measurements for rating social participation slideworld
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Social participationDalemans RJP, de Witte L, Lemmens J, Wade D, van den Heuvel W. Measures
for rating social participation in people with aphasia: a systematic review. Clinical Rehabilitation. 2008;22(16):542-55.
What is social participation?
• International Classification of Functioning, Disabilityand Health (ICF) (WHO, 2001):
• In this study we define participation as:
`Participation is involvement in a life situation.`
`Participation is the performance of activities in social life
domains in interactions with others in the context in which
people live.`
Social lifedomains:
Domestic life
Interpersonal Relationships
Work
Community, civic life
based upon the publication: measures for rating social participation in people with aphasia, Clinical Rehabilitation, 2008
Why measuring social participation in people with aphasia?
People with a strokereturn to their homesafter a period ofrehabilitation. Therethey are oftenconfronted with asocial and physicalenvironment that isnot adapted to theirnew life situation.
based upon the publication: measures for
rating social participation in people with
aphasia, Clinical Rehabilitation, 2008
Why measuring social participation in people with aphasia?
Rehabilitation:
• Reactivation
reorganisation
compensation
• To get insight in the social
participation of people with
aphasia
How does the person with
aphasia participates in his
environment and how can we
facilitate social participation?
based upon the publication: measures
for rating social participation in people
with aphasia, Clinical Rehabilitation,
2008
How do people with aphasia participate?
A description of social participation in working age persons
with aphasia: a review of the literature
(Dalemans, R. et al., 2007 accepted):
• 1592 titles: 18 publications selected for further analysis:
• Methodological analysis:– Concepts are lacking or are vaguely described
– Measurement instruments are often self made
– Samples are often too small and select
– Controlgroups are lacking
based upon the publication: measures for
rating social participation in people with
aphasia, Clinical Rehabilitation, 2008
How do people with aphasia participate?
• Diminished participation in all social life domains:
O.a. losing jobs or return to an adjusted job, lose of authority, diminished contacts with friends, more leisuretime but less leisure time activities.
• Need for further research:
Use of a conceptual framework and reliable and validmeasurements
based upon the publication: measures
for rating social participation in people
with aphasia, Clinical Rehabilitation,
2008
Which instruments measure socialparticipation?
• Measuring:
– Actual performance
– activities
– In social life domains
based upon the publication: measures
for rating social participation in people
with aphasia, Clinical Rehabilitation,
2008
Which instruments measure socialparticipation?
• Systematic review: – 1960-2005, limits: English, electronic databases:
• Pubmed, Cinahl, Psychinfo, Cochrane
– Scored independently by three researchers using a three point-scale
2232 hits
77 relevant titles
35 measurement instruments
2 instruments through
communication with experts
37 measurement
instruments
12 measurement instruments measure
aspects of social participation as
defined
based upon the publication: measures
for rating social participation in people
with aphasia, Clinical Rehabilitation,
2008
Which instruments measure socialparticipation as defined?
7 instruments measure actual
performance:
Adelaide Activities Profile
Community Integration
Questionnaire
Craig Handicap Assessment and
Reporting Technique
Frenchay Activities Index
Nottingham Extended Activities of
Daily Living
Stroke Adapted Sickness Impact
Profile
Sickness Impact Profile
5 instruments measure actual
performance and perceived
problems (2 distinct scales):
Aachner Life Quality Inventory
Impact on Participation and
Autonomy
Life habits Questionniare
Participation Objective,
Participatio Subjective
Participation Scale
based upon the publication: measures
for rating social participation in people
with aphasia, Clinical Rehabilitation,
2008
Which instruments are possibly suitable for usein people with aphasia?
1. de uitspraken zijn voldoende kort geformuleerd
(max. 15 woorden per zin), max. 1 zin per regel
0/1/2/3
6. er wordt gebruik gemaakt van positieve taal
(ontkenningen worden vermeden in de stelling)
Inhoud totaal /30
11. Er wordt gebruik gemaakt van afbeeldingen,
foto`s
13. De antwoordkolommen zijn duidelijk van elkaar
gescheiden
Vorm totaal /12
Totaal /42
Comparison of a number of instruments scoredindependently by three researchers
CIQ: Community Integration Questionnaire, CHART: Craig Handicap Assessment, FAI: Frenchay Activities Index, NEADL: Nottingham Extended Activities of Daily Living
Which instruments are possibly suitable for use in people withaphasia according to speech and language therapists ?
Scores of 6 experts working daily with peoplewith aphasia:2 working in a rehabiliation setting, 2 working in a nursing
home, 1 working in a hospital, 1 working in a clinical practice
Which measurement instruments are possiblysuitable to measure social participation in people
with aphasia?
7 instruments measure actual
performance:
Adelaide Activities Profile
Community Integration
Questionnaire
Craig Handicap Assessment and
Reporting Technique
Frenchay Activities Index
Nottingham Extended Activities of
Daily Living
Stroke Adapted Sickness Impact
Profile
Sickness Impact Profile
5 instruments measure actual
performance and perceived
problems (2 separate scales):
Aachner Life Quality Inventory
Impact on Participation and
Autonomy
Life habits Questionniare
Participation Objective,
Participatio Subjective
Participation Scale
Two instruments are possibly
suitable: the CIQ measures
social participation as defined
based upon the publication: measures
for rating social participation in people
with aphasia, Clinical Rehabilitation,
2008