Planning for Hope • P O. Box 1732 • Steubenv e, OH 43952 • 1-888-746-2972

”People fear losing cognitive abilities more than death”

Says Sara Qualls, Psychologist, UCCS, in documentary “Planning for Hope”. We have been attending FTD

conferences since my diagnosis in 2003. We have been impressed by those of you researching FTD with such

passion. Thank you for all of your work. Below is a link to view “Planning for Hope” It will be aired for 2n on

Public Television; see our web site for scheduling. Feel free to use this copy with patients, families or support

groups. My legacy, the film’s mission, will be to get people with just an inkling that something is different

with their thinking to talk to their doctors. We need to listen to our bodies, and then the doctors need to

listen to and believe us. Doctors often say that we should wait a year to see if there is further decline.

Waiting for symptoms to get worse has huge risks. People can get fired, lose their homes, and families can

be torn apart. That is not to say the researchers are wrong, the denial is just too strong. My passion, with the

film completed, is to survey patients to find the very, very early signs of this terrible disease. We hope to help

patients find ways to compensate longer and will help keeping them from financial disaster.

Dr. Val Lowe, Radiologist, Mayo Clinic Dr Virginia Lee, Professor and Researcher University of Pennsylvania

”Planning for Hope” captures some of the most brilliant and passionate researchers exploring early

diagnoses for this rare disease. Frontotemporal Disease or Dementia (FTD) has been misdiagnosed as early-

on-set Alzheimer’s and other neurodegenerative diseases. People as early as their 40’s, at the peak of their

careers, and in the prime of their lives become devastated.

In this poignant documentary, families have stepped forward

to share their heart-wrenching stories of perpetual grieving

and caring for their loved ones amidst financial struggles.

Professionals discuss Financial and Estate planning for

FTD victims and their families. Today, there is no single

known cause, treatment or cure. However, the film

encourages hope with science moving at such a fast pace. See free links below- just hit Ctrl Click on them:

Dr Bradley Boeve, Mayo Clinic and patient Susan Grant

PBS Airing Dates-Baby Boomers fear losing Cognitive Ability more than Death

http://www.causes.com/causes/784538-pledge-find-out-if-you-are-at-risk-for-frontotemporal-disease-dementia

“Planning for Hope-Living with Frontotemporal Disease” documentary http:www.youtube.com/user/FTDPlanningForHope

“Living with Frontotemporal Disease” (Ebook) http://www.slideshare/susanleegrant/

To Buy DVD for families, friends and local docs. Website: ftdplanningforhope.com

If you are diagnosis of FTD, please consider taking our survey http://surveymonkey.com/s/earlysignsftd- pw:ftdearlysigns

Susan Grant, Cindy Dilks, and Dr. Jim Coyle-Executive Producers and IMS Productions. All Rights Reserved 2013 Susan Grant