integrating survivorship care plans into practice...integrating survivorship care plans into...

www.worldcancercongress.org

Disclosure of Interest: None Declared Abstract code:

Integrating Survivorship Care Plans into Practice

Devon McGoldrick, MPH

SAT.4.350-4

• Founded in 1997 in Austin, TX

•  Mission: Empower and inspire those affected by cancer today

•  Approach: Focus on providing assistance today through Navigation services, policy and advocacy, creating a global grassroots movement, transforming research to be more patient-centered

The LIVESTRONG Foundation

Devon McGoldrick, MPH Melbourne, 5 December 2014

•  At risk for increased morbidities (physical, social, psychosocial) due to late and long term effects of cancer and its treatment

•  …left to face a new world full of practical concerns (fertility, employment, insurance, etc.)

•  …often left unguided by the health care system without any plan to address an ongoing and complex set of physical, emotional, practical concerns

Cancer Survivors Are…


In 2005, the Institute of Medicine’s landmark report, Lost in Transition recommended provision of a treatment summary and comprehensive care plan for post-treatment cancer survivors.

Lost in Transition


LIVESTRONG Care Plan powered by Penn Medicine’s Oncolink •  The LIVESTRONG Care Plan is free and publically accessible.

Web-based, no specialized software or downloads required. •  www.livestrongcareplan.org

•  Provides customized guidelines to users who enter information regarding demographics, diagnosis, and treatment

•  Since the time of launch in 2007, the Care Plan tool has evolved through 9 versions and all updates based on user feedback and new data

•  All data have been maintained with IRB approval since launch •  Over 41,000 worldwide users from to date •  Median time to complete 4:17 (average 6:54)


Melbourne, 5 December 2014

LIVESTRONG Care Plan Provider Survey •  96% report that they plan to use for future patients



0% 6%

0%

46% 48%

0% 10%

0%

43% 48%

Poor Fair Good Very Good Excellent

Sa;sfac;on Reported by Healthcare Providers

Experience Using This Tool Sa;sfac;on with Informa;on Provided

LIVESTRONG Care Plan Patient Survey



1%

5%

30%

41%

22%

2%

6%

32%

41%

19%

0%

5%

10%

15%

20%

25%

30%

35%

40%

45%

Poor Fair Good Very Good Excellent

Experience using this tool

Sa;sfac;on with informa;on Provided

LIVESTRONG Care Plan Patient Survey

In a recent study with 875 survivors: •  63% thought that the SCP changed their health care participation •  80% shared/planned to share it with their health care team.

•  Of those survivors who had done so: 80% reported that it improved communication with their health

care providers. •  54% reported that they had made or planned to make a lifestyle

change in response to the SCP, most commonly dietary modification and increased exercise.



What We Don’t Know •  When to administer •  How much needs to be in a plan •  Who should administer a plan •  If they will ultimately improve outcomes •  How to fit completing care plans into a busy clinic schedule



What is Working 5,315 survivors who completed treatment, or were living with cancer as a

chronic condition, responded to the 2012 survey:


integrating survivorship care plans into practice...integrating survivorship care plans into...

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