g rowing o lder w ith a d isability (gowd) introductory plenary : international perspectives on the...
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Growing Older With A Disability (GOWD)INTRODUCTORY PLENARY:
International Perspectives on the Rights of Persons with Disability and Older Adults – Implications for Aging
“The best national programs
protecting the rights
of persons aging with disabilities”
Jerome BickenbachSwiss Paraplegic Research, Switzerland
Toronto, June 6, 2011
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1. Strangely absent alliance between disability and ageing
2.The barriers to alliance, and removing them
3.The universality of disability
4. National Strategy
5.Success factors for a national disability and ageing strategy
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Strangely absent alliance:people with disabilities and the elderly
What they have in common
The common strategic value of alliance
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Strangely absent alliance:people with disabilities and the elderly
‟ Ageing Issues ” ‟ Disability Issues”
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Diagnosis
Elderly:• Misconceptions about disability• Negative attitudes about disability …shared by the elderly
People with Disabilities:
• Focus on ‟ adult ” participation issues (e.g. employment)• Negative attitudes about elderly …shared by people with disabilities
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International Classification of Functioning, Disability and Health (ICF)
Conception of Disability
universalismCommon human condition, that is, ageing with and into disability
Solution
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Ageing with and into disability
a
Solution:
ICF‘s CONCEPTION OF DISABILITY
Interaction between person‘s health state and environment
Functioning domains
Universal human condition
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Ageing with and into disability
longitudinal variation
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Ageing Trajectories
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The functioning perspective on ageing
The universality of disability
The priority of functioning
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The Universality of Disability
Human condition: the grounding of the ‘normal‘
Human situation: the normality of dependence and vulnerability
Human diversity: awareness of difference
CONSILIENCE OF SCIENCE AND POLITICSthe most robust basis for advocacy
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The Priority of Functioning
AGEING: processes of functioning change
Time is a vector of both
Enhancement
Decline
ALLIANCE OF DISABILITY AND AGEINGthe most successful basis for advocacy
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Political significance of the Universality and Priority of Functioning and Disability
Article 3 - General principles
The principles of the present Convention shall be:
a. Respect for inherent dignity, individual autonomy including the freedom to make one’s own choices, and independence of persons;
b. Non-discrimination; c. Full and effective participation and inclusion in society; d. Respect for difference and acceptance of persons with disabilities as part of
human diversity and humanity; e. Equality of opportunity; f. Accessibility;
Convention on the Rights of Persons with Disabilities
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Moving from ‟National Program” to
‟National Strategy ”
The Needed Alliance between Disability and Ageing
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Optimally:
NOT a national Disability & Ageing strategy
National Policy Strategy for people
National Strategy
TRUE MAINSTREAMING
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Practically:
Multi-domain(Health, transportation, housing, employment, education, communications…)
Integrated
Coherent
Strategic (mainstreaming)
National Strategy
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LeadershipFrom government, state and agency actors . . . “Learning organizations”
“ …organizations where people continually expand their capacity to create the results they truly desire, where new and expansive patterns of thinking are nurtured, where collective aspiration is set free, and where people are continually learning to see the whole together. ” (Senge 1990: 3)
Success Criteria for National Strategies
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ParticipationOf persons with disabilities and elderly
“Beyond consultation” to active involvement in implementing and monitoring the strategy
“Participation building” creating opportunities to further the leadership skills of people to meaningfully participate in implementation
Success Criteria for National Strategies
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Legal RequirementsIn legislation creating and enforcing strategy
“Manditory obligations” strategy creates top-down duties that are precise and enforceable, while maintaining flexibility
“Entitlement funding” legally reinforced budget to prevent debilitating flucuation in funding
Success Criteria for National Strategies
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Transparency In reporting implementation progress, barriers encountered and strategies to overcome them
“Accountability” for course correction and implementation best practice
Success Criteria for National Strategies
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Mainstreaming objective Ensuring that all implementation tools serve both short-term strategic goals and long-term mainstreaming objectives “Universal design policy” policy for all people, flexible to their condition
e.g. transitioning for national strategy for disability & ageing in transportion to national stategy for transportation.
Success Criteria for National Strategies
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Monitoring mechanism Tracking implementation goals and timelines by independent monitoring to ensure that goals are realistic, realizable, and progressive realized
“Strategic indicators” indicators developed specifically for the integrated strategy, responsive to overall mainstreaming objective
“Dedicated data sources” entrenched sources of relevant, disaggregated population data – census, longitudinal population survey, social and economic data streams
Success Criteria for National Strategies
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The best national strategy for protecting the rights of persons aging with disabilities
Leadership “Learning organizations”
Participation “Beyond consultation” “Participation building”
Legal Requirements “Manditory obligations” “Entitlement funding”
Transparency “Accountability”
Mainstreaming objective “Universal design policy”
Monitoring mechanism “Strategic indicators” “Dedicated data sources”