International Study TourFetal Alcohol Spectrum Disorder Canada, America Oct-Nov 2014

December Progress Report: Robyn Williams PhD Candidate

Study Itinerary: Conferences

• Attended & presented at the INKIHD October • Attended Edmonton FASD Conference: Oct• Attended & presented at the Living Well FASD and Mental

Health Conference: Nov

Study Itinerary: FASD Training

• Training: Fetal Alcohol & other Neurobehavioural conditions (Dianne Malbin)

• Advanced Case Management of FASD Training (Donna Debolt)• Hosted, mentored and trained by Dr Dorothy Badry

(University of Calgary) for two weeks• Canada FASD National Network Meeting

Viewing FASD as a Lifespan DisabilityCurriculum Development Team:

Dorothy Badry, PhD, RSWJamie Hickey, BA, MSW (c)

Faculty of Social WorkUniversity of Calgary

Project Funder: Public Health Agency of Canada (2011-2014)

The Caregiver Curriculum on FASD©

Name Agency/Expertise

Mary Cox Millar Director, Manitoba FASD Centre

Brenda Knight Psychologist, FASD Expert, Key note speaker

Dr Deborah Goodman Director, Child Welfare Institute, Toronto

Dr Dorothy Badry University of Calgary (Child Welfare & FASD)

Bernadette Lahtail & Dr Jean La France

Creating Hope Society of Alberta

Jonathon Rudin Aboriginal Legal Services Toronto

Donna Debolt FASD Educator

Dianne Malbin FASD Educator

Sakgeeng Reservation Health and Cultural programs

Dr Peter Choate University of Calgary (Child Welfare & FASD)

Dr Don Fuchs University of Calgary (Child Welfare & FASD

Presentations

• Bow Valley College, Calgary• University of Calgary • Grand Prairie Learning Circles

Our Gurlonngas, Our Future

Edmonton Conference : Key points

• FASD Edmonton Annual Conference Opening comments: Annual Budget $16.5million

• 1 in 4 in Alberta diagnosed with FASD 36,000 people• 500 a year born with FASD • 26 diagnostic centres

Manitoba FASD Centre

• Centre was established in 1999• No statistics on ethnicity, approx

200 new diagnoses a year• The oldest age they treat is 18

and cannot diagnose adults• 60% of referals come from the

child welfare department• Welfare department has 4

specialised FASD officers • Community workshops are help

once a month at night for parents/carers

FASD Best Practice: Canada

• Parent-Child Assistance Program (3 years intensive support programme for families at risk)

• Specialised FASD school classrooms (Manitoba)• Caregiver Curriculum on FASD• Art and pet therapy• FASD Training, training and more training• FASD unit included in Social Work curriculum (Alberta)• Housing support and recognition of the high number of

adults with FASD who are homeless• Starfish programme supporting young people with FASD • FASD camps for youth

Key Points

• Child welfare & FASD• Health Promotional materials:

Alcohol & Pregnancy• Prevention • Early transition to adulthood• Mental Health (Suicide)

Community engagement & data collection

• Yorgum Counselling Service• Rockingham Strong families (DCP)• Katanning Health Service

Survey• Katanning• Northam• Perth• Next: Albany & Bunbury

“There is nothing mild about having a mild FASD disability”

Donna Debolt, Advanced FASD Case Management training, Calgary November 2014