informatics&palliative

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How to How to How to How to How to How to How to How to use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care to advance palliative care Patama Gomutbutra MD. 3 rd Suandok Palliative care day 5/17/2012 Patama 1

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This slide presented in Suandok Palliative care day 17th May 2012: The aim is to introduce clinician working in palliative care to recognize importance of data collaboration and dissemination.

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Page 1: Informatics&palliative

How to How to How to How to How to How to How to How to use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics use medical informatics

to advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative careto advance palliative care

Patama Gomutbutra MD.

3rd Suandok Palliative care day

5/17/2012 Patama 1

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คณุเคยร ูส้ึกไหมว่า..

• อยากมฐีานขอ้มลูของทีม แตไ่มร่ ูจ้ะเริ�มอย่างไร

• อยากทาํ Routine to research แตไ่มร่ ูจ้ะนาํ

ขอ้มลูใดมาเปรียบเทียบขอ้มลูใดมาเปรียบเทียบ

• ไมร่ ูจ้ะหาขอ้มลูสถิตอิา้งอิง Palliative care

ของเมอืงไทยจากที�ไหน

• มปีระสบการณม์ากมายอยากแชรใ์หค้นอื�นรบัร ู ้

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OutlineOutlineOutlineOutline

Informatics is Informatics is Informatics is Informatics is

translate data to information

It needIt needIt needIt needIt needIt needIt needIt need

Collaborative relationship

Exchangeable data

Accessible information

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Informatics Informatics Informatics Informatics

ไมเ่ท่ากบั

Information technology (IT)Information technology (IT)Information technology (IT)Information technology (IT) Information technology (IT)Information technology (IT)Information technology (IT)Information technology (IT)

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วิวฒันาการ

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Ape -> Agriculture -> Industrial -> Information -> Conceptual era

ภาพจาก http://www.educatethewholechild.org

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Information technologyInformation technologyInformation technologyInformation technology

• Focus on hardware & software

• storing, accessing, and

exchanging bits and bytesexchanging bits and bytes

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InformaticsInformaticsInformaticsInformatics

• Focus on people

• The use of computers to make sense of datato make sense of data

• Informatics คือ

การสกดั“ขอ้มลู” ใหเ้ป็น“สาระ” โดยใชค้อมพิวเตอร์

มาชว่ย

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DDDD----IIII----KKKK----WWWW

• DataDataDataData ขอ้มลู

= Raw observations/ facts

• InformationInformationInformationInformation สาระ

= Translate data to answer question

“Who", “What", “Where", “When” and “Why"“Who", “What", “Where", “When” and “Why"“Who", “What", “Where", “When” and “Why"“Who", “What", “Where", “When” and “Why"

• KnowledgeKnowledgeKnowledgeKnowledge ความร ู้

5/17/2012 Patama

• KnowledgeKnowledgeKnowledgeKnowledge ความร ู้

= Translate information to answer question“How”“How”“How”“How”

• WisdomWisdomWisdomWisdom ปัญญา

= Apply knowledge to predict future /Action in novel situation “What if”“What if”“What if”“What if”

8

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ตวัอยา่ง DDDD----IIII----KKKK----WWWW

• Data

– PPS 30%

• Information

Who have PPS 30%?

- Most of patient who have PPS 30% had

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- Most of patient who have PPS 30% had prognosic weeks-month

• Knowledge, Wisdom

� Explicit / codifiablee.g. guideline - Suandok palliative care model

� Tacit / not codifiablee.g. expertise , clinical training

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Purpose of Informatics Purpose of Informatics Purpose of Informatics Purpose of Informatics

• ไวใ้ชเ้อง -> Quality improvement &

Demonstrating cost effectiveness

of serviceof service

• ตพีิมพเ์ผยแพร่ -> Research

• เผยแพร่ online -> Public awareness

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Kamal AH. et al. The Value of Data Collection within a Palliative Care

Program. Curr Oncol Rep (2011) 13:308–315

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Informatics needInformatics needInformatics needInformatics need

• Collaboration: Common mission -“question”

• Exchangeable (Interoperability): Common definition and code: Common definition and codeof collected data

• Accessible (Translatability): provide right conclusion to right person in right time

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CollaborationCollaborationCollaborationCollaboration

CompetitionCompetitionCompetitionCompetition

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How the team leader doHow the team leader doHow the team leader doHow the team leader do

• สื�อสารเชงิบวก

• เผยแพร่มทุิตาจิต ตอ่คนในเครือขา่ย

• ไมว่่าผลเป็นอย่างไร ก็ยงัเป็นบวก• ไมว่่าผลเป็นอย่างไร ก็ยงัเป็นบวก

เราไดเ้รียนร ู.้..

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ยินดปีรีดา โดดเดน่ เจิดจรสั

สดุยอด

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โดยเฉลี�ย มคีาํบวก

แทรกอยู ่ทกุๆ 4-5 คาํ

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Social media is an Social media is an Social media is an Social media is an environmentenvironmentenvironmentenvironment not a technology.not a technology.not a technology.not a technology.

…its real and unique value comes from mass its real and unique value comes from mass its real and unique value comes from mass its real and unique value comes from mass collaborationcollaborationcollaborationcollaboration

Anthony Bradley

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ExchangeableExchangeableExchangeableExchangeable ExchangeableExchangeableExchangeableExchangeable

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International report quality of death International report quality of death International report quality of death International report quality of death : : : : ขอ้มลูของประเทศไทย...ว่างเปลา่

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www.eiu.com/sponsor/lienfoundation/qualityofdeath

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ฐานขอ้มลู Palliative care Palliative care Palliative care Palliative care กลางของออสเตรเลีย

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5 5 5 5 data domains data domains data domains data domains DomainsDomainsDomainsDomains ExampleExampleExampleExample data fielddata fielddata fielddata field

Patients and care giver Demographic data (eg. Age sex)

* Performance status

Co-morbidity

Time from referal to death

Income

identifiable care giver ?identifiable care giver ?

Professional Clinician were specialized training in palliative

care?

Service Tirtiary care/consulting team

or primary team

Health and social policy Universal coverage/ social security

Outcome measures validated index for palliative population

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Currow D. et al. A Framework for generalizability in Palliative care.

J of Pain Symptom manage. 2009;37:373-86

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CSV : CommaCSV : CommaCSV : CommaCSV : Comma----Separated ValueSeparated ValueSeparated ValueSeparated Value

• Yes

- MS Excel, MS Access- SQL , ORACLE- SPSS, STATA- SPSS, STATA

• No

- MS Word - แฟ้มกระดาษ

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แบบอยา่งทีน่าชืนชม

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เก็บขอ้มลูในระบบ เริ�มไดท้ี�ตวัเรา

FISH_PALFISH_PALFISH_PALFISH_PAL

• MS Access -> SQL ในอนาคต

• Intervention:

home visiting & related procedure

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home visiting & related procedure

(medications, PEG, suction )

• Outcome: Hospital admission /ER visit

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Exchangeable, ReplicableExchangeable, ReplicableExchangeable, ReplicableExchangeable, Replicable

บา๊ย

บาย

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บาย

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Relational databaseRelational databaseRelational databaseRelational database

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ขอ้มลูและรปูภาพทั�งหมดที�นาํมาประกอบสไลด ์ไมใ่ชข่องผูป้่วยจริง

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Blended data:Blended data:Blended data:Blended data:

Quantitative data & qualitative dataQuantitative data & qualitative dataQuantitative data & qualitative dataQuantitative data & qualitative data

• Qualitative data -> Educational purpose

• Quantiative dataie. Charlson comorbidity index,PPS, ESASie. Charlson comorbidity index,PPS, ESAS

-> Researching purpose

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ขอ้มลูเชงิคณุภาพ

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ขอ้มลูเชงิคณุภาพ

ขอ้มลูตวัเลข

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คําถามทียงัไมม่ีคําตอบ????????

Prognosis กบั PPS ในคนไทย - แตล่ะโรค

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ขอ้มลู จาก Victoria hospice registry 13 ปี 6666,,,,066066066066 palliative patients : 85% Cancer

Lau, Downing . J Pain Symptom Manage 2009;38:134-144

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Effectiveness analysisEffectiveness analysisEffectiveness analysisEffectiveness analysis

• Multivariable analysisMultivariable analysisMultivariable analysisMultivariable analysis : not many confounding factors

• Propensity score Propensity score Propensity score Propensity score : Many confounding factors

Instrument variable Instrument variable Instrument variable Instrument variable : • Instrument variable Instrument variable Instrument variable Instrument variable : “Pseudo randomized” unmeasurable confounding factors

( รายละเอียดในเอกสารประกอบค่ะ)

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Tracheal suction ที�บา้น ชว่ยป้องกนั aspiration pneumonia ในผูป้่วย end of life ?

• Propensity matching ผูป้่วยที�ไดร้บัและไมไ่ดร้บัการ suction ที�บา้น

• Instrument variable = ฐานะการเงนิ?

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AccessibleAccessibleAccessibleAccessible AccessibleAccessibleAccessibleAccessible

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ประเทศไทยติดอนัดบั 1 1 1 1 ใน 10 10 10 10 คน้หาคําว่า

“Palliative care”“Palliative care”“Palliative care”“Palliative care”

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อเมรกิาประชาชนร ูจ้กัคําว่า

“Palliative care”“Palliative care”“Palliative care”“Palliative care” ดีแค่ 8888%%%% แลว้บา้นเรา..????

Source: Public Opinion Strategies national survey of 800

adults age 18+ conducted June 5‐8, 2011 (USA)

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Updated and reliable palliative evidence Updated and reliable palliative evidence Updated and reliable palliative evidence Updated and reliable palliative evidence http://www.caresearch.com.auhttp://www.caresearch.com.auhttp://www.caresearch.com.auhttp://www.caresearch.com.au

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CMS: Content management systemCMS: Content management systemCMS: Content management systemCMS: Content management system

• “เว็บกึ�งสาํเร็จรปู” ไมต่อ้งเขยีน code

• ควบคมุ “Frontend” จาก “Backend”

• Login เขา้ไปแกไ้ขไดท้กุที� ทกุเวลา• Login เขา้ไปแกไ้ขไดท้กุที� ทกุเวลา

• เรียนร ูเ้องไดไ้มย่าก

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ไทยทาํไทยใช ้

http://www.joomla.org

http://portal.in.th

http://th.wordpress.org

5/17/2012 Patama 41ภาพจาก http://shoutex.com/

http://www.joomla.org

http://drupal.org

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ตวัอยา่งเวบ portal.in.th : MSportal.in.th : MSportal.in.th : MSportal.in.th : MS----PCAREPCAREPCAREPCARE

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ตวัอยา่งเวบ wordpresswordpresswordpresswordpress : APHN: APHN: APHN: APHN

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ตวัอยา่งเวบ drupaldrupaldrupaldrupal :::: DeathwithdignityDeathwithdignityDeathwithdignityDeathwithdignity

High traffic !?

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ตวัอยา่งเวบ

joomlajoomlajoomlajoomla! : ! : ! : ! : SUANDOKPAL !SUANDOKPAL !SUANDOKPAL !SUANDOKPAL !เรากาํลงัรอ “Link” กบัคณุอยู่

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เรากาํลงัรอ “List” “List” “List” “List” คนเกง่ๆ อยา่งคณุอย ู่

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เรากาํลงัรอ “like” “like” “like” “like” จากคณุอย ู่

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ยอ้นกลบัมาคําถามเดิม..

• อยากมฐีานขอ้มลูของทีม แตไ่มร่ ูจ้ะเริ�มอย่างไร

• อยากทาํ Routine to research แตไ่มร่ ูจ้ะนาํ

ขอ้มลูใดมาเปรียบเทียบขอ้มลูใดมาเปรียบเทียบ

• ไมร่ ูจ้ะหาขอ้มลูสถิตอิา้งอิง Palliative care

ของเมอืงไทยจากที�ไหน

• มปีระสบการณม์ากมายอยากแชรใ์หค้นอื�นรบัร ู ้

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สรปุสีสิงทีท่านทําไดใ้นสปัดาหน์ี�

1. ใชอ้ีเมล หรือ facebook สรา้ง

collaboration ดว้ยคาํชืนชม ขอบคณุ ยินด ี

2. เก็บสะสมขอ้มลูไวใ้นรปูแบบไฟล ์CSV

(Excel, Access, web survey etc.) (Excel, Access, web survey etc.)

3. เริมตน้เขยีนบล็อก และใส ่tag/keywords หรือ

สรา้ง website ของทีม

4. สมคัรเป็นสมาชกิของครอบครวั

“suandok palliative care”

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ขอบคณุคะ่

Email: [email protected]

Blog :www.gotoknow.org/blogs/books/users/gpatama

WebsiteWebsitewww.med.cmu.ac.th/dept/family/2012/index.php/en/suandokpal

Full version at slidesharewww.slideshare.net/PatamaGomutbutra/informaticspalliative

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เอกสารอ่านเพิมเติม ((((EbookEbookEbookEbook))))

5/17/2012 Patama 51http://issuu.com/gpatama/docs/addon_informatics_and_palliative_care