Fal l 2011

What’s inside the Loop Respitality Nights Page 2 Butter Braids Page 3 FSSP Staff Page 3 Support Groups Page 4 Online Resources and Sup-port Page 5 Bulletin Board Page 6 Neurology Clinics Page 7 Larimer County Healthy Communities Page 7 HCP Staff Page 7 How do I stand up for my child without stepping on toes? Page 8-9 Why I am a member of FSSP Page 9 Shriners Hospitals for Children Page 9 Family Voices for Change Page 10 Discovery Club Page 11 Who’s Who at the Loop Page 11

“Shoot for the moon. Even if you miss, you’ll land among the stars.”

By Brenda Tuttle When I graduated from the Larimer County Family Leadership Train-ing Institute in 2010, a friend and coworker, Anne Chassion, gave me a frame engraved with the above saying . This motto reminds me to “Aim High” and keep a positive attitude. Both things remind of Anne. Thank you, Anne, for being not only my coworker but a friend. Anne Chaisson, MSW, a valued and respected member of the Larimer County Health Care Program for Children with Special Needs team, passed away unexpectedly, July 31, 2011. Anne was em-ployed with the Larimer County Department of Health and Environ-ment for over 12 years. During that time she greatly impacted the lives of families in Larimer County and throughout the state of Colo-rado in a positive and productive manner.

One of Anne’s many passions was the welfare of children. She believed in the importance of adequate and appropriate early childhood experiences. She did much more than “talk the talk,” Anne put her “money where her mouth was” by focusing her energies in this area in a number of ways. As a Brazelton Touch-points trainer, Anne equipped and engaged families, caregivers, and practitioners to successfully support all domains of children’s development essential to successful early learning and lifelong success. For sev-eral years, Anne was an active member of the Early Childhood Council of Larimer County working collabora-tively with other members of the community in an effort to ensure the well being young children. The Early Childhood Council of Larimer County’s mission is : To Create a dynamic system that recognizes and supports quality early childhood opportunities for all children in Larimer County. Her involvement in the Growth and Parenting Clinic insured that the social and emotional needs of the family were not ignored but rather recognized and validated. Anne was deeply disappointed when it was determined that Larimer County could no longer offer this clinic due to funding concerns. Working directly with families enrolled in the Language of Play Classes, Anne was able to teach parents and caregiv-ers the importance of play in a child’s development. She also offered participants support and encourage-ment. To assist in the early detection of special health care needs, Anne informed several local healthcare providers on the use and evaluation methods inherent in the Ages and Stages Questionnaire. This develop-mental screening tool looks at communication, gross motor, fine motor, problem solving, personal‐social skills. Anne’s work with families did not end with Early Childhood. She worked diligently with Larimer County healthcare providers and staff in Thompson R2-J, Poudre, and Estes Park school districts to ensure that families were informed and empowered. Anne believed that everyone should have comprehensive primary care that is accessible, continuous, comprehensive, family centered, coordinated, compassionate, and culturally effective; a Medical Home. She promoted the importance of the Medical Home concept to fami-lies and assisted them in formulating one for their child or children with special needs. Anne provided care coordination and consultation not only for families enrolled in Larimer County Health Care Program for children with special needs but also for families of children with the Colorado Traumatic Brain Injury Trust Fund and the Larimer County Prenatal Plus Program. Last year, Anne joined the Larimer County Family Leadership Training Institute Civic Design Team. The Larimer County Family Leadership Training Institute empowers individuals to positively impact their commu-nity for the betterment of families via a free 20 week class experience. The Civic Design Team works to ensure that this program is promoted and funded, facilitators are supported, potential participants are screened, participants and alumni are supported in their completion of community projects and other en-deavors. In spite of a busy schedule, Anne was able to take time out for herself, her family and friends. She will be dearly missed.

January 16, 1953-July 31, 2011

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RESPITALITY! A collaborative effort of the Foothills Gateway, Inc. Family Support Services Program Council and Respite

Care, Inc.

WHAT: A night of FREE childcare for children (up to age 21) in the Family Support Services Program (or on the waiting list for the Family Support Services Program), and their siblings (up to the age of 12). Children

will enjoy an afternoon or evening of FUN FILLED ACTIVITIES, while parents enjoy a break in care giving!

WHEN: Saturday Oct. 15th, 2011, 6-10 PM Saturday Nov. 12th, 2011, 6-10 PM Saturday Dec. 10th, 2011, 1-5 PM Saturday Jan. 21st, 2012, 1-5 PM Saturday Feb. 4th 2012, 1-5 PM Saturday Feb. 11th, 2012, 6-10 PM Saturday Mar. 3rd, 2012, 6-10 PM Saturday Apr. 14th, 2012, 1-5 PM Saturday Apr. 21st, 2012, 6-10 PM Saturday May 5th, 2012, 6-10 PM

WHERE:

Respitality will be held at Respite Care Inc.: 6203 S. Lemay Avenue

Fort Collins, CO 80525

Please call Natalia @ (970) 207-9435 with any questions or to make a reservation. We’ll do our best to sign you up for your first choice Respitality date, and add you to the wait list for any other dates you may be interested in. Every child who attends will be paired one-on-one with a volunteer buddy for the entire afternoon or evening who will help them complete each activity. Each group will be led by a highly trained Respite Care staff mem-ber. No medications will be given during Respitality events. An interactive snack will be served during each Respitality, but a meal will not. Please send your children to Respitality with full tummies.

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Foothills Gateway Inc. Children’s Case Management

Coordinator/Part C Coordinator

Sondra Lee

(970) 266-5424

sondral@foothillsgateway.org

Children’s Case Managers

Malori Webb (970) 266-5422 maloriw@foothillsgateway.org Paige Rose (970) 266-5426 paiger@foothillsgateway.org Billy Hurst (970) 266-5395 billyh@foothillsgateway.org Pam Miller (970) 266-5409 pamm@foothillsgateway.org Sarah Varble (970)266-5437 sarahvarble@foothillsgateway.or Stacie Seim 266-5418 stacies@foothillsgateway.org Matt Cloven 266-5445 mattc@foothillsgateway.org Christie Sebesta 266-5411 christies@foothilllsgateway.org Francine Bush 266-5394 francineb@foothillsgateway.org Joan Sugarman 266-5439 joans@foothillsgateway.org Family Support Services Program Council Members Cheryl Pugh Parent-Chair Kristen Deakin (Parent)-Co-Chair Gayle Timm (Parent) Brenda Tuttle (Parent) Trista (Tree) Roecker (Parent) Kim Walkenhorst (LCDHE –Healthy Communities) Debbie Lapp (Foothills Gateway Inc.) Sondra Lee (Foothills Gateway Inc.)

Family Support Services Program Council is very excited to announce the up-coming fundraising event! For those of you familiar with Butter Braid® pas-tries – you’ll be glad to know we are selling them this year! Once you have tasted Butter Braid® pastries – you’ll wonder how you ever lived without them!

Each Butter Braid pastry is a hand-braided treat filled with your choice of 6 delicious flavors. Made with 100% real butter and only the finest ingredients. Butter Braids are only sold through fundraisers.

These delicious pastries come in six flavors:

Apple Cherry Cinnamon Blueberry & Cream Cheese Cream Cheese And New This Year: Caramel Roll Family Support Services Program Council will begin taking orders for Butter Braids October 10 through November 7th. Deliveries will begin November 14th just in time for the Holidays!! Each Butter Braid is $12.00.The proceeds from this fundraiser will go to support families currently enrolled in Family Support services Program or on the waiting list for services. For each pastry sold, Family Support Services Program will earn $5.00. To place your order or assist Family Support Services in this fundraising effort please contact:

Pam Miller (970) 266-5409

Back By Popular Demand…

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Support Groups

Parents of Asthmatic & Allergic Children Meetings quarterly-call for dates and times Cindy Coopersmith (970) 495-8153 Grandparents Raising Grandchildren Support Group Loveland Support Group Meets the 4th Monday of every month, 5:30 – 7:30 pm Lifespring Covenant Church, 743 S. Detsero Loveland, CO Fort Collins Support Group Meets the 2nd Tuesday of each month, 6:00 - 8:00 pm Foothills Gateway Inc 301 W Skyway Dr Fort Collins, CO Daycare provided at both groups. For more information, contact Josh Rabe at (970) 6669-7550 or (970) 290-1624 Mile High Down Syndrome Larimer County New Parent Group Focus: birth to 5 years old Meets on the 3rd Friday of each month from 6:30-8:30pm Vineyard Church of the Rockies 1201 Riverside Ave Fort Collins, CO Contact: (303) 797-1699 Northern Colorado Circle of Friends Community Group for families of children with Down Syndrome ages 5 to 12 who live in the Greeley, Windsor, Ft. Collins,

Loveland, Estes Park, Red Feather Lakes, Wellington and Berthoud areas . We plan a social activity in the Summer and Fall (~July and October) and have a mix of meetings with and without formal presentations to allow us to get to know one another and share information about how our kids are doing. (September, January, February, and May) We meet the second Saturday of the month from 11:00 a.m. – 1:00 p.m. at Crossroads Church, 5420 N. Taft Avenue, Loveland, Colorado. For more information, contact Bernie Connell (970) 221-3758 or send an email to circle.of.friends.mhdsa@gmail.com A-Team Parent/Community Group Provides advocacy and mentorship to Thompson School District families of students on the Asperger’s and Autism Spectrum Meeting Dates to be announced. Please contact: Cecilia Gasner Autism Specialist Exceptional Student Services (970) 613-6771 Cecilia.gasner@thompson.k12.co.us D.I.S.H Dietary Intervention Support and Hope provides personal one on one FREE consultations and individual meetings. These services are open to anyone who is inquiring, starting out or is a veteran of the gluten-free, casein-free diet and

biomedical interventions. Contact: Phyllis Zimmerman (970) 206-4979 Email: dzerman2@yahoo.com Larimer County Epilepsy Support Group Provides support for people with epilepsy, their family and community members. For further information contact Amanda Jaksha ahugen@yahoo.com Moms Night Support and friendship for Northern Colorado Mothers of Children with and without special needs. Meets the last Tuesday of each month 7-9pm Locations vary. Please contact :Brenda Tuttle at (970) 267-8705 or email brendatuttle@comcast.net Upcoming dates and locations are: October 25, 7-9pm CB Potts Restaurant & Brewery Collindale 1441 East Horsestooth Road Fort Collins, CO 80525 November 29 ,7-9pm Austin’s American Grill 2815 E Harmony Road Fort Collins, CO 80528 December, 7-9pm Old Chicago Pasta & Pizza 4709 S. Timberline Rd Fort Collins, CO 80528 More than a BUMP on the HEAD…If you or someone you care about is dealing with brain injury, you do not have to do it ALONE!

TBI CONNECTIONS support group in Northern Colorado, invites you to join us. Meets 2nd & 4th Tuesday of the month Westbridge Medical Suites – Conference Center 1107 S. Lemay Ave. Fort Collins, CO 80524 For more information please contact Arla 970-221-1114. Poudre School District Special Education Advisory Committee SEAC is comprised of teachers, school staff, service providers (occupational and speech therapists, psychologists, etc), community members and parents who advocate for quality special education in Poudre School District. During these meetings you’ll have a chance to: • Listen to speakers providing up-to-date information • Participate in and provide input for upcoming programs and events • Network and socialize with other parents • Enjoy dinner on us! Childcare provided. Meeting are the 3rd Wednesday of the month 6:30 - 8:00 pm Shepardson Elementary 1501 Spring Drive Fort Collins, CO 80525 For further information contact: Sandy Stoltzfus (970) 490-3225 or sandys@psdschools.org

sos4psk@yahoogroups.com Special Online Support for Parents of Special Kids is a list serve for parents who reside in Northern Colorado. To join email sos4psk-subcribe@yahoo.com or contact Brenda Tuttle at brentuttle@yahoo.com or (970) 267-8705. www.p2p-co.org Parent-to-Parent of Colorado We are a non-profit organization committed to quality Parent to Parent support across Colorado. We offer encouragement to each other on the journey of parenting our sons and daughters with disabilities or special health care needs. We do this by providing emotional and informational support, resources and by matching parents seeking sup-port with a support parent. www.peakparent.org PEAK Parent Center . 800-284-0251 The mission of PEAK Parent Center is to provide training, information and technical assis-tance to equip families of chil-dren birth through twenty-six including all disability conditions with strategies to advocate suc-cessfully for their children. As a result of PEAK’s services to fami-lies and professionals, children and adults with disabilities will live rich, active lives participating as full members of their schools and communities. www.arclc.org The Arc of Larimer County advo-cates for all individuals who have developmental disabilities to have opportunities and choices for inclusion and in-volvement in all aspects of life within our communities. www.autismcolorado.org Autism Society of Colorado Our mission is to promote the quality of life for people with

autism spectrum disorders and their families. FortCollinsAspergers_Austim@yahoo groups.com A group for parents, caretakers, teachers, of children on the au-tism spectrum to share informa-tion in the Larimer County, Northeastern Colorado areas. www.ccdconline.org Colorado Cross Disability Coalition (303) 839-1775 Information and assistance on disability rights issues for youth and adults. Advances legislation and public policy impacting the disability community. www.cde.state.co.us/index_special.htm Colorado Department of Educa-tion-Exceptional Student Leader-ship Unit (303) 866-6694 Website resources on special education law/school/district programs etc. FAST FACTS on a variety of topics. Information on educational specialists, parent-professional partnerships. www.citizensforpatientsafety.org Citizens for Patient Safety (303) 226-5526 Patient safety information and referral. Advocacy training for those who have family members in the hospital. Support for fami-lies/individuals dealing with legal issues in the medical sys-tem www.cdhs.state.co.us/ddd Division for Developmental Disabilities (303) 866-7450 Provides various services to individuals with developmental disabilities. Administers children and family program, adult pro-grams. Information on CCBS (Community Centered Boards)

www.eastersealscolorado.org Easter Seals Colorado (303)233-1666 x237 Respite, including Discovery Club, weekend programs and summer camp. Warm water therapy and aquatic programs. Employment services/support, transition trainings, transporta-tion assessments. www.eicolorado.org Early Intervention Colorado 888-777-4041 Connects families with early intervention services to help infants and toddlers under age three grow and develop as well as help their families in the proc-ess www.elgrupovida.org El Grupo Vida (303) 904-6073 Information, referrals and sup-port groups for Spanish speak-ing families of children with spe-cial needs. Annual free confer-ence. www.empowercolorado.com Support, education, advocacy for families of children/youth with mental health issues. Support groups throughout the state. Statewide listserve www.familyvoicesco.org Advocacy for children with spe-cial health care needs. Assists families in navigating health systems including Medicaid, Medicaid waivers and private insurance www.guardianshipallianceof colorado.org Guardianship Alliance of Colorado (303) 228-5382 Information and referral on guardianship, including volun-teer guardianship matching pro-gram. Information and training for those wishing to become a guardian for a family member who is 18 yrs or older.

www.cde.state.co.us/cdesped/PEP.asp Parents Encouraging Parents (303) 866-6846 Free conference including lodg-ing and meals, held twice per year at various statewide loca-tion (apply early as waiting lists occur frequently). Brings to-gether parents and professional for education on supporting your child in school and the commu-nity www.thelegalcenter.org The Legal Center for People with Disabilities and Older People 800-288-1376 Advice on the legal rights of peo-ple with disabilities. Publishes: “Everyday Guide to Special Education Law” Just in Time Parenting Newsletter Electronic Newsletters FREE valuable resource for par-ents of children prenatal through age 5 (with links to additional information for parents and /or providers working with school aged children and teen parents). These research based newslet-ters are written and reviewed by university faculty across the nation. The newsletters written at a 4th-6th grade reading level and available in both English and Spanish. Other features include podcasts, “Ask and Ex-pert” and videos. To sign up simply go to www.extension.org/parenting scroll down and look on the right for “parenting newsletter”. For further information please contact Dr. Ann Bruce at (970) 491-7608 or annbruce@cahs.colostate.edu

Online Resources and

Support

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BULLETIN BOARD Attention Families receiving Family Support Services! Quarterly expense forms are due: January 5, 2012 Foothills Gateway Inc 301 W Skyway Dr Fort Collins, CO 80525 Fax: (970) 267-3497 SAVE THE DATE FOURTH ANNUAL "FLYING PIG 5K CHARITY RUN/WALK" Benefit for Foothills Gateway, Inc. Family Support Services Program Sunday, April 22nd, 2012 - 8:30 a.m. Spring Canyon Park, Fort Collins, CO 2626 W. Horsetooth Rd. Ft. Collins, CO CERTIFIED COURSE~ Pre-Qualifier for Bolder-Boulder Registration: $25.00 Fee ($30.00 day of event) - In-cludes tee shirt and "pigs in a blanket pancake breakfast c Pancake breakfast ONLY tickets available at event -$5.00 "PIGLET WALK" FREE FOR CHILDREN under age 10 Begins at 9:30 AM Registration forms available at: Foot of The Rockies 150 E. Harmony Unit 2C Ft. Collins, CO (970.377.8005) Runners Roost 2720 Coun-cil Tree Ave. Ste. 112 Ft. Collins, CO (970.224.9114) www.foothillsgateway.org, www.active.com www.runningguru.com or Call Pam Miller @ 970.266.5409 RESPITE Nights Special Friends Club Crossroads Church 5420 N. Taft Ave Loveland FREE Respite Nights for fami-

lies of children with special needs Saturday, October 15 and Saturday, November 12 6:30pm-9:30pm Please contact Kay Mason, 970-203-9201 ext.8120 or sf@crossroadscolorado.com Crossroads Church also has a new Special Friends Youth Group for middle school, high school & young adults. It is on Saturday’s from 6:15 to 8:15 pm in the Youth Build-ing’s Club 45 Room. Upcoming Youth Group dates: Saturday, October 22 and Saturday, November 5 6:15-8:15pm in YB2 (east building) Health Insurance Mandated Autism Treatment (HIMAT) Seminar Presented by the Autism So-ciety of Colorado Fort Collins - Co-Sponsored by Foothills Gateway Wednesday, November 9th from 8:30am-12:30pm at Foothills Gateway 301 W Skyway Dr Fort Collins, CO 80525 Parents of children/youth with ASD are FREE, other attendees $30 per person To register contact: kim@autismcolorado.org ~ Save the Date ~ The Autism Society of Colorado’s Annual Faces of Autism Event An evening of awards honor-ing community members who make a difference in the lives of people with autism. PPA Event Center 2105 Decatur Street Denver, Colorado Wednesday,

October 26th, 2011 Networking/Cocktail Recep-tion starting at 5:00 p.m. To learn more, receive a for-mal invitation, or become a sponsor of the event, contact Gwen Smiley at 720.214.0794, x19 or gwen@autismcolorado.org . SAVE THE DATE GRUPO VIDA Hispanic families focusing on the future 14TH ANNUAL CONFERENCE Saturday, October 29 , 2011 9am-6pm Children’s Hospital 13123 E. 16th Ave, Aurora, CO,80045 For more information contact El Grupo Vida at (303) 904-6073 OR Www.elgrupovida.org Youth Nights for Active Teens Join the fun at Northside Aztlan Center! We will provide support on the second Thurs-day each month for any teen,12-18 years with a dis-ability to participate in drop-in activities that include dodgeball, ping pong, dance, food, prizes and much more. Northside Aztlan Center For more information and to RSVP, contact Alison Cope, 416-2024, acope@fcgov.com 9/8,10/13 &11/10 Th 5:00-8:00 PM Learn to express yourself on stage! We will have fun with theater games, improvisation and skits. This workshop is designed for people with and without dis-abilities. Age: 14 years & up Location: Northside Aztlan Center

Note: Bring an attendant if personal care assistance is needed. For more information, con-tact Alison Cope at 970.416.2024, or acope@fcgov.com. 11/12 Sa 1:00-4:00 PM $12 84607-01 Artists Wanted Family Support Services Pro-gram Council at Foothills Gateway is seeking artists of any age or ability to provide 2 dimensional artwork for a fundraiser. For further infor-mation please contact Gayle Timm at (970) 689-0823. Poudre School District Parent Fall Academy October 27,2011 6:00-8:00pm Lesher Middle School 1400 Stover St, Fort Collins, CO FREE childcare provided; reservations required. For further information con-tact: Sandy Stoltzfus, Parent Liaison at (970) 490-3225 or sandys@psdschools.org Agenda: 6:00-6:30pm Registration, Refreshments and Resource Fair 6:30-8:00pm Attend a Workshop, chose from the following: Understanding Your Child’s IEP, Parenting a Child with Disabilities and Rebuilding Dreams, The Solution to Be-havior Problems: The Infa-mous Magic Wand, Founda-tions of Sensory Processing 101:Tips for Every Day, or Curricular Adaptations.

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Health Care Program for Children with Special Needs

Mailing Address and Phone Number: Health Care Program for Children with Special Needs Larimer County Department of Health and Environment 1525 Blue Spruce Dr Fort Collins, CO 80524

(970) 498-6732

Larimer County Staff Team Leader/Community Health Services Director Averil Strand, RN, MSN (970) 498-6760 Nursing Coordinator Cindy Bradrick, RN BSN 498-6747 Program Coordinator Ginger Hillyard, BSW (970) 498-6732 CO-HEAR Regional Coordinator Annette Landes, SLP (970) 217-9532 Family Regional Consultant Brenda Tuttle (970) 267-8705 or (970) 218-0362 Nutrition Regional Coordinator Donna Uhlrich, RD (970) 498-6732 OT/PT Regional Coordinator Caryn Stanwyck, MS, PT (970) 691-1223 Audiology Coordinator Nancy Alexander, MA, CCC-A (970) 586-6812

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2012 Neurology Clinics January 5, April 12, July 12, October 4, 2 Dr. Paul Moe and Dr Michele Yang, Board Certified Pediatric Neurologists From: Children’s Hospital of Colorado Aurora, CO To register contact: Cindy Bradrick RN, BSN with the Health Care Program for Children with Special Needs at Larimer County Department of Health and Environment 1525 Blue Spruce Dr Fort Collins, CO 80524 (970) 498-6747

Do you need help applying for Medicaid and Child Health Plan Plus (CHP+)?

Do you need documents verified for your application?

Do you have questions about Medicaid and CHP+ benefits?

Do you need help finding a doctor, dentist or vision care provider?

Do you need help finding no and low-cost community resources? Family Health Coordinators want you to get the most of your benefits and to understand what those benefits can do for you.

Call a Family Health Coordinator 498-6755 or 498-6754 or 498-6758

Dr. Paul Moe

Dr Michele Yang

Healthy Communities Outreach Program

Connecting families to health care and community services

Larimer County Healthy Communities

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What is advocacy? The word advocacy can mean different things to different people. Quite simply, advocacy means to actively support an idea or a cause. Parents of children with disabilities often find themselves in the role of being an advocate for their child as well as the disability community as a whole as the two are inter-twined. It is largely because of the work of parent advo-cates that children with disabilities were first allowed to attend public schools in 1975 when Public Law 94-142 was passed. This law was revised and called the Individu-als with Disabilities Education Act (IDEA) in 1997, and re-authorized in 2004. For more information on IDEA, please visit the US Department of Education’s website. Why do I need to advocate for my child? IDEA states that parents are equal members of the Indi-vidualized Education Plan (IEP) team. This is because par-ents know their child best and will always be a part of their child’s life, unlike professionals who generally inter-act with a child for a year or two. IDEA recognizes that children are most successful when parents and profes-sionals form partnerships to identify the strengths, needs, and developmental and educational goals for children with disabilities. What are the characteristics of a successful par-ent/professional partnership? • Open, honest, and effective 2-way communication

• Mutual respect for the role and expertise that parents and professionals bring to the IEP process and meet-

ings

• Both parents and professionals being knowledgeable of IDEA and the families’ rights

• The ability to resolve disagreements in a quick and efficient manner

• Maintaining a child-centered focus How do I effectively advocate for my child? Advocating for your child can be an intimidating process. It takes practice. The most important thing to remember is that your contributions, ideas, and opinions matter! Your ability to effectively advocate for your child will impact his/her entire life. Here are some suggestions for effective advocacy strategies: • Develop relationships. Get to know the members of your child’s IEP team. • Practice good communication skills. Listen. When you

are unsure about something, ask. • Know and understand your emotions.

• Share with your child’s team how you help your child at home. • Learn good conflict resolution skills and understand

the dispute resolution process as defined by IDEA. • Understand your parental rights as defined by IDEA.

• Insist on natural environments for your child’s ser- vices. Natural environments means, “providing ser- vices in the home and community settings in which children without disabilities participate.” • Inquire about assistive technology and how it might

help your child. Assistive technology (AT) can be thought of as any item that supports a child’s ability to participate actively in his or her home, childcare program, school, or other community settings. It is a broad term that includes items ranging from some-thing as "low tech" as a foam wedge for positioning to something as "high tech" as a power wheelchair for independent mobility.

• Keep in mind a vision of your child’s future and what you want for him/her. Share this with the IEP team. •Be specific about how you want the team to commu nicate with you- in person, over the phone, via email, etc. and how frequently.

• Don’t be afraid to disagree. Use phrases such as, “I’m not sure I see that. Tell me when you see it happen- ing,” or “Tell me more about why you think my child needs this intervention,” as ways to skillfully discuss the disagreement.

• Keep meetings and discussions child focused.

• Stay organized and keep records. Take notes at meet-ings and on phone calls and keep evaluation data and other IEP documents.

• Be prepared. Come to meetings with an agenda of items you want to make sure are discussed.

• Put requests and questions in writing.

• Get support if you need it from a friend, family mem-ber, or professional advocate.

FAQ’s: Question: "Doesn't advocacy just lead to conflict?" Answer: This is a common concern for people when they hear the word advocacy. Sometimes actively supporting your point of view will lead to conflict/disagreement, and sometimes it won’t, depending on your individual situation and IEP team. The thing to remember is that conflict and/or disagreement is not necessarily a negative thing. When done skillfully, everyone, especially your child, will benefit from all sides of an issue being discussed.

How do I stand up for my child without stepping on toes?

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Question: "How do I raise a self-advocate? What can I do to help my child grow up to become an empowered self-advocate?" Answer: As your child becomes older, you can teach him/her to be a self-advocate. The best way to do this is to first learn to be an effective advocate yourself. Your child will learn by watching you. When it feels right, start including your child in meetings and dis-cussions about how he/she learns, what strategies support his/her learning, what his/her interests and strengths are, and what vision he/she holds for the future. Question: "Where can I get more information on advocacy and effective advocacy strategies?" Answer: The following organizations, publications, and resources

can be helpful: Early Intervention Colorado From Emotions to Advocacy- The Special Education Survival Guide, by Pam and Pete Wright Wright’s Law Website Special Education, a Parent’s Guide for Children’s Success, by Mi-chael T. Bailey The Everyday Guide to Special Education Law, by Randy Chapman The IEP Tool Kit, developed by PEAK Parent Center, which includes a variety of advocacy resources including communication tip cards, a power-point presentation, and other resource handouts. Source: http://speakout.peakparent.org/index.php/current-newsletter/28-advocacy-101

Why I am a Member of the Family Support Services Program Council at Foothills Gateway

By Brenda Tuttle

Several years ago my family was referred to Foothills Gateway Inc. Our first encounter was with an intake Case Manager, Carolyn Dekkers. My husband and I found Ms. Dekkers to be compassionate and knowl-edgeable. Sometime later we were connected with a Family Support Services Program Case Manager, Pam Miller. Ms Miller is also a very compassionate knowledgeable person. It was the positive experiences my family had with these two representatives of Foothills Gateway Inc that inspired me to want to give something back to a program that was helping my family find appropriate supports for our son, in addition to financial and emo-tional assistance. In the Fall of 2002, Pam Miller invited me to visit a Family Support Services Program Council (FSSP) meeting. At this meeting I met a group of Foothills Gateway Inc employees, parents of chil-dren receiving Family Support Services or on the waiting list for services and community members all fo-cused on the welfare of families of children with developmental disabilities in Larimer County. I was amazed by this group’s professionalism, cohesiveness, and passion. Joining Family Support Services Pro-gram Council gave me the opportunity to productively contribute to Family Services Support Program at Foothills Gateway Inc. While council members have come and gone, the overall focus of Family Support Services Program Council has not changed. Larimer County Families either receiving Family Support Services or on the waiting list are the priority! Today’s council is just as professional, cohesive and passionate as the council I visited 9 years ago. If you are looking for a volunteer opportunity that is a productive use of your time as well as a rewarding ex-perience, I recommend that you consider visiting a Family Support Services Program Council meeting. We meet on the second Monday of each month from 12pm-2pm.

For further information please contact: Pam Miller

Case Management Specialist Foothills Gateway Inc

(970) 266-5409

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Do you wish you could have a say in policies that affect you and your children? Do you feel that you lack the skills necessary to effect change in your community. Would you like to obtain the skills and knowledge to become a “voice” in your community for children and families? The Family Leadership Training Institute (FLTI) helps parents, family and community members become leading advocates for children. Jessica Gibson, FLTI Class of 2011 “ I would highly recommend FLTI to families and individuals interested in children and their communities. I think FLTI provides a better under-standing of individuals and their relationships to a community. FLTI was a process, gathering the information, processing it, and putting it into im-mediate use. The participants come from such a diverse population. It was a unique experience to have us all brought together with a common inter-est and goal. It was great to learn to work through different belief systems, approaches, and backgrounds. It also provides a better understanding of public policy and the importance of having a voice for change.” FLTI will be conducted from January – May 2011 and includes:

A kick-off retreat to develop group communication. 10 weeks of classes on self and perception of leadership. 10 weeks of classes focused on politics, policy and media. Day trip to the Colorado State Capital to view the inner workings of government The opportunity to use leadership skills to develop and implement a Community Project 2 Graduation ceremonies (one local and the other at the State Capitol)

Brenda Tuttle, FLTI Class of 2010 “While I admit that the time commitment to attend an all day retreat, 4 hr class for 20 weeks, and complete a Community Project sounds monumen-tal, the end results are worth the effort. As any FLTI graduate will tell you “Trust the process!” Our class experienced both “ups” and “downs” dur-ing our journey together. I feel these hills and valleys empowered all of us to become strong, knowledgeable Family Leaders in our own right.” Who should apply? Parents, grandparents, non-traditional heads of families, and community members who would like to enhance their capacity to make positive change in the community and improve the lives of children and families should apply. The FLTI course is offered free of charge! Your time, commitment, and a written community project that reflects your passion, is what we ask in return. Please consider whether FLTI is the right opportunity for you at this time. Individuals will be selected with consideration given to how their participation will enhance diversity, strength, and learning for the group as a whole. Interviews will start in December 2011. To apply please contact: millerj@co.larimer.co.us or visit www.ColoradoFamilyLeadership.com

Family Voices for Change

FREE Shriner’s Hospitals for Children Application Screening October 10 2011 9am-3pm Weld County Health Department 1555 N 17th Ave Greeley, CO No appointments are necessary to attend this Application Screening. For further information contact: Amy Antuna RN, BSN (970) 304-6420 ext. 2322 Application Screenings are available for all children up to their 18th birthday for any of the following medical needs: Cerebral Palsy,Cleft Lip & Palate, Club Foot, Leg Perthes Disease, Scoliosis, Missing Limb(s), Bone Disease, Spinal cord injuries, Osteogenesis, Imperfecta-Brittle Bone Disease, Myelomeningocele (spina-bifida), Orthopedic birth defects, Problems associated with burns.

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Who’s Who at the Larimer Loop Newsletter Editor: Brenda Tuttle, HCP Family Consultant and FSSP Council Member (970) 267-8705 brendatuttle@comcast.net Newsletter Review Team: Ginger Hillyard, HCP Program Coordinator (970) 498-6732 Kim Walkenhorst, Healthy Communities Coordinator and FSSP Council Member (970) 498-6755, Sondra Lee Children’s Case Management Coordinator at Foothills Gateway Inc (970)266-5424 Tim O’Neill Executive Director at Foothills Gateway Inc. (970) 226-2345 Debbie Lapp Director of Resource Coordination and Development at Foothills Gateway Inc. (970) 226-2345 Averil Strand, RN, MSN HCP Team Leader/Community Health Services Director (970) 498-6760 Health Care Program for Children with Special Needs Larimer County Department of Health and Environment 1525 Blue Spruce Dr Fort Collins, CO 80524 (970) 498-6732 Foothills Gateway, Inc. 301 W. Skyway Drive Fort Collins, CO 80525 Phone: (970) 226-2345

Kids Discover Parents Discover New Friends Time to meet friends Group Activities Time with their spouse Sports & Games Time with other children Drama & Singing Time for themselves Who: Kids of all abilities including kids with extensive needs, ages 6-18 years. What: A day for children and youth to explore and learn in a friendly social setting. Kids will meet new friends and enjoy recreational activities When:From 10am to 4pm, 2011 Dates: Oct. 22, Nov. 26, Jan. 28, Feb. 25, Mar. 24, Apr. 28 and May 2 Where: Redeemer Lutheran Church - 7755 Greenstone Trail, Fort Collins, CO 80525. Discovery Club Fees : � Annual Registration Fee $30 �$30/person or $25 per child for 2+children per session (same family) �Financial assistance available �All forms need to be submitted prior to attendance. Please call for information, to reserve your child’s space or to volunteer: Nancy, (303) 233-1666 x237. Snacks are provided, however kids need to bring their own lunch Our staff of professionals and trained volunteers can provide care for kids who need help with mobility, eating and other care needs. Check out our website for information at www.eastersealscolorado.org, or call(303) 233-1666 x237 for reservations and general information. To volunteer at camp call (303) 569-2333 x312.

Sponsored By

FLETCHER MILLER SCHOOL

Larimer LOOP

C/O Brenda Tuttle

Family Support Services Program Council

Foothills Gateway Inc.

301 W. Skyway Drive

Fort Collins, CO 80525

(970) 267-8705

brendatuttle@comcast.net

Have you received two copies of this newsletter? Would you prefer to receive this newsletter electronically or in Spanish?

Please contact Brenda Tuttle at (970) 267-8705.

Nonprofit Organization

U.S. Postage Paid

Fort Collins. CO

Permit No. 483

Anne’s Blessing May God bless you with discomfort…

At easy answers, half truths and superficial relationships So that you may live deep within your heart.

May God bless you with anger…

At the injustice, oppression and exploitation of people So that you may work for justice, freedom and peace.

May God bless you with tears…

To shed for those who suffer pain, rejection, hunger and war So that you may reach out your hand to comfort them

and to turn their pain into joy.

And may God bless you with enough foolishness… To believe that you can make a difference in the world, So that you can do what others claim cannot be done

to bring justice and kindness to all our children and the poor. This issue of the Larimer Loop is dedicated to the memory of Anne Chassion, MSW, Social Worker with Larimer County Health Care Program for Children with Special Needs. January 16, 1953-July 31, 2011.