how people living with parkinson's disease built the world parkinson congress #icca12 monday...
DESCRIPTION
Presentation held at the 51st ICCA Congress which took place in San Juan, Puerto Rico from 20 - 24 October 2012. For more information on ICCA please visit www.iccaworld.com.TRANSCRIPT
51st ICCA Congress
International Congress and Convention Association.
Twitter: #ICCA12
Session sponsored by:
How people living with Parkinson’s disease built the
World Parkinson Congress
International Congress and Convention Association.
Twitter: #ICCA12
•What is the WPC?
•Why we tried it in 2006. How’d we do?
•Challenges & solutions
•What good will come of it
The rise of patient power
International Congress and Convention Association.
Twitter: #ICCA12
• Creates a spark. Allows delegates to leave the comfort of their silos. WPCs are fully integrated with sessions open to everyone.
• Totally unique for most delegates to experience the cross pollination of “experts”.
• Puts a face on people with Parkinson’s.
• Help us to put ourselves out of business.
Why we tried it in 2006
International Congress and Convention Association.
Twitter: #ICCA12
The 1st World Parkinson Congress (WPC 2006)Washington, DC (USA) 1,800 health professionals and researchers; 1,100 people with Parkinson’s & care partners; 250 exhibitors and members of press
3,150 delegates from 56 countries
The 2nd World Parkinson Congress (WPC 2010) Glasgow, Scotland (UK) 1,690 clinicians & researchers; 626 RNs, PTs, OTs, SLPs, & nonprofit staff; 550 people with Parkinson's & care partners; 159 exhibitors & members of press
3,025 delegates from 70 countries
How’d we do?
International Congress and Convention Association.
Twitter: #ICCA12
STOP thinking of these people as the only experts…
Re-evaluate who your “experts” are…
International Congress and Convention Association.
Twitter: #ICCA12
START thinking of these people as experts too…
Re-evaluate who your “experts” are…
International Congress and Convention Association.
Twitter: #ICCA12
Challenges & New Approaches
*Program design*Registration*Industry guidelines and codes*Awareness in convention center, local city & frequented venues
8
Challenges & New Approaches
International Congress and Convention Association.
Twitter: #ICCA12
WPC includes PwPs in all decisions including program format & design, speaker selection, and presentations.
All sessions are labeled to meet expectations. In 2010 we used the following images to explain level of session:
Challenge – Program design I
International Congress and Convention Association.
Twitter: #ICCA12
Scientific Abstracts&
Living with Parkinson’s Abstracts
Expanded how we share knowledge. Who holds this knowledge and who determines
what is valuable?
Challenge – Program design II
International Congress and Convention Association.
Twitter: #ICCA12
Registration : designed on a steep sliding scale of $150 - $600 for PwPs to doctors early on through late registration.
Registration fees for people with Parkinson’s, care partners are at two levels, full-priced ($300) and discounted ($150).
Travel stipends offered
Challenge – Registration I
International Congress and Convention Association.
Twitter: #ICCA12
Constantly moving landscape.
Explore this issue before choosing a location and look at what other meetings have done. DC vs Glasgow.
A unified voice can lobby to have rules reconsidered, such as what the World Federation of Hemophilia did with their meeting in Paris this year.
Challenge – Industry Codes
International Congress and Convention Association.
Twitter: #ICCA12
WPC legacy – in local city/host country
In 2010, working with local partner, Parkinson’s UK, and Glasgow City Marketing Bureau, held four one hour trainings for 92 people. - 30 participants were in management- 56 participants were front of house staff- 6 participants were fire staff, tour guides, other
Challenge – Awareness of PD
International Congress and Convention Association.
Twitter: #ICCA12
WPC legacy – beyond the meeting
-inspired delegates leave rejuvenated with scientific, care, and programmatic ideas
-video competition raised awareness and continues to raise awareness of PD
Challenge – Awareness of PD
International Congress and Convention Association.
Twitter: #ICCA12
• IMMEDIATELY : Speakers have to keep it real & focused.
Outstanding energy at meeting. Empowered people living with Parkinson’s.
• LONG TERM : Help build an alliance between the key
stakeholders. Advance the science & care more rapidly. Put ourselves out of business.
What good will come of it?
51st ICCA Congress
International Congress and Convention Association.
Twitter: #ICCA12
Session sponsored by:
Thank you!
Questions? Please email me at [email protected]