how do we get policy makers to take musculoskeletal health...
TRANSCRIPT
Bone and Joint Decade 2010 - 2020 The Global Alliance for Musculoskeletal Health
Professor Anthony D Woolf Chair, Bone and Joint Decade 2010-20
Royal Cornwall Hospital, Truro & Peninsula College of Medicine and Dentistry
How do we get policy makers to
take musculoskeletal health and
conditions seriously?
Musculoskeletal conditions - the unmet need
• Musculoskeletal disorders are common in all countries and cultures
• include joint diseases, spinal disorders, back and regional pain problems,
osteoporosis and fragility fractures, and consequences of injuries and trauma
• hundreds of millions of people are affected around the world
• They are a major burden on health and social care
• worst impact on quality of life of many chronic diseases
• most common cause of severe long-term pain and physical disability
• They are one of the greatest threats to healthy active aging
• There are effective ways of preventing and controlling musculoskeletal conditions
but these are not being implemented with equity
• There is a lack of policies and priorities for musculoskeletal conditions
• There is enormous unmet need and avoidable disability
Musculoskeletal conditions - some reasons for lack of
priorities and policies
• Lack of awareness by policy makers, non-expert health workers and public about
• the impact of musculoskeletal conditions (epidemiology, costs etc.)
• what can be achieved by prevention and treatment
How do we ensure that musculoskeletal
conditions are among the leading major health
concerns in the minds and actions of opinion
formers and policy makers throughout the world ?
Musculoskeletal conditions - gaining priority
Competing
priorities
Evidence
Expert
opinion
Public
opinion
Economic
climate
Lobbying
Opportunities
Contextual
factors
HEALTH
POLICY
NGOs
Commercial
interests What is
achievable
Cost
effectiveness
Needs
Factors that influence health policy
Evidence to support advocacy
• Identifying and communicating the evidence that policy makers
need and understand “making the case”
– How many people are affected (voters!)
– What is the cost to us
– What can you do about it
– What savings can be made with what investment (tax
payers!)
• Guiding principles
– Demonstrate value for money
– Appeal to the public
IMPACT OF DISEASE
“STATE OF THE ART”
EFFECTS OF INTERVENTION
UNAVOIDABLE
BURDEN
EFFECTS IN CLINICAL
PRACTICE AVOIDABLE
BURDEN
OF DISEASE
Co-ordinators: Anthony Woolf, Kristina Åkesson, Mieke Hazes
Bone and Joint Monitor Project Health Needs Assessment of
Musculoskeletal Conditions
IMPACT OF DISEASE
“STATE OF THE ART”
EFFECTS OF INTERVENTION
UNAVOIDABLE
BURDEN
EFFECTS IN CLINICAL
PRACTICE AVOIDABLE
BURDEN
OF DISEASE
Bone and Joint Monitor Project Health Needs Assessment of
Musculoskeletal Conditions
Co-ordinators: Anthony Woolf, Kristina Åkesson, Mieke Hazes
The Burden of Musculoskeletal Conditions
“Musculoskeletal diseases are the major cause of morbidity
throughout the world. These diseases have a substantial
influence on health and quality of life and they inflict an
enormous cost on health systems”
Dr Gro Harlem Brundtland
Past Director General, WHO, January 2000
Scientific Group Meeting
organised by WHO and
Bone and Joint Decade,
Geneva
“Musculoskeletal diseases are the major cause of morbidity
throughout the world. These diseases have a substantial
influence on health and quality of life and they inflict an
enormous cost on health systems”
Dr Gro Harlem Brundtland
Past Director General, WHO, January 2000
”…. With the increasing number of
older people and changes in lifestyle
occuring throughout the world, this
trend will increase dramatically over
the next decade and beyond. …we
must act on them now ” Kofi Annan, 1999
Secretary General, UN
The Burden of Musculoskeletal Conditions
“The Burden of Musculoskeletal Conditions at the Start of the New Millennium”
Geneva, January 2000
• Scientific Group Meeting organised by
WHO and Bone and Joint Decade and
opened by Dr Gro Harlem Brundtland,
(then Director General WHO)
• Experts from all continents and in all
conditions
• What is the global burden?
• How should we monitor the burden?
• WHO Technical Report October 2003
Musculoskeletal Conditions
• Joint diseases
– Osteoarthritis
– Rheumatoid arthritis
– Gout
– Infections
• Systemic connective tissue disorders
• Back pain
• Musculoskeletal pain
• Osteoporosis and low trauma fractures
• Bone infections
• Trauma
• Injuries
and more………
22% of the population in Europe currently had, or had
experienced “long-term muscle, bone and joint problems
such as rheumatism and arthritis”
Health in the European Union
Eurobarometer Special Report 272,
September 2007
1 in 3 experience musculoskeletal pain
restricting activities of daily living
32% experienced
activity-limiting
musculoskeletal
pain in the
preceding week
Health in the European Union
Eurobarometer Special Report 272,
September 2007
Worker Health Chartbook 2004, USA
Injuries and illnesses in private industry, 2001
The majority of occupational health
problems are acute musculoskeletal
injuries or associated with repetitive
musculoskeletal trauma
Distribution of occupational injury and illness cases with
days away from work in private industry, USA 2001
Worker Health Chartbook 2004, USA
What effect do musculoskeletal conditions have?
• Pain
• Deformity
• Physical disability
• Quality of life
• Mortality
The impact
– the human and
financial consequences
Person
Caregivers
Health care system
National economy Lower quality of life
(pain, restriction of activities) Caregiver time
Health conditions associated with disability
• Limited data but national surveys in some countries
• Australia: arthritis, backpain, hearing disorders, hypertension,
heart disease, asthma and vision disorders were most common
disability-related health conditions in1998 population survey
• Canada: arthritis, backpain and hearing disorders were most
common in adults over 15 years in 2006 study
• USA: rheumatism leading cause among adults >65 years,
accounting for 30% who reported limitations in their “activities of
daily living”
• Road traffic injuries: between 1.2 and 1.4 million deaths pa
but further 20 – 50 million injured; post-crash disability 2 – 87%
in systematic review
Impact on quality of life of chronic disease
Musculoskeletal conditions are associated with the poorest quality of life
Sprangers et al J Clin Epidemiol 2000; 53(9):895-907
Person
Caregivers
Health care system
National economy
Health care costs
Work disability
Social support
The impact
– the human and
financial consequences
The burden of MSC on primary care
UK consultation rates
Percent respondents visited health provider
in past 12 months
Source: EHIS; Wales National Health Survey; Austria National Health Survey
Percent respondents visited health provider in past 12 months
0 2 4 6 8 10 12 14
Belgium
Latvia
Cyprus
Hungary
Malta
Austria
Wales
Slovenia
Czech Repub.
Percent
Physiotherapist
Chiropodist
Occupational
therapist
1 in 4 on longterm treatment because of
“longstanding troubles with muscles, bones
and joints (arthritis, rheumatism)”
Health in the European Union
Eurobarometer Special Report 272,
September 2007
Duration of incapacity benefit claim by condition
England, Scotland & Wales 2010
Source: Department of Work & Pensions 2010
Incapacity benefit caseload working age by duration of claim
England Scotland & Wales 2010
0
100
200
300
400
500
600
700
Injury, Poisoning and
certain other
consequences of
external causes
Diseases of the
Circulatory or
Respiratory System
Diseases of the Nervous
System
Diseases of
Musculoskeletal system
& connective tissue
Mental & Behavioutal
disorders
Condition
Caselo
ad
(1,0
00s)
6 mths to 1 yr
1- 2 yrs
2-5 yrs
5 yrs+
Disability pension by main diagnosis Finland
Source: Finnish Centre for Pensions and The Social Insurance Institution of Finland. Statistical Yearbook of Pensioners in Finland
Recipients of disability pensions- top 6 diagnoses
Finland 2009
0
20
40
60
80
100
120
140N
eo
pla
sms
Inju
rie
s &
po
iso
nin
g
Dis
ea
ses
of
circ
ula
tory
syst
em
Dis
ea
ses
of
ne
rvo
us
syst
em
Dis
ea
ses
of
mu
scu
losk
ele
tal
syst
em
Me
nta
l
dis
ord
ers
Disease category
No
. re
cip
ien
ts (
1,0
00s)
From the individual to health of the
population
Measuring population health
Summary measures of population health combine information
on mortality and non-fatal health outcomes to represent the
health of a particular population as a single number Disability Adjusted Life Year (DALY)
0 10 20 30
40
50
60
70
80
90
100
0 20 40 60 80 100 Age
% s
urv
ivin
g (
tho
usan
ds)
B
A
C C = Years of Life Lost
(YLLs)
B = Years of Life lived
with Disability
(YLDs)
DALY = YLL + YLD
DALY is one lost year of
healthy life
The 20 Leading Causes of Global Burden of
Disease (DALYs), 2001
Global Burden of Disease and Risk Factors
Lopez et al
DCPP World Bank 2006
Global Burden of Disease: the 10 Leading
Causes of YLD, 2001
Low- and middle-income countries High-income countries
2.1 1.53 Vision disorders, age-
related
2.0 9.34 Protein-energy
malnutrition
10
2.4 1.68 Endocrine disorders 2.1 9.81 Alcohol use disorders 9
3.2 2.25 Diabetes mellitus 2.1 10.15 Schizophrenia 8
4.0 2.86 Chronic obstructive
pulmonary disease
2.3 11.10 Cerebrovascular
disease
7
4.9 3.46 Cerebrovascular
disease
2.8 13.52 Perinatal conditions 6
5.3 3.77 Osteoarthritis 2.9 13.65 Osteoarthritis 5
5.3 3.77 Alcohol use disorders 3.2 15.36 Vision disorders, age-
related
4
7.6 5.39 Hearing loss, adult
onset
5.2 24.61 Hearing loss, adult
onset
3
8.9 6.33 Alzheimer’s and other
dementias
5.9 28.15
Cataracts 2
11.8 8.39 Unipolar depressive
disorders
9.1 43.22 Unipolar depressive
disorders
1
% of total
YLD
YLD (millions of
years)
Cause
% of total
YLD
YLD (millions of
years)
Cause
Global Burden of Disease and Risk Factors Lopez et al DCPP World Bank 2006
YLDs due to musculoskeletal
conditions vary by European region WHO 2004
Source: WHO Global Burden of Disease 2004 http://www.who.int/healthinfo/global_burden_disease/YLD14_30_2004.xls
YLDs musculoskeletal diseases by European region 2004
0
500
1000
1500
2000
2500
3000
Musculoskel.
Diseases
Osteoarthritis Rheumatoid
arthritis
Other
musculoskeletal
disorders
Gout Low back pain
Cause
YL
Ds (
tho
usan
ds)
EUR A
EUR B
EUR C
The problem
• Musculoskeletal conditions are
– the single biggest cause of physical disability in developed
countries and rapidly increasing in developing countries
– major cause of healthcare and social support costs
– a major cause of lost productivity
• The burden will increase unless actions are taken
The future
The burden of musculoskeletal
conditions is increasing
Why?
• Growing and ageing
population
• Changes in lifestyle
IMPACT OF DISEASE
“STATE OF THE ART”
EFFECTS OF INTERVENTION
UNAVOIDABLE
BURDEN
EFFECTS IN CLINICAL
PRACTICE AVOIDABLE
BURDEN
OF DISEASE
Bone and Joint Monitor Project Health Needs Assessment of
Musculoskeletal Conditions
Co-ordinators: Anthony Woolf, Kristina Åkesson, Mieke Hazes
Interventions for musculoskeletal conditions
are effective
• Osteoarthritis
• exercise. pain control and self management
• joint prostheses
• Rheumatoid arthritis
• effective disease modifying therapy eg methotrexate, biologics
• Osteoporosis and Fractures
• fracture prevention strategies using anti-resorptive agents for those at highest risk
• Back Pain
• early rehabilitation
The Evolving Management of Rheumatoid Arthritis (RA)
“Rheumatism” (Guillaume de
Baillou)
“Rheumatoid Arthritis”
(Sir Alfred Garrod)
1591
1680s 1860sa
1859a
Quinine Willow Bark
1890sa
Manufactured
Aspirin
1920s
Gold
Injections
1940s
Steroids
1980s
Methotrexate
(MTX)
1990s
Biologics
aAppelboom T. Rheumatology (Oxford). 2002;41(suppl 1):28-34.
2000s
Early
aggressive
treatment
RA can now be effectively treated
Best Study Percentage in remission
0
20
40
60
80
100
0 3 6 9 12 15 18 21 24
Time (months)
% w
ith
DA
S44
<1.
6
sequential mono step-up combination
combi with prednisone combi with infliximab
Goekoop - Ruiterman: A&R 2005
IMPACT OF DISEASE
“STATE OF THE ART”
EFFECTS OF INTERVENTION
UNAVOIDABLE
BURDEN
EFFECTS IN CLINICAL
PRACTICE AVOIDABLE
BURDEN
OF DISEASE
Bone and Joint Monitor Project Health Needs Assessment of
Musculoskeletal Conditions
Co-ordinators: Anthony Woolf, Kristina Åkesson, Mieke Hazes
Identifying gaps in the provision and outcome of care
Management of musculoskeletal pain
Multinational Survey of
Osteoporotic Fracture Management Dreinhöfer et al. Osteoporos Int 2005; 16:S44-S54
Secondary prevention of fractures
Major inequities in care: use of resources
unequally distributed to people with equal needs
Differences in RA across countries
In spite of this enormous and increasing
burden and the major advances in what can
be achieved by prevention and treatment, this
is not reflected in:
• Public awareness
• Political priorities
• Health care provision
• Medical education for undergraduates and primary care
• Research expenditure
Competing
priorities
Evidence
Expert
opinion
Public
opinion
Economic
climate
Lobbying
Opportunities
Contextual
factors
HEALTH
POLICY
NGOs
Commercial
interests What is
achievable
Cost
effectiveness
Needs
Factors that influence health policy
Recognition of the need for concerted
action in late 1990’s
• In Europe a recognition of need to gain priority for
prevention and management of arthritis and other
musculoskeletal conditions in mid 1990s – modelled
on St Vincent’s Declaration for diabetes
• In Sweden a recognition of the need to gain priority
and resources for research into musculoskeletal
disorders – modelled on Decade of the Brain
• Clear objectives
• A strong case supported by data and
examples
• Suggest solutions
• Activities to achieve objectives
• Work with all stakeholders
Influencing the decision makers – changing
public and political opinion
What do we want?
• To reduce the burden and cost of musculoskeletal
conditions to individuals, carers and society in all
countries
– Promotion of a lifestyle that will optimise musculoskeletal
health at all ages
– Identify and treat those who are at highest risk
– Accessible, timely, safe, appropriate treatment to control
symptoms and prevent unnecessary disability due to
musculoskeletal conditions and injuries
– Accessible and appropriate rehabilitation to reduce any
disability due musculoskeletal conditions and injuries
– Advance knowledge and care through research
Physicians, health
professionals, patients
organisations
Scientists Orthopaedics
Recognition of the need for concerted
action
• Professional, scientific and patient organisations
brought together in 1998 in Lund and agreed to
launch the Bone and Joint Decade 2000 - 2010
• Remandated in 2010
Official Support by Kofi Annan
UN Secretary General
30 November 1999
United Nations
The Bone and Joint Decade is a global alliance of
professional, scientific and patient organisations
working together to make musculoskeletal health a
public health priority
• Promoting musculoskeletal health and
musculoskeletal science worldwide
• To reduce the burden and cost of musculoskeletal
conditions to individuals, carers and society
Bone and Joint Decade – The Next Ten Years 2010 – 2020 “Keep people moving”
“Keep people moving”
• Endorsed by the UN, the WHO, the World Bank, the Vatican and health
ministries in over 60 countries
• Steered by an International Co-ordinating Council and delivered by
National Action Networks in over 60 countries
Bone and Joint Decade – The Next Ten Years 2010 – 2020 “Keep people moving”
Bone and Joint Decade – The Last and Next Ten Years “Keep people moving”
Significant achievement over the last Ten Years:
• Bringing the musculoskeletal community together to improve
musculoskeletal health and science
Goal for the next Ten Years: • To ensure that musculoskeletal conditions are among the leading
major health concerns in the minds and actions of opinion formers
and policy makers throughout the world. Their priority should
reflect the enormous impact on individuals and cost to society.
Situation at end of the first Ten Years: • Musculoskeletal conditions are still not a priority in most health
systems and there is enormous unmet need and avoidable disability.
What makes us unique
• We are the only organisation that brings together all stakeholders
across the globe, considering all musculoskeletal conditions and
providing access to high-level policy makers
• We are an umbrella, linking networks of national organisations across
the globe, which include those for health care professionals and
patients, providing a unified voice and a global reach
• We focus on health policy and evidence with a mandate to
develop strategies and set the agenda, aimed at improving
quality of life by implementing effective prevention and treatment
Bone and Joint Decade – The Next Ten Years 2010 – 2020 “Keep people moving”
Values of the Bone and Joint Decade
• Credibility
• Partnership
• Inclusivity
• Unity
• Global
• Strategic
• Evidence-based
“A unified voice – a world of difference”
A global alliance for musculoskeletal health
The challenges to gaining greater priority
• Non-communicable diseases recognised as a major health
problem but focus is on high mortality not high morbidity
conditions
• Urgency of improving lifestyle recognised but benefits to
musculoskeletal health not appreciated
• Need for lifelong economic independence recognised but
threat from common disabling musculoskeletal conditions not
seen
• Aging of population globally recognised but focus on
minds not mobility
Bone and Joint Decade – The Next Ten Years 2010 – 2020 “Keep people moving”
Our Strategy
• We are focusing resources on gaining recognition of the
importance of musculoskeletal conditions globally,
regionally and nationally through core programmes
• These programmes are being steered by the International
Coordinating Council, and delivered in partnership by National
Action Networks, supporting organisations and individuals
working together, with the support of the Bone and Joint
Decade.
Bone and Joint Decade – The Next Ten Years 2010 – 2020 “Keep people moving”
Our Key audiences: • Our target audiences
• WHO
• UN
• Regional policy makers, such as EU
• National policy makers
• Non-specialist health care professionals
• Our mobilising audiences • Professional, scientific and patient organisations relevant to
musculoskeletal health advocating for change
• Our enabling audiences • Sponsors
• Partners
• Our supporting audience • Public
Bone and Joint Decade – The Next Ten Years 2010 – 2020 “Keep people moving”
Gaining
recognition of the
importance of
musculoskeletal conditions
Surveillance
Standards of care
Partnership Public and patient
education Advocacy
Professional education
Research
Core programmes to gain recognition of the
importance of musculoskeletal conditions
Gaining
recognition of the
importance of
musculoskeletal conditions
Surveillance
Standards of care
Partnership Public and patient
education Advocacy
Professional education
Research
Aim – To measure, monitor and raise awareness of the
suffering and cost to society associated with
musculoskeletal conditions
Impact of Musculoskeletal Conditions
World
Health
Reports
Global Burden of
Disease
2005
In preparation
WHO
Seattle, Harvard, Queensland
Gates Foundation
in USA
Europe Global
EUMUSC.NET is raising and harmonising quality and equity of care across Europe by creating a health surveillance and information system that provides
• Improved data and data sources for agreed indicators to enable good quality
and comparable information, surveillance and identification of inequalities of outcome.
• A sustainable health monitoring system
• Standards of care with specific user-focused targets
• Health care quality indicators to enable systems of care to be evaluated, best practice identified and improve equity of care across Europe
• Identification and dissemination of knowledge and best practice to enable the implementation of these standards and the achievement of the indicators
A partnership of 22 centres across Europe supported by
the EU and EULAR
• Musculoskeletal Health
in Europe Report
• Recommended core
indicators of the
impact musculoskeletal
conditions
• Country Fact Sheets
• www.eumusc.net
NAN Action Point
• National data on burden of musculoskeletal conditions
• National information on services provided
National Alliance for Promoting Musculoskeletal Health
Gaining
recognition of the
importance of
musculoskeletal conditions
Surveillance
Standards of care
Partnership Public and patient
education Advocacy
Professional education
Research
Aim - Strategies for prevention and control at a
national level and their implementation
Those with
condition At
Risk
The whole
population MORBIDITY
10 30 20
Primary prevention • avoid or remove
the cause of a
health problem
before it arises
Stages of Prevention
Secondary prevention • detect a health problem
at early stage, facilitating
cure, or reducing /
preventing spread, or
reducing / preventing
long-term effects
Tertiary prevention • reduce the impact
of an already
established
disease
Setting standards of care and providing the
evidence base for health policy
In Europe
• A common policy to prevent and control musculoskeletal conditions in Europe (funded by EU)
• Patient-related standards of care and healthcare quality indicators for providers being developed by EUMUSC.NET (funded by EU and EULAR)
In developing countries
• Cost-effective health interventions for musculoskeletal conditions in the Disease Control Priorities in Developing Countries Report (initiative of World Bank, WHO and NIH).
Disease Control Priorities
in Developing Countries
Preventive Strategies: deal with known risk factors
– Ideal body weight
– Balanced diet including calcium & vitamin D
– Physical activity
– Avoid smoking & excess alcohol
– Injury prevention (work, home, leisure)
– A safe environment
Disease Control Priorities
in Developing Countries
There are effective interventions for the
management of musculoskeletal conditions
• Osteoarthritis
• pain control and self management • exercise • joint prostheses
• Rheumatoid arthritis
• education and self management • symptom control & rehabilitation • effective disease modifying therapy eg methotrexate
• Back Pain
• early rehabilitation • Osteoporosis and Fractures
• fracture prevention strategies for those at highest risk eg previous fragility fracture treat with bisphosphonates
IMPACT OF MUSCULOSKELETAL CONDITIONS
WHAT CAN BE ACHIEVED BY “STATE OF THE ART”
KNOWLEDGE UNAVOIDABLE
BURDEN
WHAT IS ACHIEVED BY PREVENTION
& CLINICAL PRACTICE AVOIDABLE
BURDEN
The avoidable burden of musculoskeletal
conditions
CLOSING THE GAP BETWEEN WHAT
CAN & WHAT IS BEING ACHIEVED
What is needed to close the gap ?
• Health promotion
– inclusion of musculoskeletal health as a benefit for healthy lifestyles
• Case-finding strategies
– early onset polyarthritis
– previous fragility fracture
• Access to appropriate management at the right time
– disease modifying drugs with monitoring eg methotrexate
– surgery eg fracture management, arthroplasty, trauma
– rehabilitation to restore function
• Resources
– trained health professionals / health workers
– availability of interventions – drugs, prostheses…….
• Surveillance
– measurable quality indicators
EUMUSC.NET is raising and harmonising quality and equity of care across Europe by creating a health surveillance and information system that provides
• Improved data and data sources for agreed indicators to enable good quality
and comparable information, surveillance and identification of inequalities of outcome.
• A sustainable health monitoring system
• Standards of care with specific user-focused targets
• Health care quality indicators to enable systems of care to be evaluated, best practice identified and improve equity of care across Europe
• Identification and dissemination of knowledge and best practice to enable the implementation of these standards and the achievement of the indicators
A partnership of 22 centres across Europe supported by
the EU and EULAR
NAN Action Point
• National standards of care for major musculoskeletal problems and
conditions – OA, RA, back pain, osteoporosis, trauma care,
occupational disorders (adopt and adapt existing
recommendations)
• National health care quality indicators
• National audits of provision of care according to expected
standards
• Ability to compare within and between countries
National Alliance for Promoting Musculoskeletal Health
Gaining
recognition of the
importance of
musculoskeletal conditions
Surveillance
Standards of care
Partnership Public and patient
education Advocacy
Professional education
Research
Aim – To develop sustainable networks at global, regional
and national levels who can advocate for priority
Physicians, health
professionals, patients
organisations
Scientists Orthopaedics
and others……..
Partnership is our strength
• We are the only organisation that brings together all stakeholders across
the globe, considering all musculoskeletal conditions and providing access
to high-level policy makers
• We are an alliance, linking networks of national organisations across the
globe, which include those for health care professionals and patients
Bone and Joint Decade The Global Alliance for Musculoskeletal Health
Over 60 National
Action Networks
a unified voice, a global reach
The Vatican
WHO
UN
USA
Germany
Worldwide endorsement
Japan
BJD Annual World Network
Conferences
1999 Zurich, Switzerland
2000 Muscat, Sultanate of Oman
2001 New York, USA (cancelled)
2002 Rio de Janeiro, Brazil
2003 Berlin, Germany
2004 Beijing, China
2005 Ottawa, Canada
2006 Durban, South Africa
2007 Gold Coast, Australia
2008 Pune, India
2009 Washington DC, USA
2010 Lund, Sweden
2011 Beirut, Lebanon
NAN Action Point
• National action networks working as alliances of all
stakeholders interested in promoting musculoskeletal health
• Strategic action plans
• Advocacy training
• Share ideas and experiences with other countries
National Alliance for Promoting Musculoskeletal Health
Gaining
recognition of the
importance of
musculoskeletal conditions
Surveillance
Standards of care
Partnership Public and patient
education Advocacy
Professional education
Research
Aim – To empower people to gain priority for their own
care by raising public awareness and developing patient
advocacy organisations
The Bone & Joint Decade Patient Advocacy Seminars
2004 Beijing, China
2005 Ottawa, Canada
2006 Durban, South Africa
2007 Gold Coast, Australia
2008 Pune, India
2009 Washington DC, USA
Identifying issues – developing
skills to make change happen
Helping people develop their voice
• A free public seminar for people
with arthritis and people who care
about them
• Updates on OA, RA, JA by world
renowned experts
• Q&A panels
• Multiple partners
• Held parallel to major professional
patients so faculty available
Patient and Public Education
Musculoskeletal health in the workplace
• How to keep people physically healthy
• How to prevent MSD’s
• How to enable people with MSD’s and MSC’s to keep in the
workplace
• A new BJD initiative
NAN Action Point
• Public and patient education programmes
– Meetings
– Leaflets
– Media activities
• Work with other initiatives and stakeholders where promoting
musculoskeletal health has a relevance
– Physical fitness
– Nutrition
– Large employers
National Alliance for Promoting Musculoskeletal Health
Gaining
recognition of the
importance of
musculoskeletal conditions
Surveillance
Standards of care
Partnership Public and patient
education Advocacy
Professional education
Research
Aim - raise awareness of public and policy makers
Advocacy raising awareness of public and policy makers
• Target
• Policy makers (WHO, national Ministries of Health)
• Other relevant stakeholders e.g. employers
• Public
• Message
• Growing burden of MSC
• Effectiveness of modern day prevention and treatment
• Need for equitable access to prevention, treatment and rehabilitation
Working with the World Health Organisation
Identifying opportunities for collaboration
World Health Organisation
• WHO is responsible for health within the United Nations system. It provides
leadership on global health matters, shaping the health research agenda,
setting norms and standards, articulating evidence-based policy options,
providing technical support to countries and monitoring and assessing health
trends.
• The World Health Assembly is the supreme decision-making body for WHO.
It is attended by all 194 Member States. It determines the policies of the
Organization.
• The Executive Board (34 members) agrees the agenda for the Health
Assembly and adopts resolutions for forwarding to the Health Assembly. The
main functions of the Board are to give effect to the decisions and policies of
the Health Assembly, to advise it and generally to facilitate its work.
Member States set the agenda for WHO
Noncommunicable diseases
• WHO Strategy for Noncommunicable Diseases
Musculoskeletal trauma
• WHO Decade of Action for Road Safety
• WHO Global Alliance for the Care of the Injured
Disability
• WHO World Report on Disability
Other areas of collaboration
• Global Burden of disease
• Revision of WHO ICD10
Bone and Joint Decade – The Next Ten Years 2010 – 2020 “Keep people moving”
Our current collaboration with WHO:
2008-2013 Action Plan for the Global Strategy
for the Prevention and Control of
Noncommunicable Diseases
“Working in partnership to prevent
and control the four noncommunicable
diseases — cardiovascular diseases,
diabetes, cancers and chronic
respiratory diseases and the four
shared risk factors - tobacco use,
physical inactivity, unhealthy diets and
the harmful use of alcohol”
Global Status Report on NCDs 2010
The Global Status Report on
Noncommunicable Diseases 2010 is the
first report on the worldwide epidemic of
cardiovascular diseases, cancer,
diabetes and chronic respiratory
diseases, along with their risk factors
and determinants.
WHO – NCD Plan
• 4 Diseases prioritized: – Cancer – Cardiovascular diseases – Chronic obstructive pulmonary disease – Diabetes
• 4 Risk Factors targetted: – Tobacco use – Unhealthy diet – Harmful use of alcohol – Physical inactivity / obesity
• Opportunities
– The risk factors are common to musculoskeletal health
“Healthy lives for healthy hearts, lungs, bones and joints”
• Actions
– Raise awareness of impact of MSC and common risk factors
– Look for opportunities for working together on implementation
eg patient empowerment / self management
– Get engaged at the national and local level in activities related
to reducing the burden of NCD and get MSC included
– Work with other NCD groups
What must we do to ensure musculoskeletal conditions
and other common, high morbidity but low mortality
NCDs are recognised as a major health threat?
• World Report on Disability launched 9 June 2011 at United Nations
• provides global guidance on implementing the United Nations
Convention on the Rights of persons with Disabilities
• gives a picture of the situation of people with disabilities, their needs
and unmet needs, and the barriers they face to participating fully in
their societies
• highlights good practice examples
• makes recommendations for the way forward
UN Launch, New York and
Partners Meeting WHO, Geneva
June 2011
• BJD invited to launch and to be a partner
• Opportunity to work with WHO and other NGOs and
stakeholders to develop the recommendations and
help with their implementation
• Opportunities to work at national level as the World
Report on Disability is rolled out with national launches
Comment
• Many of the barriers people with disabilities face are avoidable and
the disadvantage associated with disability can be overcome.
BUT
• Not enough recognition of the importance of mobility and dexterity
and the role of musculoskeletal conditions in limiting these
activities and that much can be done to prevent or effectively
manage these conditions
• Not enough focus on specific causes of disability and how to
prevent disability
Road Trauma
• Musculoskeletal injuries and
longterm physical disability are
the common outcome of road
traffic accidents
• Road traffic accidents are
increasing worldwide, especially
in developing countries
• Preventing musculoskeletal
problems and disability from
whatever cause is goal of the
Bone and Joint Decade
BJD one of 4 core partners
The trauma line from injury to reintegration into society
Spectrum of Trauma Care
Pre-Hospital Care
Hospital Care
Facility- Community-
based based
Rehabilitation
Tier 1
First responders
Bystanders
Tier 2
Formal EMS
Ambulance
BJD Advocacy Toolkit
• A programme to develop advocacy for
musculoskeletal health bringing together all
stakeholders
NAN Action Point
• Gain endorsement of the importance of musculoskeletal
conditions
• Identify their priorities and look for synergies
– Healthy active aging is a priority in Europe
• Get involved in national implementation of WHO activities
• Work with policy makers
• Influence national and international opinions
– Remember that all countries have a vote in UN / WHO
• Advocacy training
• Mentorship programmes for future leaders
National Alliance for Promoting Musculoskeletal Health
Gaining
recognition of the
importance of
musculoskeletal conditions
Surveillance
Standards of care
Partnership Public and patient
education Advocacy
Professional education
Research
Aim – develop an appropriately skilled workforce
Density of health workers
Raising standards of care through medical education and training – Bone and Joint Decade Education
Task Force
Establishing Standards for
Undergraduate Education
• China, Australia, Canada, Croatia ….
Medical student
Internship
Resident
Specialist - fellow
Consultant
Professor
= Every Doctor
Global core recommendations for
a musculoskeletal undergraduate
curriculum
Common conditions (low back pain, sprains, strains, OA)
Less common conditions (fractures, RA, spinal stenosis)
Unusual conditions (bone tumors, malformations )
Emergencies
The need for basic
competency
Woolf, Åkesson & Walsh Annals Rheumatic Diseases May 2004
A sustainable training programme
NAN Action Point
• Implementation of core musculoskeletal undergraduate
curriculum in all medical schools
• Review balance of the workforce and their competencies in
identifying and managing musculoskeletal conditions
National Alliance for Promoting Musculoskeletal Health
Gaining
recognition of the
importance of
musculoskeletal conditions
Surveillance
Standards of care
Partnership Public and patient
education Advocacy
Professional education
Research
Aim – advance the understanding of musculoskeletal
conditions and improve prevention and treatment
through research
Research - Investing for the Future
Promoting musculoskeletal science
• musculoskeletal research should be
national research priority
• research funding should reflect
burden of disease or clinical needs
Young Investigators Initiative A grant mentoring and career development program
Aim
To increase pipeline of MSK clinician and basic scientists
• A mentoring program – it does not provide funding
• 200 participants
• Multi-disciplinary
• Participants have achieved 97 / $65 million funded grants in five years
• Rheumatologists: 43
NAN Action Point
• Increase priority and funding for research in musculoskeletal
science
• Encourage development of groups working together in
musculoskeletal science
• Courses in musculoskeletal science – basic and clinical
• Young investigator programmes
National Alliance for Promoting Musculoskeletal Health
• How to gain priority for longterm disabling conditions with high personal,
family and societal costs when current priorities focus on conditions with
high mortality
• Gaining recognition that musculoskeletal conditions are the leading
cause of disability, much of which can now be prevented
• Changing the paradigm from
quantity of life
to
quantity of quality life
Bone and Joint Decade – The Next Ten Years 2010 – 2020 “Keep people moving”
Challenges remain
The Bone and Joint Decade Global Alliance for Musculoskeletal Health
Together we can successfully gain priority for
musculoskeletal conditions
Poste Vatican
“Keep people moving”