Toyin Ola

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Social identity: collection of group

memberships Patients

• Social Identity Theory: group membership can predict responses to adverse situations

Providers

• May interact with patients based on group membership and assumptions about those groups

More likely to

communicate

• Engulfed patient

• Empowered patient

Less likely to

communicate

• Resistant patient

• Detached patient

Coping Support Decision-making Concordance Information giving and

seeking Supportive talk Engagement Uncertainty management Problem integration

• Divergence

• Ambiguity

• Ambivalence

Compartmentalization • Multiple identities

Disclosure ‘Passing’ Stigma Social competition

• Awareness

Social mobility • Validation

Insight • Treatment

Gudykunst, 1995 in Sparks & Villagran, 2010: 96

Fibromyalgia syndrome Chronic fatigue syndrome Rheumatoid arthritis

• Autoimmune arthritis • Rheumatoid disease • Juvenile rheumatoid arthritis

• Juvenile idiopathic arthritis

Juvenile diabetes • Type 1 Diabetes • Insulin-dependent diabetes

• Late-onset insulin-dependent diabetes • Type 1.5 Diabetes

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It is often harder for

those with invisible

disabilities to

received

‘reasonable

accommodations’ • ADA

• SSDI

To see the embedded video visit:

https://www.youtube.com/watch?v=Uxg8KeLSyNE

A picture is worth

a thousand words?

“I look healthy, but looks are not an indication of health. Many days I hide behind a smile and make-up to get through my day, even though I am very tired and in a lot of pain.” – 22-year-old

woman with Undifferentiated Connective Tissue Disease

“I look normal and I can smile through the discomfort. I have been judged by other family members when I put up my

handicap plaque to park my truck” – 38-year-old man with RA and Degenerative Spondylolisthesis

“I want others to know that it is a REAL condition and that just because you can’t visibly see problems with the body doesn’t mean that everything inside is working spot-on!” – A woman

who suffers from FMS, CFS, and Epstein-Barr

http://s3.media.squarespace.com/production/715474/8594186/_BJw27V2uCDM/SwbvGNieYYI/AAAAAAAAACE/ecZJoazbUS8/s640/kelly.jpg

Age: 32

Diagnosed with:

• Polycystic Ovary

Syndrome at 25

• Type 2 diabetes at 28

• Lupus at 29

• Crohn's Disease at 32

Age: 40

Diagnosed with:

• Grave’s Disease at 30

• Sjögren’s Syndrome

• Rheumatoid Arthritis

• Fibromyalgia

• DSAP (Disseminated

Superficial Actinic

Porokeratosis)

Age: 32

Diagnosed with:

• Polycystic Ovary

Syndrome at 25

• Type 2 diabetes at 28

• Lupus at 29

• Crohn's Disease at 32

Age: 40

Diagnosed with:

• Grave’s Disease at 30

• Sjögren’s Syndrome

• Rheumatoid Arthritis

• Fibromyalgia

• DSAP (Disseminated

Superficial Actinic

Porokeratosis)

There is a lot of information out

there...some good and some

bad.

It is important to find a doctor that

you feel comfortable with and can

have open and honest

communication. Don’t be afraid to

ask questions about recommended

treatments and holistic

alternatives. I also recommend

seeking out support groups or

counseling because managing a

non-curable disease can be

overwhelming at times. Know that

you are not alone and don’t be

afraid to ask for help.

Medication Surgery

Being diagnosed Pain & Fatigue

To see the embedded video visit:

https://www.youtube.com/watch?v=RDO

ngWykAQU

The End