information for parent/caregiver of ... for parent/caregiver of participants with down syndrome the...

People with Down syndrome are therefore often defined by their language limitations rather than their language potential. In the task that I have developed individuals are shown short animation on a tablet, at the same time they hear a sentence and they must decide whether the sentence matches the animation. To date, I have completed the task with some children who don’t have any language difficulties to make sure it works effectively. I found that children performed better on my task than another task using a more traditional approach Why do I need your help? The task is now ready to be used with those who have Down syndrome, to see what they find easy and more difficult. It is hoped that the task will show the true My name is Pauline Frizelle and I am a researcher and Speech and Language Therapist working at University College Cork. I have been developing a new computerized task (using animation) to study people’s understanding of different types of sentences called complex sentences. Until recently, there has been no task available in the world that looks at a full range of complex sentences, in detail. As a result we have a very poor knowledge of what types of sentences those with language difficulties (in particular those with Down syndrome) can understand. INFORMATION FOR PARENT/CAREGIVER OF PARTICIPANTS WITH DOWN SYNDROME The people being invited: § Have a diagnosis of Down syndrome § Have the ability to understand simple sentences § Can speak in 3 word combinations § Have English as a first language and the language of the home Dr Pauline Frizelle, Department of Speech and Hearing Sciences, University College Cork Tel: +252 (21) 4901649 mail: [email protected] Investigating the understanding of complex sentences by those with Down syndrome, intellectual disability of unknown origin and typical development Confidentiality A code number would identify each participant. . All data will be anonymous We would not write names on any forms. All forms would be stored in a locked filing cabinet in the department of Speech and Hearing Sciences, University College Cork. The final scores will be deposited on the open science framework for statistical re analysis. language potential of individuals with Down syndrome and therefore help teachers and therapists maximise their learning ability.

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Page 1: INFORMATION FOR PARENT/CAREGIVER OF ... FOR PARENT/CAREGIVER OF PARTICIPANTS WITH DOWN SYNDROME The people being invited: Have a diagnosis of Down syndrome Have the ability to understand

PeoplewithDownsyndromearethereforeoftendefinedbytheirlanguagelimitationsratherthantheirlanguagepotential.

InthetaskthatIhavedevelopedindividualsareshownshortanimationonatablet,atthesametimetheyhearasentenceandtheymustdecidewhetherthesentencematchestheanimation.Todate,Ihavecompletedthetaskwithsomechildrenwhodon’thaveanylanguagedifficultiestomakesureitworkseffectively.Ifoundthatchildrenperformedbetteronmytaskthananothertaskusingamoretraditionalapproach

Why do I need your help?

ThetaskisnowreadytobeusedwiththosewhohaveDownsyndrome,toseewhattheyfindeasyandmoredifficult.Itishopedthatthetaskwillshowthetrue

My name is Pauline Frizelle and I am aresearcher and Speech and LanguageTherapist working at University CollegeCork. I have been developing a newcomputerized task (using animation) tostudypeople’sunderstandingofdifferenttypes of sentences called complexsentences.Untilrecently,therehasbeennotaskavailableintheworldthatlooksatafullrangeof complex sentences, in detail. As aresultwehaveaverypoorknowledgeofwhat types of sentences those withlanguage difficulties (in particular thosewithDownsyndrome)canunderstand.

INFORMATION FOR PARENT/CAREGIVER OF PARTICIPANTS WITH DOWN SYNDROME

The people being invited:

§ HaveadiagnosisofDownsyndrome§ Havetheabilitytounderstandsimplesentences§ Canspeakin3wordcombinations§ HaveEnglishasafirstlanguageandthe

languageofthehome

DrPaulineFrizelle,DepartmentofSpeechandHearingSciences,UniversityCollegeCorkTel:+252(21)4901649mail:[email protected]

Investigating the understanding of complex sentences by those with Down syndrome, intellectual disability of unknown origin and typical development

Confidentiality

Acodenumberwouldidentifyeachparticipant..AlldatawillbeanonymousWewouldnotwritenamesonanyforms.AllformswouldbestoredinalockedfilingcabinetinthedepartmentofSpeechandHearingSciences,UniversityCollegeCork.Thefinalscoreswillbedepositedontheopenscienceframeworkforstatisticalreanalysis.

language potential of individuals with Downsyndrome and therefore help teachers andtherapistsmaximisetheirlearningability.

Page 2: INFORMATION FOR PARENT/CAREGIVER OF ... FOR PARENT/CAREGIVER OF PARTICIPANTS WITH DOWN SYNDROME The people being invited: Have a diagnosis of Down syndrome Have the ability to understand

;

Can you change your mind?

Participation in this project is completelyvoluntary. You can withdraw from theprojectatanytimeifyouwish.

Can you talk to me before you decide?

Iwouldbemorethanhappytoansweranyquestionsthatyoumighthave.Youcanphonemeat0878057394oremailmeatp.frizelle@ucc.ie

Thisprojecthasbeenreviewedby,andreceivedethicsclearancethrough,theUniversityCollegeCorkClinicalResearchEthicsCommittee.Thankyouforyourtime.

Pauline

What will your son / daughter have to do?

Yourson/daughterwouldattendtwo/three30minutelongsessions,dependingonwhethertheygettired.

Session 1

Your son / daughter would complete alanguage task, which is a short sentencerepetition task/ narrative task. This would beaudio-recorded to allow me write down thesentences accurately. The recordingswill thenbe destroyed. The purpose of this task is toassess children’s understanding of sentences.Yourchildwouldalsocompleteashorthearing-screeningtest,tomakesurethattheycanhearthe sentences. It doesn't matter if they arealreadywearingahearingaid.Finallyyourchildwould be asked to point to different patternsandpickouttheonethatismissing.

Taking part

If you would like to help me with thisproject, please sign the consent formattached and give it to your son /daughter’sclassteacherorkeyworker.

INFORMATION FOR PARENT/CAREGIVER

Where and when?

Iwould go to your son/daughter’s schoolor centre at a time that is convenient tothe staff and fits with the school/ centretimetable. I would arrange this with thestaff directly. There will also be anotheradultintheroomatalltimes.

Session 2

Your son/ daughter would listen to anumberofsentenceswhile lookingatsomeshortanimationsandwouldhave todecideifthesentencetheyhear isthecorrectonethatgoeswiththeanimationshown.

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