THINK-Health

Healthcare DIY: It’s Personal

Jane Sarasohn-Kahn, MA (Econ.), MHSA THINK-Health and Health Populi blog

Body 2.0 San Francisco, 7 October 2012

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• Health = health care

• Meet The Parents: Participatory Patients v1.0 and v1.5

• Meet Their Daughter, Jane, v2.0

• Meet Your Personal Health Ecosystem.

The Journey Toward Healthcare DIY

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Listen to Dr. Benjamin, Surgeon General

• “We can't look at health in isolation. It's not just in the doctor's office.

• “It's got to be where we live, we work, we play, we pray.”

3 Source: Surgeon general discusses health and community, Los Angeles Times, March 13, 2011

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Polly and Chuck Sarasohn

Wedding Day, 29 November 1942

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Meet Polly and Chuck, b. 1921

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Oak Park Schools

Health Council

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Polly, Chuck and Jane

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Meet Polly, Participatory Patient, v 1.0 (1971-1979)

• 1971: Diagnosed with lymphocytic leukemia

• Six month prognosis • Treatment: radiation and blood

transfusions • Close relationship with

Internist/Hematologist • Social network (offline) • Key relationship: Richard, the school

librarian • Information seeking behavior: Index

Medicus via microfiche (no Internet!) • Food=health: Adelle Davis, Let’s Get

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Meet Chuck, Participatory Patient, v 1.5 (1966-2007)

• 1937: Diagnosed with high blood pressure • 1966: Diagnosed with Type 2 Diabetes • Dieted per doctor’s instructions; lost

weight, managed diabetes via diet & exercise, no insulin until 2005

• A+ patient: collegial with doctors, adhered to Rx therapies

• Remarried 1982, becoming “parent” of a dog (therapeutic relationship!)

• Resilient social network (offline and online) • Lifelong history of heart disease:

pacemaker, quintuple bypass • Worked full-time until 84 YO; developed

CHF • 2-year revolving door to ER until his death.

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What’s changed since Polly & Chuck’s versions of participatory health?

• We’re learning to be health consumers • The New 2nd Opinion: checking Internet pre- and

post-physician visit and diagnosis • Adopting mobile phones and tablets • Acting like food = health • Using social networks for health • Learning to partner with clinicians • > Participating in health Body 2.0.

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DIY Life

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DIY Health

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Activation/Motivation: 25th Anniversary

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Meet Jane, Body 2.0 via HealthcareDIY

Source: Jane’s personal health ecosystem, adapted from Institute for the Future work on Ecosystems of Wellbeing

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December 2010 November 2011

Source: Jane’s scrapbook

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JSK Cholesterol, 2/11-1/12

Test Feb 2011 Jan 2012 Limits Lipid Panel Cholesterol, Total 188 178 100-199 Triglycerides 177 48 0-149 HDL Cholesterol 49 72 >39 Comment – According to ATP-III Guidelines, HDL-C >59 mg/dL is considered a negative risk factor for CHD (chronic heart disease). VLDL Cholesterol 10 mg/dL 5-40 LDL Cholesterol 96 mg/dL 0-99

Source: Jane’s PHR

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1. Find safe, decent health care

2. Communicate with health care professionals

3. Organize health care 4. Pay for health care 5. Make good treatment

decisions

6. Participate in treatment 7. Promote health 8. Get preventive health care 9. Plan for the end of life 10. Seek health knowledge.

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The 10 Commandments of Health Engagement Thou Shalt…

Source: Snapshot of People’s Engagement in Their Health Care, Center for Advancing Health, May 2010

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Jane Sarasohn-Kahn, MA (Econ.), MHSA Health Economist and Management Consultant THINK-Health jane@think-health.com www.think-health.com www.healthpopuli.com Blog @healthythinker on Twitter

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