key messages our aim to facilitate quality of life for people living with dementia and their family...
DESCRIPTION
What we do Collaborate Disseminate resources and information Share knowledge Examples: Organise national knowledge exchange forum Nov 2013 Develop online platforms (NDC and Health Navigator websites) Establish local face-to-face networks Coordinate Dementia Research Cooperate with Alzheimers, Carers NZ, other organisations Advocate for the rights of people with dementia to health services that best meet their needs August 2013National Dementia Cooperative3TRANSCRIPT
Our aim
To facilitate quality of life for people living with dementia and their family / whānau
Examples of improvements we seek:
Positive attitudes that recognise people with dementia as valued human beings who do retain abilities
Increased understanding of the concept of dementia Elimination of the stigma associated with a diagnosis of dementia Increased evidence of person-first viewpoint (person-centred care) Improved support for family / whānau carers Improved training and recognition for the workforce
August 2013 National Dementia Cooperative 2
What we do
Collaborate Disseminate resources and information Share knowledge
Examples: Organise national knowledge exchange forum Nov 2013 Develop online platforms (NDC and Health Navigator websites) Establish local face-to-face networks Coordinate Dementia Research Cooperate with Alzheimers, Carers NZ, other organisations Advocate for the rights of people with dementia to health
services that best meet their needs
August 2013 National Dementia Cooperative 3
Who we are
A nationwide group formed in 2011 Led by an elected steering group Supported by a national coordinator Funded by several organisations Over 600 members, individuals and organisations including people
with dementia, carers, academics, medical, nursing, and allied health workers, service managers
Private providers, District Health Boards, not-for-profit, non-government, religious, professional and educational organisations
August 2013 National Dementia Cooperative 4
About dementia
• A progressive neurological condition that commonly affects memory, insight, and reasoning. Behaviour, personality and emotions may also change
• The most common cause of dementia is Alzheimer’s disease
• Most people with dementia live at home and are supported by family / whānau
• Although there is no cure, much can be done to support people with dementia and thereby the carer
August 2013 National Dementia Cooperative 5
Why dementia is an issue
More people with dementia because people live longer• Around 50,000 New Zealanders have dementia now – 1.1 percent
of the New Zealand population • Numbers will triple by 2050 – over 2.6 percent of the population
Financial cost of dementia in 2011 estimated at $954.8 million Value of carers, removed fully or partially from the workforce to care for
someone with dementia, estimated at $37.7 millionFrom Alzheimers New Zealand Dementia Economic Impact Report 2011
With limited resources we need to coordinate our efforts to ensure that New Zealanders living with dementia get the best possible service.
August 2013 National Dementia Cooperative 6