intensive care nurses’ experiences of caring for brain dead organ donor patients
TRANSCRIPT
Intensive care nurses' experiences of caring for brain dead organ
donor patients
ALAN PEARSONALAN PEARSON MSc, PhD, RN, DipNed, FCN (NSW), FRCN, FRCNA,
FINA
Professor of Nursing, La Trobe University, Melbourne, Australia
SUSIE ROBERTSON-MALTSUSIE ROBERTSON-MALT
PhD candidate, Department of Clinical Nursing, The University of Adelaide, Australia
KENKEN WALSHWALSH BNurs , PhD, RGN, RPN
Lecturer, The University of Adelaide, Australia
MARY FITZGERALDMARY FITZGERALD MNurs, PhD, RN, RNT
Senior Lecturer, The University of Adelaide, Australia
Accepted for publication 23 March 2000
Summary
· This study was designed to identify the feelings and experiences of critical care
nurses who have been involved in nursing brain dead patients prior to organ
donation.
· The purpose of the study was to generate knowledge which informs the
discipline of nursing.
· A number of themes relating to nurses' experiences of caring for brain dead
organ donor patients were uncovered in this interpretative study.
· Overall, caring for patients who are diagnosed as brain dead is a challenging
experience for nurses and they are intensely involved in a search for meaning in
each event.
· The interpretative analysis in this study has revealed a range of meanings
articulated by the nurses involved. However, the primary focus of care ± as
identi®ed by the participating nurses ± was the donor family.
Keywords: brain dead patients, donor families, intensive care nurses, organ donation.
Introduction
Bioethical issues surrounding organ transplantation and
the concept of brain death are receiving increasing
attention in the general media and professional literature
and there is a growing literature on the experiences and
practices of health professionals in this area.
The need to examine the experiences of health workers
and families involved in organ donation has only recently
been identi®ed as a neglected area in need of further
research in the Australian context. While there has beenCorrespondence to: Professor Alan Pearson, School of Nursing, LaTrobe University, Bundoora, Victoria, Australia.
Journal of Clinical Nursing 2001; 10: 132±139
132 Ó 2001 Blackwell Science Ltd
some recent Australian work exploring the experiences of
both donor families and healthcare workers, no research
has yet given intensive care nurses the opportunity to relate
their experiences in an open and unstructured format.
This study was designed to identify the feelings and
experiences of critical care nurses who have been involved
in nursing brain dead patients prior to organ donation.
The purpose of the study was to generate knowledge
which will inform the discipline of nursing.
Background to the study
Medical technology with its rapid development has
transformed organized healthcare in Australia and
throughout the Westernised world. High cost intensive
care units are now features of most acute care hospitals
and the cost of providing the technology on which these
units depend is the focus of much societal debate.
Improved methods for retrieval and transplantation of
organs as well as advances in immuno-suppressive therapy
over the last 20 years have resulted in an increase in the
number of patients receiving transplanted organs, and as a
consequence a rapid increase in the demand for cadaveric
organs (Crandall, 1987). The impact of these develop-
ments on patients, their families, healthcare workers and
society as a whole is yet to be adequately explored.
Nurses provide physical care and support to potential
donors, care for their families at a time of great emotional
upheaval and anguish, and are involved in organ donation
requests and the continuing support of relatives, whether
they consent to donation or not. Nurses are the healthcare
workers who are most consistently, intensely and exten-
sively involved in the care of potential organ donors and
their families. Hence, it follows that through their
experience nurses are in a particularly useful position to
provide insights into the complex questions that surround
organ donation and transplantation.
Increasing ambiguity seems to be one outcome of the
rapid pace of technological innovation surrounding one of
the major concerns of human existence ± the transition from
life to death. In earlier times, cessation of breathing and
heartbeat was unambiguously considered as the moment of
death. However, brain death now seems to be a ®nal
determinant of death in highly technological societies.
Nevertheless, there is still considerable debate internation-
ally among health professionals as to whether determination
of brain death entails con®rmation of permanent non-
function of the whole brain, cortex or brain stem, and hence
the appropriate criteria for determining when death has
occurred (Sophie et al., 1983; Bouressa & O'Mara, 1987;
Borozny, 1988; Younger et al., 1989).
This debate re¯ects, to some extent, the deep emotional
con¯ict that can arise for people when they are faced with a
person who is brain dead but who appears physically to still
be alive (Lamb, 1985; Younger et al., 1985; Murphy, 1986;
Bisnaire et al., 1988; Atkins, 1992). Younger et al. note:
even health professionals who understand and accept
the new criterion for death on an intellectual level
may ®nd it dif®cult to ignore the signs of life that
constantly bombard their senses as they provide brain
dead organ donors with intensive and intimate
medical care (1985, p 321).
The appearance of a brain dead person whose organs are
being maintained for transplantation differs signi®cantly
from that of other dead people. The paradox of a brain
dead patient who appears to be breathing and is still warm
gives rise to one source of moral con¯ict that characterizes
work in this area (Lamb, 1985; Younger et al., 1985, 1989).
Intensive care units are geared towards preservation of
life. Yet, in the case of a patient who is to become an organ
donor:
intensive care personnel may feel confused about
having to perform cardiopulmonary resuscitation on
a patient who has been declared dead, whereas a `do
not resuscitate' order has been written for a living
patient in the next bed (Younger et al., 1985; p 321).
This con¯ict for nurses is not readily resolved by simply
clarifying the ethical issues surrounding the concept of
death, for the response is not an intellectual one but an
emotional, experiential one.
Nurses' high level of involvement with grieving families
of brain dead patients can be a source of great personal
stress (Shubin, 1990). This, combined with their own
con¯icts stemming from their involvement in organ
donation, creates an extra layer of stress and complexity
in their interactions with family members (Younger et al.,
1985, 1989; Borozny, 1988; Shubin, 1990). This may
culminate in families of brain dead patients receiving
mixed messages, or having their expectations of recovery
raised unrealistically (e.g. Shubin, 1990).
If donation is agreed to, nurses often have to explain the
change in the nature of care being received by their
relative. In many cases, levels of activity at the bedside
increase dramatically as attention is directed towards
maintaining the function of the organs to be donated
(Bisnaire et al., 1988). This, coupled with the paradox of
the patient still looking `alive' and `breathing', undermines
the process of intellectual acceptance of death and is
counter-intuitive to society's deeply held beliefs about
what death means (Sophie et al., 1983; Lamb, 1985;
Younger et al., 1985; Murphy, 1986). Nurses and families
struggle with these issues within themselves while they are
Nurses' experiences of caring Caring for brain dead organ donor patients 133
Ó 2001 Blackwell Science Ltd, Journal of Clinical Nursing, 10, 132±139
endeavouring to come to some sort of acceptance of this
unusual concept of death.
Bioethical issues surrounding organ transplantation and
the concept of brain death have received substantial
attention (e.g. Marsden, 1985; Irwin, 1986; Bouressa &
O'Mara, 1987; Crandall, 1987; Simpson, 1987; Borozny,
1988; Wegerman, 1988; Johnstone, 1989; Atkins, 1992).
Nevertheless, little research has been undertaken into the
experiences of those who are directly involved in these
procedures: health professionals. The need to examine the
experiences of nurses and families involved in organ
donation became a research issue in the Australian context
about 10 years ago (Johnstone, 1989; HIC, 1990). Whilst
some research has been carried out in the Australian
context on nurses' attitudes to organ donation (Duke
et al., 1998), no Australian research has explored the
experience of nurses and families.
The paucity of research on the subject is of concern and
highlights the importance of this study. Organ transplan-
tation is continuing to expand, irrespective of debates
concerning its priority in healthcare funding. Research that
seeks to uncover the experiences of participants in organ
donation is long overdue. It is hoped that the ®ndings from
this study will make a signi®cant contribution to ongoing
discussions regarding this expanding area of healthcare
practice and to the development of policies and procedures
for minimizing stress and trauma for families and nurses.
Methodology and methods
The study focuses on the interpretation of experiential
accounts of nurses and is grounded in the phenomeno-
logical approach described by van Manen (1990). Phe-
nomenological research involves obtaining experiential
descriptions from others and emphasizes the meaning of
lived experience.
Through interpretation, the researcher engages in a
process of analysis that leads to identi®cation of themes.
The resulting thematic classi®cation has the potential to
momentarily illuminate meanings associated with a phe-
nomenon as experienced by participants. Themes are
therefore not considered to be mere objects or generaliza-
tions of a super®cial analysis but, as van Manen (1990)
states, more likened metaphorically speaking to `knots in
the webs of our experience, around which certain lived
experiences are spun and thus lived through as meaningful
wholes' (p90). As phenomenology is concerned with and
acknowledges `the values and meanings people ascribe to
their own existence' (Taylor, 1993; p173), it is the
methodology of choice in a study such as this which seeks
to illuminate the experience of participants.
Much has been written on the trustworthiness and
rigour of phenomenological research, for example Knaak
(1984), Koch (19941;2 , 1995), Munhall (1993), Plager (1994),
and Rose et al. (1995). However, the goals, philosophy and
methods of phenomenology and empirical science differ
markedly and one cannot be judged by the standards of
the other. In phenomenological research it is essential that
the interpretation of the researchers should `®t' and be
`plausible' with the expressed experience of participants.
To paraphrase Weinsheimer (1991)3 , it is interpretation
that comes from within the text because you have situated
yourself within the text. Hence it is important to give
examples of the narrative of participants so that plaus-
ibility and ®t can, to some extent, be judged by readers. In
the present study the researchers did not return to validate
interview transcripts with participants nor did they (as
recommended by Benner, 1994) conduct multiple inter-
views in order to clarify meaning or obtain richer
descriptions. To go back over the ground of an interview
again with a participant is to reinterpret the interview with
the participant and once this process begins it begs the
question, `When will it suf®ce to say enough is enough?'
In order to gain descriptions of the experience from
different perspectives, a total of 20 nurses from intensive
care units were recruited for the study: 10 from a
metropolitan hospital in South Australia and 10 from a
rural hospital in Northern New South Wales. A plain
language statement informed prospective participants of
the aims of the study, their level and type of commitment
should they agree to participate, and their right to
withdraw from the study at any time.
INTERVIEWSINTERVIEWS
A focused but non-structured interview technique was
used. Participants were asked to talk about a particular
experience of caring for an organ donor patient and no
pre-set questions guided the interview. This approach
supports the relative hermeneutic phenomenological
nature of the study as the interviewer did not assume to
know the important aspects of the experience to be
revealed and therefore did not design questions to be
answered by participants in order to attend to such beliefs.
4Data analysis
Tapes were transcribed and analysed according to the
thematic data analysis described by van Manen (1990):
· Interviews were transcribed verbatim;
· Transcriptions were read with every effort being made
on the researcher's part to be totally submerged in the
Ó 2001 Blackwell Science Ltd, Journal of Clinical Nursing, 10, 132±139
134 A. Pearson et al.
text in order to identify the implicit or essential themes
of the experience, thus seeking the meaning of the
experience;
· Thematic statements (essentials) were isolated.
A total of 10 themes were identi®ed and considered
expressive of the central premise of the analysis, which is
that for the nurses in this study an intent to care for the
families was the impetus of all care for the patients. It
appeared that `family' included anyone the primary family
considered to be `family', whether or not they were in fact
biologically related.
Nurses' descriptions of their care conveyed a focus of
care that underwent a subtle yet profound shift from one
that held patients as the central intent of all care to being
care of patients out of concern for families. This subtle
shift in nurses' intent to care, however, does not imply
that nurses excluded patients from their focus of care but
that the focus of being able to care for patients was
achieved by shifting their attention and time to families.
Many acts of caring for patients were carried out as much
for families' needs as for patients' needs. In all cases the
focus of caring was centred on families and their needs,
this being expressed in different ways.
It was not possible to identify any notable differences in
meaning between rural and metropolitan participants.
This is partly because of the nature of the methodological
position chosen (since individual meaning is central to the
analytical enterprise), but relates more to the similar
characteristics of all the accounts of experience as captured
in interviews.
The following two major themes illuminate the phe-
nomenon of caring for a person who has been diagnosed as
brain dead and becomes an organ donor. Each theme
comprises a number of sub-themes.
THE FAMILYTHE FAMILY
1 Prioritizing the family's needs;
2 Empathizing with the family's tragedy;
3 Supporting the family's decisions;
4 Realizing that caring for the patient shows care for the
family;
5 Encouraging space and privacy for the family to grieve,
say their goodbyes and, hopefully, accept the situation;
6 Intruding on the family's grief.
THE NURSETHE NURSE
1 Emotional demands;
2 Maintaining respect for the brain dead patient as if they
were alive;
3 Trying to explain away the ambiguities;
4 Focusing on the outcomes.
The subthemes are discussed below.
THE FAMILYTHE FAMILY
Prioritizing the family's needs
Caring for the family and attempting to meet their
emotional needs was of central importance to all the nurses
in the study when caring for an organ donor patient.
These nurses still attended to the basic physical needs of
the patient; however, the focus of their care became more
concerned with supporting the family throughout this
tragic event:
I mean you do look after the technology and what
have you and you have to maintain you know, a good
urine output and all that, the haemodynamic side of
it ± you have to do all of that. But that's not really
what your major focus is. It sort of shifts, and in
actual fact your major focus is to the relatives¼You
just switch, I remember just being with the relatives
and talking to the relatives a lot and you know
hugging them and that sort of stuff (Nurse 1).
Transcending the routines and rituals of practice in
response to the family's needs proved emotionally and
professionally rewarding:
We had done the best job we possibly could for
that lady in helping her get through her daughter's
tragic death.
Empathizing with the family's tragedy
Nurses' intent to prioritize the emotional needs of the
family often came from an empathy that they were able to
extend towards the tragic circumstances into which the
family had been suddenly thrown:
I was aware of the depth of her pain. It hit me¼ and
I just sat with her and I cried with her and then the
social worker took her by the shoulders and the
family, and walked her to the taxi, to the waiting taxi,
and she cried all the way (Nurse 2).
The ability to emotionally connect with the family's
grief often resulted in nurses being able to anticipate what
would be particularly distressing for them. Many nurses
would therefore attempt to modify hospital routine and
policies as needed in order to prioritize the emotional
needs of the family. However, this in itself was often
emotionally demanding:
They were able to say goodbye afterwards. I got
really emotionally involved when they rang from
Ó 2001 Blackwell Science Ltd, Journal of Clinical Nursing, 10, 132±139
Nurses' experiences of caring Caring for brain dead organ donor patients 135
theatre to say that, you know, they were ready, and
that Jeremy could come back to the unit, I went down
and he was on a trolley and I thought that there was
just no way that I could bring that little boy back on a
sterile trolley. And so I made the decision I wanted to
carry him back so that I could hand him to his
parents (Nurse 5).
Supporting the family's decisions
The centrality of concern for the family's experience to
nurses' care was likewise evidenced by their commitment
to maintain a non-biased support of the family's decisions
despite their own feelings about the situation(s) at hand.
Nurses concentrated on watching family dynamics and
offered guidance and support as needed whilst maintain-
ing acceptance of whatever ®nal decisions were made:
They were the decisions the family had made and I'd
support them, you know, to the best of my ability
(Nurse 5).
Realizing that caring for the patient shows care for the family
Having cared for a heart beating donor at least once before
enabled many nurses to learn that one way in which they
were able to help the family through the experience and
prioritize their emotional needs was to be attentive toward
the family's loved one: the patient. Making sure that the
patient looked as clean and tidy as possible was a principal,
yet simple, way that many nurses felt they could convey
this care to the family:
I mean I was really fussy, I used to do her hair and
stuff because she had long hair. And I'd plait it
and make her look really nice as I could make her
look for the family. I mean her family were always
there. I use to touch her in the same way, like I used
to stroke her arm and stuff like that (Nurse 14).
Prioritizing the basic nursing care of the patient likewise
held the family's emotional needs in constant concern.
This steady simple care was a principal means for nurses
to convey to the family that the loved one was not a mere
object for use: an object with no grander value than what it
could give to another.
Encouraging space and privacy for the family to grieve, say
their goodbyes and, hopefully, accept the situation
Being able to afford families all the privacy and space they
needed in trying to come to terms with the situation was
an important aspect of nurses' care:
There's a huge amount of your care goes towards
supporting the family and giving them the time and
allowing them to be close. You know, to get in and
hug and kiss and do what they want (Nurse 16).
Allowing the family the necessary freedom and space
to express their grief in whatever manner was appropri-
ate to their needs was also an important aspect of care
given. Orchestrating the environment and ®nding some
quiet time and space for them to be with their loved one
after the operation, when the patient had returned to the
ward, was a constant thought for many nurses in this
study.
Intruding on the family's grief
Unit policies often stipulate that the nurse should remain
close to a ventilated patient at all times. Such policies
tended to limit nurses' efforts to try and afford the family
freedom and space to be with their loved one in the ®nal
moments and consequently induced feelings of guilt and
frustration as nurses continuously sensed their intrusion
on the family's grief:
I remember trying to stay in the background and
thinking, `What am I going to do now?'. It's like you
feel conspicuous and you just want to disappear and
in a way you could really do that, but you can't
because you have always got that feeling of being
trained that you must remain near your patient at
all times. So, you know, I used to just ¯uff around
at the end of the bay and it's like you used to ®nd
things to do because you felt in the way (Nurse 14).
THE NURSETHE NURSE
Emotional demands
Nurses' descriptions of their care revealed a need to
constantly clarify for the family the diagnosis of brain
death and the reality of the situation: that their loved one
was dead despite looking alive. When this need is added to
nurses' ability or willingness to personally connect with
the family's tragedy, the propensity for care to become
demanding on all levels ± emotionally, physically, psy-
chologically and spiritually ± increases. Each nurse
described a difference in the way in which the emotionally
demanding nature of care became apparent. For Nurse 7
the magnitude of cases that he had to deal with in a certain
period of time was often a factor that precipitated the care
becoming sometimes overwhelming:
It's usually the accumulation, like if you have one
brain death in a week that's okay, but if you have two
or three or even four, then suddenly you just can't
come to work. But the reality is that it is just a
Ó 2001 Blackwell Science Ltd, Journal of Clinical Nursing, 10, 132±139
136 A. Pearson et al.
terrible thing to have to keep dealing with, it eats at
your soul (Nurse 7).
Resolve and the capacity to cope were achieved for
many nurses through being able to ®nd a place/space that
was totally unassociated with the faces and spaces of the
intensive care environment. Some took long walks on the
beach or went horse riding.
Maintaining respect for the brain dead patient
as if they were alive
Another way in which nurses were able to convey to the
family a concern and respect for the patient as more than
just a donor was by remaining consistent in their care,
despite the diagnosis of brain death. They still continued
to treat and talk to the person as they did prior to the
diagnosis of brain death and as they would any other
patient in their care. Although nurses' acknowledged the
patient's death, to them the patient remained a person
who commanded a quality of care and respect deserving
of that signi®cance. However, maintaining respect for the
patient as a person by continuing to talk and relate to
them as if they were alive made the nurses' role of
`clari®er' all the more dif®cult. The already murky
distinction between the life and death of the patient
seemed exacerbated by such behaviour. However, nurses
saw little option or few avenues to change this con¯ict as
respect for the family and patient remained central to
their care:
That the irony of the whole thing, I guess, is that you
know, you listen to what brain death is and you watch
them being tested for brain death, you understand.
You know you can say, `Well that's okay and I believe
the testing is, you know, suf®cient' and stuff like
that. And you can say, `Yes, okay' and you go
through the ritual of talking about organ donation
and going for it and all of that. And then, on the
other side how you're acting it contradicts what you
have just been through. Of saying, `Yes I accept it'
and `Yes I'll consent to organ donation' and `Yes I
support the decision that they've made.' But then on
the other side, you continue to treat the patient like a
patient! (Nurse 14).
Trying to explain away the ambiguities
As noted above, a major role played by nurses in this study
was that of `clari®er'. In this role nurses endeavoured to
explain the circumstances surrounding the diagnosis and
the regretful ambiguity of their loved one looking alive but
being diagnosed as dead:
They can look perfect, that's what just blows the
family away, I'm sure, sometimes. You know, how
can they be, how can you tell me that's what is
happening inside their head when, you know, he
hasn't got a scratch on him, type of thing. And then
you know, you sort of have to then go through it all,
just try to explain that, yeah it must be really hard for
you, you know, you can see him laying there and
not a scratch on him but then that just goes through,
um, through teaching then and usually they've been
shown X-rays or CT scans and they'll go through
and show what's happened there (Nurse 12).
Despite the importance of this role as `clari®er' the
nurses were not indifferent to the complexities of
decisions families had to make. They were often taken
with the irony of their own beliefs in the context they
found themselves in:
I mean, I really don't know, I mean, I know on my
driver's licence I've got `Yes' to organ donation. But,
um, you sort of think if she [daughter] was lying
there in the bed, brain dead, would I give her organs
and I think, `No, I wouldn't'. But if she was lying
there in renal failure would I take a kidney? And you
think, `Yes I would!' And that doesn't, sort, you
know, that's not logical. That does not seem like a
fair thing to do. But I really don't know (Nurse 7).
Focusing on the outcomes
One way in which many nurses learned to cope with the
experience was to focus on the outcomes and encourage
families to do the same: to try and focus on the `positive'
fact that from this death another one, two or maybe three
lives could be saved:
I think too because you know it's going, it's just
not gonna be a wasted death. Like at least, I mean
it's still hard, you know, it's still somebody who
has died but something in a way is coming out of
it¼ and I ®nd that a lot easier (Nurse 11).
However, for some families this thought is not always
comforting:
I remember one guy saying to me, `This is great, that
the organs are being donated but I'm losing my wife
and that's not great. There's not one good thing
about that at all' (Nurse 4).
Discussion and conclusion
The meanings that these 20 nurses drew from their
experiences of caring for people who became organ donors
have been identi®ed through applying van Manen's
Ó 2001 Blackwell Science Ltd, Journal of Clinical Nursing, 10, 132±139
Nurses' experiences of caring Caring for brain dead organ donor patients 137
approach to textual analysis and are presented in the form
of 10 major themes. The primary focus of care ± as
identi®ed by participating nurses ± is the donor family.
All nurses in this study were highly skilled in the use of
sophisticated technological equipment and pro®cient in
monitoring complex physiological processes. All these
skills were in continuous use as part of the caring practices
they describe in the data. Yet, despite the central role of
`high tech' care in each of the stories told, the central
meanings which arose out of the experience relate to the
nature of human interaction and our ability to confront
and deal with a sudden diagnosis of death, followed by a
need to respond to a request to donate living organs.
Although all the nurses describe a major involvement in
the processes of caring for organ donor patients and their
families, and a commitment to procurement of organs from
people who are diagnosed as brain dead, the experience
is surrounded by a range of con¯icting meanings. These
con¯icts relate to:
1 The apparent ambiguity that accompanies the procla-
mation of death, over a body which exhibits tradition-
ally accepted signs of life;
2 The distress of family members who have to confront a
sudden catastrophe and comply with requests to equate
brain death with `real' death;
3 The nurses' own knowledge that the focus of their care
relates to an outcome (i.e. saving another life by making
organs available for transplant) which is rarely wit-
nessed by families involved.
The nurses describe a struggle to balance con¯icts in
meanings and rely on a number of strategies to maintain
some equilibrium so that they can continue to contribute
to the organ donation programme through caring for
donors and their families. One source of encouragement
for the nurses arises out of focusing on the eventual
positive outcomes: that the donation process can give hope
to another in need. In their efforts to support families
through the immediate stages of the event, nurses
encourage families to do likewise.
Nurses also describe a sense of satisfaction in `doing the
best they can' for families and maintaining a caring
environment. The latter enterprise includes both protect-
ing relatives from unnecessary pressures and consistently
confronting families with the reality of the unfolding
situation. Explaining brain death in a manner that removes
ambiguity is a constant battle for the nurses, who are
invariably aware of how ambiguous it must all appear to
families. A subtle balance needs to be struck between what
families can cope with hearing and what they need to
know in order to realize the complexities of the circum-
stances they are confronting. How each family will
respond to the circumstances and therefore what each
family may need to know in order to traverse the
experience is different, simply because of their unique
histories and circumstances. This is the ®ne line which
nurses have to travel in order to support families in a
constructive and meaningful way. However, even though
this process is emotionally demanding, doing it well means
that nurses can care for organ donors and this in turn is a
way of caring for their families. For the nurses who
participated in this study, caring for brain dead patients is
deeply meaningful work which challenges their nursing
skills; however, it is not something which they reject as
inappropriate, or a process of which they are critical.
The con¯ict for these nurses relates directly to the
ambiguity of the death statement ± where no hope of
recovery is translated to mean `real' death. The physical
appearance of brain dead people, the family members'
presence and actions at the bedside, and nurses' own
attempts to treat brain dead patients `as if they are alive' all
contribute to this ambiguity. Because of this, the con¯ict
for these nurses is not essentially an intellectual one, but is
emotional and experiential in nature.
Overall, caring for a patient who is diagnosed as brain
dead is a challenging experience for nurses and they are
intensely involved in a search for meaning in each event.
The interpretative analysis in this study has revealed a range
of meanings articulated by the nurses involved. Such
®ndings cannot, of course, ever be regarded as representa-
tive of other nurses, but offer some insight into an important
component of nursing practice in contemporary healthcare.
Organ transplantation is continuing to expand irrespec-
tive of debates concerning its priority in healthcare
funding. In discussing the ongoing debate about brain
death and organ donation, Whittacker (1990) suggests:
What does seem clear is that cadaveric organ
donation is an emotive subject for many and that
ideological objections go much deeper than mere
sel®shness, obstructiveness or ignorance of the facts
(Whittacker, 1990; p.37).
Further research seeking to uncover the experiences of
participants in organ donation will illuminate our under-
standings further and give substance to both the ongoing
development of practice policy and healthy debate on the
nature of death and brain death in a society which is
increasingly nervous about the frailty of the human
condition.
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