Midlands Newborn Networks

Alex Philpott, SWMNN Education Lead

Jackie Stretton, SWMNN Lead Practice Educator

Kate Branchett. SWMNN Parent Representative

Network Launch of Integrated Comfort

Care Pathway (ICCP) - Overview

• The background to the development of an

ICCP for neonates

• Significant milestones in the development

• An overview of the structure

• Parent consultation and involving stakeholders

• The next steps

Background to ICCP

• Consensus across Midlands to produce

Integrated Comfort Care Pathway Guide for

neonates

– Ensure parity of care

– Allow staff moving between units to be familiar

with single pathway

– Based on recent publications

October 2010

Bid submitted on behalf of

Midlands Newborn Networks

by Mary Passant (Lead Nurse

SWMNN). DH funds received.

Midlands Neonatal Palliative

Care Steering Group Formed.

Scoping exercise begins.

July 2011

Final revisions made

Addition of final

section ‘symptom control’

following publication of ACT

guide (ACT 2011).

Circulated for final consultation.

Alex Philpott, Jackie Stretton

April 2011

A Parents’ online forum survey “What

Parents Want From Professionals?”

undertaken by Kate Branchett (Parent

Representative, Board Member

SWMNN).

Findings incorporated into revised

draft ICCP.

Draft scrutinized at regional

conference events in April and May.

Revised version circulated.

January 2011

ICCP template, based on

St.George’s Pathway, was

shared by Fran Wootton and

Sandra Lawley (SWBHT).

Temple developed to

incorporate BAPM, ACT and

BLISS guidelines. Circulated to

professionals in Midlands for

consultation.

October 2010 January 2011 April 2011 May 2011 July 2011 September 2011 May 2012

January to

May 2012

Case study

reports of

families

benefitting

from greater

choices.

September 2011

Document finalized

and circulated in the

Midlands.

Midlands Newborn Networks ICCP

Introducing The Midlands Neonatal ICCP (2011)

A patient record and care planning tool based upon the national guidance documents (BAPM, ACT, BLISS)

� Front sheet – demographic and personal details

� Section A – Antenatal care

� Section B – Postnatal care

� Section 1 – initial assessment

� Section 2 – end of Life Care plan

� Section 3 - ongoing assessment ( A & B)

� Appendix A – Review of goal 13 (resuscitative care)

� Appendix B – Symptom control (opioids)

Midlands Palliative Care Project Board (2011) Midlands Newborn Networks Integrated Comfort Care Pathway (ICCP) -

Newborn. Combined Midlands Newborn Networks; SWMNN, SSBCNN, CNN, TrentNN. UK

Important Issues for Parents

• Creating memories

• Empathy

• Time and space

• Practical help and understanding

• Sensitivity

• Communication with parents

• Accurate record keeping and communication

• In utero

• Support afterwards

Important Issues for Parents

• Memories became fundamental, as parents could

take only these with them, not the baby they

were expecting:

‘Memories are what you want, you need, to make.

You need to cram a life time of memories in

to the short time you have with your baby…All

parents want is their child, there is no substitute

for that. But as that is not to be, the time they

have together must be as special as possible.’

Midlands Newborn Networks

Alex Philpott, SWMNN Education Lead

Jackie Stretton, SWMNN Lead Practice Educator

Kate Branchett. SWMNN Parent Representative