mdsc resources 2010 (2)

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SUGGESTED RESOURCES for healthcare professionals 2010 MDSC Massachusetts Down Syndrome Congress (MDSC) Parents’ First Call Program Please feel free to call anytime 24/7 www.mdsc.org (800) 664-MDSC MDSC Family Support Director: Sarah Cullen E-mail: [email protected] Children’s Hospital Down Syndrome Program – sees families prenatally as well as children from birth to age 18 www.childrenshospital.org /downsyndrome (857) 218-4329 Prenatal Booklet for expectant families Understanding a Down Syndrome Diagnosis English and Spanish in same booklet – www.canisterbooks.com Brighter Tomorrows - An interactive tutorial to provide physicians with current knowledge about Down syndrome, as well as the communication tools to adequately support families and prospective parents at the point of the initial diagnosis of Down syndrome. www.brighter-tomorrows.org Online course through Harvard Medical School Dept of Continuing Education: Down Syndrome: Healthcare Updates for the Primary Care Pediatrician Down syndrome is the most common chromosomal condition in humans, but do you know the latest evidence-based medicine on how to best manage these patients? Much has changed since To access the course, please visit http://cmeonline.med.harvard.edu/course_descriptions.asp?Course_id=121

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Page 1: Mdsc resources 2010 (2)

SUGGESTED RESOURCES for healthcare professionals2010

MDSC

Massachusetts Down Syndrome Congress (MDSC)

Parents’ First Call Program

Please feel free to call anytime 24/7

www.mdsc.org

(800) 664-MDSC

MDSC Family Support Director: Sarah Cullen E-mail: [email protected]

Children’s Hospital Down Syndrome Program – sees families prenatally as well as children from birth to age 18

www.childrenshospital.org/downsyndrome (857) 218-4329

Prenatal Booklet for expectant families

Understanding a Down Syndrome Diagnosis

English and Spanish in same booklet – www.canisterbooks.com

Brighter Tomorrows - An interactive tutorial to provide physicians with current knowledge about Down syndrome, as well as the communication tools to adequately support families and prospective parents at the point of the initial diagnosis of Down syndrome.

www.brighter-tomorrows.org

Online course through Harvard Medical School Dept of Continuing Education:Down Syndrome: Healthcare Updates for the Primary Care PediatricianDown syndrome is the most common chromosomal condition in humans, but do you know the latest evidence-based medicine on how to best manage these patients? Much has changed since

To access the course, please visit http://cmeonline.med.harvard.edu/course_descriptions.asp?Course_id=121

Page 2: Mdsc resources 2010 (2)

medical school! Many healthcare guidelines and emerging literature are changing the way that individuals with Down syndrome are diagnosed, followed, and managed. Astute physicians can now detect associated conditions before they become symptomatic in an effort to maximize health care development. The goal of this course if to review the latest advances in healthcare management of children with Down syndrome so that primary care pediatricians and other interested health care professionals can provide exceptional care.

Prenatal Booklet for expectant families

Understanding a Down Syndrome Diagnosis

English and Spanish in same booklet – www.canisterbooks.com

National Down Syndrome Society www.ndss.org - Info in English and Spanish(800) 221-4602“A Promising Future Together” packet, which includes healthcare guidelines, is free to new parents from NDSS

National Down Syndrome Congress www.ndsccenter.org - Info in English and SpanishGrowth Charts and Circumference Charts www.growthcharts.com Down syndrome health issues www.ds-health.comDown Syndrome Educational Trust www.downsed.orgAdoption information DSAGC Adoption Awareness Program

www.dsagc.com/programs_adoption.asp Robin Steele at [email protected]