Motivations and Challenges of ePatients in YouTube

Luis Fernandez-Luque (luis.luque@norut.no) -Norut, Tromsø, Norway

Vern R Beachy - e-Patient YouTuber - vbeachy

Bill Woods - e-Patient YouTuber - 1HappyDiabetic

Lauren Parrott - e-Patient YouTuber - laurenvparrott

Kerri Sparkling e-Patient YouTuber - sixuntilme

Medicine 2.0 Maastricht NL – 29, 30 November 2010

Background

Health Information is moving to the Web 2.0 (blogs, YouTube) –  For example, 20.000+ videos from US hospitals

Background Many of the videos are created by ePatients

ePatients in YouTube- Motivations and Challenges

4 e-Patients sharing their experience living with Multiple Sclerosis and Diabetes

Vern R Beachy (Vbeachy)

http://www.youtube.com/watch?v=CuOVDAm6tlE

Lauren Parrott (laurenvparrott)

http://www.youtube.com/watch?v=Atq0LP_mfYE

Old video Medicine 2.0 (2008): http://www.youtube.com/watch?v=Fb8_k-VIg4k

Kerri Sparkling (sixuntilme)

http://www.youtube.com/watch?v=lc9hA4gmlhw

Bill Woods (1HappyDiabetic)

http://www.youtube.com/watch?v=jsP9nZXIpME

Challenges •  It hurts when people don’t believe me – laurenvparrott

•  some people told me… You are not a doctor, you shouldn’t be making videos.. I make very clear in all my videos I am only talking about my life – laurenvparrott

•  I am not a doctor, I am just telling my story – vbeachy

•  I have been solicited by companies promoting herbal supplements… - 1happydiabetic

•  One of the challenges is privacy… I am sharing with the entire world -1happydiabetes

Motivations

•  Finding others make you feel less alone, and feeling less alone has an huge impact in how you manage your chronic illness. –SixUntilMe

•  I have gotten so much feedback from my videos… a lot of people have told me they have helped – vbeachy

•  I was looking for information on a video format and it wasn’t there – 1HappyDiabetic

•  To share my experience… so others can learn from my mistakes – 1HappyDiabetes

Join our conversation •  Our YouTube e-Patients:

–  http://www.youtube.com/user/1happydiabetic

–  http://www.youtube.com/user/laurenvparrott

–  http://www.youtube.com/user/sixuntilme

–  http://www.youtube.com/user/vbeachy

•  Slideshare: –  http://www.slideshare.net/luis.luque

•  Twitter: –  @luisluque, @1happydiabetic, @laurenvparrott, @sixuntilme