how to comply with the ethical and legal issues in research … · 10.30 -11.15 gdpr and research...
TRANSCRIPT
How to Comply with the Ethical and Legal issues in
Research Institutions: a Focus on General Data
Protection Regulation (GDPR) in Scientific Research
Scuola Superiore Sant’Anna | Pisa
Aula Magna Storica
27TH May 2019Accreditato per n. 5 crediti formativi ordinari non frazionabili presso il
Consiglio dell’Ordine degli Avvocati di Pisa
9.30-10.00 Registration
10.00 – 10.30 Greetings and opening remarks Giovanni Comandé10.30 -11.15 GDPR and research activities: misunderstanding of compliance requirements, threat or opportunity?Aurelie Pols, Member of EDPS Ethics advisory board
11.15 - 11.30 Q&A
11.30 -12.30 What is the Impact of GDPR on Universities and How to Cope with It?Mario Guglielmetti, Legal Officer at European Data Protection Supervisor
12.30 – 12.45 Open Discussion
12.45 - 13.45 Lunch Break
13.45 – 15.15
Discussing the Legal and Ethical Draft for Consent and Automated Decisions for EU Research Projects from PANELFIT Project, Gianclaudio Malgieri, WP Leader of PANELFT Project, VUB
SoBigData Research Infrastructure: tools for Open and responsible Data Science. Fosca Giannotti, Coordinator of SoBigData, CNR
Discussants: Mario Guglielmetti, Giovanni Comandé
15.15 – 15.30 Coffee break
15.30 – 17.30 Hand on Discussion and Case Studies: Ethical Issues and problems in research units.
- Ethical and Legal Issues in research: the experience of the joint Ethical Committee of the SNS and SSSA, Francesca Torelli, Chair of the SSSA and SNS Joint Ethical Committee
- Ethical Issues in Clinical Research, Michele Emdin, Sant’Anna School of Advanced Studies
- BRIDGE Health a sustainable and integrated EU health information system for both public health and research purposes, Concetta Tania Di Iorio, University of Tor Vergata
- The Legal and Ethical Dimension in Artificial Intelligence Research: constrains or opportunities?, Silvia Scalzini, Luiss Guido Carli
- Ethical Issues in Research with Migrants, Danielle Borges, Sant’AnnaSchool of Advanced Studies
- Towards an Accountable Ulysses: the Role of the Data Protection Officer in the Universities, Denise Amram, Data Protection Officer atSSSA and SNS
- Exploitation of Research Results and Knowledge Transfer, MoniaGentile, Sant’Anna School of Advanced Studies
17.30 Conclusions: Caterina Sganga, Sant’Anna School of Advanced Studies
Farwell, networking, and end of the Workshop.
• Data Protection • Research • Ethics • Case Studies
Iscrizioni: dovranno pervenire esclusivamente on-line all’indirizzo https://www.lider-lab.sssup.it/lider/iscrizione_workshop entro e non oltre le ore 12.00 di giovedì 23 maggio 2019. Qualora le domande di iscrizione
dovessero superare i posti disponibili sarà effettuata una selezione in base all’ordine cronologico di arrivo della richiesta di partecipazione.
Please register to the following link https://www.lider-lab.sssup.it/lider/iscrizione_workshop , deadline for registration: 23rd of May (12.00 p.m.) . Requests of participation will be handled accordingly to first come,
first served
PER INFORMAZIONI / FOR INFO : [email protected] tel. 050 883533