indigenous hospital experiences: a new zealand case study
TRANSCRIPT
PATIENT PERSPECTIVES
Indigenous hospital experiences: a New Zealand case study
Denise Wilson and Pipi Barton
Aims and objectives. To explore M�aori (Indigenous people of New Zealand) experiences of hospitalisation in surgical or
medical settings and how these might influence length of stay.
Background. Globally Indigenous peoples with histories of colonisation suffer health disparities compared with other groups.
They experience higher levels of morbidity, premature mortality, lower life expectancies and differential access, use and quality
of health services. In Indigenous communities’ negative anecdotal accounts of hospital experiences indicate more research is
needed about their hospital experiences.
Design. A M�aori (Indigenous) centered approach using case study methodology and three data sources: medical-surgical dis-
charge data, interviews with M�aori and a literature review.
Method. Using statistical data from the New Zealand Health Information Service from 1989–2006, a retrospective interrupted
time series design was used to examine length of stay for M�aori patients in medical and surgical hospital settings. Semi-
structured interviews with 11 participants identifying as M�aori who had experienced hospitalisation in a medical or surgical
setting were transcribed and thematically analysed. A structured review of the research literature on Indigenous hospital
experiences was also analysed. These data were analysed individually, triangulated and interpreted.
Results. M�aori consistently have a shorter average length of stay than non-M�aori using public hospitals in New Zealand.
Marginalisation of Indigenous peoples in public hospitals was evident in both the interviews undertaken and the literature
reviewed. Participants believed hospitals were not conducive to healing and negative experiences contributed to decisions to
seek an early discharge.
Conclusions. Given the disparities in Indigenous health status, health professionals can address negative hospitalisation expe-
riences by attending to the quality of care delivered and nature of the hospital environment.
Relevance to cinical practice. Nurses can play an important role improving health outcome disparities for Indigenous peoples
linked to health service delivery, especially the delivery of culturally responsive and quality nursing care.
Key words: clinical effectiveness, cultural issues, hospital care, Indigenous, nursing, quality of care
Accepted for publication: 14 November 2011
Introduction
Indigenous peoples in New Zealand, Australia, Canada and
the USA with histories of colonisation suffer disparities in
health status and accessing quality of health services,
regardless of their rights to health (United Nations 2007).
Nurses have an obligation to provide equitable and socially
responsible care and to contribute to reducing inequalities
healthcare. Indigenous health is a ‘concern for nurses’
(International Council of Nurses 1998). Given the contact
Authors: Denise Wilson, RN, MA, PhD, Associate Professor, M�aori
Health, School of Public Health & Psychosocial Studies, AUT
University, Auckland; Pipi Barton, RN, MN, Research Officer,
Henry Rongomau Bennett Centre, Waikato District Health Board,
Hamilton, New Zealand
Correspondence: Denise Wilson, Associate Professor M�aori Health,
School of Public Health & Psychosocial Studies, AUT University,
Private Bag 92-006, Auckland 1142, New Zealand. Telephone:
+64 9 921 9999
E-mail: [email protected]
� 2012 Blackwell Publishing Ltd
2316 Journal of Clinical Nursing, 21, 2316–2326, doi: 10.1111/j.1365-2702.2011.04042.x
nurses have with Indigenous peoples they are positioned well
to improve their health experiences and optimise health
outcomes. M�aori (Indigenous people of New Zealand)
experience inequalities in wide-ranging morbidities and life
expectancy than others (Robson & Harris 2007, Ministry of
Health 2010). Despite their health needs, M�aori tend to
receive substandard quality of care and are discharged from
hospitals earlier than others (Davis et al. 2006, Wilson &
Neville 2008). M�aori reluctance to be hospitalised has been
historically, related to limited visiting hours, suspicion and
biomedical approaches (Buck 1949).
The prevalence of poor health outcomes is unacceptably
high among M�aori (Curtis et al. 2007, Reid & Robson 2007)
and connected to access to health services. Despite significant
gains in M�aori health status across the 1950s and 1970s,
major health reforms during the 1990s increased inequalities
between Maori and non-Maori, although narrowing since
(Ajwani et al. 2003, Blakely et al. 2008). Most M�aori expe-
rience significantly higher deprivation, influencing their access
to determinants of health (Blakely et al. 2004, 2008). In
addition, the neo-liberal policies driving health service delivery
during the reforms removed many free health services and
introduced costs (Gauld 2009). Maori health status is com-
plex, influenced by multiple factors like genetics, education,
lifestyle, socioeconomic determinants, access to health deter-
minants and use of health services (Blakely et al. 2008).
M�aori link culturally appropriate care with quality of care
(Reid & Robson 2007). Yet they experience higher rates of
adverse events in hospitals and are likely to receive inappro-
priate care and follow-up (Davis et al. 2006, Jansen & Smith
2006). Nurses are linked to the quality of care delivered in
acute hospital settings (McCloskey & Diers 2005), although
hospitals have limited Indigenous health professionals mean-
ing non-Indigenous nurses are likely to encounter and care for
Indigenous patients. M�aori comprise only 5Æ7% of all health
professions despite being 15% of the New Zealand popula-
tion (Ratima et al. 2007) and 6–7% of registered nurses
(Nursing Council of New Zealand 2010). Undoubtedly, the
co-morbidities many M�aori have makes nursing care com-
plex. Given this and the analysis of hospital administrative
data (not yet published), we aimed to understand M�aori
beliefs and experiences related to hospitalisation, to gain
insight into their shorter length of stay in hospital.
M�aori experiences of hospital care are less than optimal.
Despite M�aori having twice the cardiac disease rate, they
received significantly lower rates of potentially life-saving
interventions, such as angioplasty (Westbrooke et al. 2001).
Westbrooke et al. (2001) highlighted inequitable access to
interventions and quality of care and concluded M�aori
health needs were not being met. Davis et al.’s (2006)
examination of the quality of hospital care received by
M�aori found they were younger and likely to have high
socioeconomic deprivation. Notably, M�aori had statistically
significantly more adverse events (14% of admissions)
compared with non-M�aori (11%) (Davis et al. 2006). M�aori
are also hospitalised with higher rates of avoidable and
amenable hospitalisation rates than others (Ministry of
Health 2010). M�aori women accessing health services also
reported poor quality of care and negative interactions with
health care professionals, culminating in their needs not being
met (Wilson 2004). Further, Bolitho and Huntington (2006)
found M�aori families’ accessing hospital care for a child with
respiratory conditions encountered difficulties attributed to
socioeconomic status and health system barriers. McKinney
(2006) also reported negative hospital experiences for M�aori,
even though nurses are regulated to provide culturally safe
care (Nursing Council of New Zealand 2009).
Differential quality in care can be linked to institutional
racism. Reid et al. (2000) claimed, ‘… negative stereotypes,
victim blaming and deficit explanations continue to be
articulated by nurses and doctors, particularly when Indig-
enous people do not respond positively to prescribed health
interventions’. The delivery of culturally inappropriate ser-
vices, does little to recognise the life circumstances of M�aori,
offering instead health services informed by a biomedical
worldview (Durie 2001, McCreanor & Nairn 2002).
Methods
We used an intrinsic single case study (embedded) design to
determine M�aori experiences during hospitalisation (Stake
1995, Yin 2003) (Fig. 1). It focused on understanding M�aori
medical and surgical hospitalisation experiences and enabled
the identification of actions and interactions in the complex-
ity of hospitals (Hancock & Algozzine 2006). The case was
defined as M�aori hospital experiences.
Consideration of Indigenous eco-spiritual and holistic
worldviews in planning the case study was necessary so
M�aori traditions and processes were observed. Consequently
a M�aori centered approach informed the research process
(Cunningham 1998), underpinned by assumptions that
research must be (a) beneficial to M�aori, (b) respectful of
M�aori in the research and (c) ensure credible research
outcomes (Wilson 2004). According to participants’ wishes,
M�aori protocol and processes informed the explication of the
research process. For example, interviews began with a
karakia (prayer) followed by a process for establishing
mutual connections. All participants received a small gift in
appreciation of their time and willingness to share. These are
important aspects of M�aori cultural practice.
Patient perspectives Indigenous hospital experiences
� 2012 Blackwell Publishing Ltd
Journal of Clinical Nursing, 21, 2316–2326 2317
Ethics
Ethical approval was obtained by the university ethics
committee (MUHEC:N 08/031) and for accessing de-identi-
fied medical-surgical hospital discharge data (MUHEC:N 06/
082). Potential participants received an information sheet and
after answering any questions they consented to participate.
Participants’ anonymity was guaranteed by assigning pseud-
onyms and removal of all identifying features from transcripts.
Participants
Participants identifying as M�aori with acute medical-surgical
hospitalisation experiences within the last 15 years qualified
for inclusion in the qualitative phase of the study. Sample size
was determined by saturation of the themes and sub-themes.
Eleven participants fulfilled the criteria for interviews; 10
having hospital experiences within 5 years and one 12 years
prior. Their ages ranged between 20–75 years (median
46 years), nine were female and they affiliated with diverse
Iwi (tribes). Six participants lived rurally, two lived in semi-
urban areas and three were from urban areas.
Data collection and analysis
Multiple sources of evidence were gathered to strengthen the
findings (Yin 2003) and included length of stay data, partic-
ipant interviews and Indigenous research about health service
experiences. Data triangulation brought together findings from
the various sources for scrutiny, consideration of alternative
interpretations and to draw conclusions (Stake 1995).
Length of stay data
New Zealand Health Information Service (NZHIS) collects
administrative data and uses ICD-10 and Australian Refined
DRGs (AR-DRGs) to code inpatient data. Average length of
stay (ALOS) data used was part of a larger study (not yet
published) that explored nursing and M�aori patient outcomes
during three phases of New Zealand health reforms (Phase 1:
1989–1993; Phase 2: 1993–2000 and Phase 3: 2000–2006).
Outcomes Potentially Sensitive to Nursing were used to
measure quality of outcomes – similar to Carryer et al.
(2011) and McCloskey and Diers’ (2005) study which found
nursing resources can impact patient outcomes. We used the
National Minimum Data Set for whole population public-
funded inpatient hospital admissions (>12 million) in 20
District Health Boards offering medical and surgical services
to calculate ALOS for M�aori and non-M�aori hospital
admissions from 1989–2006. M�aori included any admission
recording M�aori ethnicity; all other records were considered
non-M�aori. Algorithms filtered medical and surgical admis-
sions to include only those over 17 years and <90 years,
with a length of stay >1 day and <90 days. We excluded
records with ICD-10 codes indicating major diagnostic cat-
egories (MDC) in obstetrics, paediatrics and mental health.
Data were analysed using Statistical Package for Social
Sciences (SPSSSPSS) Version 17.0. For this study, an annual ALOS
was calculated for each year from 1989–2006 and plotted in
time series to show trend, variability and level for M�aori and
non-M�aori medical and surgical admissions (Fig. 2). The
differences between Phase 1 (1989–1993) and Phase 3 (2000–
2006) of the health reforms were calculated using mean
ALOS for each period.
Semi-structured interviews
Semi-structured, digitally recorded interviews with 11 par-
ticipants were carried out using a mixture of open and closed
questions to ensure key issues were covered. Interviews were
flexible enabling exploration of issues arising. Transcribed
interviews were analysed, which comprised examining,
categorising, tabulating and constantly recombining data
according to the aims of the study (Stake 1995). Each
transcript was initially examined and re-examined to identify
recurring sub-themes. These sub-themes were then analysed
across the interviews to discover recurring themes, which
were categorised by relevance to the research aims. These
were re-categorised and tabulated into themes and sub-
themes.
CONTEXT: Medical or surgical hospital experience
CASE: Māori hospitalisa on experience
Averagelength of
stay (ALOS)data
Structuredreview of the
literature
Interpreta onTriangula on
of findings
Interviewswith Māori
Figure 1 M�aori experiences of hospitalisation as an intrinsic single
case study (embedded) design.
D Wilson and P Barton
� 2012 Blackwell Publishing Ltd
2318 Journal of Clinical Nursing, 21, 2316–2326
Structured review of the literature
A structured literature review was undertaken, recommended
when limited research and time constraints exist on a topic
and a wider review than a systematic review is needed (Evans
& Kowanka 2000). CINAHL, ERIC, Medline, Web of Sci-
ence and Google Scholar were searched for relevant literature
relating to M�aori, Indigenous and Aboriginal people using a
combination of keywords: M�aori, Indigenous, Aboriginal,
native, health, illness, hospital, hospitalisation, length of
stay, ethnicity, inequalities, disparity and nursing. Literature
was included for review that related to Indigenous experi-
ences of hospitalisation. The structured review involved
comparing and analysing publications for similar themes
arising.
Results
Interview participants generally had acute medical or
surgical experiences in larger urban public hospitals. Their
length of hospital stay ranged from 2–84 days. Two of the
11 participants were readmitted following discharge and
three experienced adverse outcomes while an inpatient (for
example, hospital acquired infection). Two over-arching
themes, ‘A foreign environment’ and ‘Wh�anau (extended
family) Caring for Wh�anau’ and seven sub-themes emerged
from the analysis (Table 1). The results relating to length of
stay and findings of the interviews are presented separately,
with the structured literature review findings integrated.
The interpretation of the findings is presented in the
discussion.
Average length of stay
The ALOS confirmed M�aori were likely to be discharged
from hospital earlier than others (Fig. 2). A downward trend
in ALOS for both M�aori and non-M�aori from 1989–2006
was evident, reducing overall from 7Æ0–5Æ3 days (a 24Æ3%
reduction). Figure 2 demonstrates M�aori consistently had a
shorter ALOS in both medical and surgical settings, even
though non-M�aori experienced a greater percentage reduc-
tion in ALOS (33Æ7% for medical; 26Æ2% for surgical) than
M�aori (28Æ4% for medical; 16Æ7% for surgical). The ALOS
inequality remained for M�aori: 1Æ6 days in medical settings
and just under half a day in the surgical settings (Table 2).
Interview and literature findings
Theme 1: A foreign environment
A foreign environment portrays hospitals as unfamiliar
environments for M�aori, dominated by Western biomedical
worldviews, models of care and interventions. Hospital
200620052004200320022001200019991998199719961995199419931992199119901989
9·0
8·5
8·0
7·5
7·0
6·5
6·0
5·5
5·0
4·5
4·0
Non-Māori surgicalMāori surgical Non-Māori medicalMāori medical
Ave
rage
leng
th o
f sta
y in
day
s
Year
Figure 2 Annual average length of stay in days for M�aori and non-
M�aori medical and surgical patients 1989–2006.
Table 1 A summary of the themes and sub-themes arising from the
interviews
Theme Sub-themes
A foreign environment
Hospitals are unfamiliar
environments causing great
discomfort
Hospital environment
• Dominated by a biomedical,
worldview, models of care and
interventions
Understanding the system
• Hospital systems and processes
are complex and overwhelming
Discharge bargaining
• Discomfort and negative
experience lead to patients
leaving early
Family caring for family
The involvement of family
members in the care of their
relative to ensure quality of
care and meeting cultural and
spiritual needs
Caring for a family member
• Family members care for their
relative and other indigenous
patients who are without family
Reason to mistrust
• Actions and lack of actions by
nurses and other health
professionals lead to feelings of
mistrust
Quality of care
• Care by nurses is either
substandard or absent, and noted
to be different to that given to
other patients
Don’t complain
• Fear of reprisal results
indigenous patients and their
family reluctant to complain
Patient perspectives Indigenous hospital experiences
� 2012 Blackwell Publishing Ltd
Journal of Clinical Nursing, 21, 2316–2326 2319
experiences were overwhelming, caused great discomfort and
could contribute to M�aori seeking an early discharge. A
foreign environment comprises three sub-themes: ‘the hospi-
tal environment’, ‘understanding the system’ and ‘discharge
bargaining’.
The hospital environment. The hospital environment and its
biomedical culture contributed to M�aori having a shorter
length of stay and a belief their health needs were not met.
Hospitals were the antithesis of a healing environment,
instead created discomfort, anxiety and stress for M�aori,
engendered a sense of alienation and exacerbated the urge to
be discharged; M�aori believed hospitals better catered for
patients from the dominant culture, especially as their
cultural beliefs and practices were generally not considered.
As a result their spiritual and cultural needs were compro-
mised in exchange for needed health care. The nature of the
environment contributed appreciably to M�aori experiencing
anxiety and fear of death while in hospital. Consequently,
they struggled to feel comfortable while in hospital:
Hospitals are a place of sickness and death. So you don’t want to be
around that if you want to be well. There is an energy about
hospitals, there is a sickness to it and you don’t want to be in the
middle of that. … (03:5:14)
Understanding the system. Understanding complex hospital
systems and processes was problematic, making it difficult for
M�aori to navigate the hospital and understand its day-to-day
operations. Simply, it was a source of confusion. Participants
felt disadvantaged, especially when nurses and doctors
inadequately explained procedures and treatments. Family
members were often required to interpret information for the
patient, generally with little information themselves:
Mum was really agitated and she was, ‘What are they doing?’ I said,
‘Mum, they are putting a thing in you to drain water’. That was all I
could say, that’s all I understood it to be, I didn’t really know why.
(09:1:5)
Having to pursue nurses for information about their treat-
ment and care made them feel they were a nuisance and an
inconvenience.
Discharge bargaining. As mentioned earlier, M�aori ALOS
was less than others admitted to medical and surgical
settings. While some participants reported being discharged
‘early’ (before they were ready), others reported engaging in
discharge bargaining. Feelings of alienation and discomfort
motivated early discharge bargaining, where participants
bargained with doctors and nurses to leave hospital early.
Furthermore, they often stretched the truth ‘a little’ to
convince staff they could go home:
I was supposed to have someone with me 24 hours according to the
doctors and staff. . . I knew they [the family] wouldn’t be able to do
it, but I kind of told the doctors, ‘oh yeah, yeah’ because the other
option was staying in hospital and I wasn’t keen on that. (03:3:9)
Early discharge placed relatives, who often became primary
caregivers, in unenviable positions of persuading their rela-
tive to stay in hospital to receive needed treatment despite
their relative’s distress when remaining in hospital:
She would have let herself out much earlier, we begged her to stay
until we found out [what was wrong]. (02:1:16)
The hospital was also a foreign environment for other
Indigenous peoples, where feelings of alienation, discomfort
and mistrust were intensified by universal approaches to care
delivery (Reid et al. 2000, Jansen & Smith 2006). For
Australian Aboriginal people, hospitals made them feel
unsafe and caused fear, distress and hardship. Spiritually
they wanted to die at home where they were connected to
land and family, often in rural and remote areas (McGrath
2007). Canadian First Nations women felt like intruders, also
alienated and unable to connect with health professionals.
Their encounters were shaped by ‘… racism, discrimination
and structural inequalities that marginalised and disadvan-
taged Indigenous people’ (Browne & Fiske 2001, p. 126).
Table 2 The difference in the average length of stay between M�aori and non-M�aori 1989–2006
Medical ALOS (days)Difference between
M�aori & non-M�aori
(days)
Surgical ALOS (days)Difference between
M�aori & non-M�aori
(days)
Overall
Average
(days)M�aori Non-M�aori M�aori Non-M�aori
1989–1993 6Æ0 8Æ0 �2Æ0 6Æ6 8Æ0 �1Æ4 7Æ02000–2006 4Æ3 5Æ9 �1Æ0 5Æ5 5Æ9 �0Æ4 5Æ3Difference (days) �1Æ7 �2Æ7 �1Æ1 �2Æ1 �1Æ7% Difference �28Æ4% �33Æ7% �16Æ7% �26Æ2% �24Æ3%
D Wilson and P Barton
� 2012 Blackwell Publishing Ltd
2320 Journal of Clinical Nursing, 21, 2316–2326
Participants found understanding hospital systems and
processes advantageous; nevertheless familiarity with the
dominant culture did not guarantee they could navigate them
without frustration or difficulty. The complexity and a
seemingly patronising and paternalistic culture among hos-
pital staff further disadvantaged Indigenous people (Cram
et al. 2003). The Mi’kmaq First Nations community of
Canada reported feeling like strangers within the hospital
system and also experienced frustrations and difficulties
understanding the ‘hospital world’, its rules and treatments
(Baker & Daigle 2000). They believed their queries inconve-
nienced nurses and doctors and left them to feel misunder-
stood and maligned.
Theme 2: Wh�anau (extended family) caring for Wh�anau
Despite the apparent availability of nurses to provide care,
family members undertook care of their relative during hos-
pitalisation. The care provided by family enabled patients’
cultural and spiritual needs to be met. Those without family
went to great lengths to manage their own care as soon as they
were able. The sub-themes are ‘caring for a family member’,
‘reason to mistrust’, ‘quality of care and don’t complain’.
Caring for a family member. Necessity led to family
members carrying out personal cares without question.
Necessity for wh�anau to care for M�aori patients emerged
from observing differences in care than other patients, with
their care being either substandard or ignored. In such
cases, M�aori patients preferred family members over nurses
to care for them because they knew they would receive
adequate care. Furthermore, family members invariably
understood the patient, were able to attend to their
physical and cultural needs and were a source of comfort.
Although in some instances family members felt forced to
tend to their relatives’ basic personal needs as nursing staff
appeared too busy or gave the impression they were a
nuisance:
We’d ring the bell … they’d come in and they’re just grumpy that
you’ve rung them. I don’t know if it’s because we’re M�aori or we are
being a nuisance. I didn’t feel like I was being a nuisance. (05:9:9)
Family members found themselves also ‘looking out’ for
other M�aori patients who needed support and advocacy as
their family were not present. This sometimes involved
speaking to nurses on the patients’ behalf or providing
meaningful information:
I’ve spoken up for kids who aren’t even my kids, brown kids, because
they need to know there’s an ‘aunty’ sitting across in the other bed
that will stand up for them. (04:1:12)
Reasons to mistrust. Frequently poor communication and
lack of information about care and treatment were encoun-
tered. Lack of information was distressing and compounded a
sense of mistrust. Participants questioned whether they were
treated differently because they were M�aori, particularly
when they observed staff interacting differently with other
patients. Participants believed staff actions and negative
judgments were based on race:
By the time we got in there … the doctor, he gave me a hard time
about it, like I was a neglectful mother. And that’s the other thing …
they interrogate you because you’re brown. (05:1:4)
Everything is done in a kind of Western way … I just distrust them,
it’s just rituals and stuff – it’s their belief system. (03:3:13)
Quality of care. At times, quality of care was questioned
when differences were observed – care was not as it should be
and staff appeared intolerant of M�aori patients’ needs. Such
behaviours were interpreted to be discriminatory and racist.
However, speaking up about the quality of care involved
M�aori having to justify their concerns and risked being
further subjected to inappropriate and unprofessional behav-
iours from nurses or doctors:
I’m always watching how do they say hello to that parent and how do
they say hello to me. You know, it’s often not the same. (05:15:12)
Don’t complain. Despite substandard care in hospital, M�aori
were reluctant to complain. They felt a sense of powerlessness
and avoided the potential for reprisal by hospital staff.
Feeling unable to address concerns contributed to a lack of
trust in the health system:
I had found out I could make a complaint if I wasn’t happy with some
of the care … I spoke to my older sister … she said just to leave it
because she felt Mum might get alienated next time. (09:1:11)
M�aori experiences are not dissimilar to other Indigenous
peoples. Marginalisation of Native American women was
indicative of the quality of care they received (Dodgson &
Struthers 2005). Mistrust intensified when nurses and doctors
were disrespectful, abrupt, inattentive, lacking authenticity
and did not understand the hardship Indigenous people
experienced. Health care providers were prone to functioning
on negative stereotypes and assumptions when working with
Indigenous women (Dickson 2000, Kurtz et al. 2008). Kurtz
et al. (2008) found colonial structures and systems silenced
Canadian Aboriginal women and subjected them to racism –
the darker their skin colour, the worse the treatment they
received.
Patient perspectives Indigenous hospital experiences
� 2012 Blackwell Publishing Ltd
Journal of Clinical Nursing, 21, 2316–2326 2321
Similar to M�aori, the presence of Australian Aboriginal
family members in hospital is grounded in the belief that
constant family support aids recovery (Garvey et al. 2004).
Participants’ experiences of ‘looking out’ for other M�aori
patients is similar to that described by Baker and Daigle
(2000), where Mi’kmaq First Nations people sought out
other Mi’kmaq people for support and comfort, creating a
‘cultural umbrella’ in a foreign hospital environment. Nev-
ertheless, Mi’kmaq peoples’ hospital experiences resulted in
feelings of alienation, isolation and discomfort in the hospital
environment (Baker & Daigle 2000). Similar to M�aori in this
study, Mi’kmaq participants wanted to leave hospital as soon
as they possibly could.
Discussion
Nurses play an integral role in improving the health outcomes
of Indigenous peoples and minority groups (Wilson 2003).
Undeniably, the ongoing presence of global disparities in
Indigenous and minority health outcomes is a human rights
and social justice issue. By triangulating data sources it was
possible to draw interpretations and conclusions about M�aori
and Indigenous hospital experiences and their relevance for
the practice of nurses and other health professionals. The
focus of the following discussion is on three key interpreta-
tions that emerged:
1 Indigenous people are marginalised within mainstream
health systems.
2 Hospital environments tend not to be conducive to healing
for Indigenous people.
3 Negative hospital experiences appear to contribute to
Indigenous people making decisions about early discharge
(Fig. 3).
Indigenous people are marginalised within mainstream
health systems
M�aori have a legitimate right guaranteed under the Treaty of
Waitangi (an agreement signed in 1840 between M�aori and
the Crown) to equal health care. Despite this, M�aori
consistently experience substandard health services when
compared with non-M�aori (Davis et al. 2006, Reid &
Robson 2007). Differences in quality of care are an indicator
of institutional and interpersonal racism in health service
delivery and are associated with differential health outcomes
(Jones 2000, Karlsen & Nazroo 2002, Nazroo 2003). M�aori,
similar to other Indigenous and ethnic minority groups, have
a higher prevalence of exposure to racism and discrimination
that is considered a determinant of health in New Zealand
(Dickson 2000, Karlsen & Nazroo 2002, Harris et al. 2006,
Kurtz et al. 2008).
Participants’ recounts provided a unique insight into M�aori
experiences of hospitalisation, similar to other Indigenous
peoples and minority groups, and highlighted marginalisation
in the health system (Browne & Fiske 2001, Dodgson &
Struthers 2005, Wilson & Neville 2008). Similar experiences
were also encountered by those belonging to minority groups
or culturally and linguistically diverse communities in New
Zealand, Northern America and the UK and Europe (Betan-
court et al. 2003, El Ansari et al. 2009, Hesselink et al. 2009,
Peters et al. 2009, Mortenson 2010, Sorkin et al. 2010).
Despite Indigenous status and rights for M�aori guaranteed
under the Treaty of Waitangi, their continued marginalisa-
tion in the health system is disturbing.
Marginalisation appears to be perpetuated by dominant
biomedical views of health and the apparent inability for
mainstream health service providers to adapt services to
accommodate patients’ alternative views (Dodgson & Stru-
thers 2005, Mitchell & Weerasinghe 2007, Wilson & Neville
2008. Holism and individualised care, as cornerstones of
nursing, become merely rhetorical constructs when spiritual
and social contexts are ignored by health professionals
(Wilson & Neville 2008). To avoid marginalising Indigenous
patients and families, nurses need to have a critical under-
standing of their historical and contemporary socio-political
experiences, undertake a critical reflection on their own beliefs
and values and the impact on their practice and be willing to
accommodate patients’ beliefs and practices in the delivery of
nursing care (Ramsden 2002, Barton & Wilson 2008).
Indigenouspar cipants’
recounts
Indigenous literature
Three keyinterpreta ons
Average length of stay data
1. Indigenous people are marginalised in the New Zealand health systems
2. Hospital environments tend not to beconducive to healing for Indigenous people
3. Nega ve hospital experience appear to contribute toIndigenous people making early discharge decisions
Figure 3 Key interpretations about Indigenous hospital experiences
following triangulation of the data.
D Wilson and P Barton
� 2012 Blackwell Publishing Ltd
2322 Journal of Clinical Nursing, 21, 2316–2326
Hospital environments tend not to be conducive to healing
for Indigenous people
Health perspectives are constructed within a person’s unique
socio-cultural context. As mentioned earlier, Indigenous
peoples have an eco-spiritual holistic worldview driven by
strong spiritual beliefs and their connection to the land and
other living things. This holistic worldview provides indica-
tors of influences to their well-being and is contrary to the
biomedical worldview in hospitals that tends to be illness or
problem focused (Baker & Daigle 2000, Dodgson & Struthers
2005, Mitchell & Weerasinghe 2007, Wilson & Neville
2008). This contributes to the belief hospital environments
generally are not conducive to spiritual and mental healing –
crucial components of Indigenous health and well-being.
Health does not exist independently, but is part of a myriad of
interconnecting and interdependent dimensions responsive to
various external forces (Durie 2001, Cram et al. 2003, Wilson
2004, El Ansari et al. 2009, Weersinghe & Mitchell 2009).
On the whole, Indigenous peoples, similar to other ethnic
minorities, strong collective orientations are linked to their
sense of well-being and healing. Holistic worldviews need to
be acknowledged in respectful and collaborative ways as
assimilation into mainstream health services can be difficult
for Indigenous people when unwell (Cram et al. 2003).
Integral to Indigenous cultures are traditional healing
practices. For example, traditional healing for M�aori includes
medicines gathered from the environment, traditional mas-
sage and prayer. Of special significance are traditional
healers, such as tohunga for M�aori, although generally
family have a significant role in M�aori health and well-being.
Nevertheless, hospital environments generally do not accom-
modate traditional healing practices and M�aori patients often
wait until they return home to use traditional healing
practices. This averts a potential refusal or reproach by
hospital staff when seeking permission to use traditional
medicines in hospital. Simply, hospital environments are not
necessarily seen as safe to carry out traditional practices.
Indigenous families want to ensure patients receive cultur-
ally appropriate care. Nurses have a role in determining the
needs of Indigenous people for their incorporation into care
plans to facilitate healing in a genuine and non-judgmental
manner and aid spiritual well-being. Yet, we found nurses
often neglected their responsibilities, leaving family to pro-
vide personal cares, such as showering, especially when their
body language discouraged requests for help. Ideally, nurses
should consider building relationships with patients and
family members to identify not only information and care
needs, but also cultural requirements and how these can be
included in care plans.
Negative hospital experiences appear to contribute to
Indigenous people making decisions about early discharge
Quality of care is a determinant of health outcomes (Hasn-
ain-Wynia et al. 2007). Quality nursing care is important in
preventing negative outcomes that are potentially sensitive to
nursing (McCloskey & Diers 2005). Patient health care
needs, safety, effectiveness, patient-centeredness and timeli-
ness are all components of health care quality (Lurie 2002).
While our study is small, it nevertheless provides insight into
the experiences of M�aori and the need to reinforce important
nursing care fundamentals. High rates of inequalities in
morbidity and mortality imply M�aori, similar to other
Indigenous and ethnic minority groups, need comprehensive
quality care (Ajwani et al. 2003, Cormack et al. 2007,
Harwood & Tipene-Leach 2007, Blakely et al. 2008, El
Ansari et al. 2009, Hesselink et al. 2009, Peters et al. 2009),
yet they potentially have less time in hospital and are likely to
receive substandard care.
Our finding that M�aori are more likely to be discharged
earlier than non-M�aori is confirmed by others (Westbrooke
et al. 2001, Ministry of Health 2006, Robson & Harris
2007). This raises the question, ‘If M�aori are leaving hospital
earlier than non-M�aori, is it detrimental to their health or
their recovery?’ Early discharge is counterintuitive given for
M�aori there is a high prevalence of chronic health conditions
and premature death. Improving the quality of interactions
with health professionals and care is crucial to address the
inequalities in health care.
Despite articulation of the importance of culture in health
care and nursing in nursing literature for four decades
(Leininger 1970), marginalised and vulnerable groups con-
tinue to be the recipients of culturally inappropriate and
unacceptable health care (Baker & Daigle 2000, Dodgson &
Struthers 2005, Reid & Robson 2007, Wilson 2008, Wilson
& Neville 2008, El Ansari et al. 2009). Marginalisation of
Indigenous peoples in hospitals is not conducive to healing
and potentially contributes to inadequate hospital care.
Having said this, M�aori, like other Indigenous peoples,
attempt to make the best of the situation by seeking out
information and providing direct care and cultural comfort to
their relatives. Culturally safe and competent practice
requires nurses to examine their own cultural beliefs and
practice and how these may impact on others and to respect
the cultural needs of patients (Ramsden 2002, Wilson 2008).
Nurses can begin by critically analysing their attitudes and
behaviours toward people and their family who belong to
Indigenous and other minority groups and identifying what
personal and professional development is needed to improve
their practice.
Patient perspectives Indigenous hospital experiences
� 2012 Blackwell Publishing Ltd
Journal of Clinical Nursing, 21, 2316–2326 2323
Limitations
This study has limitations. While it provides insight into the
hospital experiences of Indigenous people it is a small study,
thus the findings should be used cautiously in other contexts.
Also those interviewed were predominately female, despite
men being invited to participate in the study. Future studies
should explore ways M�aori men can be better recruited into
the study. The inclusion criterion of having a hospital
experience within the previous 15 years is a potential
limitation, although all except one participant was hospita-
lised within five years of their interview. The 15 year time
period related to the time span of the ALOS data, supported
by the anecdotal information indicating for many M�aori
hospital experiences had not improved over this time. There a
strong likelihood the hospital administrative data has under-
counted M�aori, as M�aori ethnicity definitions underwent
several changes between 1986–1996.
Conclusion
Indigenous peoples, similar to others belonging to minority
and culturally and linguistically diverse groups, suffer
appalling disparities in health status and outcomes, which
in part can be connected to the quality of care delivered by
health services. In this study, M�aori experiences of hospital-
isation suggested substandard care and the nature of the
hospital environment reinforced beliefs about hospitals and
health professionals they held. Indeed, recounts of personal
and cultural isolation, poor communication by nurses and
doctors and racist and discriminatory practices are evident in
other studies. Despite nursing endeavours to provide cultur-
ally appropriate care to Indigenous and other minority
groups, hospital environments appear to continue to mar-
ginalise them. For this reason it is understandable that M�aori
would choose to leave such an environment as early as they
can. Nevertheless nurses can create positive health experi-
ences to optimise hospital experiences and health outcomes.
Relevance to clinical practice
Indigenous peoples have health outcome disparities linked to
health service delivery. Nurses have an important role in
providing a culturally appropriate and safe environment and
by being welcoming and non-judgmental. Quality nursing
care involves establishing relationships with patients and
families and incorporating cultural beliefs and practices into
care plans.
Acknowledgements
This research was undertaken as part of a Health Research
Council funded project.
Contributions
Study design: PB DW; data collection and analysis: PB DW
and manuscript preparation: DW PB.
Conflict of interest
None.
References
Ajwani S, Blakely T, Robson B, Tobias M &
Boone M (2003) Decades of Disparity:
Ethnic Mortality Trends in New Zea-
land 1980–1999. Ministry of Health &
University of Otago, Wellington.
Baker C & Daigle MC (2000) Cross-cultural
hospital care as experienced by Mi’k-
maq clients. Western Journal of Nurs-
ing Research 22, 8–24.
Barton P & Wilson D (2008) Te Kapunga
Putohe (the restless hands): a Maori
centred nursing practice model. Nurs-
ing Praxis of New Zealand 24, 6–15.
Betancourt JR, Green AR, Carrillo JE &
Ananeh-Firempong O (2003) Defining
cultural competence: a practical frame-
work for addressing racial/ethnic dis-
parities in health and health care.
Public Health Reports 118, 293–302.
Blakely T, Ajwani S, Robson B, Tobias M &
Bonne M (2004) Decades of disparity:
widening ethnic mortality gaps from
1980 to 1999. New Zealand Medical
Journal 117, 995–1015.
Blakely T, Tobias M & Atkinson J (2008)
Inequalities in mortality during and
after restructuring of the New Zealand
economy: repeated cohort studies.
British Medical Journal 336, 371–375.
Bolitho S & Huntington A (2006) Experi-
ences of Maori families accessing health
care for their unwell children: a pilot
study. Nursing Praxis in New Zealand
22, 23–32.
Browne AJ & Fiske JA (2001) First Nations
women’s encounters with mainstream
health care services. Western Journal of
Nursing Research 23, 126–147.
Buck PH (1949) The Coming of the Maori.
Whitcombe and Tombs, Wellington.
Carryer JB, Diers D, McCloskey B & Wilson
D (2010) Effects of health policy reforms
on nursing resources and patient
outcomes in New Zealand. Policy, Pol-
itics, & Nursing Practice 11, 275–285.
Cormack D, Purdie G & Robson B (2007)
Cancer. In Hauora: Maori Health
Standards IV. A Study of the Years
2000–2005 (Robson B & Harris R eds).
Te Ropu Rangahau a Eru Pomare,
Wellington, pp. 103–119.
D Wilson and P Barton
� 2012 Blackwell Publishing Ltd
2324 Journal of Clinical Nursing, 21, 2316–2326
Cram F, Smith L & Johnstone W (2003)
Mapping the themes of Maori talk
about health. New Zealand Medical
Journal [Online], 116. Available at:
http://www.nzma.org.nz.ezproxy.massey.
ac.nz/journal/116-1170/357/ (accessed 12
April 2010).
Cunningham C (1998) A framework for
addressing Maori knowledge in re-
search, science and technology. Pacific
Health Dialog, 7, 62–69.
Curtis E, Harwood M & Riddell T (2007)
Cardiovascular disease. In Hauora:
Maori Health Standards IV. A Study of
the Years 2000–2005 (Robson B &
Harris R eds). Te Ropu Rangahau a Eru
Pomare, Wellington. Available at:
http://www.hauora.maori.nz/hauora/
(accessed 10 February 2011).
Davis P, Lay-Yee R, Dyall L, Briant R,
Sporle A, Brunt D & Scott A (2006)
Quality of hospital care for Maori pa-
tients in New Zealand: retrospective
cross-sectional assessment. The Lancet
367, 1920–1925.
Dickson G (2000) Aboriginal grandmoth-
ers’ experience with health promotion
and participatory action research.
Qualitative Health Research 10, 188–
213.
Dodgson JE & Struthers R (2005) Indige-
nous women’s voices: Marginalisation
and health. Journal of Transcultural
Nursing 16, 339–346.
Durie M (2001) Mauri Ora: The Dynamics
of Maori Health. Oxford University
Press, Auckland.
El Ansari W, Newbigging K, Roth C &
Malik F (2009) The role of advocacy
and interpretation services in the deliv-
ery of quality healthcare to diverse
minority communities in London, Uni-
ted Kingdom. Health & Social Care in
the Community, 17, 636–646.
Evans D & Kowanka I (2000) Literature
reviews: evolution of a research meth-
odology. Australian Journal of Ad-
vanced Nursing, 18, 33–38.
Garvey G, Towney P, McPhee JR, Little M
& Kerridge IH (2004) Is there an
aboriginal bioethic? Journal of Medical
Ethics, 30, 570–575.
Gauld R (2009) Revolving Doors: New
Zealand’s Health Reforms – The
Continuing Saga, 2nd edn. Institute of
Policy Studies, Wellington.
Hancock D & Algozzine B (2006) Doing
Case Study Research: A Practical Guide
For Beginner Researchers. Teachers
College Press, New York, NY.
Harris R, Tobias M, Jeffreys M, Waldegrave
K, Karlsen S & Nazroo J (2006) Effects
of self-reported racial discrimination
and deprivation on Maori health and
inequalities in New Zealand: cross-sec-
tional study. Lancet, 367, 2005–2009.
Harwood M & Tipene-Leach D (2007)
Diabetes. In Hauora: Maori Health
Standards IV. A Study of the Years
2000–2005 (Robson B & Harris R eds).
Te Ropu Rangahau a Eru Pomare,
Wellington, pp. 160–167.
Hasnain-Wynia R, Baker DW, Nerenz D,
Feinglass J, Beal AC, Landrum MB,
Behal R & Weissman JS (2007) Dis-
parities in health care are driven by
where minority patients seek care:
Examination of the hospital quality
alliance measures. Archives of Internal
Medicine 167, 1233–1239.
Hesselink AE, Verhoeff AP & Stronks K
(2009) Ethnic health care advisors: A
good strategy to improve the access to
health care and social welfare services
for ethnic minorities? Journal of Com-
munity Health 24, 419–429.
International Council of Nurses (1998) The
Health Of Indigenous Peoples: A Con-
cern for Nursing. Available at: http://
www.icn.ch/matters_Indigenous_print.
htm (accessed 12 April 2010).
Jansen P & Smith K (2006) Maori experi-
ences of primary health: breaking down
the barriers. New Zealand Physician
33, 298–300.
Jones CP (2000) Levels of racism: a theo-
retic framework and a gardener’s tale.
American Journal of Public Health 90,
1212–1215.
Karlsen S & Nazroo J (2002) The relation-
ship between racial discrimination, so-
cial class and health among ethnic
minority groups. American Journal of
Public Health 92, 624–631.
Kurtz D, Nyberg J, Tillaart S, Mills B &
OUAHR Collective (2008) Urban
aboriginal women speak out about their
experiences with health care. Journal of
Aboriginal Health 4, 55–63.
Leininger MM (1970) Nursing and
Anthropology; Two Worlds to Blend.
Wiley, New York, NY.
Lurie M (2002) Measuring disparities in
access to care. In Guidance for the
National Healthcare Disparities Report
(Institute of Medicine of the National
Academies ed.). IOM, Washington,
DC, pp. 99–148.
McCloskey BA & Diers DK (2005) Effects
of New Zealand’s health reengineering
on nursing and patient outcomes.
Medical Care 43, 1140–1146.
McCreanor T & Nairn R (2002) Tauiwi
general practitioners’ explanations of
Maori health: colonial relations in pri-
mary healthcare in Aotearoa/New
Zealand? Journal of Health Psychology
7, 509–518.
McGrath P (2007) Aboriginal cultural
practices on caring for the deceased
person: findings and recommendations.
International Journal of Palliative
Nursing 13, 418–425.
McKinney C (2006) Maori Experiences of
Hospital Care in Auckland. Masters
of Public Health thesis, University of
Auckland, Auckland.
Ministry of Health (2010) Tatau Kahukura:
M�aori Health Chart Book, 2nd edn.
Ministry of Health, Wellington.
Mortenson A (2010) Cultural safety: does the
theory work in practice for culturally
and linguistically diverse groups? Nurs-
ing Praxis in New Zealand 26, 6–16.
Nazroo J (2003) The structuring of ethnic
inequalities in health: economic posi-
tion, racial discrimination and racism.
American Journal of Public Health 93,
277–284.
Nursing Council of New Zealand (2009)
Guidelines for Cultural Safety, the
Treaty of Waitangi and Maori Health
in Nursing Education and Health.
Nursing Council of NZ, Wellington.
Nursing Council of New Zealand (2010)
The New Zealand Nursing Workforce:
A Profile of Nurse Practitioners,
Registered Nurses, Nurse Assistants and
Enrolled Nurses 2010. Available at:
http://www.nursingcouncil.org.nz/index.
cfm/1,144,html/Workforce-Statistics (acc-
essed 10 February 2010).
Peters J, Parry GD, Van Cleemput P, Moore
J, Cooper CL & Walters SJ (2009)
Health and use of health services: a
comparison between Gypsies and
Travellers and other ethnic groups.
Ethnicity & Health 14, 359–377.
Ramsden IM (2002) Cultural Safety and
Nursing Education in Aotearoa and Te
Waipounamu. Victoria University of
Wellington, Wellington. Available at:
http://culturalsafety.massey.ac.nz/thesis.
htm (accessed 10 February 2010).
Patient perspectives Indigenous hospital experiences
� 2012 Blackwell Publishing Ltd
Journal of Clinical Nursing, 21, 2316–2326 2325
Ratima MM, Brown RM, Garrett NKG,
Wikaire EI, Ngawati RM, Aspin CS &
Potaka UK (2007) Strengthening Maori
participation in the New Zealand
health and disability workforce. Medi-
cal Journal of Australia 186, 541–543.
Reid P & Robson B (2007) Understanding
health inequities. In Hauora: Maori
Health Standards IV. A Study of the
Years 2000–2005 (Robson B & Harris
R eds). Te Ropu Rangahau Hauora a
Eru Pomare, Wellington. Available at:
http://www.hauora.maori.nz/hauora/
(accessed 10 February 2010).
Reid P, Robson B & Jones C (2000) Dis-
parities in health: common myths and
uncommon truths. Pacific Health Dia-
log 7, 38–47.
Robson B & Harris R (eds) (2007) Hauora:
Maori Standards of Health IV. A Study
of the Years 2000–2005. Te Ropu
Rangahau Hauora a Eru Pomare, Wel-
lington.
Sorkin DH, Ngo-Metzger Q & De Alba I
(2010) Racial/ethnic discrimination in
health care: impact on perceived quality
of care. Journal of Internal Medicine
25, 390–396.
Stake RE (1995) The Art of Case Study
Research. Sage, Thousand Oaks, CA.
United Nations (2007) United Nations
Declaration on the Rights of Indige-
nous Peoples. United Nations, New
York, NY.
Weerasinghe S & Mitchell T (2007) Con-
nection between the meaning of health
and interaction with health profession-
als: caring for immigrant women.
Health Care for Women International
28, 309–328.
Westbrooke I, Baxter J & Hogan J (2001)
Are Maori under-served for cardiac
interventions? New Zealand Medical
Journal 114, 484–487.
Wilson D (2003) The nurse’s role in
improving Indigenous health. Contem-
porary Nurse 15, 232–240.
Wilson D (2004) Ng�a Kairaranga Oranga –
The Weavers of Health and Wellbeing: A
Grounded Theory Study. Massey Uni-
versity, Wellington. Available at: http://
muir.massey.ac.nz/handle/10179/992
(accessed 10 February 2011).
Wilson D (2008) The significance of a cul-
turally appropriate health service for
Indigenous Maori women. Contempo-
rary Nurse 28, 173–188.
Wilson D & Neville S (2008) Nursing
their way not our way: working with
vulnerable and marginalised popula-
tions. Contemporary Nurse 27, 165–
176.
Yin R (2003) Case Study Research Design
and Methods. Sage, Thousand Oaks,
CA.
The Journal of Clinical Nursing (JCN) is an international, peer reviewed journal that aims to promote a high standard of
clinically related scholarship which supports the practice and discipline of nursing.
For further information and full author guidelines, please visit JCN on the Wiley Online Library website: http://
wileyonlinelibrary.com/journal/jocn
Reasons to submit your paper to JCN:High-impact forum: one of the world’s most cited nursing journals and with an impact factor of 1Æ228 – ranked 23 of 85
within Thomson Reuters Journal Citation Report (Social Science – Nursing) in 2009.
One of the most read nursing journals in the world: over 1 million articles downloaded online per year and accessible in over
7000 libraries worldwide (including over 4000 in developing countries with free or low cost access).
Fast and easy online submission: online submission at http://mc.manuscriptcentral.com/jcnur.
Early View: rapid online publication (with doi for referencing) for accepted articles in final form, and fully citable.
Positive publishing experience: rapid double-blind peer review with constructive feedback.
Online Open: the option to make your article freely and openly accessible to non-subscribers upon publication in Wiley
Online Library, as well as the option to deposit the article in your preferred archive.
D Wilson and P Barton
� 2012 Blackwell Publishing Ltd
2326 Journal of Clinical Nursing, 21, 2316–2326