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Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic Affairs Professor of Psychiatry

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Page 1: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

Mental Health (Care) Systems

From the Lunatic Asylum to a “Modern” Mental Health System

Barbara A. Schindler, M.D.Vice Dean, Educational and Academic Affairs

Professor of Psychiatry

Page 2: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

Learning Objectives

1) Be able to describe the components of the mental health delivery system

2) Explain how mental health costs are covered3) Describe the overall burden of illness of mental

disorders4) Outline the barriers and limitations to obtaining

comprehensive mental health coverage5) Describe the disparities between the scientific

knowledge base of mental illness/treatment and how mental health care is actually delivered

Page 3: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

Costs of Mental Illness

Page 4: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

Global Burden of Illness

Percent of Total DALY’s*All Cardiovascular Conditions 18.6

All Mental Illness 15.4All Cancer 15All Respiratory Conditions 4.8All Alcohol Use 4.7All Infectious and Parasitic Diseases

2.8

All Drug Use 1.5*DALY’s=Disability Adjusted Life Years (Years lost to premature death or lived with disability) Murray & Lopez, 1996

Page 5: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

Leading Causes of Mortality and Burden of DiseaseWorld, 2004

%

1. Ischaemic heart disease 12.2

2. Cerebrovascular disease 9.7

3. Lower respiratory infections 7.1

4. COPD 5.1

5. Diarrhoeal diseases 3.7

6. HIV/AIDS 3.5

7. Tuberculosis 2.5

8. Trachea, bronchus, lung cancers 2.3

9. Road traffic accidents 2.2

10. Prematurity, low birth weight 2.0

%

1. Lower respiratory infections 6.2

2. Diarrhoeal diseases 4.8

3. Depression 4.3

4. Ischaemic heart disease 4.1

5. HIV/AIDS 3.8

6. Cerebrovascular disease 3.1

7. Prematurity, low birth weight 2.9

8. Birth asphyxia, birth trauma 2.7

9. Road traffic accidents 2.7

10. Neonatal infections and other 2.7

Mortality DALYs

Page 6: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

Ten leading causes of burden of disease, world, 2004 and 2030

Page 7: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

Leading causes of disease burden for women aged 15–44 years, high-income countries, and low-

and middle-income countries, 2004

Page 8: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Top Ten Causes of Disability Worldwide Include:

Unipolar Major Depression Bipolar Disorder Schizophrenia Obsessive Compulsive Disorder

Page 9: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Indirect & Direct Costs:

The Global Burden of Disease

Page 10: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Indirect Costs

$17 Billion loss in US economy $63 Billion morbidity cost $12 Billion mortality $4 Billion incarceration costs

Page 11: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Direct Costs

$943 Billion total direct treatment health care costs

$99 Billion for mental disorders ($69 Billion), addictive disorders ($13 Billion) and dementia ($18 Billion)

7% total spending only when leading cause of disability

Page 12: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Delivery of Mental Health Services

Providers & Sites

Page 13: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Delivery Systems from a Historic Perspective

Asylums (Colonial times)– Otherwise jails, almshouses, workhouses

Moral Treatment* (early-mid 1800’s-Dorothea Dix, Horace Mann))

Mental Hygiene Movement (Post-Civil War) with collapse of public asylums (no $’s & overcrowded)

State Care Acts (early 1900’s) States assume responsibility for care resulting in growth of state hospital system

General Hospital Inpatient Units (post WWII) Community Mental Health System (1960’s) Deinstitutionalization with change in commitment laws (1970’s) Medicare (SSD) and Medicaid (1965)*Return of individual to “reason” using psychologically oriented therapy

Page 14: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Current Mental Health/ Illness System Amalgamation/hybrid of public and private sector providers in variety of

sites, e.g. hospitals, clinics, pvt offices, ER’s, prisons, shelters, residential programs

No single guiding or organizing set of principles. What you can access depends a lot on what you can afford.– Fragmentation and gaps in care for children*– Fragmentation and gaps in care for adults with serious mental

illnesses*– High unemployment and disability for people with serious mental

illnesses*– Lack of care for older adults with mental illnesses*– Lack of national priority for mental health and suicide prevention*

*President’s New Freedom Commission on Mental Health (2002)

Page 15: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Patient Presentations Single Episode Recurrent episodes Seriously and persistently ill (Schizophrenia, Bipolar,

Major Depression, Anxiety disorders, Alzheimer’s, Substance Abuse or Dual Dx)

Responding to acute stressors/trauma Developmental disabilities Dementias/late onset brain failure Relationship problems Adaptation problems

Page 16: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Sectors of Care & Utilization by Sector(15% Adults Use System in any given year)

1) Specialty Mental Health Sector (5.5%)

2) Human Services Sector (5%)

3) General medical/primary care sector (5.5%)

4) Voluntary Support Network Sector (3%)

Page 17: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

1) Specialty Mental Health Services Sector

Psychiatrists Psychologists (Prescribing controversy) Psychiatric Social Workers Psychiatric Nurses Settings: Offices, clinics, private or

public hospitals, CMHC’s, prisons, other agencies, schools

Page 18: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

2) General Medical/Primary Care Sector

Internists Family Practice MD’s Pediatricians Consultation psychiatrists Social Workers Nurses PA’s Settings: Hospitals, offices, clinics, nursing

homes, hospices, prisons

Page 19: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

3) Human Services Sectors

Social Welfare System Criminal Justice System Educational, Religious, Charitable

services Settings: Shelters, prisons, boarding

houses, churches, schools

Page 20: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

4) Volunteer Network

Self-Help groups– AA, NA, Reach for Recovery, Zipper Club,

other medical Dx groups Public Awareness Fund Raising Lobbying for increased $$’s Examples; NAMI, NMHA, Bazelon

Center for MH Law

Page 21: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Delivery Systems : Public & Private

Page 22: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Sites of Care Based on Duration of Care

Acute– Private office or clinic– ER– Psychiatric unit of a general hospital– Psychiatric hospital – General Hospital scatter beds– Acute partial programs

Long Term– State hospitals– Mental health clinics– Residential programs (nurse, case managers)– Boarding Houses (nurse, case managers)– Home– Nursing home

Page 23: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Utilization of Services

Page 24: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Adult Utilization of Mental Health Services 28% US adult

population has diagnosable mental or Substance abuse disorder

1/3 patients receive MH services

Majority get no MH services

Page 25: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Child & Adolescent Utilization of Mental Health Services

21% Child and Adolescent Population utilize MH Services

9% in Health Care Sector

17% in Human Service Sector, mostly schools

Page 26: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Financing Mental Health Services

Page 27: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Funds for Mental Health Programs

State and local government major payers thru Medicare & Medicaid

Additional federal initiatives– CMHC Block Grants– Addiction Treatment Grants– Community Support Programs– PATH (homeless MI)– Comprehensive Mental Health Services for

children and their families

Page 28: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Source of Funding for Mental Health Services

Page 29: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Mental Health Payment Costs by Provider Type

Page 30: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Types of Accepted and Funded Treatment

Psychosocial– Psychotherapy: Cognitive/Behavioral,

psychodynamic, supportive– Group, individual, family, couples

Psychopharmacologic Both usually more effective than either

separately Split Treatment: challenge of dual treators

Page 31: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Cost Control Efforts

Hospital lengths of stays Increasing numbers of

inpatient beds Emergence of managed care in

non-psychiatric medical care and MH carve outs for MH services, usually inadequate MH benefits.

Formularies

Page 32: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Current Managed Mental Health System

Increasing enrollment MH and SA merged into Managed Behavioral Health

Organization (MBHO) mostly private (except Philadelphia=CBH) – Formulary & laboratory with medical MCO

Fewer MBHO’s with larger and larger contracts and increase financial difficulty

Both Medicare and Medicaid increasingly managed Tight control of access Higher co-payments in some plans

Page 33: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Quality And Management Efforts

Credentialing Access requirements Strong utilization review procedures Monitoring patient satisfaction System expected to maximize convenience for

patients Wait time for appointment specified NCQA developing behavioral health standards

Page 34: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Changes in Spending for Mental Health Services Over Past Decade

Declined as a % of overall health care Increased amount by public rather than

private payers (from 49% to 53%) Outpatient prescription drugs grew by 9%

(Usually covered under general medical expenses and only 1/3 Rxed by psychiatrists)

Increased barriers to service: stigma & vulnerable population

Page 35: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Parity: New Federal Law 2008 Passed Mental Health Parity and Addiction Equity Act of 2008.

Effective date: Jan 1, 2010; regulations to be developed Initial Mental Health Parity Act of 1996 ineffective Mental Health coverage at same level as physical health for

lifetime and annually No limits on hospital stays and physician visits; same co-pays

and deductibles Employers with fewer than 50 employees and individual

health policies exempt. Costs issues persist despite data; premiums up 0.4% 1999 Surgeon General: $70B direct business cost from lack of

parity: lost productivity from absenteeism & sick leave, increase use of health services.

Page 36: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

Caring Together ProgramA Dual Dx Program for Women and Their Children

Components– Intake evaluation, Psychiatric evaluation and

treatment, individual and group addiction treatment, specialized groups (TREM, Life Skills)

Staff: Psychiatrist, Social Worker, Addiction Counselors, Early Childhood Development Specialist, Case Manager,

Funding– CODAAP (Philadelphia) from Federal Grant to

State –Set aside $$’s for women’s and children’s programs (2/3 budget)

– 1/3 budget from clinical income thru CBH

Page 37: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Major Trends in Mental Health Care Last 25 Years

Explosion in scientific knowledge: brain and behavior; growth of NIMH budget

Increased range of effective treatments for most mental disorders

An approach to organization and financing of mental health services (MC carve outs, parity)

Emergence of powerful consumer and family groups decreasing stigma, increasing access and research

Influence of pharmaceutical industry

Page 38: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

Consumer Movement Books to Read

A Mind that Found Itself- Clifford Beers (1908) I Never Promised You a Rose Garden- Hannah

Green (1964) On Our Own- Judi Chamberlin (1978) Darkness Visible: A Memoir of Madness-

William Styron (1990) A Brilliant Madness: Living with Manic

Depressive Illness (1997) An Unquiet Mind-Kay Redfield Jamison (1997)

Page 39: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Challenges 15-20% population uninsured for MH services Lack of true parity for MH services (Law passed Oct 2008) Stigma Barriers to access Coordination of care for most seriously ill Managing split between primary care and mental health

treatment Integrating treatment when psychotherapy and

pharmacologic treatment split Informed consent for clinical trials Access to appropriate care e.g. MCO formulary

restrictions Non-compliance ( side effects, cost, stigma) Hopelessness associated with mood disorders

Page 40: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Take Home Messages

Ideal mental health system does not yet exist

Presidential Goals (2002)*– Understand that mental health is essential to overall

health– Mental health is consumer & family driven– Disparities in mental health services are eliminated– Early mental health screening, assessment, and referral

to services are common practices– Excellent mental health care is delivered and research

is accelerated– Technology is used to access mental health care and

information*http://www.mentalhealthcommission.gov/reports/FinalReport

Page 41: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

Take Home Messages

Leading cause of disability/morbidity & mortality but significant under funded when compared to other high profile illnesses, e.g. CVD, cancer

Split treatment increases costs to individual patients and society, but saves insurers $$’s

Sharp contrast between scientific knowledge base & ability to deliver quality mental health care to all in need.

Page 42: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

WHO Mental Health Gap Action Program

http://www.who.int/healthinfo/global_burden_disease/2004_report_update/en/index.html

Page 43: Mental Health (Care) Systems From the Lunatic Asylum to a “Modern” Mental Health System Barbara A. Schindler, M.D. Vice Dean, Educational and Academic

©2003-7 Barbara Schindler, MD DUCoM

Mental Health

A Report of the Surgeon GeneralExecutive Summary

DEPARTMENT OF HEALTH AND HUMAN SERVICES

U.S. Public Health Service

http://www.surgeongeneral.gov/library/mentalhealth/summary.html