how to use internet resources in pediatric practice
DESCRIPTION
Aim: to clarify how to use internet resources to reach evidence-based pediatric practice through; best CPGs websites; best children's hospitals websites and resources; how to assess the quality of medical information on the internet; synopsis on medical internet ethics. By Dr. Yasser Sami Amer; Pediatrician/ Neonatologist, Healthcare Informatician and Clinical Practice Guidelines Advisor 2012TRANSCRIPT
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How to use internet resources in PEDIATRIC PRACTICE
By Dr. Yasser Sami Amer
MSc Pediatrics, MSc Healthcare InformaticsClinical Practice Guidelines Advisor
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CONTENTS
I. Best CPGs websites
II. Best Children’s Hospitals website
III. Quality of medical info
IV. Medical Internet Ethics
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Clinical Guidelines on the Web
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GUIDELINES ON THE WEB
Guideline Producers
Guideline Finders
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GUIDELINE PRODUCERS
Specialized societies
National agencies NICE SIGN
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Organization NameCountry
URL Producer
Finder FREE PAID
Guidelines International Network (G-I-N) Int’l http://www.g-i-n.net F √ √
World Health Organization (WHO) Int’l http://www.who.int/topics P √
National Institute for Health & Clinical Excellence (NICE) UK http://www.nice.org.uk/page.aspx?o=ourg
uidanceP √ √
National Library for Health (NLH) UK http://www.library.nhs.uk F √
Scottish Intercollegiate Guidelines Network (SIGN) Scotland http://www.sign.ac.uk/guidelines/index.ht
mlP √
New Zealand Guideline Group (NZGG) NZ http://www.nzgg.org.nz P √Registered Nurses Association of Ontario (RNAO) Canada http://www.rnao.org P √
National Guidelines Clearinghouse (NGC) USA http://www.guidelines.gov F √
US National Library of Medicine, National Institutes of Health (PubMed)
USA http://www.ncbi.nlm.nih.gov/pubmedOR http://www.pubmed.gov F
√(Abstracts)
√(Full
Text)
Institute for Clinical Systems Improvement (ICSI) USA http://www.icsi.org/knowledge/ P √
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CPG PRODUCERS:SPECIALIZED
SOCIETIES: AAP
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SIGNScottish
Intercollegiate Guidelines Network
www.sign.ac.uk
CPG Producers:National Agencies
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CPG PRODUCERS:NATIONAL AGENCIES
NICENational Institute for
Health & Clinical Excellence
www.nice.org.uk
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CPG FINDERS
National Library for Health (UK)
www.library.nhs.uk
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CPG FINDERS
Guidelines International Network
(G-I-N)
www.g-i-n.net
CEBCPGs, HCQD-AUHs
Org. Member since 2009
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CPG FINDERS
PubMed
US National Library of Medicine
National Institutes of Health (NIH)
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WORLDWIDE BEST CHILDREN’S HOSPITALS
2012-13
THESE HOSPITALS EXCEL IN CARING FOR SICK KIDS
USA UK Arab World – Arab Gulf – Middle East - EMRO
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BOSTON CHILDREN'S HOSPITALHTTP: / /WWW.CHILDRENSHOSPITAL.ORG/
1st US Nationally Ranked #2 in Pediatrics: Cancer
#1 in Pediatrics: Cardiology & Heart Surgery
#2 in Pediatrics: Diabetes & Endocrinology
#2 in Pediatrics: Gastroenterology
#3 in Pediatrics: Neonatology
#1 in Pediatrics: Nephrology
#1 in Pediatrics: Neurology & Neurosurgery
#3 in Pediatrics: Orthopedics
#4 in Pediatrics: Pulmonology
#2 in Pediatrics: Urology
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HTTP://WWW.CHOP.EDU/
2nd US Nationally Ranked
#1 in Pediatrics: Cancer
#2 in Pediatrics: Cardiology & Heart Surgery
#1 in Pediatrics: Diabetes & Endocrinology
#1 in Pediatrics: Gastroenterology
#4 in Pediatrics: Neonatology
#2 in Pediatrics: Nephrology
#2 in Pediatrics: Neurology & Neurosurgery
#1 in Pediatrics: Orthopedics
#1 in Pediatrics: Pulmonology
#1 in Pediatrics: Urology
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HTTP:/ /WWW.CINCINNATICHILDRENS.ORG/DEFAULT/ JAMES M. ANDERSON CENTER FOR HEALTH SYSTEMS
EXCELLENCEEVIDENCE-BASED GUIDELINES
3rd US Nationally Ranked
#3 in Pediatrics: Cancer
#8 in Pediatrics: Cardiology & Heart Surgery
#5 in Pediatrics: Diabetes & Endocrinology
#3 in Pediatrics: Gastroenterology
#1 in Pediatrics: Neonatology
#3 in Pediatrics: Nephrology
#4 in Pediatrics: Neurology & Neurosurgery
#4 in Pediatrics: Orthopedics
#2 in Pediatrics: Pulmonology
#4 in Pediatrics: Urology
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HTTP: / /WWW.HOPKINSCHILDRENS.ORG/TPL_NAV1UP_NAV2UP.ASPX?ID=1090
9th US Nationally Ranked
#15 in Pediatrics: Cancer
#16 in Pediatrics: Cardiology & Heart Surgery
#8 in Pediatrics: Diabetes & Endocrinology
#24 in Pediatrics: Gastroenterology
#10 in Pediatrics: Neonatology
#16 in Pediatrics: Nephrology
#5 in Pediatrics: Neurology & Neurosurgery
#19 in Pediatrics: Orthopedics
#11 in Pediatrics: Pulmonology
#20 in Pediatrics: Urology
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UK
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THE CHILD FIRST AND ALWAYSHT TP://WWW.GOSH.NHS.UK/HEALTH-PROFESSIONALS/CLINICAL-GUIDELINES/
Health Professionals > Clinical Guidelines
SEARCH by: Search bar Alphabetical A-Z
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How To Judge the Quality of Medical Web Sites ?
2009 - About.com Health's Disease and Condition content
is reviewed by the Medical Review Board
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THERE IS A LOT OF MEDICAL INFORMATION ON THE INTERNET: SOME VERY GOOD, AND SOME VERY BAD.THE FOLLOW STEPS WILL HELP YOU JUDGE THE QUALITY OF MEDICAL WEB SITES. HERE IS HOW:-
1. Figure out what type of group owns the site. By looking at the middle or end of the Uniform Resource Locator (URL), you can get clues to the site's ownership. (Sometimes the URL also gives clues to the country in which the site is registered.) Educational institutions: .edu, .ac Commercial (for profit) sites: .com, .co (but remember that
lots of hospitals have .com domain names) Government sites: .gov, .gouv Organizations (usually nonprofit): .org Networks: .net
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2. ASK YOURSELF: AM I BEING GIVEN FACTS, OR OPINIONS?
Reliable medical web sites clearly distinguish between factual information and opinion or advice; you shouldn't be left wondering. All medical facts and statistics should be referenced, and you should be given all the information you'd need if you wished to verify the facts yourself in a medical library (including the names of the researchers who did the research and the name of the journal in which it was published, the issue number and date, and the page numbers). Also, the site should make it easy to tell the difference between ads and editorial content.
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3. MAKE SURE YOU KNOW WHO’S RESPONSIBLE FOR THE SITE'S CONTENT.
Who owns this website, and who creates the content? The answers should be obvious. The site’s sponsors should take credit for all the information on the site, or if they did not create the content, they should clearly state who did. Be wary of medical sites that post information collected from around the web. Also, you should be provided with a way to contact the site owners by email and by postal mail.
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4. ASK YOURSELF: WHO'S PAYING FOR THIS SITE?
What is the source of the site's financial support? Advertisements? User fees? Organization funds? Your tax dollars? A corporate sponsor trying to sell a product? The answer to this question can be a clue to whether the content is objective or biased.
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5. VERIFY THE SITE'S CREDIBILITY.
Unless the site is sponsored by a hospital or medical school, make sure all medical content is reviewed by an editorial board of physicians with solid qualifications. No completely reliable medical site can be written and reviewed by a single person.
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6. BE SURE THE INFORMATION IS CURRENT.
Reliable medical web sites are regularly reviewed and updated, and the date of the most recent update or review should be clearly posted.
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7. Make sure you know what information is being collected about you, and how it will be used.
Does the site collect your personal information? Do they guarantee to respect your privacy and confidentiality? Be sure you read their privacy policy, and don't agree to anything you don’t understand.
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8. LEARN MORE ABOUT HOW TO RECOGNIZE GOOD
MEDICAL WEBSITES.
Learn more about how to recognize reliable medical information on the internet by reviewing the guidelines on the following sites:- Health on the Net Foundation
http://www.hon.ch/pat.html
Medical Library Association
National Library of Medicine
Human Genome Project
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HON: HEALTH ON THE NET FOUNDATION
HTTP://WWW.HON.CH/PAT.HTML
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NATIONAL LIBRARY OF MEDICINE
HTTP://WWW.NLM.NIH.GOV/MEDLINEPLUS/WEBEVAL/WEBEVAL.HTML
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MEDICAL LIBRARY ASSOCIATIONHTTP: / /WWW.ML ANET.ORG/RESOURCES /USERGUIDE .HTML
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Medical Internet Ethics: A Field in Evolution
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MEDICAL INTERNET ETHICS:MERGING DIVERSE FIELDS OF STUDY
Healthcare Delivery
Applied Computing
Science & Research
Government Agencies
Healthcare services, e-commerce
End Users
Healthcare Organizations
Administration & Management
Medical Ethics
Law
Medical InternetEthics
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MAJOR AREAS NEEDING GUIDELINES IN MEDICAL
INTERNET ETHICS· Doctor-patient, provider-patient, therapist-
client relationships · Online medicine, online therapy · Online research · Quality of information on medical and
healthcare Web sites · Ethical conduct of medical and healthcare
Web sites · Privacy and security
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MEDICINE & HEALTHCARE ON THE INTERNET
Medical websites, more than any other type of site on the Internet, should ensure visitors’ personal privacy and prevent personal medical information, including patterns of use and interests, from being sold, purchased, or inadvertently entering the hands of marketers, employers, and insurers.
Principles Governing AMA Web Sites
Winker MA JAMA 2000;283:1600-1606
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GUIDELINES FOR QUALITY MEDICAL AND HEALTH WEBSITES
1996 - Health on the Net Foundation Code of Conduct
1999 - Medscape “The Ethics of the Medical Internet”
2000 - AMA’s “Guidelines for Medical and Health Information Sites on the Internet”
- Internet Healthcare Coalition’s “International Code of Ethics”
- MedCERTAIN development of an international trustmark
2001 - URAC & Hiethics Fee-based Health Website Accreditation program
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