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Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan [email protected] @MITREhealth @K_Sheridan1 Empowering Patients with Technology © 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

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Page 1: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Moving Outside the Boundaries of the Doctor's Office:

Kristina [email protected]

@MITREhealth@K_Sheridan1

Empowering Patients with Technology

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

Page 2: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

Page 3: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Patient and Family Engagement

“a set of beliefs and behaviors by patients, family members, and health professionals and a set of organizational policies, procedures and interventions that ensure both the inclusion of patients and families as central members of the health care team and active partnerships with providers and provider organizations”

- Benjamin K. Chu, M.D. Chair of the AHA’s Board of Trustees , Health Research & Educational Trust/American Hospital Association, 2013

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

Page 4: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Reality for Patients and Caregivers

6 Fe

b 20

12

Coordinate PrepareDecide

Evaluate Communicate

PartnerX

Images provided by K. Sheridan

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

Page 5: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Impact and Cost of Chronic Conditions

One Chronic Condition

Multiple Chronic Condition

No Chronic Condition

Caregivers

Almost 1/3 people in the US manage at least one chronic condition

More than 3/4 of US healthcare dollars are spent on their behalf Data extrapolated from 1. Wolff JL, Boult C, Boyd C, Anderson G . Newly reported chronic conditions and onset of functional dependency. J Am Geriatr Soc 2005;53:851–855.2. Bodenheimer, T., Chen E., Bennett, H. Health Affairs 28, no. 1 (2009): 64–74; 10.1377/hlthaff.28.1.643. AARP Public Policy Institute. Insight on the Issues, November 2008: Valuing the Invaluable: The Economic Value of Family Caregiving, 2008 Update

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

Page 6: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Using Technology to Close the Gap

• Collect high-value data without adding burden

• Minimize the number of steps necessary

• Present data in concise, meaningful way

• Enable and incentivize patients to partner with providers

EASY

FAST

EFFECTIVE

PATIENT-CENTRIC

1. IMS Institute for Healthcare Informatics. “Patient Apps for Improved Healthcare: From Novelty to Mainstream.” Parsippany, NJ: October 20132. The MITRE Corporation healthAction Patient Toolkit research

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

Page 7: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Missing Data: Symptom Severity

Image source: The MITRE Corporation

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

Page 8: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Missing Data: Compliance

Image source: The MITRE Corporation

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

Page 9: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Enabling Integration of Data

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

Page 10: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Concise, Meaningful Visualization

Image sources: The MITRE Corporation

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

Page 11: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Meaningful Use and Patient-Generated Data

ONC. “Patient-Generated Health Data: White Paper”. April 2012.

Stage 1 Stage 2 Stage 32011-2012 2014 2016

DATA CAPTURE AND SHARING ADVANCE CLINICAL PROCESSES IMPROVED OUTCOMES

• “Consider Stage 3 Meaningful Use criteria to enable and support the use of PGHD by providers;

• Convene stakeholders to identify PGHD opportunities, barriers, and value;• Support development and use of PGHD-related standards; and• Conduct additional PGHD research to collect lessons learned, support adoption, and

inform policy”.

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

Page 12: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Making It Easy, Fast and Patient-Centric

Image sources: The MITRE Corporation

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

Page 13: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Enabling Patient-Provider Partnership

• Pre-appointment checklist

• Tailored provider report

– Patient goals, notes, questions

– Symptom status

– Medication list, response and compliance

• Support during appointment

• Post appointment updates

Image sources: The MITRE Corporation

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

Page 14: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Shared Understanding

…the inclusion of patients and families as central members of the health care team and active partnerships with providers and provider organizations.

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

Page 15: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Patient Engagement And Patient-Generated Data

National e-Health Collaborative. “Patient Engagement Framework.” http://www.nationalehealth.org/stages-patient-engagement-framework

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

Page 16: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Triple Aim

●Better Care Improve the overall quality, by making health

care more patient-centered, reliable, accessible & safe.

●Healthy People, Healthy Communities Improve the health

of all Americans by supporting proven interventions to

address behavioral, social & environmental determinants of

health in addition to delivering higher-quality care.

●Affordable Care Reduce the cost of quality health care for

individuals, families, employers & government.

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108

National Quality Strategy , 2013 Annual Progress Report Update, August 8, 2013

Page 17: Moving Outside the Boundaries of the Doctor's Office: Kristina Sheridan ksheridan@mitre.org @MITREhealth @K_Sheridan1 Empowering Patients with Technology

Empowering Patients Outside the Doctor’s Office

Compassionate, Informed Care

Team

Well-informed, Engaged Patient

Partnership

BEST CARE

Improved health outcomes at lower cost

© 2014 The MITRE Corporation. All rights reserved. Approved for public release. Distribution unlimited. Case number 14-1108