gateway connection - gateway hemophilia€¦ · gateway connection alendar of gha upoming events...

Summer 2017

GATEWAY

CONNECTION

CALENDAR OF UPCOMING EVENTS

September 16, 23, 30 Inspiring Shots Adult Golf Clinic, Quail Creek 25 Tee Off for Hemophilia The Legends-Eureka, MO

October 1 Membership Meeting and Cardinals Baseball game

November 4 Trivia Night The Pavilion at Lemay

December 17 GHA Holiday Party Magic House

May 5 Hemophilia Walk Forest Park

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WWW.GATEWAYHEMOPHILA.ORG

GHA’s 27th Annual Tee off 4 Hemophilia

Golf Tournament is coming soon!

When: September 25, 2017 Where: The Legends Country Club 625 Legends Parkway, Eureka, MO 63025

REGISTRATION DEADLINE IS SEPTEMBER 11! Join us at The Legends Country Club, a Robert Trent Jones, Sr. designed course, for our 27th Annual Tee off 4 Hemophilia Golf Tournament! This charity event provides crucial funding necessary to support GHA’s overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. In addition to a wonderful day of golf at a premier facility, we invite you to participate in our special contests, raffles, and both our silent and live auctions that will take place the day of the tournament. This year’s hole-in-one contest is sponsored by Mercedes-Benz of St. Louis and lunch will be provided by Pappy’s Smokehouse.

For more information and to register for this event, please visit www.gatewayhemophilia.org/events/tee-off-4-hemophilia/

Gateway Connection

is published by

Gateway Hemophilia Association

4976 Eichelberger St. St. Louis, MO 63109

314-482-5973 gatewayhemophilia.org

Email us at [email protected]

BOARD OF DIRECTORS

President Anne Parrott

Vice President Chris Schneider

Treasurer James Addie

Secretary Stephanie Bauman

John Carney Jim Causey

Tremika Conway Liz LaFlamme

Kari Moellenhoff Maria Mohler Scott Putnam Steven Staats

INDUSTRY ADVISORY

CHAIRS John Carleton Jessica Hurtig

EXECUTIVE DIRECTOR

Bridget Tyrey

COMMUNICATIONS AND PROGRAM MANAGER

Jennifer McNamee

2 GATEWAY CONNECTIONS SUMMER 2017

2017 Youth Golf Program

GHA’s free summer youth golf program, sponsored by CSL Behring, kicked off on May 25, 2017 with a BBQ and presentation by golf pro Perry Parker at Quail Creek Golf Club. Following dinner, the kids practiced their swing with the help of Perry and

program leader Luis Aguayo. As a “Green Light” sport, golf is one of the National Hemophilia Foundation’s approved sports for children with bleeding disorders.

The youth golf program continued twice a week for 4 weeks at Quail Creek Golf Club and featured lessons on putting, chipping, driving, and body alignment.

Participants in GHA’s 2017 youth golf program were also eligible to apply to CSL Behring’s Gettin’ in the Game Junior National Championship, taking place in Phoenix, AZ from November 3-5, 2017. This event includes educational sessions for parents and caregivers, clinics for kids, and a chance for kids to compete against their peers from around the country.

Special thanks to CSL Behring, Quail Creek Golf Club, Perry Parker, and youth golf leaders Luis Aguayo and Brent Miller.

Youth golfers showing their strength with

Luis Aguayo, Perry Parker, and GHA

Executive Director Bridget Tyrey

4 GATEWAY CONNECTIONS SUMMER 2017 SUMMER 2017 GATEWAY CONNECTIONS 3

SUMMER 2017 GATEWAY CONNECTIONS 5

The U.S. Food and Drug Administration (FDA) has approved expanded labeling for Epclusa®, a combination therapy for adults with chronic hepatitis C viral (HCV) infection. Manufactured by Gilead Sciences, Inc., Epclusa® encompasses two HCV therapies (Sofosbuvir/Velpatasvir) in a fixed-dose, orally administered tablet. The therapy first received FDA approval in June 2016 with an indication for all six major genotypes of the virus in patients with chronic HCV, both with and without cirrhosis. The expanded labeling will now also include patients co-infected with HIV.

The expanded FDA approval was based on data from the phase 3 AS-TRAL-5 study designed to evaluate 12 weeks of treatment with Epclusa® in 106 subjects with genotype 1-4 HCV infection who were co-infected with HIV and on stable antiretroviral therapy. The data showed that 95% of these patients (101/106) reached a sustained virological response by exhibiting undetectable hepatitis viral loads 12 weeks after completing therapy.

“HCV co-infection remains a major cause of morbidity in HIV-infected individuals. With this expanded use, Epclusa provides co-infected patients with a much needed one-pill-a-day regimen that works across all HCV genotypes and is compatible with widely-used antiretroviral regimens,” said David Wyles, MD, Chief, Division of Infectious Disease, Denver Health Medical Center; Associate Professor of Medicine, University of Colorado School of Medicine. “With Epclusa, physicians have an important new treatment option for their HCV/HIV co-infected patients.”

The updated label for Epclusa® also includes an FDA-imposed “boxed warning” specific to the risk of hepatitis B viral (HBV) reactivation in patients who had been co-infected with HCV/HBV. The warning advises that all patients with evidence of current or prior HBV infection should be screened prior to initiating treatment with Epclusa®.

The boxed warning coincided with an FDA safety announcement issued in October 2016 about the risk of HBV becoming an active infection again in any patient who has a current or previous infection with HBV and is treated with certain direct-acting antiviral (DAA) medicines (including Epclusa®) for HCV. The impetus for the warning were a handful of cases of HBV reactivation in patients treated with DAA drugs, resulting in serious liver problems or death.

The National Hemophilia Foundation’s (NHF) Medical and Scientific Advisory Council has also issued a pair of recommendations relevant to HCV treatment and screening. Access these documents on the NHF website:

MASAC Recommendations on Treatment of Hepatitis C in Individuals with Hemophilia and Other Bleeding Disorders

MASAC Recommendations on Screening for Development of Hepatocellular Cancer in Patients with Hepatitis C

Source: Gilead press release dated August 1, 2017

FDA Expands Labeling for Epclusa® to Include Co-Infected Patients with HCV/HIV and Warning for HBV Reactivation

For more info contact:

Bridget Tyrey: [email protected] or

314-482-5973

Mandatory Pre-hike meeting September 9, 2017 at 3:00pm after the GHA BBQ

https://www.fda.gov/downloads/Drugs/DrugSafety/UCM523499.pdf

https://www.fda.gov/downloads/Drugs/DrugSafety/UCM523499.pdf

https://www.hemophilia.org/Researchers-Healthcare-Providers/Medical-and-Scientific-Advisory-Council-MASAC/MASAC-Recommendations/MASAC-Recommendations-for-the-Treatment-of-Chronic-HCV-Infection-in-Individuals-with-Hemophilia-and-Other-Bleeding-Disorders

https://www.hemophilia.org/Researchers-Healthcare-Providers/Medical-and-Scientific-Advisory-Council-MASAC/MASAC-Recommendations/MASAC-Recommendations-for-the-Treatment-of-Chronic-HCV-Infection-in-Individuals-with-Hemophilia-and-Other-Bleeding-Disorders

https://www.hemophilia.org/Researchers-Healthcare-Providers/Medical-and-Scientific-Advisory-Council-MASAC/MASAC-Recommendations/MASAC-Recommendations-on-Screening-for-Development-of-Hepatocellular-Cancer-in-Patients-with-Hepatitis-C

https://www.hemophilia.org/Researchers-Healthcare-Providers/Medical-and-Scientific-Advisory-Council-MASAC/MASAC-Recommendations/MASAC-Recommendations-on-Screening-for-Development-of-Hepatocellular-Cancer-in-Patients-with-Hepatitis-C

2017 TRIVIA NIGHT

FUNDRAISER

When: November 4, 2017

Where: The Pavilion at Lemay

305 Gregg Rd

St. Louis, MO 63125

Time: 6:00 p.m. - Doors open

7:00 p.m. - Questions begin

Cost: $200 per table of 8

Reserve your table now at www.gatewayhemophilia.org


GHA HAS JOINED THE ESCRIP

PROGRAM AT SCHNUCKS!

GHA gets $$ every time you shop!

There’s no cost to you!

1. Pick up a free Escrip card at your local Schnucks

2. Visit escrip.com to enroll

3. Give the cashier your Escrip card at checkout

IT’S THAT EASY!!

The National Hemophilia Foundation and Hemophilia Federation of America have partnered with the National AIDS Memorial Grove to provide the hemophilia community with the first permanent memorial honoring the tragedy of HIV/AIDS in the hemophilia community. This memorial will give family members a place to remember their loved ones and will educate visitors from around the world about the devastation caused by HIV/AIDS to the hemophilia community.

http://www.aidsmemorial.org/news/hemophilia/

http://www.aidsmemorial.org/news/hemophilia/

_ GATEWAY CONNECTIONS SPRING 2017 SUMMER 2017 GATEWAY CONNECTIONS 11

GHA’s 21st Annual Family Education Weekend was held July 21-23, 2017 at the DoubleTree Chesterfield Hotel in Chesterfield, Missouri. Our largest FEW to date brought together 67 affected families, 46 industry members, and numerous volunteers and speakers, totaling 270 individuals who came together for a weekend of education, community, and fun.

Friday began with FEW’s first Advocacy Pre-Con, where GHA ambassadors sat down with GHA’s Executive Director, Joy Krieger, Executive Director of the Asthma & Allergy Foundation of America, and Deema Tarazi of the Hemophilia Federation of America to discuss legislation currently affecting the bleeding disorders community and ways to advocate for our community with legislators at a state and federal level. The advocacy pre-con was sponsored by CSL Behring.

That evening, attendees were welcomed by Bridget Tyrey and the GHA Board of Directors to the “Meet Your Board” and Major Donor Recognition Reception. At the reception, major donors from 2016 were recognized for their support and families explored the industry exhibit hall while enjoying drinks and appetizers. Thank you again to our 2016 Major Donors: Kitty Bauer, Jake & Stephanie Bauman, John & Suzanne Carney, Tony & Danielle Flores, Tom Guignon, Michael & Kristina Klein, Kory Kleppe, Paula Kurlowski, Andrea Metcalf, Brent Miller, William & Marian Miller, Michelle Parmentier, Dirk & Trudy Stringer, Chase Park Plaza, Colburn-Keenan Foundation, Grandma’s Cookies, JB Marine Services, Inc., Kohl’s, Midland Optical, MIDSCI, Scottrade, Smith Law Offices, LLC, Swink, Fiehler, & Co., Technicote Inc., and Winter Technologies.

Saturday morning began with a new presentation, “Products & Services on the Market”, given by representatives from 8 manufacturer companies, and moderated by Dr. Elaine Majerus. There were 35 breakout sessions throughout the weekend. Thank you to the following speakers/facilitators, who shared their expertise in a range of subjects with our members: Bill Berger, MS, MSW, Willow Beseda, Dr. Morey Blinder, John Carney, Dave Decker, Ivan Giron, Joy B. Krieger, Dr. Vanessa Lanier, Dr. Elaine Majerus, Cazandra Campos-McDonald, Anne Parrott, Abigail Plumley, RN, Dr. John Puetz,

21st Annual Family Education Weekend – “Bleeding Disorders in Our World” Roy Pura, Dawn Rotellini, Bob Sander, Darlene Shelton, Trudy Stringer, Deema Tarazi, Mary Kay Thrower, BS, RN, Bridget Tyrey, Carl Weixler, and Dr. Michael Zolotnisky.

At several times throughout the day, community members could also visit our Infusion Suite to learn about self-infusion from one of the wonderful infusion nurses who volunteered their time and expertise at FEW. Thank you to nurses Peggy Devoy, RN, BSN, CRNI, Lydia Johnson, RN, BSN, Kathy Logan, RN, BSN, CRNI, Sue Pardeshi, RN, BSN, and Becky Toman, RN, BSN, CRNI.

While the adults were busy enjoying the breakout sessions, the kids and teens had their own programs to participate in. Children age 12 and under enjoyed a fun-filled weekend full of activities tied in with our theme of “Bleeding Disorders in Our World.” For a full day on Saturday and the morning on Sunday, kids were treated to a variety of adventures “around the world” created by GHA board member, Darlene Shelton. This was supported by a team of volunteers: Danny Shelton, James & Sandy Addie, Pam Carleton, Judy Bagato, Rylie, Brett, & Alyssa Frizzell, Selena Flannigan, Tesa Martin, Travis Probst, Hanna Smith, Celina, Kari Moellenhoff, Kim Pustinger, and educators from The Humane Society of Missouri. Thank you to every one of these amazing volunteers.

GHA Advocacy Ambassadors

Kids learning in the Infusion Suite

Daycare Activities

cont’d on p12


My Life, Our Future is a nationwide campaign for progress in hemophilia. Leaders in our community have come together to offer free genotyping so that participants may gain a deeper understanding of their hemophilia today, while helping to advance the breakthrough treatments of tomorrow.

Testing for MLOF will be ending December 31, 2017. Contact an HTC to schedule your genetic screening before the deadline. The focus of the program is now shifting, as planned, to the utilization of the MLOF Research Repository. The MLOF Research Repository is now ready to support research and analysis to benefit the care of people with hemophilia, including carriers/women with factor deficiencies.

The teens participated in the “Teen Track” led by Dan and Kristin Shelton. The teens’ breakout sessions included Advocacy in the Streets and Kinesio Taping, followed by a scavenger hunt at the Taubman Prestige Outlet Mall, swimming, and a Teen Lounge.

Thank you to the following volunteers for making the “Teen Track” a success: Dan and Kristin Shelton, Deema Tarazi, Josh Swanson, Tony Flores, Danielle Flores, Scott Putnam, and Steve and Jennifer Staats.

That evening, everyone gathered for the Awards dinner where we recognized some of the amazing people who have given so much to forward the mission of GHA. Angela Brown was awarded the “Daniel V. Tyrey Volunteer of the Year” award, in recognition of all she has done and continues to do for the bleeding disorders community, including the time, thought, and care she puts into Camp Notaclotamongus. GHA also recognized Trudy Stringer, whose tireless work in advocacy has advanced the causes of the

Teen Breakout Session

Volunteer of the Year Angela Brown

21st Annual Family Education Weekend “Bleeding Disorders in Our World” bleeding disorders community for decades. Finally, the community recognized our 2017 Scholarship recipients, Joe W., Rieley S., Joe G., Jordan S., and Ariel M. After dinner, attendees were treated to dessert and a movie at the pool.

Sunday morning began with a Remembrance Ceremony and continued with final breakouts for adults and teens.

Thank you to all of the volunteers whose hard work made this event a success, including Stephanie Bauman, Liz LaFlamme, and Trudy Stringer.

Thank you to our exhibitors: Accredo HHS, Accurate Rx Pharmacy, Aptevo Therapeutics, ARJ Infusion Services, ASAP Pharmacy, Bayer, Bioverativ, Cotrill’s Pharmacy, CSL Behring, CVS Specialty, Diplomat, Genentech, Grifols, Hemophilia Federation of America, Heritage Biologics, Inc., Matrix Health Group, NCHS, Novo Nordisk, Octapharma, Pfizer Pharmaceuticals, Shire, St. Louis HTCs, Superior Biologics, and Washington University.

Thank you to our Session Sponsors: CSL Behring, National Hemophilia Foundation, Washington University, Cardinal Glennon, Novo Nordisk, Shire, and Bayer.

Thank you to the following sponsors: Aptevo-Packet Sponsor, ARJ Infusion Services-Saturday Break & Teen Lounge, Cotrill’s Pharmacy-Saturday Beverage Station, Octapharma-Friday Reception, CSL Behring-Advocacy Pre-Con, and Bayer-Sunday Breakfast.

Thank you to our FEW planning committee: Andrea Metcalf, Darlene Shelton, Lydia Johnson, and Bill Berger.


Choosing the Factor Replacement that is Right for You - by Morey Blinder, MD

Making choices is something we do every day. Supermarket

shelves are stocked with similar products. Ice cream parlors

offer dozens of flavors. Retirement funds provide a menu of

options to invest money. It is not surprising that we may reach

a point of choice overload in which whatever choice we make,

we worry that another choice would have been better.

Making decisions about our health can be even more difficult.

The information needed to make better choices is often

lacking or of poor quality so we depend on others to help us

with these decisions. While it is critically important to have

guidance and support in medical decision making, it is also

important for individuals and their families to have an

understanding about treatments that affect them. Rarely in

medicine do we find disorders with more treatment options

than in hemophilia and von Willebrand disease. Currently, 15

factor VIII replacement products are available for hemophilia

A, 10 factor IX replacement products are available for

hemophilia B and at least 5 products exist for von Willebrand

disease. What follows is a guide to highlight the choices for

bleeding disorder patients to help make the best decisions on

your factor replacement.

Source material

An important distinction to be aware of is to know the source

material used to make the factor replacement products.

Plasma-derived products, available for more than 40 years, are

pooled and processed from donated plasma. While the

earliest products were often the source of viral infections such

as HIV and hepatitis, advances in science since 1987 have

allowed for the development of methods to insure that these

infections are no longer transmitted. Recombinant products,

first available in 1992, are produced in cultured cells that have

had the human gene for factor VIII, factor IX or von Willebrand

factor inserted to make the product. Notably, both plasma-

derived and recombinant products are treated to remove any

contaminants and sources of infection.

Product Characteristics

Other features that vary among the replacement products

are the “shelf life” (storage time prior to reconstitution), the

product stability after reconstitution called the “half life” and

the presence or absence of additional proteins to stabilize the

product known as the “generation.” It is unlikely that any of

these characteristics become a deciding factor in product

choice but they may be important under certain

circumstances. For example, a product that is infused

infrequently may “expire” on your shelf before it is used and

so having products that have the longest shelf life might be

best. Lastly, products are available in a variety of vial sizes and

this may be important in some situations to achieve the most

precise target dose.

Effect of Products on Inhibitor formation

One of the most important considerations is understand the

risks of inhibitor formation. While several factors seem to

play a role in the development of inhibitors, including the

number of treatments received as well as the specific genetic

mutation that is identified, the type of factor that is infused

may also contribute to the risk. Most notably, the SIPPET

study published in 2016, suggested that inhibitors were less

likely to form in patients receiving plasma-derived compared

to recombinant products.

Extended Half life Products

Over the last 3 years, another important development is the

use of extended half- life of products for both hemophilia A

and B. These products are all recombinant and offer the

potential of fewer infusions to maintain safe levels of factor

replacement. While these products offer modest

improvements in hemophilia A, they are particularly helpful

for hemophilia B patients, decreasing the number of infusions

needed over time to maintain good prophylaxis.

Summary

Choosing wisely involves identifying your needs and

preferences and working with your providers to optimize

treatment decisions with the currently available products

while keeping informed on the future developments.

Dr. Blinder reports no relevant financial conflicts of interest


Insights from NHF’s 69th Annual Meeting - by Bridget Tyrey, GHA Executive Director

NHF’s 69th Annual Meeting was held in Chicago, IL

August 24-26, 2017. This was an amazing opportunity to learn about the latest innovations and products in the bleeding disorders community along with approximately 3,000 people from all over the country. Community members took advantage of opportunities to meet new friends and catch up with old, as well as choose from a selection of 9 different tracks consisting of three days full of educational sessions, networking opportunities, and access to the exhibit hall. At Opening Session, Val Bias, NHF CEO stated,

I asked a GHA member who attended NHF, what their biggest take away was from the Annual Meeting. Tyler K. said,

“NHF 2017 was my first conference, as well as the first time ever visiting Chicago. NHF was a fantastic way to network and be able to see all of the available resources for people with bleeding disorders, from ultrasounds to gene therapy. There is truly something to be learned for everyone. I could not believe the amount of people that are affected by bleeding disorders all in one place. The opening session really helped bring it together to make everyone feel like there was always an "us" instead of me or I.

I have taken away many things from my first NHF.

1. Medic alerts are very important! I only used to wear mine for long trips or vacations; I am now looking into ordering one to wear all the time.

2. Another thing I learned is just because your joints aren't bothering you doesn't mean you may not have a bleed. Micro bleeds are very common and can wreak havoc on joints.

3. I also spoke with a representative of the factor I take and found out more options for their dosage which included different vial sizes.

4. One of the most important things I’ve learned is to be an advocate for yourself and the community. Know your options for treatment and explore and research for yourself and discuss these other alternatives with your doctor. I used to always just rely on my doctor for information and after attending NHF I feel more informed than ever. At the end of the day it is your health that you must protect.

I hope I will be able to attend many more NHF’s in the future to keep learning and networking with those in the community.”

This year eight families received scholarships to attend NHF within the GHA community. When I asked Lori M. why she would recommend that families attend NHF, she stated, “We would recommend NHF for the fun, fellowship and some of the BEST classes we have attended. We met new families that are in the same boat as our family. We received some new tips on how to deal with bleeding disorders. We learned how big of an organization NHF is, that they REALLY do care about each one of us.”

“We are more than our bleeding disorders. We are people who work, go to school, play sports, have kids. We are people first. We are lucky to have access to so many nurses and doctors, PTs and social workers, who don’t view us as a collection of symptoms. They see us as people. Our commitment to access to care is not just about public policy, and it’s not just about research. It’s about investing in people who care for us.”

From L to R: John B. Cunningham, Executive Director of the National AIDS Memorial Grove, Val D. Bias, NHF CEO, Jeanne White-Ginder, mother of Ryan White, and Kimberly Haugstad, President and CEO of HFA


Austin H. was asked what he learned from the meeting. He stated, “The cure for hemophilia talk to the stigma of AIDS is such a variety of topics. My most memorable part of NHF was learning about the people and their families that went through the AIDS epidemic, which showed that we can't forget the ones we lost. Some of the stories shared were very memorable and we can learn from them. It was beneficial and very interesting learning about gene therapy and the cure for hemophilia. I believe our technology is advancing and I will definitely keep an eye out for the new advancements.”

Insights from NHF’s 69th Annual Meeting (cont’d)

I attended NHF this year as the Co-Chair, which was an honor to meet so many wonderful individuals working to better the world of bleeding disorders. This community continues to inspire me. It was a pleasure on behalf of GHA’s Board of Directors to accept the NHF Partnership Chapter of Excellence Award. GHA scored in the top 15% of all chapters reviewed in this category. For this award, we received a travel scholarship to the 2018 NHF annual meeting in Orlando, FL. Included in the scholarship is registration fee for one person, airfare for one, and 3-night hotel stay. Stay tuned for more scholarships to NHF’s 2018 annual meeting in Orlando, FL. AIDS Panel at NHF

__ GATEWAY CONNECTIONS SPRING 2017 SUMMER 2017 GATEWAY CONNECTIONS 17

__ GATEWAY CONNECTIONS SPRING 2017 18 GATEWAY CONNECTIONS SUMMER 2017

On August 17, 2017, over 160 wine lovers gathered at Farotto’s Pasta & Pizzaria in Rock Hill to raise money for GHA’s Matthew Wilson Memorial Scholarship Fund. Event-goers were treated to beautiful weather, a selection of wines donated by PRP Wine International and Bommarito Wines, delicious hors d’oeuvres from Farotto’s, a silent auction, and live music. For an additional donation, attendees could partake in a special cigar and liquor tasting.

Thanks to the generosity of our donors and sponsors, GHA will be able to award $9,000 in scholarships to college students with bleeding disorders for the 2018-2019 school year.

Wine Tasting Funds Another Year of Scholarships!

THANK YOU TO OUR SPONSORS!

Bachelors of Science Bayer

Novo Nordisk

Associate Degree ARJ Infusion Services

CSL Behring CVS Specialty

Midwest Valet Parking Shire

Washington University Center for Bleeding and Clotting Disorders

THANK YOU TO OUR VOLUNTEERS!

James & Sandy Addie Silvia Albanez Judy Bagato

John & Pam Carleton Danielle Flores

Barb Love Kari Moellenhoff

Anne Parrott Chris Schneider

Dirk & Trudy Stringer Tiffany Wofford

__ GATEWAY CONNECTIONS SPRING 2017 SUMMER 2017 GATEWAY CONNECTIONS 19

DONATIONS, HONORARIUMS, AND MEMORIALS GHA gratefully acknowledges our donors who so generously contributed to the Chapter in the second quarter of 2017 with

general donations, Honorariums, and Memorials.

$7,000 - $9,999

CSL Behring

$4,000 - $6,999

Aptevo

Bayer

Bioverativ

Pfizer

Shire

$1,000 - $3,999

Accredo

AccurateRx

BriovaRx Infusion

Cottrill’s

CVS Specialty

Grifols

Novo Nordisk

Option Care

Redchip of Nevada

$500 - $999

BioEthics Advantage

Grandma’s Cookies

JB Marine Services, Inc.

Kohl’s

Larson Exteriors of Missouri

Queen of All Saints

$100 - $499

Affordable Auto Credit

Marnie Agne

Arthur J. Gallagher

Foundation

Athletico Physical Therapy

Judy Bagato

Roger Barrow

Diana Baum

Kristen Bernreuter

Lisa Beven

Terry Bieller

John & Pam Carleton

Robert Carpetis

Allen Clark

Andy Copeland

Chase Cornett

Dairy Queen

Todd Daube

Liam Decker

The Deere Family

Nancy Desoge

Lana Diggs

Kevin Ellebrecht

Carrie Ellis

Robert Eschbacher

Janice Evans

Lynda Evers

The Filyaw Family

Anthony & Danielle Flores

Diane Gonzales

Edward Gross

Lee Gute

Patrick Gute

Erica & Liam Gutelius

Kathleen Hargrave

Christine Heneger

Emily Hentschel

Bruce Hilmes

Donna Hilmes

Timothy, Sheila, Landon &

Chloe Hoelscher

Dan & Linda Hoffman

Michelle Hoffman

Hot Shots-Arnold

John & Caroline Huff

Donald Johannes

Linda Johnson

Bob & Genise Kiehl

Betty Jane Klein

Kristina & Michael Klein

Joyce LePage

April Littrell

Alan Love

Tabby , Rick, Jesse Mayhan

Mary McCoy

Jim & Patty Meile

Patricia Miers

Tim & Debbie Milhauser

Jennifer Miller

Veronica Miller

Lynn Nestor

Promotions Pronto

Angie Psihramis

John & Rita Ruckman

Lisa Sakuvich

The Stewart Family

Marykay Thrower

Cindy Tinsley

Mya Tyler

Suzanne Weiss

James Wilson

$50 - $99

Debbie Adamkin

Tom & Tia Aguilera

Ashley Arnold

Kari Atkinson

The Bernard Family

Bioscrip

Theo & Robert Bockhorst

The Brennecke Family

Jay & Amanda Brueggeman

Audree & Dick Bueckman

Kristin Casey

Holly Clausing

Stacy Cleary

The Copilevitz Family

Silvi & Steve Cox

Gerald Cruz

Sarah Daley

J. Paul & Clare Deaton

Robert Degraffenreid

Kim Donnelly

Kory & Lori Drury

Mary Ellen & Jack Fox

Dee & Dale Gerstenkorn &

Family

Suzanne Gibson

Judy Gindling

The Harper Family

Erin Harris

Carla Herrington

Susan Hiatt

Margaret Hilmes

Vicky Howard

Sharon Hubbman

John & Donna Hunn

Mike Ift

Tim Jarvis

Charla Johannes

Amy Johnson

Kevin Johnson

Tom Joseph

Katy Keller

The Klein Family

Lindsay Kopp

Curt Lambdin

Cyndi Langen

Cinthia Larrew

Katie Lauman

Valerie Law

The Lawlor Family

Daniel Lawrence

Rachelle Mansholt

Tim & Deb McNamee

Lola McShane





Kathryn Metcalf

Meredith Moore

Bill & Courtney Morillo

Meredith Moyer

Diane Nanney

Vicki Oberkrom

John Pearson

John & Candace Peterson

Karen Price

Colin Putnam

Chuck Reynolds

The Rhoads Family

Shirley Roesch

The Ruwe Family

Mike Schneider

Thelma Seebeck

Jeff Shrout

Janet Sims

Luke Smith

Thomas James

Colleen Underwood

Amanda Walker

Ashly Walls

Newt Webb

Alexander Welch

Edie Williamson

Chris Zittel

$1 - $49

Sue Agers

Amazon Smile

The Ambrose Family

Jennifer Anderson

Catherine Armbruster

The Barletta Family

Stephanie Becker

William Berger

Joe Berringer

Anne Bollinger

Billie Bradley

Kay Breitbarth

Meg Brown

James Brumfield

Chenoa C.

Carlo C.

Nikki Carman

Tina Charpentier

Manny Chavez

Tamara Christian

Mary Concannon

Christine Cook

Davis Corey

Leslie Cosmano

Kendra Cress

Jessica Crews

Allan & Sally Crowder

The Darr Family

Judith Davies

Janelle Davis

Katie Davis

Angela Dickens

Sarah Dobecki

Elizabeth Dougherty

Tracy Earll

Nathan Ellis

Kristi Elwood

Hillary & Josh Esser

Gino Fantozzi

Julie Fantozzi

Cianah Faust

Lana & Kent Fiedler

Christine Finck

Jen Forester

Ryan Frese

Erica Fridlin

Carrie Fussner

Jo Gaal

Elizabeth Gravitz

Roberta Greenwood

Carolyn Gross

Derek Hamilton

Melissa Harris

The Heaney Family

Nichole Herbert

Louise Higgins

Bailey Hilmes

Lauren Hilmes

Marla Hilmes

Natalie Hilmes

Kirstie Hilty

Natalie Hoernig

Kerri Holmes

Kathryn Hurd

Implen, Inc.

The Jaeger Family

Stephen Johannes

Rachel Kaminski

John Kennedy

Brittany Kerr

Andy Ketter

Kristie Klable

Kacie Kleissle

Cheryl Krystoff

Linda L.

Gary LaFlamme

Krista Larkins

Mimi Law

Brenda Liesen

Deanna Litzenburg

Makayla M.

Kathryn MacKay

The Madiger Family

Carly Magee

Charlotte Matthews

Kristin Mayer

Kyle Mayer

Lindsey Mayer

Dawn McAtee

Tina McCormack

Jennifer McNamee

Daniel McNeill

Paul Meisner

Mary Meyer

Nick & Nancy Milhauser

Scott Moellenhoff

Maria Mohler

Michael Montgomery

Wilnellys Moore

Mt. Vernon Spine & Disc

Center, LLC

Pat Nassif

Rachel Nave

Amanda Nehemias

Thomas Nestor

Marci Newsom

Christine Oak

Stacey Oakes

Angela O’Hanlon

Monica Ou

The Patton Family

Richard Pezzillo

Benjamin Proctor

Jessica Proctor

Keith Proctor

Kim Pustinger

Brianna Regan

The Reissing Family

Kathleen Rieken

The Riggs Family

Cindy Roland

Joan Roland

Rocio Rossi

Kim Sansegrew

Tina Saputo

Troy Scheske

Lisa Scholz




Sue Schroeder

Nathan Schultz

Johnny Schuppe

Colleen Seematter

Sara Seematter

Ashleigh & Corbyn Settle

Jan & Les Shenberg

Cindy Shrout

Stephanie Siegmund

Kathy Smith

The Smith Family

The Snarey Family

Julie Snelson

Kara Spalding

Brandy Stafford

Trudy Stringer

Amanda Swann

Jeanine Talbot

Heather Tate

Brittany Taylor

Joe Tonnies

Megan Tooley

Bridget Tyrey

Jake Vontill

James Vyeda

Cynthia Wachtel

Becky Warner

Teresa Welch

Jim Werner

The White Family

Deseray Whitten

Tracy Whittingham

Tiffany Williams

Kate Yemm

Jess Yount

Shannon Yung

Kristian Zack

Luna Zhang

IN MEMORY OF

Donald Wentz

Joseph Dittmaier

Ruth Dohack

Gail Egbert

The Epling Family

Anna Herbst

Lester Koelling

The Kruep Family

Rita Mosblech

Theresa Stuart

The Sutherlin Family

4976 Eichelberger Street St. Louis, Missouri 63109 314.482.5973 www.gatewayhemophilia.org

Presort Standard US Postage

PAID St. Louis, MO

Permit No. 221

Email us at: [email protected]

Join us for GHA’s Fall Membership Meeting! GHA’s Fall Membership Meeting will be held on the parking lot outside Kilroy’s, 720 S. 7th

Street, St. Louis, MO 63102 on Sunday, October 1st. The event starts at 11:30 a.m. and includes an light breakfast, an update on GHA, education, and community. Immediately

following, attendees of the meeting will receive a complimentary ticket to the St. Louis Cardinals vs. the Milwaukee Brewers at Busch Stadium at 2:15pm.

RSVP by September 15th to 314-482-5973 or [email protected]

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