
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