maharashtra arogya mandal’ s sickle cell project … arogya mandal’ s sickle cell project...

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Maharashtra Arogya Mandal’ S Sickle Cell Project Activities of January to March 2016 Project Report Maharashtra Arogya Mandal (MAM) conducted free sickle cell health checkup and diagnostic camp from 23 rd to 27 th January 2016. During the journey from Pune to Dhadgaon we had medical checkup and medicinal kit was given to our 10 old diagnosed sickle cell patients from Dhule and Jalgaon districts at Shankar Mandir, Dhule, Maharashtra. On Sunday 24 th January 2016, 421 old diagnosed sickle cell patients were clinically examined and were given free medications. Also screening (blood testing) of new 122 tribal individuals was done among which 67 were diagnosed as carriers and 23 patients were identified as sufferers. Advice and counseling regarding the dietary and behavioral regime was given to both old and new patients. The carriers were provided with counseling, emphasis was given on pre/ post marital guidance. The 32 individuals were diagnosed as normal (without sickle cell disease) were also guided for this socio-medical problem. On 25 th January 2016 (Monday), 356 old patients were clinically examined and provided with free medications and 39 new tribal individuals were screened for sickle cell disease. In newly screened 12 patients were diagnosed as (diseased) sufferers and16 were diagnosed as carriers and 11 individuals were diagnosed as normal i.e. without sickle cell. In these 5 -6 years we have observed that more than 350 patients from adjoining states of Madhya Pradesh and Jalgaon District visit our center. Every time the patient has to come along with his family. This was a costly affair for poor tribal sickle cell patients. Taking in to consideration we thought about establishing of similar center in nearby areas of Jalgaon and Madhya Pradesh. To verify this we conducted free sickle cell screening camps on 14 th and 15 th February 2016 in Balwadi (M.P.), Vaijapur village( Jalgaon District). In this we found a high prevalence of sickle cell. During this screening program we screened 555 tribal individuals and found that 150 tribal were sickle cell carriers and 23 were sickle cell patients.

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Maharashtra Arogya Mandal’ S Sickle Cell Project

Activities of January to March 2016 Project Report

Maharashtra Arogya Mandal (MAM) conducted free sickle cell health checkup and

diagnostic camp from 23rd

to 27th

January 2016.

During the journey from Pune to Dhadgaon we had medical checkup and medicinal kit

was given to our 10 old diagnosed sickle cell patients from Dhule and Jalgaon districts

at Shankar Mandir, Dhule, Maharashtra.

On Sunday 24th January 2016, 421 old diagnosed sickle cell patients were

clinically examined and were given free medications.

Also screening (blood testing) of new 122 tribal individuals was done among

which 67 were diagnosed as carriers and 23 patients were identified as

sufferers. Advice and counseling regarding the dietary and behavioral regime

was given to both old and new patients. The carriers were provided with

counseling, emphasis was given on pre/ post marital guidance. The 32

individuals were diagnosed as normal (without sickle cell disease) were also

guided for this socio-medical problem.

On 25th January 2016 (Monday), 356 old patients were clinically examined and

provided with free medications and 39 new tribal individuals were screened for

sickle cell disease. In newly screened 12 patients were diagnosed as (diseased)

sufferers and16 were diagnosed as carriers and 11 individuals were diagnosed

as normal i.e. without sickle cell.

In these 5 -6 years we have observed that more than 350 patients from

adjoining states of Madhya Pradesh and Jalgaon District visit our center. Every

time the patient has to come along with his family. This was a costly affair for

poor tribal sickle cell patients. Taking in to consideration we thought about

establishing of similar center in nearby areas of Jalgaon and Madhya Pradesh.

To verify this we conducted free sickle cell screening camps on 14th and 15th

February 2016 in Balwadi (M.P.), Vaijapur village( Jalgaon District). In this we

found a high prevalence of sickle cell. During this screening program we

screened 555 tribal individuals and found that 150 tribal were sickle cell carriers

and 23 were sickle cell patients.

In this camp patients were given guidance and treatment with counseling. Also Carrier

individuals were guided with counseling session.

In March a similar camp was conducted at Dhadgaon District Nandurbar on 26rd

March to 28th March 2016.

During this camp International Sickle Cell Scientist Dr. Graham Serjeant M.D.

(Medicine) Chairman Sickle Cell Trust Jamaica and Mrs. Beryl Serjeant visited our

Centre. They guided us about the treatment. Also Dr. Graham Serjeant examined

some critical cases.

On 27th March Dr. S.F.Patil (Former Vice Chanceller North Maharashtra University)

and President of Maharashtra Arogya Mandal visited Sickle Cell Community Control

Centre at Dhadgaon. On the next day 28th March 2016 we had a gathering of patients

and offered a memory prayer on occasion of Death Anniversary of Founder Secretary

Late Dr. Dada Gujar. We also distributed fruits of this occasion to sickle cell patients

and relatives.

During this camp totally 923 tribal Individuals were benefitted. In two days camp we

checked 705 old patients and screened 218 tribal people. In this camp we found 53

sickle cell patients and 110 sickle cell carriers.

We offered services like counseling sessions, medical checkup and guidance free of

cost in our program.

As our organization has a aim to serve the needy strata of the society and looking at

the increasing number of patients from Madhya Pradesh (>350) we were planning to

have a similar community control program center in adjoining of Jalgaon district and

Madhya Pradesh.

Our Secretary planned to establish a similar center in nearby areas of Jalgaon. This

planning was explained to all the committee members and Dr. Dada Gujar Sickle Cell

Centre was established at Chopda Dist Jalgaon on 29th March 2016 .

This Centre was inaugurated by International Sickle Cell Scientist Dr. Graham

Serjeant. During this occasion Maharashtra Arogya Mandal’s President Dr. S.F.Patil,

Executive committee member Dr. Suresh Patil, Pediatrician Dr. Jayant Patil, Dr. Arun

Mahajan, Dr. S.L.Kate (Head Sickle Cell Project) Dr. Jyotish Patel and Dr. Raosaheb

Jadhav were present.

Also Doctors and sickle cell patients along with their relatives from the vicinity of

Chopda Block Dist. Jalgaon Maharashtra (21.25 N and 75.3 E) were presented on this

occasion. Dr. Premchand Mahajan (Pathologist) anchored the entire ceremony.

During the inauguration Dr. Graham Serjeant said “ Maharashtra Arogya Mandal is a

medico-social organization which has always viewed the needs of tribal community,

particularly health problems I wish this Centre will also be a same community control

program similar as Dhadgaon and will be useful for patients from nearby areas”.

A laboratory providing diagnostic facilities for sickle cell was inaugurated by Mrs Beryl

Serjeant.

After this we had a diagnostic and treatment camp on 29 March 2016. In this totally

65 old patients were medically examined and treated, Also New 34 individuals

screened in which we found 14 sickle cell patients and 9 sickle cell carriers.

We are thankful to all our donors who encouraged us to work for tribal health

problems and support us through e-social media of global giving.

This is all because of your kind support and help.

Thanking You

Mr. Anil Gujar

Secretary

Maharashtra Arogya Mandal

Malwadi

Hadapsar

Pune-28

[email protected]

Dhadgaon Camp Sickle Cell January 2016 Report Summary

Chopda Camp February 2016 Summary

Dhadgaon Camp Sickle Cell March 2016 Report Summary

Sr.No Date Place Old Patients

New Indivduals tested

A+A A+S S+S

1 23/1/2016

Dhule 10 - - - -

2 24/1/2016 Dhadgaon 421 122 32 67 23

3 25/1/2016 Dhadgaon 356 39 11 16 12

Total Beneficiaries

787 +161 = 948

787 161 43 83 35

(Total Patients = 787 + 35 = 822

Sr.No Date Place Total Populatio

n Screened

A+A A+S S+S

1

14/02/2016

Balwadi

290 198 78 14

2 15/02/2016 Vaijapur Girls Hostel

170 125 44 1

2 15/02/2016 Vaijapur Village and periphery

95 59 28 8

Total 555 382 150 23

Sr.No Date Place Old Patient

s

New Indivdual

s tested

A+A A+S S+S

1 26/3/2016

Dhule 6 - - - -

2 27/3/2016 Dhadgaon 340 174 40 87 47

3 28/3/2016 Dhadgaon 359 44 13 23 6

Total Benefici

aries

705+ 218 = 923

705 218 53 110 53

(Total Patients = 705 + 53 = 758

Chopda Camp Sickle Cell March 2016 Report Summary

Sr.No Date Place Old

Patients

New

Indivduals tested

A+A A+S S+S

1 29/3/2016

Chopda 65 34 11 9 14

Total

Beneficiaries

65 + 34 = 99

Total Patients

65 + 14= 97

Photos

Health Check Up At Dhule

Visit of International Sickle Cell Scientist Dr. Graham Serjeant and Mrs Beryl

Serjeant at Dhadgaon discussion with Doctors Team

Visit of International Sickle Cell Scientist Dr. Graham Serjeant and Mrs Beryl

Serjeant at Dhadgaon discussion with Doctors Team in laboratory

Visit of Dr. S.F.Patil in Sickle Cell Laboratory Dhadgaon Dist, Nandurbar

Patients Meeting and Memory Prayer for Founder MAM Dr. Dada Gujar March

2016

Inauguration of our new Centre by International Sickle Cell Scientist Dr. Graham

Serjeant at Chopda Dist Jalgaon Beneficial for Sickle Cell Tribal Patients from

Jalgaon and adjoining state Madhya Pradesh

Inauguration of our new Laboratory by Mrs. Beryl Serjeant at Chopda Dist

Jalgaon