October 21, 2012

7 – 8:30 pm

Welcome Session Intestinal Rehabilitation: Where We’ve Been and Where We’re Going. Laura Matarese , PhD, RD, LDN, FADA

1. Discuss the origins of Intestinal Rehabilitation. 2. Explain the three supporting pillars of Intestinal Rehabilitation. 3. Review the appropriate referral process to an Intestinal Rehabilitation Center.

Tom Ziegler, MD

1. Review the coordination of care management between medical and multidisciplinary nutrition support personnel.

2. Discuss new drug treatments to maximize absorption in SBS. 3. Review aspects of intestinal rehabilitation from the physician standpoint.

October 22, 2012

Breakfast on own in Dining Room

8 – 9 am New Medication Options for the Treatment of SBS Tom Ziegler, MD

1. Review the mechanism of teduglutide in the treatment of SBS. 2. Present the human trial data for teduglutide. 3. Discuss the anticipated benefits of teduglutide therapy.

9 – 10:15 am

Nutrient Modification for SBS

Glutamine- Enteral and IV

Malcolm Robinson, MD, FASC

1. Review the role of glutamine in the body. 2. Describe the bioavailability of parenteral glutamine product options. 3. Analyze the scientific evidence supporting use of parenteral and enteral

glutamine in Short Bowel.

Maximizing Health for the Short Bowel Consumer

October 21 – 23rd, 2012 Cliff House Resort, Ogunquit, Maine

Carnitine

Kris Mogensen, MS, RD, LDN, CNSC 1. Summarize two indications for the use of IV carnitine in adult patients. 2. Apply appropriate dosing recommendations for IV and enteral

carnitine supplementation in adult patients. 3. Interpret lab values to evaluate carnitine status in adults.

10:15 – 10:30 am Break

10:30 – 11:30 am CVL Access and Preservation in the Long-Term PN Patient Blanche Murphy, RN, BSN, CN IV, VA-BC

1. Present CVL catheter complications with corresponding images. 2. Review cases of CVL access challenges and interventions. 3. Summarize current CVL lock treatment and future strategies.

11:30 – 12:00 pm Self-Care in the Home PN Patient

Carol Cheney, RN, CNSC 1. Identify criteria for successful homecare independence in the long term PN

consumer. 2. Understand the importance of education in the homecare setting to achieve

independence in CVL care. 3. Review the incidence of infection in a self-care group compared to usual care.

12:00 – 1:00 pm Lunch in the Main Dining Room

1:00 – 2:00 pm Micronutrient Evaluation in SBS: Monitoring, Repletion and New Products Ed Saltzman, MD

1. Discuss the challenges of monitoring micronutrients in the PN patient. 2. Review repletion guidelines and protocols for the SBS patient. 3. Review future strategy and implementation for micronutrient preparations.

2:00 – 3:00 pm Working Around the Micronutrient Shortages Rex Speerhas, RPh and Karen Ackerman, RD

1. Outline the etiology of the drug shortages. 2. Present the ASPEN guidelines for working with drug shortages. 3. Review a drug shortage protocol and outcomes for SBS patients on PN.

3:00 – 3:30 pm Break

3:30 – 4:00 pm Consumer Centered Care Ann Weaver, Consumer Advocate

1. Identify common medical knowledge and skills HPEN youth need for successful self-care.

2. Review ways clinicians can support families to aid in self-care. 3. Examine control challenges families have and resolution strategies.

4:00 – 5:00 pm Quality of Life in SBS: Application of the Data

Marion Winkler, PhD, RD,LDN,CNSD 1. Describe the current QOL tools available for clinical use and their efficacy. 2. Review the data on Quality of Life in SBS and Long-Term PN patients. 3. Understand the application of the QOL data to our treatment of SBS patients.

5:30 pm Trolley Car boarding for dinner in Ogunquit

October 23, 2012

8 – 9 am

Breakfast in the conference room

9 – 10 am Intestinal Rehabilitation at Home: A closer look

Maria Karimbakas, RD, CNSC

1. Discuss the role of an appropriate diet in SBS management. 2. Describe an on-line educational program for SBS patients. 3. Understand the concept of a patient centered approach to PN weaning.

10 – 11 am Reimbursement Issues in Home Care

Deborah Pfister, MS, RD, CNSC and Speaker TBD

1. Review current reimbursement challenges for home PN therapy. 2. Discuss the future of HPN reimbursement relative to the current healthcare

initiatives.

11 – 12 noon Financial Outcomes in SBS: Intestinal Rehabilitation vs. Transplantation

Jonathan Fryer, MD 1. Review the outcome goals for an Intestinal Rehabilitation program. 2. Analyze the costs of Intestinal Rehabilitation vs. Intestinal Transplantation. 3. Discuss the future of Intestinal Rehabilitation and financial strategies to

ensure continued success.

12 noon adjourn and box lunch