Identifying children´s everyday life situations using an ICF-CY perspective

Social Work and Social Development 2012: Action and Impact conference

Stockholm 8-12 July, 2012

Margareta Adolfsson

Enhanced focus on participation in intervention planning

Missing

Structured model to identify child participation in everyday life situations

Aim of study

Parents’ and professionals’ pictures of everyday life situations to be considered in intervention planning

Overall goal

Opportunities for children with disabilities and their parents to express opinions during intervention processes

International Classification of Functioning, Disability and Health

– Children and Youth

ICF-CY model

dimensions of functioning

multidimensional descriptions of children´s life situations

interactive

children’s functioning in relation to context

“Dictionary for descriptions” – not classification of children

ICF-CY chapters focusing on participation

Life areas

1. Learning and applying knowledge 2. General tasks and demands 3. Communication4. Mobility 5. Self care 6. Domestic life 7. Interpersonal interactions and relationships8. Major life areas 9. Community, social and civic life

Steps to identify everyday life situations

Professionals’ views

297 professionals in education and early intervention services

Open-ended questionQuestionnaire on ICF-CY categories

Parent’s perspectives

7 networks of children with severe disabilities 10-19 yrs42 parents of children with or without disabilities 6-16 yrs 15 caregivers of typically developing children 3-5 yrs

Interviews

ResultsIdentification of everyday life situations

7 ICF-CY chapters (3-9)2 age groups

0-6 yrs (younger), 7-17 yrs (older)

10 everyday life situations/age groupYounger - developmental milestones Older - societal involvement

2 ICF-CY chapters most important Self careMajor life areas

Partly different perspectives parents - professionals

Differences parents - professionals

ICF-CY categories identified as everyday life situationsYounger (0-6 yrs)

Older (7-17 yrs)

Communication, unspec. X

Walking and moving around X X

Hygiene X X

Dressing X

Eating and drinking X X

Sleeping X X

Household tasks X X

Family relationships X

School education X

Engagement in play X XRecreation and leisure X

XSocial

RecreationLeisure

Future research

Include children and youth

Develop code sets, i.e. short lists of ICF-CY codes to discuss and explain participation restriction

Formulate names of code sets

Adaptations for different cultures

ICF-CY Developmental Code Sets for Children 2011. Ellingsen, K.E.& Simeonsson, R.J

I. Birth to 36 months (0-2)

II. Three through Five Years (3-5)

III. Six through Twelve Years (6-12)

IV. Thirteen through Seventeen Years (13-17)

http://www.icf-cydevelopmentalcodesets.com/Home_Page.html

References – training on the ICF/ICF-CY

ICF training Beginner’s Guidehttp://www.who.int/classifications/icf/icfapptraining/en/index.html

Training in the ICF and ICF-CY (in Swedish)http://www.socialstyrelsen.se/publikationer2011/utbildningsmaterial-om-icf-icf-cy

The Canadian ICF Training Course (interactive)http://www.bcchildrens.ca/professionals/EducationTraining/ICF.htm

ICF Australian user guide version 1.0http://www.aihw.gov.au/publication-detail/?id=6442467517

Pless & Granlund (Eds.) (2011). Handbok i att använda ICF och ICF-CY. Studentlitteratur (in Swedish)

Thanks!

margareta.adolfsson@hlk.hj.se

Adolfsson, M., Granlund, M., Björck-Åkesson, E., Ibragimova, N. & Pless, M. (2010). Exploring changes over time in habilitation professionals’ perceptions and applications of the International Classification of Functioning, Disability and Health, version for Children and Youth (ICF-CY). Journal of Rehabilitation Medicine. 42(7); 670-678

Björck-Åkesson, E., Wilder, J., Granlund, M., Pless, M., Simeonsson, R., Adolfsson, M., et al. (2010). The International Classification of Functioning, Disability and Health and the version for children and youth as a tool in child habilitation/early childhood intervention - Feasibility and usefulness as a common language and frame of reference for practice. Disability and Rehabilitation, 32(S1), S125-S138.

Adolfsson M., Malmqvist, J., Pless, M. & Granlund, M. (2011). Identifying Child Functioning from an ICF-CY Perspective. Everyday Life Situations Explored in Measures of Participation. Disability and Rehabilitation. 33(13-14), pp. 1230 - 1244.

Adolfsson, M., Granlund, M. & Pless, M. (2012). Professionals’ views of children´s everyday life situations and the relation to participation. Disability and Rehabilitation, 34 (7) , 581-592

Adolfsson, M. (accepted) Applying the ICF-CY to Identify Children´s Everyday Life Situations: A step towards participation-focused code sets. International Journal of Social Welfare

Adolfsson, M., Björck-Åkesson, E. & Lim, C-I. (submitted). Code sets for everyday life situations of children aged 0-6: Sleeping, mealtimes, and play. A pilot study based on the ICF-CY. British Journal of Occupational Therapy