fundraising and social media at cystic fibrosis ireland
DESCRIPTION
Fundraising and social media at Cystic Fibrosis IrelandTRANSCRIPT
FUNDRAISING & SOCIAL MEDIADecember 4, 2014
Maria Caldwell
CYSTIC FIBROSIS IRELAND
• Established in 1963 by a group of families who
had children diagnosed with CF
• Today - 23 branches throughout Ireland, led by
volunteers, supported by a National Office in Dublin (11
+ 2)
• What we do:
• Provide funding towards developing dedicated facilities
• Fund Exercise, Transplant and Fertility Grants for PWCF
• Funding for medical and scientific research
• Provide advice, information and advocacy services for
PWCF
• Increase public awareness about CF
CYSTIC FIBROSIS IRELAND
• Recent success that has been led & driven by CFI
include
• the completion of the St Vincents CF Unit
• the introduction of CF in new-born screening (heel-
prick test);
• lobbying the government to cover the cost of the life
changing drug Kalydeco (covering approx 10% of
CF population in Ireland)
Receives NO core state funding, and CFI are
completely reliant on voluntary donations from the
public
So, what is CF??...• An inherited chronic disease that primarily affects
the lungs and digestive system.
• A defective gene and its protein product cause the body to
produce unusually thick, sticky mucus that:
• clogs the lungs and leads to life-threatening lung
infections
• obstructs the pancreas and stops natural enzymes from
helping the body break down and absorb food.
• Ireland has the highest incidence (per head of population)
of CF in the world - approx. 1200 people with CF in Ireland
• The impact of CF varies - there are some people with CF
who live until their teens and others that live in to their 50’s.
• 1 in 19 Irish people are said to 'carry' the altered gene that
causes Cystic Fibrosis.
CFI & Social Media
LINKED IN
YOU TUBE
CFI & Social Media
• Building Community
• Advocacy & Information
• Fundraising
Social Media & Fundraising
• Mostly use Facebook
• Donor / Fundraiser Recruitment
• Sharing volunteers & our own FR
events
• Acknowledgement - saying thanks
Social Media & Fundraising
• 8200+ likes
• PWCF & their family
• Friends of PWCF
• PWCF worldwide
• Supporters
• Fundraisers & volunteers
Facebook - Recruitment
2 big drives
annually - Women’s
Mini Marathon
(1000+) & Dublin
Marathon (50+)
Facebook - advertising
• Using Boost Post?
Worth it for larger campaigns; but not
necessary all the time
• Smaller once-off events
Sharing pictures from past events; past
participants
Sharing is
caring!!
Facebook - Acknowledgement
• Saying THANK YOU!
Public acknowledgement
Make it personal
Share supporter stories
Public & Personal…
Thanksgiving…
"As today is Thanksgiving Day, everyone here at CF Ireland would like to say a massive THANK YOU to all our friends and supporters out there who contribute in any way to helping us help people with CF and their families.We are extremely grateful and look forward to your continued support in the future"
Acknowledgement & Call to Action
Acknowledgement & Call to Action
Why we think it works
Social media, in particular Facebook is an important tool in our toolbox:
Building loyalty amongst donors & supporters
Being seen as a trusted organization that values supporters & their efforts
Its not solely about the euro value to each like or comment – it’s about building relationships
Tweet…. Tweet …RT….
• 2000+ followers
• PWCF & their family
• Friends of PWCF
• PWCF worldwide
• Fundraisers & volunteers
• ‘Slebs!
Tweets… hashtags…
Asks & THANKS!!!
Facebook – The Social Network
Remember – it is a NETWORK!
Research & Reach out! Be brave
Look at your followers & facebook
friends – page & personal
Who interacts a lot?
Who has a lot of likes / followers?
Who is an influencer?
PDF4CF – our story!
PDF4CF… A Facebook success
story….
Pat Divilly, Personal
Trainer & Owner of Pat Divilly Fitness (PDF)
PDF Facebook page:120k+ Likes!
PDF4CF…
530 people at Tough Mudder
€160,000 raised for CF
THANK YOU
Questions?