grace meadows - room 217 foundation · 850,00 people in the uk are living with dementia 225,000...
TRANSCRIPT
Grace Meadows Programme Director
‘A UK national campaign changing the face of dementia
care through music’
March 2020
Introduction – state of play
Sector support organization for the cultural sector
Funded by Arts Council England
It exists to connect everyone who believes creative & cultural engagement can transform health & wellbeing.
Music in Society – inquiry conducted at House of Lords examining the 360 value of music in UK society
Published first 10-year Strategy in 2010 – shared vision and set of priorities to support and develop arts and culture in England
Arts Council England’s Strategy 2020 -2030
Creativity to be valued, given the change to flourish and access
CAMPAIGN VISION - what do we want to achieve and why?
Music for Dementia 2020 - campaign founded by The Utley Foundation.
Established in 2014, exists to advance social causes.
Music is a personal passion of the founders and trustees.
WHO WE ARE
Commission on Dementia and Music.
Brought together over 1,500 academics, politicians, researchers, practitioners and those affected by dementia.
Published in 2018.
Strengthened case for bringing music and dementia further into public forum
Music for Dementia 2020 was set up in response.
WHO WE ARE
www.musicfordementia2020.com
UK Facts– we’re all affected
850,00 people in the UK are living with dementia
225,000 people will develop dementia this year, that’s one every 3 minutes or a song!
1 in 6 people over the age of 80 have dementia
Over 42,000 people under 65 with dementia70% of people in care homes have dementia
52% of UK public – 34.5 million – have a relationship with dementia
1 in 3 people born in UK this year will develop dementia in their lifetime
Dementia is one of the main causes of disability later in life, ahead of cancer, cardiovascular disease and stroke.
Ensure that everyone living with dementia can access the right music, at the right time and in the right ways for them.
OUR MISSION
For people living with dementia, music isn’t a nicety, it’s a necessity
Creating a hub of information – website
Increasing awareness & understanding – promoting benefits
Encouraging people to have an active role in managing their dementia – supporting & enabling autonomy and self-agency through creativity
Supporting those providing care through music
Joining the dots – map, people, resources
Bringing about a culture / behaviour change
WHAT’S MUSIC FOR DEMENTIA 2020’s role?
Dementia care – state of play
2025 Strategy
Dementia Choices Action Network (DCAN)
Developing a vision and a plan for personalised dementia care
Adult Social Care: Green Paper…?
Why music for dementia care?
People and Music
• Music is people, people are music – we are musical beings• Everyone is inherently musical – no pre-requiste to be ‘musical’ in
order to benefit from it• Music is a relational experience • It connects people to themselves, others, their world around them,
to the present moment as well as memories • Enables people to experience, be and contribute to a creative
experience and process • Music facilitates relationships and speaks where words fail
The Brain, Dementia and Music
• Contactable as musical beings
• Music reaches parts of the damaged brain in ways other forms of communication cannot
• Music accesses part of the brain that remain unaffected by the devastating consequences of dementia
• Processing these takes place across almost every region of the train & nearly every neural system
• Quality of life
6. Physical: delay frailty,
reduce likelihood of
dementia
4. Social – social bonding
engagement,
relationships
2. Creativity: self expression
and identity, agency and
control
1. Psychological & Emotional: - reduces
agitation, anxiety &
depression. It’s fun, lifts mood
& dispels tension.
WHY MUSIC AND DEMENTIA?
3. Neurological: engages
auditory, cognitive, motor,
and emotional processing
7. Benefit for carers and settings: community,
relationships, enjoyment,
leadership. More
enjoyable place to live
and work
8. Positive impact on Quality of Care: supports
CQC’s KLOES
5. Communication: –
provides a channel for
communication when
words are too much, not
enough or no longer
available
Why music and personalised dementia care?
• Connection and communication
• Seeing a person for who they are, beyond their dementia
• Enables people to be contributors and not just recipients of care
• Quality of life
• Music meets the principles of person centred care
• People and relationships
Bespoke Interventio
n
Specific Activity
Universal Experience
Musical Personalised Care
Experience that can be enjoyed at any time
Participation and gain a wide range of benefits
Improve particular aspects of health and wellbeing
Specialist music therapy & music interventions to support communication, psychological, emotional and physical health
Specific singing groups, dementia choirs, personalised live music activities, playing a musical instrument, 1:1 or in groups to support overall health & wellbeing
Singing, listening to a personalised playlist, playing a musical instrument, experiencing live music in the community & social music events
Music and Dementia Pathway
Living Well
Pre-diagnosis
Diagnosis
Post-diagnosis – early years
Post-diagnosis – later years
End of life care
Music and Dementia PathwayPhase Type of
music? (what)
For
who?
Offered by ? Why ? How? Where?
Living
well
Listening to
music –
attending
concerts,
tuning in at
home with
technology
Learning /
playing an
instrument –
on own or
with others
Singing in a
choir
Attending
music groups
/ workshops
All Self –
directed
individuals,
music
facilitators
e.g. choir
leaders,
music
teachers,
with others
Maintenance or development of identity
and self
Cognitive stimulation
Creative expression and stimulation
Self-expression
Supporting emotional and psychological
wellbeing
Enhancing spiritual activity
Social connections – supporting
relationships
Physical engagement
Enjoyment and pleasure
Contributing to a creative outcome
Pleasure and enjoyment
Choice led by
individual
Self-motivated
Self-funded (where
required)
Signposted and
encouraged by
friends / family
Home
Arts venues
Places of worship
Community venues
Informal
and formal settings
Musical Menu of Choice
Listening to music – attending concerts & performancesPlaylists
Singing groupsChoirs
Playing instruments Interactive / participatory music making
Music therapy
Right music, at the right time, in the right way, by the right person
Benefits of personalised musical care
Music supports people living with dementia to be contributors, not just recipients of care
Being with and not doing to
2020what do we want to have achieved?
People living with dementia should be offered music therapy to help promote their wellbeing:
“People with dementia can find it harder to take part in activities, to engage socially, to maintain their independence, to communicate effectively, to feel in control and to care for themselves. Providing enjoyable and health-enhancing activities such as music therapy can help with this.” Prof. Leng, Deputy Chief Exec & Director of Health & Social Care, NICE
Music therapy included in NICE’s updated quality standard on dementia (published June 2019)
Increased awareness and understanding
Greater valuing of music as part of dementia care
Policy change - music included in national and local strategies – making it a right in dementia care
A populated and growing map of services
Music being more readily available for people as part of their care
Music being freely available – solutions in partnership with the music industry
What does success look like?
More funding and support for the provision of sustainable services
Greater valuing of music as part of dementia care
More strategic relationships and partnerships between partners and providers
Music to be included in health and social care training courses
Quality of life being improved for people living with dementia and those who care for them
What does success look like?
