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Local Communities ACT on Alzheimer’s

Georgia Lane, LGSWCarondelet VillageSt. Paul Neighborhoods ACT on AlzheimersPresented to EVOLVE! 03/08/13

What is ACT on Alzheimer’s

statewide

collaborative

voluntary50+O R G A N I Z A T I O N S

150+I N D I V I D U A L S

I M P A C T S O F A L Z H E I M E R ’ S

BUDGETARY SOCIAL PERSONAL

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Genesis of ACT on Alzheimer’s

• 2009 Legislative Mandate for Alzheimer’s Disease Working Group (ADWG)

• Legislative Report Filed in January 2011

• ACT on Alzheimer’s is second generation of work focusing on implementation

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Collaborative Structure

L EA D E R S H I P C O U N C I L

Advisors • Strategists • Champions

35+

M A N A G E M E N T S T E E R I N G C O M M I T T E E

Organizations actively involved in day-to-day operations

10+

O P E R AT I O N S

•Executive Lead•Project Director•Project Manager

•Five Leadership Groups•Fiscal Sponsor•Host

150+

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sustain caregivers

raise awareness & reduce stigma

Goals of ACT on Alzheimer’s

identify & invest in promising approaches

increase detection & improve care

equip communities 5

Equip Communities and Raise Awareness

• Develop a Community Toolkit to assist communities in becoming dementia capable so they can support their residents who are touched by Alzheimer’s disease

• Support community implementation of the Toolkit

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What is a Dementia Capable Community?

A dementia capable community:

• Informed

• Safe and respectful of

individuals with dementia and

their families

• Provides supportive options

• Fosters quality of life

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West Central Dementia Awareness Network Willmar, MN

Key Elements of a Dementia Capable Community

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Phases of Community Action

Convene key

community

leaders and

members to

form an Action Team.

Assess current

strengths and gaps

within

the community.

Assess community

needs and develop a

plan to take action.

ACT Together to

pursue priority goals

to foster community

readiness for

dementia.

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Tools for Each Phase

• Prepare to develop an action team

• How to establish your community team

• Organizing your team and meetings

• How to build awareness

• Community Needs Assessment, includes 14 Sector-Based Surveys

• Synthesizing the Assessment

• Dementia Capable Community Action Plan Template

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Pilot Action Communities

• Willmar Area Dementia Network (Willmar Area)

• Walker Community Coalition (Walker, MN)

• Twin Cities Jewish Community Alzheimer’s Task Force

• St. Louis Park/Hopkins Coalition

• St. Paul Neighborhoods Coalition

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St. Paul Neighborhood’s ACT

WHO: Carondelet Village seeks collaboration with key stakeholders from multiple sectors to look at the impact of Alzheimer’s in our community

• Initial Planning Team– Carondelet Village (Convener), Alzheimer’s

Association, MAAA, Wilder, and St. Paul Mayor’s Advisory Council on Aging

• Strategy: Identify Key Community Influencers

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• First step : to determine the scope of our community– Chose to start with 6 neighborhoods – Highland Park, Mac-Groveland, West 7th, Summit

Hill, Summit University, and Union/Merriam Park

How Do We Define “Community”?

Initial Outreach Strategy

“Divide and Conquer” •Important to be strategic in connections—build off existing relationships

• No existing formal coalition has been established in our neighborhoods focused on dementia.

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Organization Strategy: February 12th Kick Off Event

Kick-off Event held to call community to ACT! • Elected Officials Panel

– Mayor Chris Coleman, City of St. Paul– Lieutenant Governor Yvonne Prettner Solon, State of Minnesota– April Shaw, on behalf of U.S. Congresswoman Betty McCollum– Commissioner Toni Carter, District 4, Ramsey County– Councilmember Chris Tolbert, City of St. Paul

• Content Experts & Project Logistics Panel– Sue Spalding, Executive Director, Alzheimer’s Association of Minnesota– Olivia Mastry, Executive Lead, ACT on Alzheimer’s– Dawn Simonson, Executive Director, Metropolitan Area Agency on Aging– Georgia Lane, Team Lead, Saint Paul Neighborhoods ACT– Community Care Partners

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Phase 1: Next Steps

• Solidify who is on the team • Familiarize ourselves with the assessment

tools and process. • Seeking broad representation

Meeting scheduled for March 5th, 3-5 PM at Carondelet Village

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• Sept-Oct 2012: Establish pilot status and develop work plan

• Oct-Jan : Assemble planning team and identify broad base of community stakeholders

• Feb : Convene community kick-off event and raise awareness. Build momentum.

• March-April : Convene follow up, assemble team, orient on assessment process and assign responsibilities

Year 1 Timeline -- 2013

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Year 1 Timeline 2013 (Cont’d)

• April-May : Conduct Assessments• June: Synthesize Results• July-Sept: Review Results and prioritize 1-2

year community goals• Sept-Dec: Develop implementation plan,

establish success measures, responsibilities, and begin to implement priority dementia goals

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Years 2-3 Timeline 2014-2015

• Execute on plan• Evaluate progress in partnership with ACT• Revise plan as community needs evolve• Share learnings with other communities

across Minnesota

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How YOU can ACT today!

• Learn more: www.ACTonAlz.org

• Join a pilot community

• Start the conversation in YOUR community

©2013

www.ACTonALZ.org

Join Us!

Q & A Discussion