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Implementing telecare. Evidence from the UK from the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum Vienna 30 th September 2009 www.haciric.org

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Page 1: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

Implementing telecare. Evidence from the UKfrom the UK

Jane Hendy, James Barlow and Steffen Bayer

AAL Forum Vienna 30th September 2009

www.haciric.org

Page 2: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

Overview

Th d f t d h t it i▬ The need for remote care – and what it is▬ UK policy agenday g▬ The future never arrives

P f t d i t i t▬ Progress so far towards mainstreaming remote care

▬ Potential benefits▬ The need for an evidence base▬ The need for an evidence base▬ Conclusions

Page 3: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

Terminologygy

‘Telecare’▬ ‘Telecare’

▬ ‘Telehealth’

▬ ‘Telemonitoring’

▬ ‘Telemedicine’

▬ ‘Assistive technology’

‘S t h ’▬ ‘Smart homes’

▬All are used interchangeably to describe g ythe remote delivery of health and social carecare

Page 4: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

Remote care

• Information & adviceInformation & advice• Safety & security monitoring• Vital signs monitoring

Lif t l it i• Lifestyle monitoring

Page 5: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

The need for remote care

O l ti f i l ti d d▬ One solution for managing escalating demand for health and social care is technologies that

t t lsupport care remotely

▬ “We have to (introduce remote care systems)▬ We have to (introduce remote care systems) over the next five years if we are not to see the NHS go over the falls – the equivalent ofNHS go over the falls the equivalent of Niagara Falls – with or without a barrel” (Mike Bainbridge, NHS Connecting for Health, 23/06/08, eHealth Insider)g , g , , )

Page 6: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

Policy driversy

Th UK h t k t▬ The UK has taken a strong lead. Over 20 government

t i 1998 hreports since 1998 have called for telecare

▬ New finance (£170m +) via Preventative TechnologyPreventative Technology Grant, Whole System Demonstrators and otherDemonstrators and other initiatives

Page 7: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

▬ but despite thousands of… but despite thousands of pilot or trial projects remote care has not yet become acare has not yet become a mainstream part of care deliverydelivery

▬ Pockets of excellence don’t spreadspread

▬ Pilot projects are not sustained

Page 8: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

L k f i UK ( d l h )▬Lack of progress in UK (and elsewhere) is largely due to:• organisational problems (esp. integration

within and between care providers)within and between care providers)• a lack of obvious business models• … and limited benefits evidence is also

playing a part

Page 9: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

The existing evidence base

Focus of study Evidence on:

Individual outcomes, i.e. clinical or QOL improvement

Systemic outcomes, i.e. economic impact or impact on

processesimprovement processesSpecific application, e.g. aimed at patients with diabetes

Relatively good, growing – numerous individual studies on which to build

Limited, problematic – poor specification of assumptions, lack of robust datawith diabetes studies on which to build

systematic reviewslack of robust data

General application, e.g. aimed at a

l l ti

Largely anecdotal, growing – not yet peer

i d

Virtually unresearched –based on simulation

d lli ith li it d d tgeneral population (e.g.‘frail older people’)

reviewed modelling with limited data

Barlow et al: (JTT 2007)

Page 10: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

What’s needed to stimulate remote care?Adoption Spread Mainstreaming

Evidence

‘Business case’

L d hi

Evaluation

uptakeAwareness

Champions

LeadershipProject mgt

Enthusiasts

Grants

Pump priming

timeSource: Barlow, Hendy, Chrysanthaki

Page 11: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

We don’t even know how many remote ycare users there are

▬ Poor data due to inconsistent definitionsdefinitions

▬ Example from 5 leading LAs …

Source: Hendy & BarlowSource: Hendy & Barlow

Page 12: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

Summary of current positiony p

▬ Growing evidence of clinical effectiveness of some specific telecare applications

▬ Very little no cost-benefit evidence

▬ Little published on remote care that meets orthodox quality standards for healthcareorthodox quality standards for healthcare evaluation

Page 13: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

Solutions?

▬Solutions?

Page 14: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

Whole System Demonstrator yprogramme

▬ DH White Paper, Whole System Long Term C diti D t t (2006)Conditions Demonstrators (2006):

• ‘Whole system demonstrators that test the benefit of ywholescale redesign of services for those with long term conditions’

• ‘The key challenge … is to provide credible evidence that comprehensive integrated care approaches combined with the use of advanced assistive technologies benefitthe use of advanced assistive technologies … benefit individuals and deliver gains in cost effectiveness of care.’

Page 15: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

Exploring the potential impact on p g p phealthcare

▬ WSD can provide snapshot evidence for p pbenefits but we need to also consider potential longitudinal impact across the p g pwhole system

▬ Simulation modelling experiments can help▬ Simulation modelling experiments can help achieve this

th fi ’t i t t i th l▬ … the figures aren’t important in these examples

Page 16: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

Frail elderly care

healthy HC fL HC fM HC fH

Inst fM

Inst fHfrom healthy toHC fL

from HC fL toHC fM

from HC fM toHC fH

aging

death rateh

death rateHC fL

death rateHC fM

death rateHC fH

death rate Instentry fMwaiting

Inst fM

waitingInst fH

from waiting toInst entry 3

from waiting toInst entry 4

from HC towaiting Inst entry

3

to waiting Instfrom HC fH

death r wInst fH

death r w InstfM

from HC fLto h

from hc fM tofL

from HC fHto fM death rate Inst

entry fH 500

550

600

are

TC fL TC fM TC fH

share toTC

from TC fL toTC fM

from TC fM toTC fH

death rateTC fH

effect of TC on fracrate to inst care entry

fH

TC fH towaiting Inst

to waiting Instfrom TC fM

effect of TC on fracrate to inst care entry

fM

death rateTC fL

from healthy toTC fL

from TC fH tofM

from TC fMto fL

from TC fLto h

300

350

400

450

Pop.

in in

stit.

ca

pessimisticoptimisticbest guessbase run

effect of TC on ftyprogression

200

250

300

1

Time (years)205 10 15

132Time (years)

124

126

128

130

ssio

ns /

mon

th

Base caseBest guess A 20% decline in

demand for care

120

122

124

0 2 4 6 8 10 12 14 16 18 20

Adm

is demand for care home places?Falling

(initially) hospital admissions?Time (Years)

Source: Bayer & Barlowadmissions?

Page 17: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

Effect of telecare on care costs in year 20

3 - 5% reduction in costs

0 0%

2.0%Change in costs

4 0%

-2.0%

0.0%

8 0%

-6.0%

-4.0%

20% reduction

less

me 80% reduction

-8.0%

Effect of telecare i

20%

Sam

% m

ore

Cost of telecare package compared to a conventional

on entry into institutional care

40%to a conventional care package

Page 18: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

Chronic heart failure

frac r dev HF

frac death r at risk frac death rasympt

frac death r sympt

dying at riskdying

asymptomatic

dyingsymptomatic

Stabilisation in the demand for hospital

high risk asymptomaticunknown

symptomaticusual care

symptomatic

developing HFdevelopingsymptoms

frac r devsymptoms transfer to TC

becoming highrisk

time constanttransfer to TC

asymptomaticand known

detection ofpresymptomatic

HF

developing symptknown disease

cost of riskreduction per

person

investment inprevention

screening costper person

investment inscreening

frac r dev symptknown

effectiveness ofmanaging

unsymptomatic

TC places

detection fractionwithout screening

leaving high risk

padmissions?

sy pto at cTC

frac death rsympt TC

dying sympt TC

TC effect on fracdeath r sympt

<frac death rsympt>

dying knownunsymptomatic

pe pe so

<frac death rasympt>

total hospital days100,000

90,00054 4 43 3 3 3 3 3 3 31 1 1 1 1 1 1 1 1

80,000

70,000

5 5 5 5 5 5 5 54 4 4 4 4 4 4 43 3 3 3 3 3 3 3 3

2 22

2 2 2 2 2 21 1

60,0000 25 50 75 100

Time (Month)

total hospital days : base hospital days/Month1 1 1 1 1total hospital days : TC 3M hospital days/Month2 2 2 2 2

Source: Bayer & Barlow total hospital days : TC 3M hospital days/Month2 2 2 2 2total hospital days : Prevention 3M hospital days/Month3 3 3 3total hospital days : Screening 3M hospital days/Month4 4 4 4total hospital days : TSP 1M hospital days/Month5 5 5 5 5

Page 19: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

Conclusions

Remote care has great potential in managing LTCs▬ Remote care has great potential in managing LTCs and coping with aging population

Th i t f t t th i di id l l l▬ There is support for remote care at the individual level – the hurdles are at a system level

‘E id ’ f t / b fit b i▬ ‘Evidence’ for costs / benefits becoming more important as pilots move towards mainstream investment decisionsinvestment decisions

▬ WSD may help, but more use of modelling is needed

▬ We also need more realistic expectations about cost-benefits

Page 20: Implementing telecare. Evidence from the UKfrom the UK · 2013-04-03 · Implementing telecare. Evidence from the UKfrom the UK Jane Hendy, James Barlow and Steffen Bayer AAL Forum

Thank youThank you

Jane HendJane Hendy

[email protected]