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Health Information Technology and Privacy: Is There a Path to Consensus? February 29, 2008 February 29, 2008 Jodi. G. Daniel, J.D., M.P.H. Director, Office of Policy and Research HHS, Office of the National Coordinator for Health Information Technology (ONC)

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Page 1: Health Information Technology and Privacy: Is There a Path to Consensus? February 29, 2008 Jodi. G. Daniel, J.D., M.P.H. Director, Office of Policy and

Health Information Technology and Privacy: Is There a Path to Consensus?

February 29, 2008February 29, 2008

Jodi. G. Daniel, J.D., M.P.H.Director, Office of Policy and ResearchHHS, Office of the National Coordinator for Health Information Technology (ONC)

Page 2: Health Information Technology and Privacy: Is There a Path to Consensus? February 29, 2008 Jodi. G. Daniel, J.D., M.P.H. Director, Office of Policy and

2February 29, 2008 HHS/ONC - Alliance for Health Reform

Benefits of Health Information Technology

• Enables the transformation to higher quality, more efficient, patient-focused health

• Enables access and use by care providers, and patients and their designees

Anywhere. Anytime.

Page 3: Health Information Technology and Privacy: Is There a Path to Consensus? February 29, 2008 Jodi. G. Daniel, J.D., M.P.H. Director, Office of Policy and

3February 29, 2008 HHS/ONC - Alliance for Health Reform

Priority for Policy Discussions

New issues or opportunitiesraised by healthIT

Health IT as anopportunity toreconsider existingpolicies

or

Page 4: Health Information Technology and Privacy: Is There a Path to Consensus? February 29, 2008 Jodi. G. Daniel, J.D., M.P.H. Director, Office of Policy and

4February 29, 2008 HHS/ONC - Alliance for Health Reform

Landscape – What’s New?

• Capabilities to link data • Capabilities to look up patient

information• Opportunities for enhanced

protections • Opportunities for greater consumer

involvement • Opportunities for increased

consumer electronic access to their

information

Page 5: Health Information Technology and Privacy: Is There a Path to Consensus? February 29, 2008 Jodi. G. Daniel, J.D., M.P.H. Director, Office of Policy and

5February 29, 2008 HHS/ONC - Alliance for Health Reform

Landscape - Existing Protections

• Federal Laws ­HIPAA Privacy and Security Rules ­Confidentiality of Alcohol and Drug Abuse Patient

Records Rule (42 CFR Part 2) ­Federal Privacy Act­Others, e.g., Federal Trade Commission Act

• State Laws ­Much variation ­Some more protective ­Some different

• Contractual Requirements

Page 6: Health Information Technology and Privacy: Is There a Path to Consensus? February 29, 2008 Jodi. G. Daniel, J.D., M.P.H. Director, Office of Policy and

6February 29, 2008 HHS/ONC - Alliance for Health Reform

Landscape – What are the issues?

• Tension between access

and privacy

• Misconceptions and

Confusion

• Protections may not reflect new environment

Page 7: Health Information Technology and Privacy: Is There a Path to Consensus? February 29, 2008 Jodi. G. Daniel, J.D., M.P.H. Director, Office of Policy and

7February 29, 2008 HHS/ONC - Alliance for Health Reform

Policy Levers

• Accreditation/Certification

• Bully Pulpit

• Procurement

• Incentives/Disincentives

• Legislation

• Regulation

Page 8: Health Information Technology and Privacy: Is There a Path to Consensus? February 29, 2008 Jodi. G. Daniel, J.D., M.P.H. Director, Office of Policy and

8February 29, 2008 HHS/ONC - Alliance for Health Reform

ONC – Coordinating a Nationwide Approach

• State Coordination– Health Information Security and Privacy

Collaboration (HISPC)

– State Alliance for e-Health

• Federal and Related Activities– American Health Information Community (FACA)

• CPS Workgroup

– Consumer Capabilities in NHIN Trial Implementations

Page 9: Health Information Technology and Privacy: Is There a Path to Consensus? February 29, 2008 Jodi. G. Daniel, J.D., M.P.H. Director, Office of Policy and

9February 29, 2008 HHS/ONC - Alliance for Health Reform

Considerations for Policy Development

• Recognize the foundation of privacy protections at a state and federal level

• Prevent unintended consequences: • Use policy mechanisms that can adapt with

technology changes• Consider impact on patient care

• Build consensus through stakeholder involvement

• Prioritize

Page 10: Health Information Technology and Privacy: Is There a Path to Consensus? February 29, 2008 Jodi. G. Daniel, J.D., M.P.H. Director, Office of Policy and

10February 29, 2008 HHS/ONC - Alliance for Health Reform

Formula for Quality Health Care

+Consumer Protections/Access

=Trusted Health Information Exchange

Quality Health Care

Electronic Health Information

Page 11: Health Information Technology and Privacy: Is There a Path to Consensus? February 29, 2008 Jodi. G. Daniel, J.D., M.P.H. Director, Office of Policy and

11February 29, 2008 HHS/ONC - Alliance for Health Reform

For More Information:For More Information:

www.hhs.gov/healthitwww.hhs.gov/healthit


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