BIOLOGICAL SAMPLES

DATA

Decision-makingFundingPatient access to data – Electronic Health RecordsPatient-curated data

CLINICAL TRIALS

Data collectionImproved standard of careEvidence-based outcomes

ADVOCACY

Funding – Grants, LegislativeResearch Questions – YSC Research Think TankRecruitmentMotivationCollaboration

COMMUNITY OUTREACH

Patient ExperiencePatient CollaborationEducation (Bench to Bedside)Patient Engagement (Social Media?)

Seeking What Matters: Patients as Research Partners

http://adisonline.com/thepatient/Fulltext/2012/05020/Seeking_What_Matters__Patients_as_Research.1.aspx

Thank you!

Leslie Hammersmithlkhammer@illinois.edu

@piaffeatx