local multiple system atrophy support groups
DESCRIPTION
Here is the list of Local Multiple System Atrophy Support Groups. Support, education, research and advocacy are important because multiple system atrophy is so rare that few patients, prior to diagnosis and few physicians have any knowledge of the disease. For more information visit https://www.multiplesystematrophy.org/ or call Support Hotline: (866)737-5999TRANSCRIPT
List of Support Meetings & phone/email support
USA and Canada
Page 1 of 22
This list is maintained by Vera James [email protected]
USA
ALL STATES
THE MULTIPLE SYSTEM ATROPHY (MSA) COALITION (formerly the Shy-Drager/MSA Support Group) 8311 Brier Creek Parkway, Suite 105-434 Raleigh, NC 27617 USA www.MultipleSystemAtrophy.org Toll free: 1-866-737-4999 or 1-866-737-5999 “United to Defeat MULTIPLE SYTEM ATROPHY”
The Multiple System Atrophy (MSA) CoalitionTM is a 501(c)3 charitable organization (EIN: 74-2926378) devoted to a four pillar mission: • Supporting patients and caregivers affected by multiple system atrophy • Educating patients, caregivers and healthcare professionals • Financing and encouraging meaningful research toward identifying a cause and finding a cure for MSA • Advocating for issues important to the MSA community, including creating greater awareness
Information: We offer two toll free support lines staffed by former MSA caregivers. Contact: Vera James (CA USA) 1-866-737-5999 [email protected] Judy Biedenharn RN (OH USA) 1-866-737-4999 [email protected] Meeting Time(s): We host an annual conference for MSA patients and families in a different US city each year, usually September or October timeframe. Please watch for announcements on our website www.MultipleSystemAtrophy.org DVD’s of past conferences are available to order Other contacts: Carol Langer (MA USA) [email protected]
Don Crouse (NC USA) [email protected] Pam Bower (NS CANADA) [email protected]
Larry Kellerman (IA USA) [email protected] Phil Fortier (MI USA) [email protected] Tom Looney (NC USA) [email protected] Cynthia Roemer (NJ USA) [email protected] Sharon Sutton (TX USA) [email protected]
List of Support Meetings & phone/email support
USA and Canada
Page 2 of 22
This list is maintained by Vera James [email protected]
Note: Every effort is made to ensure meeting times & dates are accurate, however we do suggest that you contact the facilitator first before attending a meeting for the first time. ALABAMA
CHICKASAW Information: No Meeting Phone Support Only Contact: Janiece Naber Martindale 251-300-1196 [email protected]
ARKANSAS
LITTLE ROCK Information: For anyone affected by PSP<CBD or MSA Location: Alzheimer’s Arkansas 201 Markham Center Drive, Little Rock, AR 72205 (ask front desk for room details, 501-224-0021 Meeting Time: 4th Thursday of every months from 1:00pm-2:30pm Facilitator: Randi Haley 870-703-6417 [email protected]
ARIZONA
TEMPE Information: No Meeting Phone Support Only Contact: Jean Suico 480-839-3794 [email protected]
GILBERT
Information: No Meeting
Contact: Tandy King Facebook: www.facebook.com/kingchtata
List of Support Meetings & phone/email support
USA and Canada
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This list is maintained by Vera James [email protected]
CALIFORNIA
FREMONT Information: Non-profit for MSA Cure MSA – Kathy Shih Memorial Foundation P.O. Box 15088 Fremont, CA 94539 USA www.curemsa.org
Contact: Lily Shih (Executive Director) 510-226-0453 [email protected]
BURLINGAME Information: No Meeting Phone Support Only Contact: Candy Welsh 650-375-0229 [email protected]
FOUNTAIN VALLEY
Information: For family members and caregivers dealing with Atypical PD+ Disorders Location: Orange coast Memorial Medical Center, Classroom C, 9920 Talbert Ave Fountain Valley, CA 92708 Facilitator: Justin Aquines 714-907-0074 [email protected] FREMONT Information: No Meeting Phone Support Only Contact: Sandy Bierman 510-656-6897 [email protected] Lily Shih 510-226-0453 [email protected] GOLETA Information: No Meeting Phone Support Only after 11am EST Contact: George Relles 805-683-4829 [email protected]
LIVERMORE Information: No Meeting Phone Support Only Contact: Carol Dutcher 925-998-3656 [email protected]
List of Support Meetings & phone/email support
USA and Canada
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CALIFORNIA (continued)
LOS ANGELES Information: Parkinsonian Disorders Support Group MSA ,PSP, CBD, OPCA, SND, SDS, PD Location: Ronald Reagan UCLA Medical Center. 757 Westwood Plaza, Los Angeles, CA 90095,
Conference Room 3102 Meeting Time(s): 1st Friday of every month from 2:00pm - 4:00pm (for directions only: 310-825-9111) Sponsors: Dr. Yvette Bordelon, UCLA Movement Disorder Department Facilitator: Loretta Mazorra RN,MN,MA, Nurse Practiioner [email protected] Contact: Dolly West 310-430-6678 or 310 206-2154
MODESTO Information: No Meeting Contact: Janeice Partridge [email protected] NORTHERN/SAN MATEO Information: Neurodegenerative movement disorder group (MSA PSP, CBD, etc.) – caregivers
only. Contact facilitator for more info. Location: Mimi's Cafe, 2208 Bridgepointe Parkway, San Mateo, CA 94404 Meeting Time(s): Every six weeks (call or e-mail for schedule) from 5:00pm - 7:00pm Facilitator: Robin Riddle 650-814-0848 [email protected] SAN DIEGO Information: For patients/caregivers dealing with Atypical Parkinsonian Disorders like MSA, PSP,
CBD, OPCA, SND, SDS Location: UCSD Thornton Hospital, 9300 Campus Point Drive, La Jolla, CA 92037, SDG&E
Room (3rd floor) Meeting Time(s): 3rd Thursday of every month from 1:00pm -3:00pm (for directions only: 858-657-7000) Sponsors: Dr. Stephanie Lessig, UCSD & VA Movement Disorder Department Facilitator: John Jenkins 619-787-2760 [email protected]
SAN DIEGO
Information: For ONLY caregivers dealing with Atypical Parkinson Disorders (MSA, PSP, CBD, OPCA) Location: Holy Angels Byzantine Catholic Church, 2235 Galahad Road, San Diego, CA 92123 Meeting Time(s): Every other month from 11:00am - 1:00pm Facilitator: Patricia Hagan 619-223-1645 [email protected]
List of Support Meetings & phone/email support
USA and Canada
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CALIFORNIA (continued)
SANTA BARBARA Information: No Meeting Phone Support Only
Contact: Suzanne Grimmesey-Kirk 805-692-4010 [email protected]
THOUSAND OAKS
Information: For patients/caregivers dealing with Atypical Parkinsonian + Disorders like MSA,PSP,CBD,OPCA,SND & SDS Location: 672 Rosario Drive, Thousand Oaks, CA 91362 Meeting Times: One Saturday every quarter from 1:00pm-4:00pm Call or email for meeting date. Facilitator: Kathy Schwaiger 805-496-7018 [email protected] Ceri Williams [email protected]
COLORADO
DENVER/ENGLEWOOD Information: Neurodegenerative movement disorder group (MSA, PSP, CBD) Location: Johnson Adult Day Center, 3444 South Emerson St., Englewood, CO 80113
Meeting Time(s): 2nd Friday of each month from 10:00am - 12:00pm for Patients/Caregivers 4th Friday of each month from 10:00am-12:00pm for Caregivers only
Facilitator: Helenn Franzgrote 303-789-9900 [email protected] JOHNSTOWN/LOVELAND Information: MSA,PSP,CBD Location: Northern Colorado Rehabilitation Hospital 4401 Union Street Johnstown/Loveland, CO 80528 Meeting Time: 1st Friday of each month from 1:00pm - 3:00pm (No Dec/Jan meeting) Facilitator: Ruth Fletcher-Carter 970-532-2681 [email protected]
List of Support Meetings & phone/email support
USA and Canada
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This list is maintained by Vera James [email protected]
FLORIDA
BRADENTON
Information: No Meeting Phone Support Only
Contact: Dan Stone 678-581-9237 [email protected]
Contact: Connie Ferguson 941-778-5294 [email protected]
HOLMES BEACH Information: No Meeting Phone Support Only Contact: Connie Ferguson 941-778-5294 [email protected]
PORT ORANGE Information: No Meeting Phone Support Only Contact: Jim Grant 386-334-2691 [email protected]
SOUTHEAST/DEERFIELD BEACH
Information: For patients/caregivers/families affected by MSA, PSP, CBD and related diseases Location: North Broward Medical Center, 201 E. Sample Road, Deerfield Beach, FL 33064, 1st
Floor, Classrooms 7&8 (for directions only: 954-941-8300) Meeting Time(s): Contact Facilitator for more info Facilitator: Paul Freeman 305-970-0805 [email protected] SOUTHWEST/NAPLES Information: For patients/caregivers/families affected by MSA, PSP, CBD and related diseases Location: Manor Care at Lely Palms, 6135 Rattlesnake Hammock Road, Naples, FL 34113 Meeting Time(s): 2nd Saturday of each month from 2:00pm - 3:30pm Facilitator: Cindy MacDonald 239-353-3960/239-404-4429 [email protected]
List of Support Meetings & phone/email support
USA and Canada
Page 7 of 22
This list is maintained by Vera James [email protected]
GEORGIA
ATLANTA Information: For patients/caregivers living with Atypical Parkinsonism’s, PSP and CBD Location: Wesley Woods Health Center, 1841 Clifton Rd, Atlanta, GA 30329, 3rd Floor
Conference Room Meeting Time(s): 2nd Saturday of each month (except May) from 10:00am – 11:30am Facilitator: Lynn Ross 404-728-6300 [email protected] ELLIJAY
Information: No Meeting Phone Support Only
Contact: Paula Davis 706-669-1978 [email protected]
INDIANA INDIANAPOLIS
Information: No Meeting Phone Support Only Contact: Gary Huddleston 317-501-4899 [email protected] KOKOMO Information: For MSA Patients/caregivers Contact: Renate Sharp 765-453-5351 [email protected] Chris Markiewicz 765-513-5219 [email protected] Francie Hutton 765-453-9020 [email protected]
WARSAW
Information: No Meeting Phone Support Only
Contact: Terry Shepherd 574-267-1566 [email protected]
ILLINOIS
ORLAND PARK Information: No Meeting Phone Support Only Contact: Arthur (Ed) Wall 708-478-1236 [email protected]
List of Support Meetings & phone/email support
USA and Canada
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CHICAGO AREA
Information: MSA Support Meeting for Patients/Caregivers Meeting information: Quarterly meetings. Time and place announced on Facebook NE Central USA Page or Contact Facilitator. Facilitator: John Standley 815-403-2221 [email protected] NORTHWESTERN AREA Information: For those with PD and other movement disorders Location: Northwestern Memorial Hospital 251 East Huron, Feinberg Pavilion, 3rd Floor Room A (free parking at Huron/St. Clair) Meeting Time : 4th Thursday of every month from 1:00-2:00 pm Facilitator: Pamela Palmentera 312-503-4397 [email protected]
IOWA
WESTERN IOWA AREA Information: No Meeting Phone Support Only Contact: Keryn Paul 402-813-7315 [email protected] NEW LONDON
Information: No Meeting
Contact: Larry Kellerman [email protected]
KENTUCKY
LOUISVILLE Information: Atypical Parkinsonian Disorders (MSA,PSP, CBD) Location: PSCKY Office, Middletown 315 Townepark Circle, Suite 100 Meeting Time: 2nd Tuesday of every month 12:00pm-1:00pm Facilitator: Dan Heins 502-216-4563 [email protected]
List of Support Meetings & phone/email support
USA and Canada
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LOUISANA
NEW ORLEANS Information: Patients/families/caregivers with PSP/CBD/MSA & related diseases Location: Little Farms United Church of Christ, 135 Sauve Road, River Ridge, LA 70123 Meeting Time(s): 3rd Thursday of each month from 7:00pm - 8:00pm Facilitator: Shiela Grose 504-737-2614 [email protected] CLINTON
Information: No Meeting
Contact: Gloria Chaney [email protected]
MAINE
FALMOUTH Information: For patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS Location: Maine Parkinson’s I&R Center, 5 Bucknam Road, Falmouth, ME Meeting Time(s): One Sunday per quarter from 1:00pm - 3:00pm. Contact Facilitator for info. Facilitator: Janet Edmunson 207-799-4963 [email protected] Barbi Johnson 207-633-0881
MARYLAND
ANNE ARUNDEL COUNTY Information: For patients/caregivers affected by PSP, CBD & other neurodegenerative diseases Location: Kris Leigh Assisted Living Facility, 831 Ritchie Highway, Severna Park, MD Meeting Time(s):3rd Saturday of every month from 1:00pm – 3:00pm Facilitator: IIeen Watson 410-271-1818 [email protected]
BALTIMORE Information: For caregivers affect by Neurodegenerative diseases Location: Govans Presbyterian Church 5828 York Road, Baltimore, MD 21212 . Peace Center
Library. Meeting Time 4th Thursday of every month Facilitator: Becky Dunlop,RN 410-955-8795 [email protected]
BEL AIR Information: For caregiver affected by MSA,PSP,CBD & other neurodegenerative diseases Location: William McFaul Activities Center 525 West McPhail Road , Bel Air,MD 21014
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USA and Canada
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Meeting Times: 4th Thursday of every month from 2pm-4pm Facilitatior: Becky Dunlop , RN 410-955-8795 [email protected] ELDERSBURG Information: No Meeting Phone Support Only Contact: Shirley Snyder 410-259-1354 [email protected]
PRINCE FREDERICK
Information: No Meeting Phone Support Only Contact: James Taylor 410-535-0780 [email protected]
MASSACHUSETTS BOSTON
Information: For MSA Patients/Caregivers Location: Boston University Medical Center; 88 East Newton Street, 2nd floor, Conf Rm C, Boston, MA Meeting Time: quarterly Facilitator: Melissa Diggin 339-927-5468 [email protected] Or contact: Carol Langer 617-93603053 [email protected]
GARDNER Information: For MSA patients/caregivers Location: Heywood Hospital in Gardner, MA Meeting Time: last Wednesday of each month at 2 PM Facilitator: Marybeth Kumph 978-630-643 Carl Billington 987-632-9682
MICHIGAN
DETROIT Information: Non Profit for MSA
Joseph G Fortier Foundation for MSA P.O. Box 80778 St. Clair Shores, MI 48080 USA [email protected] www.movingtodayformsa.org www.facebook.com/JGFFoundationForMSA
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USA and Canada
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We move today, in service of tomorrow! Contact: Philip M Fortier (Co-Director) 586 246-1475 (cell/vm) [email protected]
ALMA
Information: For patients, caregivers, and families dealing with PSP, CBD, MSA and other
atypical Parkinsonian disorders
Location: Masonic Pathways, 1200 Warwick Drive, Alma, Michigan, Diog Conference Center
(below chapel)
Meeting Time(s): 4th Wednesday of every month
Facilitators: Robbie and Keith Virgo 989-681-6321 [email protected]
DELTON
Information: For patients, caregivers and families with PSP, CBD, MSA and other atypical
parkinsonian
location: 1137 Floria Drive, Delton, MI 49046 (park in church parking lot)
Meeting Time : 2nd Saturday of each month from 2:00pm-3:30 pm beginning April 12, 2014
Facilitator : Mary Meagher 269-267-3117 [email protected]
MINNESOLA
MINNEAPOLIS
Information: For patients and families dealing with PSP, CBD, MSA
Location : Struther's Parkinson's Center 6701 Country Club Drive, Golden Valley, MN 55427
Meeting Time: 2nd Wednesday of every month from 1:00pm -2:30pm
Facilitator: Joan Hlas 952-993-6650
MONTANA
KALISPELL Information: No Meeting Phone Support Only Contact: Gary Cuthbertson 406-257-4392 [email protected]
NEBRASKA
OMAHA Information: No Meeting Phone Support Only Contact: Keryn Paul 402-813-7315 [email protected]
List of Support Meetings & phone/email support
USA and Canada
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LINCOLN
Information: For caregiver and families dealing with PSP, CBD, MSA and others Atypical PD
Location: 5901 N. 27th Street , Lincoln , NE
Meeting Time: 4th Tuesday of every month from 6:30pm-8:30pm (beginning Jan 28, 2014)
Facilitator: Susie Luxford 402-525-7367 [email protected]
NEVADA
LAS VEGAS Information: No Meeting Phone Support Only Contact: Marty Koppel 702-914-8041 please leave message if no answer
NEW HAMPSHIRE
CONCORD
Information: No Meeting
Contact: Gayle Gardner [email protected]
NEW JERSEY
TRI-STATE AREA Information: Non profit support group covering the tri-state area MSA NJ P.O. Box 773 Howell, NJ 07731 www.msanj.org Contact: Cynthia Roemer [email protected]
CAPE MAY Information: For caregiver dealing with Atypical Parkinson+ disorders Location: Cape Regional Medical Center, 2 Stone Harbor Blvd, Cape May Court House, New Jersey (exit 10 off the Garden State Parkway, Maruchi Room (first floor of medical center) Meeting Time: 1st Tuesday of every month 1:00pm -3:00 pm Facilitator: Bonnie Kratzer 609-463-4043 [email protected] MOORESTOWN (5 minutes from Philly and 30 from Trenton) Information: No Meeting Phone Support Only Contact: Rachel Zambrano 856-316-6742 [email protected]
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USA and Canada
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NEW MEXICO
ALBUQUERQUE Information: For patients, caregivers and families affected by PSP, CBD, MSA and Atypical PD Location: The Flying Star 10700 Corrales Road, Albuquerque, NM
Meeting Time : 1st Wednesday of each month from 6:30pm-8:00pm until Sept. Note : Starting Sept meeting will change to the first Tuesday of each month at same time Facilitator: Roxi Padrid 312-485-485-9342
NEW YORK
TRI-STATE AREA Information: Non profit support group covering the tri-state area MSA NJ P.O. Box 773 Howell, NJ 07731 www.msanj.org Contact: Cynthia Roemer [email protected]
BUFFALO Information: No Meeting Phone Support Only Contact: Maureen Conley 716-627-7344 [email protected]
NEW YORK CITY Information: For MSA patients/caregivers Location: Contact Michael DeMarsico for location Meeting Time: 3rd Saturday of each month from 2:00pm-4:30pm Contact: Michael DeMarsico [email protected]
NEW YORK CITY METRO AREA Information: For patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS Location: North Shore University Hospital, Tower Conference Rooms, First Floor, 300
Community Drive, Manhasset, NY 11030 Meeting Time(s): 3rd Saturday Quarterly from 1:30pm - 3:30pm Facilitators: Kara Holisher 516-932-1696 [email protected]
Harriet Feiner 718-224-4654 [email protected]
List of Support Meetings & phone/email support
USA and Canada
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SYRACUSE/CHITTENANGO Information: For Anyone with Parkinson or SDS/MSA Location: Jim Marshall Farm Foundations Facility North Chittenango Directions to the farm can be found at http://www.jmffinc.org/services Meeting times: 4th Tuesday of each month from 12:30PM-2:30PM Contact: Wayne Hamilton 315-687-9014
NORTH CAROLINA
CHARLOTTE Information: No Meeting Phone Support Only Contact: Robert Lee 704-552-9198 [email protected] RALEIGH Information: No Meeting Phone Support Only Contact: Joe Turner 919-971-3512 [email protected] Melissa Turner 919-741-9668 [email protected] ADVANCE Information: No Meeting Phone Support Only Contact: Tammy Hunt Hauser 336-998-2942 [email protected]
OHIO
BEREA Information: For patients/families/friends/caregivers affected by PSP, CBD, MSA, Shy-Drager+ Lewy Bodies Location: Southwest General Hospital, 18697 Bagley Road, Middleburg Heights, OH, Room
15C (basement level) Meeting Time(s): 2nd Sunday of each month from 1:00pm - 3:00pm Directions/Parking: Hospital is easy accessed from I-480, I-71 and the Ohio Turnpike - free parking rear garage of hospital. Facilitator: Pat Beekman 440-234-0007 [email protected]
CINCINNATI Information: No Meeting Phone Support Only Contact: Kathy Griffin 513-208-6621 [email protected]
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USA and Canada
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KETTERING
Information: For MSA patients/caregivers
Meeting Time(s): A get together is arranged in this area a couple
times a year
Contact: Susan Cervone 937-369-9531 [email protected]
WESTERVILLE Information: For MSA caregivers Meeting Time(s): Occasional meetings are now being held Contact: Cathy Rapenport 614-403-1440 [email protected]
OKLAHOMA
GROVE Information: No Meeting Phone Support Only Contact: Paul Nandico 918-786-4949
OREGON
PORTLAND Information: For MSA Patients /Caregivers Location: Marquis Care Center, 319 NE Russet ST, Portland, OR Meeting Time: 3rd Saturday of each month 10 am to noon Facilitator: Vicki Blacken 503-651-3633 [email protected]
PORTLAND
Information: For families & caregivers of people with PSP & CBD also welcomes MSA Locations: OHSU River side building Room 12181 3303 SW Bond St. Portland, OR 97239 Meeting Time: 1st Thursday of each month at 5:30pm Facilitator: Tod Lundy 503-281-4123 [email protected]
BEND Information: No Meeting Phone Support Only Contact: Nena Close 541-419-6408(cell) 541-383-0302(work) [email protected]
List of Support Meetings & phone/email support
USA and Canada
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PENNSYLVANIA
TRI-STATE AREA Information: Non profit support group covering the tri-state area MSA NJ P.O. Box 773 Howell, NJ 07731 www.msanj.org Contact: Cynthia Roemer [email protected]
N.VERSAILLES Information: No Meeting Phone Support Only Contact: Carole Barber 412-678-8948 [email protected] PHILADELPHIA Information: No Meeting Contact: Liz Martin [email protected]
PHILADELPHIA Information: For persons with movement disorders Location: Pennsylvania Hospital Movement Disorder Center, 330 S. 9th Street, 2nd floor conference room. Philadelphia, PA 19107 Meeting Time: 3th Saturday of each month from 1:00pm to 2pm Facilitator: Christin Salemno 215-829-2347 [email protected]
YORK Information: No Meeting Phone Support Only
Contact: Thomas Fitzgerald 717-840-3830
PUERTO RICO
Information: No Meeting Contact: Alexis Brewer [email protected]
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USA and Canada
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RHODE ISLAND
CRANSTON Information: No Meeting Contact: Jan Gillis [email protected]
SOUTH DAKOTA
SIOUX FALLS
Information: No Meeting Phone Support Only
Contact: Dawn Koenig 605-759-6740 [email protected]
TENNESSEE
TULLAHOMA Information: No Meeting Phone Support Only Contact: Marilyn Morris 913-455-3108 [email protected]
FAIRFIELD GLADE Information: PD & Movement Brian disorder Support Group (PD,MSA, ET,PSP,CBD)
Location: Christ Luthern Church Fellowship Hall 481 Snead Dr. Fairfield Glade, TN Meeting Time: 1st Tuesday of each month at 2:30 pm Facilitator: Gary & Sally Dixner 931-484-0193
TEXAS
ARLINGTON Information: No Meeting Phone Support Only Contact: Barbara Selleck 817-469-6044 [email protected] HOUSTON Information: For patients/families with PSP, CBD, MSA, LBD Location: Memorial Hermann SW Hospital, Houston, TX, Learning Center B, Professional
Building II Meeting Time(s): 3rd Saturday of each month (except July and December) at 1:00pm Facilitator: Karen Kennemer 281-358-2282 [email protected]
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USA and Canada
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DALLAS Information: For PSP/CBD/MSA patients and caregivers Location: Texas Health Resources University (THRU) building, Room 111 Meeting Time(s): 3rd Saturday of the month (except August) from 10:00am - 11:30am Facilitator: Kathryn MacDonell 214-908-4793 [email protected] SEYMOUR Information: For patients & caregivers affected by MSA,PSP,CBD & Atypical PD+ Location: Baylor Country Extension Building 500 N. Main Street Seymour ,TX 76380 Meeting Time: 3rd Monday of each month from 4:00pm-5:30pm Facilitator: Sis Hammack 940-889-6638 [email protected] SAN ANTONIO Information: No Meeting Phone Support Only Contact: Sharon Sutton 210-296-4619 [email protected] Candice Valenta 210-912-4530 [email protected]
VERMONT
BURLINGTON Information: For caregivers of Parkinson's with mild cognitive impairment and Parkinson's Plus syndromes Location: Varies; contact facilitator for info Meeting Time(s): Varies; contact facilitator for info Facilitator: Janice Clements 802-862-7464 [email protected]
VIRGINIA
AMISSVILLE Information: Will meet with people if they want to travel to Amissville or will meet at other’s home if accessible and can arrange a time and date to have a meeting Contact: Bill Werre 540-937-6092 [email protected] ANNANDALE Information: For patients, caregiver, and families dealing PSP,CBD, MSA and Atypical PD Location: George Mason Regional Library, 7001 Little River Turnpike, Annandale, VA 22003 Meeting time: 2nd Thursday of every month from 7:00pm -9:00pm Facilitator: Kristin Washington , 709-256-3800 [email protected]
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VIRGINIA BEACH
Information: No Meeting Phone Support Only
Contact: James (Jim) Alvaro 757-430-2237 [email protected]
WASHINGTON
SPOKANE Information: For patients/caregivers with PSP/CBD but supports other neurodegenerative diseases Location: Contact facilitator for info Meeting Time(s): Contact facilitator for info Facilitator: Mary Anne Memminger 509-921-6645 Jim Barron 509-332-6053 [email protected] SEATTLE Information: For Patients/Caregivers with MSA Location: Virginia Mason Medical Center 1201 Terry, Seattle, WA Change location starting January 2014 to Exeter House 720 Seneca St. Seattle ,WA
Meeting Time: 4th Monday of each month at 11:00 am Contact: Carin Mack 206-230-0166 [email protected]
WEST VIRGINIA
BECKLEY Information: For patients, caregivers, and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disorders Location: Offices of Dr. Rhonda Guy, 424 Stanaford Road, Beckley, West Virginia Meeting Time(s): 3rd Saturday of every month from 1:00pm - 3:00pm Facilitator: Jean Johnson 304-573-3284 [email protected]
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USA and Canada
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MARTINSBURG
Information: No Meeting Phone Support Only
Contact: Shelli Hannon Kuhn 717-830-6199 [email protected]
WISCONSIN
MILWAUKEE
Information: Phone Support, but looking for interest for a support group.
Location: Milwaukee or the surrounding areas
Contact: Aaron Kittson 715-470-2007 [email protected]
WYOMING
JOHNSTOWN/LOVELAND (COLORADO)
Information: Neurodegenerative disorder (MSA,PSP,CBD)
Location: Northern Colorado Rehabilitation Hospital, 4401 Union Street, Johnstown/Loveland,
CO 80528
Meeting Time: 1st Friday of each month from 1:00 pm - 3:00pm
Facilitators: Ruth Fletcher-Carter 970-532-2681 [email protected]
CANADA
ALL PROVINCES
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Information: No Meeting – Email and Website for MSA information only
Multiple System Atrophy Awareness Website: www.MSAawareness.org
“Spreading awareness worldwide”
Contact: Pam Bower [email protected] or [email protected]
ALBERTA
FORT MCMURRAY
Information: No Meeting Phone Support Only - Contact for the northern region of Alberta
Contact: Iris Kirschner 780-792-7732 [email protected]
BRITISH COLUMBIA
SIDNEY
Information: No Meeting Phone Support Only
Contact: Ann Jeffrey 250-656-9799 [email protected]
NOVA SCOTIA
HALIFAX
Information: No Meeting – Email and Website for MSA information only
Contact: Pam Bower [email protected] or [email protected]
Website: www.MSAawareness.org
ONTARIO
HAMILTON
Information: No Meeting Phone Support Only
Contact: Bonnie Llewellyn 905-979-8254 [email protected]
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USA and Canada
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BURLINGTON
Information: For patients, caregivers, and families dealing with PSP/CBD/MSA and other atypical
Parkinsonian disorders
Location: Appleby Place Retirement Residence, 500 Appleby Line, Burlington, ON
Meeting Time(s): 1st Thursday of every month from 6:30pm - 8:30pm (beginning October 3,
2013)
Facilitator: Kimberley Adrovez 905-296-1095 [email protected]
KINGSTON
Information: For patients and families affected by PSP, CBD and MSA
Location: Legion 560 (Fireside Room), 734 Montreal Street, Kingston, ON (free parking and
handicap accessible)
Meeting Time(s): 1st Thursday of every month from 6:00pm - 8:00pm beginning August 1, 2013
Facilitator: MJ Overby 613-531-2685 [email protected]
TORONTO Information: For care partners of PSP/CBD/MSA patients; hosted by Parkinson Society of Central & Northern Ontario Location: 4211 Yonge Street, Suite 321, Toronto, ON Meeting Time(s): 3rd Wednesday of every month from 6:15pm – 8:00pm Facilitator: Robert TerSteege 416-227-3372/ 1-800-565-3000 x3372 [email protected]