improving physiotherapy care for children with cystic fibrosis
TRANSCRIPT
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Microsoft Future Decoded
Project FizzyoImproving
physiotherapy care for children with
Cystic Fibrosis
Eleanor Main
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Incremental improvement in Survival with
Treatment InnovationA
ge (
year
s)
Pancreatic Enzymes
antistaphylococcal antibioticsantipseudomonal antibiotics
rhDNaseInhaled Tobramycin
Airway clearance
0
5
1015
20
25
30
35
40
1st pathologicdescription
CF geneidentified
Discoveryof high salt
in sweat
Sweat chloridetest developed
1st successfulpregnancy
Azithromycin
HTS
AZLITIP
Colobreathe
Ivacaftor
Bronchitol
Inhaled colistin
Neonatalscreening
Mist tents
Centre care
PrecisionMedicine for CF
NPD andCl transport
RCTs
Airway clearance
Slide from
Prof. Stuart
Elborn with
thanks
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70 years of Physiotherapy for CF
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Airway clearance methods
ACBT
Autogenic
Drainage
Acapella
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We still don’t know
• What’s the best airway clearance technique?
• How often do you need to do it, and for how long?
• What happens if you don’t do it
• What will make these treatments easier to do regularly?
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• How best to simplify the treatment burden of people with CF?
• Which therapies delay or prevent progression of lung disease in early life in people with CF?
• How best to motivate, support and use technologies help people with CF improve and sustain adherence to treatment?
• Can exercise replace chest physiotherapy for people with CF?
Top 10 Research Priorities for CF 2017
https://youtu.be/0mFtdEOyWt4
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80% of healthcare
data is unstructured
Most data in
healthcare is stored in
printed form
Is big data the answer? “Smart devices, mobile &
big data will revolutionise
healthcare”
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BBC2
Science
Series -
Big Life
Fix
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Creative Collaboration
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Enables students to enhance
their training through real-world
problem-solving projects as part
of their degree
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Home use: 16 months
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• Breath
• count
• pressure
• length
• Treatment
• count
• length
• profile and time
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✓
✓
✓
✓
• Heart Rate every 5
seconds
• Footsteps per minute
Fitbit Alta HR
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✓
✓
✓
✓
✓
DRIVE
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AnalytiXagility Digital Research Environment Workspaces
Hospital DataPIMS, OMNI, EPIC
Data Wrangling
• Data Table Editor• Harmonization
Analytical Tools
• ‘One-click’ Analytics• R / SQL
Collaboration
• Commenting• Messaging• Notifications
Audit
• Access / usage• Authentication
Apps/Outputs
• Results• Interactive
Colla
bo
rativ
e W
ork
sp
ace
ObserverResearcherAdministrator
Apps
Collaborative Services
Audit
Analytical Tools
Data Wrangling
Admin
Your DataLocal data files
Web Access
Use
r Inte
rface
Security and Identity Management (Role)
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✓
✓
✓
✓
✓
Clinical Data
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Lung function data
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Trial design
With or without:
FeedbackGamesHome use: 16 months
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Home use: 16 months
22 recruited
so far
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Thank You
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Thank You
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Emma Raywood
Kunal Kapoor
Helen Douglas
Lee Stott
Greg Saul
Haiyan Zhang
John Booth
Tim Kuzhagaliyev
Nils Correvon
Dean Mohamedally
Fraser Black
Dr Yun Fu
Simon Jackson
Steven Hailes
Diana Yazdanfar
Tiernan Watson
Neil Sebire
Anita Ramanan
Mason Cusack
Harriet Shannon
Thank YouGeoff Hughes
Olga Liakhovich
Tobias Edwards
Sifang Du
Tianhao Wu
Vikash Panjiyar
Vladislav Repinskiy
Xiaolong Chen
Yi Zhong
Yiyun Lu
Yong Hyun Cho
Yusi Zhou
Yuting Deng
Zhengxian Fan
Zhichao Wang
Ziad Al Halabi
Ziyang Dong
Ziying Cheng
John Wilkie
Gene Stein
Jinxin Lin
Krzysztof Kozinski
Luming Ji
Mabel Chan
Manuel Cretin
Marcin Praski
Maria Iacobici
Matt Clayton
Max Louis Bertfield
Mostafa Osama Ibrahim
Nithin Anand
Oliver Vecchini
Petros Xenofontos
Pooja Sridhar
Rui Chen
Ryo Mochizuki
Seunghoi Kim
Ryan White
Christian Robles
Kristjana Popovski
Stephanie Marker
Jude Pullen
Ka Hei Suen
Vicky Coxhead
Ahmed Khaled Elherazy
Aleksei Rozhnov
Andrea Nabil Belahouane
Andres Rojas Jaramillo
Anthony Cheng
Anton Hristov
Anton Morozov
Bo Xi Isaac Lee
Cameron Mory
Cao Khanh Nguyen
Conner Lukes
Cosmin Vladianu
David Pourquery Gonzalez
Colin Wallis
Michael Woollard
Alan Bannon
Aidan Laverty
Charlie Dawson
Blair Butterworth
Claudia Posso
Ammani Prasad
Sarah Rand
Ben Margetts
Matthew Jenkins
Stephen MacLeod
Clyde Hoskin
Jamie Bankhead
Luke O'Brien
Adam Finch
Sam Gainty
Connie Reid
Angus Connor
Natassa Spiridou
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Eleanor MainProfessor of Physiotherapy
Email: Twitter:
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