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All Bonaventure Reads 2010

The Immortal Life of Henrietta LacksReading Guide

All Bonaventure Reads 2010

The Immortal Life of Henrietta LacksReading Guide

St. Bonaventure University

First-Year Experience

www.sbu.edu/fye

ABR Committee, t. Bona!enture "ni!ersity, #$
http://www.sbu.edu/fyehttp://www.sbu.edu/fyehttp://www.sbu.edu/fye


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Chapter 1: &'e Exam(Summary:)enrietta is examined at t'e *yneco+o*y c+inic at o'ns )opins )ospita+ by r. )oward

ones, and 'er brief medica+ 'istory is re!iewed. &'e medica+ 'istory *i!es t'e reader anunderstandin* of 'er bac*round and sop'istication.Questions to Ponder:

%. )ow wou+d you describe )enriettas experiences and attitudes toward medica+ careprior to 'er cancer dia*nosis0

#. 1'y did )enrietta *o to o'ns )opins rat'er t'an anot'er 'ospita+0

People Introduced in this Chapter:

a!id 2ay3 4acs

)enrietta 4acs

adie

5ar*aret )oward ones

ebora' 4acs

oe 4acs

Key Terms:

Chapter : C+o!er(

Summary:1'en 'er mot'er dies )enrietta and 'er nine sib+in*s are sp+it to +i!e amon*st t'eirre+ati!es. )enrietta was sent to +i!e wit' 'er *randfat'er, &ommy 4acs, in C+o!er, 6A. )ercousin, a!id 2ay3, a+so +i!es wit' 'er *randfat'er.Questions to Ponder:

%. escribe )enriettas experiences wit' se*re*ation w'en s'e was *rowin* up inC+o!er.

#. 1'y were 7obs at parrows 8oint so attracti!e to b+ac men e!en t'ou*' t'ey werepaid +ess t'an w'ite men doin* t'e exact same 7obs0

People Introduced in this Chapter: 4oretta 8+easant

E+i9a 4acs 8+easant

o'nny 8+easant

&ommy 8+easant

4awrence 4acs

4uci+e E+sie 8+easant

Key Terms:


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Chapter !: :ia*nosis and &reatment(Summary:)enrietta under*oes radium treatment and sur*ery for 'er cancer. &'e aut'or describes

w'at was nown about cancer at t'e time as we++ as state-of-t'e-art treatments. &wo tissuesamp+es are taen from )enrietta before 'er tumor is remo!ed.Questions to Ponder:

%. 1'at was t'e current medica+ t'inin* about cer!ica+ cancer at t'e time of

)enriettas dia*nosis0#. Comment on t'e use of radium as a cancer treatment and as a cause of cancer.;. Carefu++y read t'e permission form )enrietta si*ned before 'er sur*ery.


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Chapter #: :B+acness Be preadin* A++ =nside(Summary:)enrietta tries 'ard to maintain as norma+ a +ife as possib+e w'i+e continuin* to under*o cancertreatments. At first, t'e treatments appear to be successfu+ and 'er tumor disappears. E+sie ismo!ed to Crowns!i++e tate )ospita+.

Questions to Ponder:%. escribe )enriettas reaction to 'er inferti+ity.#. )ow we++ do you t'in s'e understood 'er i++ness0 )er treatment0

Chapter $: :4adys on t'e 8'one(Summary:Rebecca +oot contacts Ro+and 8atti++o in an attempt to reac' )enriettas fami+y. )er first and

second contacts wit' ebora' are !ery different and +ea!e Rebecca confused. Rebecca a+so isab+e to ta+ wit' )enriettas 'usband, ay.Questions to Ponder:

;. 1'y did Ro+and 8atti++o as Rebecca w'at s'e new about African-Americans and sciencebefore 'e wou+d *i!e 'er ebora's p'one number0

@. 1'y do you t'in ebora' deferred to :t'e men( w'en main* a decision about w'et'er ornot to ta+ wit' +oot0


Ro+and 8atti++o

Key Terms:

Chapter %: &'e eat' and 4ife of Ce++ Cu+ture(

Summary: Rebecca pro!ides 'istorica+ context for


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Chapter &: :A 5iserab+e pecimen(

Summary: &'ou*' )enriettas doctors to+d )enrietta s'e was fine, from une %%)enrietta was in increasin* pain. At +ast, doctors confirmed t'at tumors were*rowin* inside )enrietta. 'e 'ad no c'oice but to stay in t'e 'ospita+, 'owe!er,radiation treatments and paini++ers fai+ed to stop t'e spread of cancer t'rou*'out

)enriettas body. Ce++s were a*ain taen from )enrietta wit'out 'er now+ed*e.Questions to Ponder:

%. 1'at does :bene!o+ent deception( mean, accordin* to t'is aut'or0

#. 1'y did t'e doctor say t'at )enrietta was :a miserab+e specimen(0

;. o you t'in t'at )enrietta recei!ed t'orou*' and proper medica+ care0


adie

5ar*aret

ay

r.


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)ector )enry, :Cootie( :t'e ot'er side of t'e tracs(

po+io

spirits

Chapter 11: :&'e e!i+ of 8ain =tse+f(Summary:&'is c'apter re+ates )enriettas fina+ and unima*inab+y painfu+ days. )enriettas cousin Emmett andsix ot'er men !isit )enrietta in t'e 'ospita+ and donate b+ood to 'e+p 'er. )owe!er, repeatedtransfusions and powerfu+ paini++ers are use+ess. Before s'e passes away, )enrietta ass ay and'er sister to tae *ood care of t'e c'i+dren, especia++y +itt+e ebora', w'en s'e is *one.

Questions to Ponder:%. )ow did Emmett describe )enrietta in t'e 'ospita+0#. )a!e you or someone in your fami+y e!er been sic and in *reat pain0 id members of your

extended fami+y inc+udin* cousins come and 'e+p you or your fami+y member0;. &'ou*' )enriettas fami+y was not materia++y wea+t'y, cou+d we say t'at t'e 4acs fami+y

was ric' in ot'er ways0


Emmett, E+sie, a ce++ +ine>and not as indi!idua+'uman bein*s. Reca++ t'e numerous examp+es of t'is in t'e boo.

#. Are you fami+iar wit' t'e custom of pub+ic !iewin* of a deceaseds body0 1'atsi*nificance does t'is 'a!e for a community0

;. )ow did Cousin 8eter interpret t'e sudden storm0 o you a*ree0


r. 1i+bur 2pat'o+o*ist3

8eter 4acs 2cousin3

Key Terms:

code of et'ics

uremia

autopsy


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Chapter 1!: :&'e )e4a Factory(Summary:&'is c'apter describes 'ow )enriettas ce++s spread from r.


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Chapter 1#: :&oo Youn* to Remember(Summary:&'is c'apter exp+ains w'at +ife was +ie for )enriettas c'i+dren ri*'t after s'e died. )enriettasc'i+dren, especia++y ebora' and oe, were forced to endure a traumatic and dis'eartenin*c'i+d'ood after )enrietta passed away.Questions to Ponder:

%. )enriettas cousins ca++ed Et'e+ :t'at 'atefu+ woman.( =n w'at ways did Et'e+ +i!e up to t'at

name0#. C'oose t'ree words to describe w'at +ife was +ie for )enriettas c'i+dren in t'e years after'er deat'.

;. 1'y did oe *row up to be suc' an an*ry c'i+d0@. 1'at inf+uence did Bobbette 'a!e on ebora's +ife0. o you t'in it wou+d 'a!e been beneficia+ to ebora' if someone 'ad to+d 'er more about

'er mom and E+sie0 1'y or w'y not0


Et'e+


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Chapter 1%: :=++e*a+, =mmora+, and ep+orab+e(Summary:&'is c'apter exp+ains t'e immora+ researc' t'at doctors were performin* on uninformed patientsusin* )e4a ce++s. &'e c'apter describes w'y t'e Gationa+ =nstitutes of )ea+t' 2G=)3 determinedt'at medica+ researc' in!o+!in* 'uman sub7ects 'ad to be appro!ed.Questions to Ponder:

%. =n your opinion, was t'e cancer researc' r. C'ester out'am performed on patients tru+yimmora+, i++e*a+, and dep+orab+e0 1'y or w'y not0

#. 1'at were t'e dan*ers and benefits of out'ams researc'0;. )ow did t'e Gurember* Code and t'e G=) affect t'e medica+ +aws in p+ace today0@. 8redict w'at wi++ 'appen to cancer researc' and scientific pro*ress now t'e G=) 'as

craced down on medica+ et'ics.

People Introduced in thisChapter:

C'ester out'am

1i++iam )yman

Berti+ B7or+und

tate Attorney


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Chapter 1': :&'e 5ost Critica+ &ime on t'is Eart' is Gow(Summary:&'is c'apter describes 'ow difficu+t +ife was for bot' oe and ebora'. &'e reader +earns about 'owoe ends up in prison and w'y ebora' decides to +ea!e C'eeta' to become a sin*+e mot'er.Questions to Ponder:

%. 1'y was oe nicnamed :Cra9y oe(0 oes 'e +i!e up to t'at name0

#. 1'at does oe mean w'en 'e writes :t'e most critica+ time on t'is eart' is now(0 )ow can youre+ate to t'at statement0

;. Compare and contrast t'e re+ations'ip of ebora' and C'eeta' to t'e re+ations'ip between)enrietta and ay described at t'e be*innin* of t'e boo. )ow are t'e re+ations'ips simi+arand different0

@. 8redict t'e s'ocin* news ebora' is about to *et. Based on 'ow t'e aut'or describedebora' at t'e be*innin* of t'e boo, 'ow do you t'in s'e is *oin* to 'and+e t'e news0


A+fred :C'eeta'( Carter

E+drid*e 4ee =!y

une

Haariyya Bari Abdu+ Ra'man

Key Terms:

Dminous+y

=nsubordination

=nferiority comp+ex

Chapter (: :&'e )e4a Bomb(Summary:&'is c'apter exp+ains a ma7or ce++ cu+turin* prob+em t'at was disco!ered in %. =t was be+ie!ed t'ata++ of t'e ce++s t'at 'ad been cu+tured and used for medica+ researc' up unti+ t'is point 'ad beencontaminated by )e4a ce++s. =f pro!en to be true, t'is cou+d be a 'u*e setbac for doctors andscientists.Questions to Ponder:

%. 1'at exact+y was t'e :)e4a Bomb(0#. 1'y were scientists and doctors so concerned wit' t'e news t'at tan+ey


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Chapter 1: :Gi*'t octors(Summary:=n t'is c'apter, we be*in to understand 'ow )enriettas fami+y fee+s about 'er ce++s bein* taen from'er wit'out consent. &'e fami+y starts to te++ Rebecca +oot about )enriettas +ife and w'y t'eypercei!e t'emse+!es to be !ictims of an extreme in7ustice.Questions to Ponder:

%. 1'y do you t'in )enriettas fami+y treated Rebecca different+y t'an a++ t'e ot'er reporters w'owanted information0 1'at made 'er different0

#. 1'o were t'e ni*'t doctors and w'at did t'ey do0 1'at type of impact did t'ey +ea!e onsociety0

;. 1'at was t'e initia+ purpose of o'ns )opins )ospita+0 id t'e doctors up'o+d t'e ori*ina+purpose0 1'y or w'y not0

@. 1'y do you t'in no one informed t'e 4acs fami+y )enriettas ce++s were taen0 1'y werefami+y members not updated on w'at )enriettas ce++s were doin* for science and medicine0

. 1'y were 4acs fami+y members furious at t'e end of t'e c'apter0. =f you were a member of )enriettas fami+y, wou+d you be upset about t'e )e4a ce++ situation0

1'y or w'y not0

Chapter : :&'e Fame 'e o Ric'+y eser!es(Summary:


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Chapter ": :4east &'ey Can o(Summary:5ic'ae+ Ro*ers, a writer for Ro++in* tone ma*a9ine, pub+is'es a story about )enrietta and 'erfami+y. &'is is t'e first time t'e mainstream media reports about )enrietta and 'er fami+y, andt'at t'ey were b+ac. )enriettas sons become con!inced )opins sto+e 'er ce++s and mademi++ions.

Questions to Ponder:

%.


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Chapter %: &'e ecret of =mmorta+ity(Summary:&'e aut'or describes 'ow )enriettas cancer started and w'y it spread so Juic+y. Rebecca a+soexp+ains w'y )enriettas ce++s are immorta+.Questions to Ponder:

%. =f you were *i!en t'e option to be immorta+, wou+d you0 1'y or w'y not0

#. 'ou+d scientists be ab+e to manipu+ate GA to produce :desi*ner babies(0 efend yourar*ument.

People Introduced in this Chapter: Key Terms:

)86

&e+omere and te+omerase

)ayf+ic 4imit

Chapter &: After 4ondon(Summary:&'e BBC maes a documentary about )enrietta and 'er fami+y. Ro+and 8atti++o or*ani9es t'e )e4a

Cancer Contro+ ymposium in At+anta. &'e city of At+anta dec+ares Dctober %% as )enrietta 4acsay. ir 4ord ?eenan ?ester Cofie+d enters ebora's +ife and fi+es a +awsuit a*ainst 'er, o'ns)opins, and many ot'ers.

Questions to Ponder:%. =f you 'ad ce++s t'at cou+d +ead to a *reat medica+ disco!ery, wou+d you donate t'em for :t'e

*ood of science,( or wou+d you se++ t'em0 Exp+ain your answer.#. )ow did ?idwe++s 2)opins attorney3 attempt at protectin* ebora' +ead to 'er breadown0;. 1'y do you t'in t'e *roup from )opins t'at 'ad been worin* on a way to 'onor )enrietta

sudden+y stopped t'eir p+annin*0

People Introduced in this Chapter: Ric'ard ?idwe++

&erry 'arrer

Barbara 1yc'e

Adam Curtis

ir 4ord ?eenan ?ester Cofie+d

Key Terms:

Chapter ' :A 6i++a*e of )enriettas(Summary:

ebora' a*rees to cooperate wit' Rebecca on t'e booK t'ey commence co++aboration on u+y ,#$$$ near t'e Ba+timore 'arbor.Questions to Ponder:

%. ebora' campai*ned to +earn more, and 'a!e ot'ers understand, about 'er mot'er and 'ersister. 1'y were t'eir unto+d stories !ita+ to ebora'0

#. &oward t'e end of t'e c'apter, Rebecca ased ebora' about t'e fo+der of )enriettasmedica+ records ebora' carried in 'er satc'e+K w'y mi*'t ebora' 'a!e snapped :we aintready for t'at( at Rebecca w'en Rebecca t'ou*'t ebora' 'ad +aid t'e fi+e out forexamination0



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Chapter !(: :Haariyya(Summary:1it' ebora' as c'auffeur and 'er *randsons a!on and A+fred as rear-seat passen*ers, Rebecca*oes to Haariyyas apartment so s'e can inter!iew )enriettas youn*est son.Questions to Ponder:

%. Haariyya said, to Rebecca !"e can#t even $o see a doctor cause "e can#t afford it% &nly

'eo'le that can $et any $ood from my mother cells is the 'eo'le that $ot money!( iscusst'e et'ica+ imp+ications of Haariyyas statement.

#. )ow do you t'in Et'e+s treatment of youn* Haariyya 2*i!en name oe3 affected 'isado+escence t'en +ater-+ife +e*a+ sirmis'es0

People Introduced in this Chapter: Key Terms:

Haariyya 2Hu'-CAR-ee-u'3

Chapter !1: :)e+a,


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Chapter !!: :&'e )ospita+ for t'e Ge*ro =nsane(Summary:ebora' and Rebecca embar on a wee-+on* Juest to disco!er E+ises 'istory, startin* at t'eformer Hos'ital for the *e$ro InsaneL at t'e time of t'eir !isit renamed The )ro"nsville +,-.Hos'ital )enter. 2&'e )ospita+ subseJuent+y c+osed in u+y #[email protected]

Questions to Ponder:%. iscuss 4ur9s *ent+e statement to ebora' about 'er Juest to +earn detai+s of E+ises +ife

:ometimes +earnin* can be 7ust as painfu+ as not nowin*.( Re+ate t'at statement to ane!ent in your +ife.

#. =f you were *i!en a *enea+o*y opportunity, w'at dead re+ati!e L w'o you 'a!e ne!er met Lwou+d you exp+ore0


8au+ 4ur9

?ey &erms

8neumoencep'a+o*rap'y

Chapter !": :&'e 5edica+ Records(Summary:Rebecca and ebora' be*in sortin* and re!iewin* )enriettas and E+ises medica+ records w'i+estayin* at a 'ote+ somew'ere between Annapo+is 253 and C+o!er 26A3.Questions to Ponder:

%. urin* 'er decade of researc'in* and writin* :=mmorta+ 4ife,( and especia++y durin* t'is'ote+ stay, 'ow do you t'in Rebecca maintained 'er L for t'e most part L eJui+ibrium and+iterary focus amidst t'e 4acs c'i+drens c'aotic +i!es and erratic be'a!ior0

#. 8onder e!ents described at t'e bottom of pa*e #M; did Rebeccas reaction affect t'eboos pro*ress0

Chapter !#: :)ea!en+y Bodies(Summary:ebora' becomes emotiona++y and p'ysica++y o!erw'e+med wit' insi*'t about 'er mot'er and sister.Questions to Ponder:

%. )ow did


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Chapter !%: :Got'in* to Be cared About(Summary:ebora's poor 'ea+t' prec+udes 'er from accompanyin* Rebecca durin* #$$% researc' tripsKRebecca on+y reports positi!e findin*s to ebora'. ebora' prepares to attend a community co++e*eto better understand science and to spea at a Gationa+ Foundation for Cancer Researc' conferencein 'onor of 'er mot'er w'en t'e eptember %% attacs occur.Questions to Ponder:

%. After ebora' suffered a stroe 'er once-erratic be'a!ior was rep+aced by a ca+merunwa!erin* demeanor. 1'at factors mi*'t 'a!e contributed to ebora's stee+y

determination0#. 1'at way+aid ebora's educationa+ p+ansK 'ow did t'at affect t'e next 4acs *eneration0

Chapter !&: :&'e 4on* Road to C+o!er(Summary:Rebecca returns to C+o!er in #$$, boo finis'ed, to reminisce in t'e town w'ere )enriettas 7ourneybe*an. )er myriad ca++s to ebora', to w'om Rebecca promised to read t'e boo, went unansweredand !oice messa*es were not returned. A ca++ to onny confirms ebora' died 7ust after 5ot'ers ay#$$.Questions to Ponder:

%. Contrast )enriettas *reat *randc'i+drens dreams and +i!es in #$$ wit' t'at of t'eir *reat*randmot'er at t'eir a*es.

#. Researc', if possib+e, w'at dreams one or more of your *reat *randparents 'ad as %M year o+dsas we++ as t'eir +ifesty+es. )ow does t'is compare to, and impact, your +ife as a t. Bona!enture"ni!ersity fres'man0


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