making aDiFFereNceCRC Conference 21-23 March 2018

Clontarf Castle, Dublin

Preconference Symposia Gait Analysis Course ATSS Course GMFM – Physiotherapy

DAY 1 Wednesday 21st March

DAY 2 Thursday 22nd March

PROVISIONAL PROGRAMME

08:00 Registration

08:45 Welcome and Introduction

09:00 Plenary Session: Neurological and developmental disability at 10 years of age, following extremely premature birth

Prof Neil Marlow, Professor of Neonatal Medicine, UCL

09:45 Establishing Aetiology of CP Prof Mary King, Consultant Paediatric Neurologist, CUH

10:30 Transdiagnostic and dimensional approaches in neurodevelopmental disorders Dr. Michael Absoud, Consultant in Paediatric Neurodisability, London

11:15 Coffee

11:45 Importance of Early Diagnosis and Intervention in Children with Cerebral Palsy Betty Hutchon, Consultant NDT Therapist, UCL Hospitals

12:15 International Clinical Guidelines for Early Detection and Neurorehabilitation of infants with CP– evidence and opportunities

Dr Domenico Romeo, Paediatric Neurology Unit, Catholic University, Rome

12:45 Parental Goal-setting and ICF Jennifer Carroll, Bobath Children’s Therapy Centre, Wales

13:30 Lunch

Parallel Session One:

Neuromuscular Disease Parallel Session Two:

From Psychological Distress to Successful Adaptation

Parallel Session Three:

Upper Limb Symposium

14:30 Clinical Trials and treatmentupdate in DMD and SMA

Dr Declan O’Rourke, Paediatric Neurologist, CRC

Neuromuscular Integratedclinical care pathway

Margaret Rafferty, ICPNMD Project Co-ordinator

Development of an IrishPaediatric NeuromuscularNetwork Service

Andrea Tobin, NM Team Co-ordinator, CRC

Neuromuscular OutcomeMeasures

Grainne Nic Fhirleinn, Physiotherapist, CRC

14:30 Adolescent Perceptions of Disability Dr Fiona Snyder, Paediatric Neuropsychologist, Chailey Clinical Services

15:15 Behavioural Psychology in PhysicalDisability Settings Elaine Mellotte, Behavioural Psychologist, CRC

15:30 Managing Anxiety in the Context ofPhysical DisabilityDr Claire Conlon, Clinical Psychologist, CRC

15:45 Parents Plus, The Early Years ParentingProgramme: A Case StudyAoife Timothy, Principal Social Worker, CRC

16:00 Sleep Issues in Children withNeurodevelopmental Disabilities -Prevalence and Management from anOccupational Therapy and PsychologyApproachCaroline Kiernan, Senior OccupationalTherapist, CRC

Dr. Eva Pontén Paediatric OrthopaedicSurgeon/Hand Surgeon, KarolinskaUniversity Hospital, Stockholm,Sweden

Bimanual hand development ininfants: what, when and how toassess?

Edel O’Neill, Senior OccupationalTherapist, Clinical Lead Hand TherapyClinic, CRC

Effectiveness of early interventionon bimanual development: casestudy presentations

Tamsyn Brown and Edel O’Neill, SeniorOccupational Therapists, Hand TherapyClinic, CRC

Group outcomes for school agedchildren with Unilateral CerebralPalsy – findings from amultidisciplinary approach

School Aged Occupational Therapistsand Physiotherapists, CRC

16:30 Drinks Reception

DAY 3 Friday 22rd March

08:30 Registration

09:00 Plenary Session: Transition to Adulthood for Young People with Hemiplegic Cerebral Palsy

Michelle Spirtos, Assoc Prof OT, TCD

09:30 Supporting Adults with Cerebral Palsy Rachel Glennane, Human Rights Project Officer, CRC

10:00 Coffee

Parallel Session One:

Medical and Surgicalinterventions

Parallel Session Two:

eating, Drinking and Swallowing Difficulties

Parallel Session Three:

clinical Services forAdults with cerbral Palsy

- The crc Approach

10:30 Cerebral Palsy Integrated Path-way Scotland – Rollout andChanges Mr. Mark Gaston, ConsultantOrthopaedic Surgeon, RHSC,Edinburgh and Ms. Laura Wiggins,Senior Physiotherapist, Glasgow

10:30 Management of ChronicAspiration in Children withNeurodevelopmental DisabilitiesMartina M Ryan, Specialist Speech andLanguage Therapist, Great OrmondStreet Hospital for Children NHSFoundation Trust

Topics:

Adults with Cerebral Palsy -Medical overview

Physiotherapy – fatigue,secondary musculoskeletalissues

Orthopaedic Issues in adults/ Clinical Case studies

Seating / posturalmanagement

Upper limb management

Speakers:

CRC’s Adult Clinical ServicesTeam

11:20 Complex Tone Management– Our Experience of SDR and ITB

CRC team

11:10 Navigating FEDS PolicyDevelopmentBronagh O’Hara, Clinical SpecialistSpeech and Language Therapist, CRCand Muireann McCleary, Speech andLanguage Therapy Manager, CRC

12:10 Current Approaches toManagement of DystoniaDr. Charlie Fairhurst, Consultant Paediatrician, Guy’s andSaint Thomas’s Hospital, London

11:40 Realities in Clinical Practice

FEDS team, CRC

12:15 Management of SialorrhoeaDr Louise Baker, Paediatric Consultant,CRC and Trish Morrison, Senior Speechand Language Therapist, CRC

12:45 Panel Discussion Panel Discussion

13:05 Lunch

Parallel Session One:

Orthopaedics

Parallel Session Two:

Augmentative and Alternativecommunication

Parallel Session Three:

clinical Services forAdults with cerbral Palsy

(cont.)

14:00 Orthopaedic Management throughChildhood: Clinical Issues andOutcomes.

Dr. Unni Narayanan, Consultant Orthopaedic Surgeon,Hospital for Sick Children, Toronto.

Identifying Appropriate SymbolCommunication Aids for Children whoare Non-speaking: Enhancing ClinicalDecision Making

Prof Janice Murray,Professor of Communication Disability,Manchester Metropolitan University

Topics:

Nursing Issues in Adults

Feeding, Eating, Drinking,Swallowing, Dietetics Issuesin Adults

Orthopaedic Issues in adults/ Clinical Case studies

Social/Psychological Issuesin Adults

Speakers:

CRC’s Adult Clinical ServicesTeam

14:45 Leg Length Discrepancy – Assessment and Management

Connor Green,Consultant Orthopaedic Surgeon, CRC

Becoming an Aided Communicator Prof Martine Smith, School of Linguistic, Speech andCommunication Sciences, TCD

15:15 Use of the Gait Laboratory to ProblemSolve in Cerebral Palsy

Rory O’Sullivan, Manager of GaitLaboratory and Gait Laboratory Team

EyePoint Project – Eye Pointing Classification Scale

Dr Michael Clarke, University College London

16:00 Panel Discussion Panel Discussion

16:30 Close of Conference

V: 02