losing weight...voices of success

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ISM Institute for Social Marketing Losing weight: Voices of success in the BeWEL study Martine Stead Institute for Social Marketing University of Stirling

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Page 2: Losing weight...voices of success

Why BeWEL? • Adenoma (polyp) increases risk of colorectal

cancer • While adenoma is treatable, underlying risk

factors can lead to recurrence. • Evidence that weight loss decreases risk of

adenoma recurrence (as well as risk of diabetes and related conditions)

Adenoma detection and treatment is a ‘teachable moment’ when patients may be particularly receptive to lifestyle change?

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•Annie Anderson (PI) •Robert Steele • Shaun Treweek • Jill Belch • Fergus Daly

University of Dundee

• Jane Wardle

University College London

•Anne Ludbrook

University of Aberdeen

•Martine Stead • Jennifer McKell •Douglas Eadie

University of Stirling

MRC National Prevention Research Initiative:

• Joyce Thompson • Jackie Rodger

NHS Tayside

•Tayside: Robert Steele •Ayrshire & Arran: Robert Diament • Forth Valley: Wilson Hendry •Greater Glasgow and Clyde: Derek Gillon

NHS Site Collaborators

•Alison Kirk

University of Strathclyde

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Study Design • 3 year RCT (2010-2013) • 4 NHS sites • n=316 patients randomised (158

per group) to: – 12 month BeWEL intervention – Or usual care

6 months 24 months 6 months

Pre-trial development

Recruitment, data collection & intervention

implementation

Final data collection, analysis &

interpretation

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Formative research

• Patients need to: – Be aware of the risk factors for adenoma – Be able to relate these to personal behaviours – To have a shared and accepted understanding of

lifestyle and CRC

• Importance of consultant endorsement

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Intervention Design

• Three home visits by lifestyle counsellor • Monthly telephone contacts for next 9 months

Baseline 12 months 3 months

3 Face-to-face consultations

9 telephone consultations

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Counsellor Approach

• Use current behaviours (based on diet recall and accelerometer data) to start discussion

• Identify areas of success vs. difficulties • Identify implementation intentions in terms of

‘What’, ‘Where’ and ‘When’: – eg. DIET: decreasing sugary drinks, red meat portions,

chocolate / confectionery or increasing water intake, vegetable intake, low fat dairy products

– eg. PA: increased movement at work at leisure or in the home or decreased inactivity at work, TV watching, sleep time

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Outcome Measures

• Change in body weight (not adenoma recurrence)

Primary outcome

• Change in: • Waist circumference • Cardiovascular risk factors (BP, lipids) • Metabolic risk factors (glucose, HbA1c, insulin) • Dietary intake (DINE) • Physical activity (Accelerometry) • Self assessed general health (SFQ12) • Self-efficacy

• Programme acceptability to participants and staff • Intervention cost

Secondary outcomes

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Baseline and clinical characteristics at randomisation Intervention

(n=163) Control

(n=166) All

(n=329) Age (years)

Range

63.5 ± 7.0

50 – 75 63.6 ± 6.7

50 – 75 63.6 ± 6.8

50 – 75

Male gender 120 (73.6%) 123 (74.1%) 243 (73.9%)

Employment status

Retired

Employed full-time

Employed part-time

Unemployed

Other

90 (55.2%)

45 (27.6%)

18 (11.0%)

2 (1.2%)

8 (4.9%)

97 (58.4%)

41 (24.7%)

14 (8.4%)

10 (6.0%)

4 (2.4%)

187 (56.8%)

86 (26.1%)

32 (9.7%)

12 (3.6%)

12 (3.6%)

SIMD* (quintiles)

1 (most deprived)

2

3

4

5 (least deprived)

25 (15.3%)

33 (20.2%)

26 (16.0%)

39 (23.9%)

40 (24.5%)

29 (17.5%)

28 (16.9%)

33 (19.9%)

45 (27.1%)

31 (18.7%)

54 (16.4%)

61 (18.5%)

59 (17.9%)

84 (25.5%)

71 (21.6%)

Data are mean ± SD or number (%) unless stated otherwise. *Scottish Index of Multiple Deprivation

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Primary Outcome: Body Weight Reduction

[under review, please don’t quote results without permission]

• For more details please contact Professor Anderson on [email protected]

Page 12: Losing weight...voices of success

Primary Outcome: Body Weight Reduction

[under review, please don’t quote results without permission]

For more details please contact Professor Anderson on [email protected]

Page 13: Losing weight...voices of success

Weight change in intervention and control groups at 12 months

• For more details please contact Professor Anderson on [email protected]

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Feelings About Weight Loss: Qualitative interviews [under review, please don’t quote results without permission]

Changes to routine produced instant change for some “I couldn’t believe how it was coming off, just going out they walks”. “The weight they asked me to lose was seven percent of your body weight, I think I done that in the first two months”.

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For some, self-monitoring provided structure and incentive

“I really was proud of myself coming back from holiday. I weighed myself and I thought I’ve not put anything on. … I’m surprised at how well I’ve done. That was a surprise. I really thought oh, will I make it? But I am surprised that I have stuck to it, more than what I did when I went to Weight Watchers”.

“I liked the fact that it gave me motivation to look after myself better. I liked the fact that it gave me goals. I liked the fact that when I would go on the scales on a weekly basis and I had maybe just lost that wee bit, the thrill it gave me. Oh you dancer! [There was one time] they were a wee bit disappointed with my exercise levels at that time, and I was disappointed myself … so I made sure it didn’t happen again”.

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“I’ve still got young grandweans and I like taking them to the park. I actually go on the slide. When I was heavier I wouldn’t, for fear of breaking it. The first time I did it I fell off it and I thought how silly. But I can do all these things now and I feel healthier in myself. The likes of walking up and down the brae there, I couldn’t even do that brae. … I must have stopped two or three or four times going up that brae. And now I just start at the bottom and walk right up”.

Tangible everyday benefits:

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Some were less driven but still made progress on their own terms: “ [The counsellor’s] advice was brilliant but I feel fine at twelve stone. I don’t want to go to eleven stone. … I told them, I’m perfectly happy with twelve stone. If I can keep to that I’ll be a happy man”.

Ill-health hindered progress for some: “I was alright for a day or two and then I would revert back… a combination of things I suppose. Not having the willpower and the frustration of not being able to do things as well, didn’t help - a combination of different things. … I was disappointed in myself and obviously for these people who were making the effort to do something for you. I was a bit disappointed to let them down as well”.

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Why did some people do particularly well?

• Looking at weight loss ‘super achievers’ (7% and more) might yield useful insights into:

– The types of people who respond best to weight loss programmes, and in what circumstances

– The contexts and ways of engagement with weight loss programmes associated with success

– The types of support which might best foster success

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Analysis of super-achievers (n=33) vs. the rest

• No differences in demographic characteristics • More likely to have attempted weight loss in past (0.002) • Less likely to rate their health as limiting their activities (0.05)

– both physical and emotional (0.03-0.008) • No differences in beliefs about risk/preventive factors, or in

confidence in ability to make changes

• Spent significantly more time in daily exercise (in general, moderate activity and step count, p<0.005-001)

• Consumed significantly less fat (0.02) and more F&V (0.005)

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‘Joe’, 70 • One of highest levels of weight loss in the study. • “I mean I am seventy, if I don’t do it now when would I …? You can’t keep

putting it off for ever, you would be lying there in a box”. • Worked and played hard – approached BeWEL in same spirit: “Once I make up

my mind to do something, I usually do it”. • Extensive changes to diet; noticed food labels for first time in his life (“pain in

the butt” when shopping); adopted regime of daily walking. • Didn’t waste energy on changes to which he was not committed (“Brown rice,

I’d rather jump out the window than eat brown rice”), but wasn’t fanatical • Developed strategies for managing temptation. • Appreciated support of his wife and the counsellor, but not dependent on it:

“There was a sense that you had a responsibility to do it honestly and you know, there is no point in doing it if you are not going to try to get something out of it … … the ‘I wish’ crowd, they get on the scale and … they say ‘I wished this morning I was ten stone instead of fourteen’, well you can wish all you want … You have to put the effort in or it’s not going to happen”.

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• Motivated by family history of bowel cancer. • Low self-esteem: a ‘blob’, a ‘wee fat woman in a coat’. Prone to putting

family first: “If Alec was at home I’d make a meal, but if it was just me, I didn’t see the point of making for just me”.

• Experience of BeWel was revelatory, resulting in extensive changes not only to lifestyle but to how she understood and perceived herself.

• Gained in confidence which in turn motivated changes to diet and activity: swimming 2-3 times a week, walking, kick-boxing class. “I started doing more for me as a person. Before it, I never really looked at me as a person”.

• Allowed herself lapses, ‘moderation’.

• Felt warmly towards study staff and their empathetic approach which she saw as distinguishing BeWel from a diet regime.

• Little support from family & friends, but took pleasure in others’ recognition of changes: “People that I’ve known for ages, maybe through my work or through when I was younger, would stop and say you are looking good.”

‘Liz’, 60

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• Not a big decision; coincided with personal desire to lose weight. • Acknowledged BeWel as a ‘kick start’ to subsequent weight loss but

deliberately balanced it with examples of her own influence: already attending Zumba, recent successful smoking cessation: “I was really being very strong willed at that point in time. I’d mastered the smoking which had really – I thought if I can do the smoking, I can definitely get rid of the weight”.

• Less extensive changes to diet than some, largely switching to lower fat variants. Continued to eat favourite high fat foods but as occasional ‘treats’.

• Despite exceeding agreed weight loss goals, felt frustrated when rate slowed: “She said ‘oh don’t worry about that. You’ve got a plateau and it will –’ but … I couldn’t get below that again, which annoyed me”.

‘Aggie’, 67

• Positive but limited relationship with lifestyle counsellor; more enthused by aids such as weighing scales and pedometer: “The pedometer…. that was good for me. If I came home at night and I thought, oh no, I’d make myself go out another walk come back and oh no, away again, to try and get the number of steps up. That did help”.

• Little support from family.

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• Explicitly mentioned adenoma avoidance as motivation for participation

• Knowledgeable about the study, knew all study team by name. “Religiously” recorded his steps and weight every day and time/speed on treadmill.

• Like Joe, became a calorie expert. Increased intake of rice & pasta; switched to lower fat bread & dairy; reduced intake of red meat, biscuits, fried food; cut down alcohol - designated driver for his group of male friends.

• Receptive and open-minded to counsellor’s “wee tips”.

• Regular frequent contact with counsellor –requested two-weekly phone calls after the home visits. Attributed successful weight loss to frequent contact & not wanting to let her down: “I said well I’d prefer every two weeks because it gives me that wee incentive to say to Kath oh I’ve lost another pound or something like that or a couple of pound you know … and it made me feel good because I wanted to lose it and she was helping me to lose it you know”.

• Like Aggie, had managed to quit smoking quite easily; previous experience of exercise group recommended by GP.

‘Ken’

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So, what can we conclude about factors associated with ‘super achievement’?

No particular patterns in:

• Socio-demographic profile

• The particular trigger for participation

• Beliefs and knowledge regarding risk and prevention

• Family/partner support

• Dependence on/relationship with counsellor

• Access and resources

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• Large changes to levels of exercise that became routine, especially daily walking

• Wide-ranging diet changes but incorporated on own terms, allowing for ‘unhealthy’ foods in moderation

• Sense of responsibility to self and inner determination, plus dissatisfaction with status quo

• Motivated by early experience of success

• Drew on previous experience of successful change

• Receptivity & flexibility to new info and advice

But, some common themes

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Conclusions • Losing weight is achievable

• For some, considerable amounts were lost, weight loss was sustained and even increased over time

• No demographic sub-group was more associated with success – all groups can potentially do well

• Weight loss brought other benefits, ranging from heightened interested in food through to transformatory change in emotional health and self-image

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• Triggers for involvement differ • Patients have different needs in terms of counsellor

contact and input: the key is individual tailoring • Harness previous experiences of successful change

or self-transformation • Try to make changes routine (esp PA)

but permit moderation and lapses • Try to create early experiences of

success

Implications for interventions