improving clinical research across the uk – who, why, how? matthew hallsworth, communications...
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Improving Clinical Research across the UK
– Who, Why, How?
Matthew Hallsworth, Communications Programme ManagerMarianne Miles, Patient and Public Involvement Lead
Wednesday 6th September 2006
Who? - UKCRC
A partnership of organisations working together to re-engineer the environment for clinical research in the UK
– A new way of working
– A forum for leadership
– An opportunity
Why?
RESEARCH FOR PATIENT BENEFIT WORKING PARTY
FINAL REPORT
“For us, science and research constitute a front-line service, as they too, reduce distress
and pain and save lives”.
(Dr John Reid, Secretary of State for Health, 22 March 2004)
How?
NHS Infrastructure(Exp Med, Networks, IT systems)
Research Workforce
Regulatory and Governance environment
Coordinating Research Funding
NHS Incentives
• Public Awareness and Patient & Public Involvement are key themes
Awareness– Generic information resources– Educational resources on clinical research
Involvement– ‘The Exchange’– The evidence base
Who? - UKCRN
• Aim to provide a world-class health service infra-structure to support clinical research
• To make the NHS the best place in the world to do clinical research
• A managed set of Clinical Research Networks to facilitate studies (including prevention, diagnosis, treatment, care)
Targeted research funding, initially:
• Cancer• Dementias and Neurodegenerative Diseases• Diabetes • Medicines for Children• Mental Health • Stroke • Primary Care
UKCRN to cover all aspects of disease and clinical need: ‘Comprehensive UKCRN’ – April 2007
How - key UKCRN areas:
• Trials and Trials Units Support• Regulatory & Governance• Primary Care• Industry• Experimental Medicine• Patient and Public Involvement (PPI)• Information Systems• Training and Education
Why PPI?
• To positively influence/increase public awareness around clinical research
• To enhance overall quality and relevance of UK clinical research
How?
• Experience: cancer, and mental healthE.g. - identifying important and relevant research
- asking the right questions in the best way- helping researchers to design their projects- helping to develop accessible information - joining a research advisory group- helping to interpret research results- helping to promote good research
• Support for ALL involved
• Opportunity: coordination, ↑ profile, improved clinical studies leading to patient benefits
Matthew Hallsworth Marianne Miles Communications Programme Manager Patient and Public Involvement Lead
UK Clinical Research Collaboration (UKCRC) UK Clinical Research Network (UKCRN)
20 Park Crescent UKCRN Coordinating CentreLondon Arthington House, Cookridge Hospital,W1B 1AL Hospital Lane,
Leeds LS16 6QBT: +44(0)20 7670 5389 T: +44(0)113 392 4398
Stephenson House, 158-160 North Gower Street, 4th Floor, London NW1 2NDT: +44(0)20 7670 4871
Email: [email protected] Email: [email protected]
Website: www.ukcrc.org Website: www.ukcrn.org.uk