general ph power point for general public who knows little about ph
TRANSCRIPT
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General PH Power PointFOR GENERAL PUBLIC WHO KNOWS LITTLE ABOUT PH
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What do you think of when your hear hypertension?
How serious does this sound?
But pulmonary hypertension is different…
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Imagine being a child who couldn’t run with their friends, ride a bike, or swim because it could put
you in the hospital
Imagine being advised by your physician never to get pregnant because child birth could be
fatal
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What is PH?
High blood pressure in the lungs. PAH is a chronic and life-changing disease that can lead to right heart failure if left untreated.• Breathlessness• Chest pain• Dizziness• Fainting • Loss of energy
• Swelling of the arms, legs, ankles or abdomen
• Dry cough• Raynaud’s phenomenon (chalky
white or dusky blue fingers that may be painful and can sometimes be provoked by the cold)
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What its Like to be a PH Patient Today
Research
We have come a long way with research, developing 12 new treatments in the last 20 years. Ultimately, the PH community hopes for a cure, and that is what research continues to strive for.
Diagnosis
PH shares many symptoms with less serious diseases, leading to misdiagnosis. On average it takes 2.8 years for a patient to be diagnosed.
Treatment
Treatments are expensive and often have significant side affects. There are currently no FDA approved treatments for children.
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Some of the Problems PH Patients Face
Access to Treatment Lack of Awareness
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PHA: A Community Full of Hope
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How to Get Involved!
Raise Awareness
Special Events
Community Education
Media Action Network
Fundraise
Special Event
Online
With a Group
At Celebrations
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How to Get Involved (cont.)
Advocate
Become a 435 Campaign Member
Sign Up your Group for our Advocacy Group list
Send an Email to your Member of Congress
Volunteer
Local volunteers
Remote Volunteers
Specialty Skills
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A Community That Never Stops PHighting
To learn more about Pulmonary Hypertension or how you can get involved go to www.PHAssociation.org