MOVING TOWARD A WORLD FREE OF MS | SUMMER • 2010

INSIDE THIS ISSUE

SOUTHERN CALIFORNIA CHAPTER

Programs PAgE 4

Advocacy PAgE 6

golden Circle PAgE 9

Fundraising PAgE 18

Are you ready to test your personal strength and determination? Set a goal to complete a physical and fundraising challenge this fall. Walk with purpose at Challenge Walk MS or pedal for a cure at Bike MS.

Challenge Walk MS: Southern California September 24 – 26, 2010 3 days. 50 miles. Carlsbad to San Diego.

Take over 100,000 steps in one of the most rewarding journeys of your life, filled with friendship, unforgettable moments and, most of all, hope. The Challenge Walk route is fully accessibly and supported with hearty breakfasts, catered lunches, rest stops stocked with beverages and snacks, and support vehicles to provide transportation assistance. All of your needs will be taken care of event weekend. You will stay two nights at our host hotel, the Del Mar Marriott, with comfortable beds and hot showers, and be treated to a banquet dinner and entertainment each evening.

Walk or join our Super Crew. Both Walkers and Super Crew (superstar volunteers who volunteer all 3 days) participate in all aspects of the event and commit to raising the $2,500 pledge minimum (with our support). Hotel accommodations for two nights, banquet meals, entertainment and perks are all included. We will support you every step of the way — you will succeed! Once you register for the Challenge Walk, a Walker Coach will be assigned to you to offer training resources and to help you reach

ChALLENGE YOuRSELFTWO GREAT EVENTS. ONE uNBEATABLE DESTINATION. A WORLD FREE OF MS.

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FINANCIAL ASSISTANCEA Helping Hand When It’s Needed Most

We offer financial assistance through the Direct Assistance Program to individuals with MS and their families to help access needed services that are not available using other resources (private insurance, Medicare, MediCal). The program is based on financial need and offers funding for the following services:

Rhoda Goetz Personal Care Fund: Beauty/Wellness• : A fund to assist individuals who are faced with financial, logistical or physical barriers to maintaining healthy personal hygiene and care. Gain access to services such as hair, skin and nail care. In-home Assistance Support• : 8 consecutive days, 4 hours/day after a hospital stay or exacerbation. Must use licensed home care agency. Chore Service Program• : Assistance for house cleaning service. Limit: up to $300 per fiscal year.

Durable Medical Equipment: Share of cost for durable medical equipment (wheelchairs, hand rails, etc.) if not covered by insurance. Limit: up to $400 per year.

Sherak Emergency Fund: Funding for unexpected one-time situations (food, rent, utilities). Official documentation demonstrating proof of emergency is required with application. Limit: up to $300 per year.

Physical/Occupational/Speech Therapy: In-home evaluation and five to six follow-up visits for a person who cannot leave home and whose insurance will not cover this service.

Grisanti Respite Fund: Provided through a licensed home care agency for the family member who is a full-time care partner and needs time off. Share-of-cost basis. Up to 6 days/year, up to 12 hours/day.

Supporting the Family: A fund to take care of special out-of-the-ordinary family needs (i.e. school pictures, sports uniforms, etc.). Limit: up to $300 per year

Checks are made out and sent directly to the vendor. For more information about any of these financial assistance programs, please call 800.344.4867 or 310.479.4456.

800.344.4867PUBLICATION OF THE NATIONAL MULTIPLE SCLEROSIS SOCIETy Southern California Chapter

Chairman • Paul M. Mahoney, Esq.

Chapter President • Leon LeBuffe, Ph.D.

Newsletter Editor • Marni Deckter

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. National MS Society medical advisors recommend that people with MS talk with their health care professional about using one of these medications and about strategies and effective treatments to manage symptoms. If you or someone you know has MS, please contact the Society today at nationalMSsociety.org or 800.344.4867 to learn about ways to help manage multiple sclerosis and about current research that may one day reveal a cure.

The National Multiple Sclerosis Society (NMSS) does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The NMSS assumes no liability for the use of contents of any product or service mentioned. Information provided by the NMSS is based upon professional advice, published, experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The NMSS recommends that all questions and information be discussed with a personal physician.

We mobilize people and resources to drive research for a cure and to address the challenges of everyone affected by MS.

© 2010 NMSS Southern California Chapter Published Quarterly — Summer 2010

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Now is an extremely exciting time in the world of MS research. Last summer, due to the challenging economic environment, the Society had to make difficult decisions regarding research funding, including placing some of our research award programs on hold. I am pleased to announce that, thanks to our generous supporters, the High-Risk Pilot Research program, which had been temporarily suspended, has now resumed. This important research initiative funds short-term investigations on new, untested ideas, allowing researchers to quickly determine if their novel ideas are worth pursuing.

Many novel ideas that were first tested through pilot grants have since made significant progress through the pipeline. Read about the latest advances on pages 15 & 16. These advances are also due, in large part, to better collaboration among researchers. In this issue, I invited our Chapter’s research advocate Dr. Wendy Gilmore, Associate Professor of Research at USC, to tell us about recent local collaboration.

Sincerely, Leon LeBuffe, Ph.D. Chapter President

PRESIDENT’S MESSAGE

BY WENDY GILMORE, PhD

Among the many activities taking place during MS Awareness Week in March of this year was a unique gathering of scientists and physicians engaged in MS research in the state of California. Organized by the newly established California Collaborative MS Research Committee, which represents each of the three California chapters of the National MS Society, the forum took place in Newport Beach on March 5-6. In addition to approximately 70 researchers, the forum was attended by Dr. Patricia O’Looney, Ph.D., the Society’s Vice President of Biomedical Research.

The idea for the forum grew out of a brainstorming session among MS researchers and neurologists attending an evening event organized by the Pacific Coast Chapter, in which a key topic of discussion was the need for connections among MS researchers to accelerate progress toward a cure. In addition, several years ago, the Southern California Chapter hosted a similar, but smaller scale, one-day research forum for researchers in the greater

Los Angeles area. These were the seeds of a larger initiative: to form a committee of individuals committed to planning and organizing regular gatherings of California MS researchers, and to host the first California MS Research Forum during MS Awareness Week in March of 2010.

The committee consists of two active MS researchers, Drs. Michael Demetriou of UC Irvine and Wendy Gilmore of USC, in addition to Dr. Zuzana Hostomka (Research Advocate, Pacific Coast Chapter), Karen Hooper (Vice President of Programs and Services, Pacific Coast Chapter), Audra Hindes (Director of Clinical Programs, Southern California Chapter), Dr. Crystal Anglen (Research Advocate, Northern California Chapter) and Jaclyn

Inaugural California MS Research Forum a Resounding Success!

Dr. Wendy Gilmore

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PROGRAMS

EMPOWER YOuRSELF In 2007, Sara M. decided it was time to learn more about MS, a disease that she had been living with for years. She enrolled in the REACH to Achieve day wellness program at The Marilyn Hilton MS Achievement Center at UCLA.

During the time she’s been coming to the Center, she has achieved great things, including returning to college, completing her peer counseling training, and continuing to work part-time for her family business.

Sara attributes some of her success to her attitude, diet, and exercise program - things that the Center has helped her with. She said, “My self-confidence also grew from the CogStim (cognitive stimulation) sessions. Exercising my brain to improve my memory helped me get back to school.” Sara is now pursuing her dream of earning a degree in social work. She just finished her third semester at Santa Monica College.

Sara said, “Whether it’s the exercise, yoga, just talking with peers, or the atmosphere, the program just draws you in. I look forward to Wednesday each week.”

If you or your loved one are experiencing changes related to MS symptoms and are ready to take control and make personal changes, then call us today to learn more about the Chapter’s day wellness programs.

An experienced team of professionals who understand MS will help bring personal goals

to life with a customized program. In just one day each week, activities can enhance overall health, improve or stabilize function, increase independence and optimize the ability to live well with MS.

Contact Elise Herlihy, RN at 310.267.4071 for more information about The “REACH to Achieve” program at The Marilyn Hilton MS Achievement Center at UCLA in West Los Angeles. Call 1.800.344.4867 or 310.479.4456 for details or to arrange a tour of the day wellness program at the The Eric Small Center for Optimal Living with MS on the Rancho Los Amigos Rehabilitation Center campus in Downey.

WhEN ThE DIAGNOSIS ISPRIMARY PROGRESIVE Call 1.800.344.4867 for your free copy ofPrimary Progressive Multiple Sclerosis: What You Need to Know.

In this 156-page-book, experts address symptom management, treatment options, rehabilitation, technology and adaptations, quality-of-life issues, care partner resources and much more.

The book, jointly sponsored by the Society and the MS Association of America, comes with a companion DVD, featuring five people who are living with primary-progressive MS. Their comments also appear throughout the book, grounding the advice in real-life situations.

Publication and free copies to people with primary-progressive MS have been made possible by a generous educational grant from Genentech.

For more facts and strategies, visit our webcastseries at nationalMSsociety.org/ppmsweb.

Sara M.

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PROGRAMS

National health Care Reform: What It Means for People Living with MS July 22, 6:00 – 7:30 pm

Health coverage has been inadequate for so many families living with MS — from coverage of high cost treatments, to durable medical equipment, long-term care and more. The health care reform legislation that was passed in March 2010 will make major changes for generations to come.

What will I learn?

• Key provisions and dates of health care reform implementation

• Pre-existing condition clauses

• Lifetime limits and Long Term Care

• Major impact on health care coverage, Medicare and Medi-Cal

Managing Pain and MS August 10, 6:00 – 7:30 pm

Pain syndromes are common in MS. In one study, 55% of people with MS had "clinically significant pain" at some time. Almost half were troubled by chronic pain.

What will I learn? • Assessment tools for

managing pain

• Alternative and complementary therapies in MS pain management

Featured Speaker: Heidi Maloni, PhD, is a certified adult nurse practitioner, a certified neuroscience registered nurse and an MS certified nurse. She is the National Clinical Nursing Director of the MS Center of Excellence at the U.S. Department of Veterans Affairs Medical Center in Washington, DC.

Accessibility Begins at home September 21, 6:00 – 7:00 pm (Teleconference and Web-Ex Presentation)

Unsafe home configurations can lead to falls for people MS, and falls can lead to injury or further loss of independence. Take a tour around the house and learn what you can do to make your home safer.

What will I learn? • How home improvements

can provide greater accessibility

• Making your home more efficient, more effective and barrier-free

• Home modification and increasing your independence

Featured Speaker: Van Roberts has worked in construction management for the last 24 years. After being diagnosed with MS five years ago, Van brought his expertise to the National MS Society to help develop informational programs on home modification.

LEARN FROM hOMEOur monthly teleconference series allows you to learn about timely MS-related topics from the comfort of your own home. Pre-registration is required for all teleconferences. Register online at nationalMSSociety.org/CALcalendar or call 800.344.4867. One week prior to the program, you will receive the toll-free dial-in number.

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ADVOCACY

CONSIDERING LIFE INSuRANCE? A BROkER CAN hELP By KIM CALDER

It’s nearly impossible to qualify for disability or long-term care insurance after being diagnosed with MS.

But life insurance is another matter.

Comparison shopping is a must

The premium for a person with MS will be higher, but the policies are out there. Shopping for the best, most affordable policy can be a time-consuming and complex challenge. A good insurance broker will not only do the research and educate a buyer about appropriate products, but will help with the application process and negotiations.

Licensed independent insurance brokers are professional advisors with expertise in the insurance marketplace. Some focus exclusively on one insurance company’s products and act as sales agents, or “captive” brokers, negotiating, or “brokering,” sales for that company alone. Others

develop expertise in specific types of policies, or “niche markets,” for certain types of clients, such as retirees, newlyweds or even people with chronic diseases.

An “impaired risk” broker?

An impaired risk specialist is particularly knowledgeable about what is available for people with health conditions or other risk factors. Some impaired risk brokers are even considered super-specialists, as they specialize in a few specific impairments, such as MS.

If you choose to work with a broker, select one with whom you feel comfortable and prepare to be very candid about your disease and circumstances. A good broker can help you determine if your expectations are realistic, your goals are clear and your timing is right.

Never hesitate to ask a broker for professional references, and check them out.

If someone refers you to one broker in particular, ask why. What did your referral source like about how this broker worked?

The bottom line

It is ultimately your responsibility to understand the terms of your insurance policy, and to make best use of it. Take advantage of the time when your broker is gathering your information and exploring your options to ask lots of questions.

It is not always possible to know what your final rate will be until you apply, but you do have the choice whether or not to accept or keep a life insurance policy during the “free look” period after it is issued.

Kim Calder is director of Insurance Initiatives for the Society.

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ADVOCACY

On March 16th, Chapter staff and volunteers joined organizations representing those affected by other neurological conditions at the 11th annual California Neuro Alliance in Sacramento. MS activists were excited by the introduction of our first MS-California Action Network sponsored bill, AB 2170 (Lowenthal) regarding mid-year drug copay changes. AB 2170 prohibits group health plans, regulated by the Department of Managed Health Care, and group health insurance policies, regulated by the Department of Insurance, from increasing their enrollees’ out-of-pocket costs for their prescription drugs during the contract year. AB 2170 will protect individuals enrolled in group health insurance plans and group health insurance policies from sudden and unplanned out-of-pocket costs for their prescription medications. To date, this bill has made it out of the Assembly Health Committee and is in the Appropriations Committee.

MS activists also fought in Sacramento to block potentially fatal cuts to In-Home Supportive Services (IHSS). California’s IHSS program provides in-home care services for low-income older adults and people with disabilities who cannot safely remain in their own homes or take care of themselves without assistance. Without this program, these individuals face institutionalization. Governor Schwarzenegger has proposed in the fiscal year 2010-2011 budget to eliminate IHSS services to approximately 87% of those currently receiving these vital services. The governor also proposed reducing the state’s contribution to IHSS caregiver wages to the state’s

minimum wage. MS activists will continue to fight for the preservation of this important program well into the summer months… stay tuned.

Are you looking to “spark change” in your community, government and globally? Sign up today to be an MS activist! Contact Cheryl Roberto-Lvovsky, Manager of Government Relations and Individual Advocacy at 310.479.4456 ext. 109 or cheryl.lvovsky@nmss.org.

CALIFORNIA MS ACTIVISTS TAkE ON SACRAMENTO

ADA CELEBRATES 20The Americans with Disabilities Act (ADA), signed into law in July 1990, promised to change the landscape for citizens with disabilities. “But the ADA’s promise will be reached only if we remain committed to full implementation,” observed David Chatel, the Society’s executive vice president of Advocacy.

“We can best celebrate our progress by reaffirming our principles of equality and inclusion,” said Joyce Nelson, the Society’s president and CEO.

Learn more! Visit nationalMSsociety.org/ADA.

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MS ACTIVISTS MAkE MS A PRIORITY ON CAPITOL hILL IN MARCh

At the 2010 MS Public Policy Conference, MS activists pushed forward major initiatives that could lead to increased MS research, in turn greatly improving understanding of the disease itself.

More knowledge needed Currently, there are no accurate estimates of how many people in the United States have MS. A national MS registry could provide invaluable information on the incidence and prevalence of the disease, allowing researchers to investigate potential geographic, genetic or environmental risk factors.

Toward this important legislation, MS activists, who gathered in Washington, D.C., this March, sought co-sponsors for the National MS and Parkinson’s Disease Registries Act.

Supporting respite programs The availability of respite care for all age and disability groups is at a dismal low. While the

Lifespan Respite Care Act was passed in 2006, the program has been severely underfunded ever since its creation.

Activists urged legislators to commit a much- needed $94.81 million to help stressed-out families and caregivers.

Increasing research funding For the more than 20,000 U.S. veterans diagnosed with MS, as well as all others living with the disease nationwide, more research funding from the Department of Defense could make a real difference.

Activists are requesting a $15 million appropriation to the DoD’s Congressionally Directed Medical Research Programs for MS research. Supportive legislators are already taking action, circulating a Dear Colleague letter in the House of Representatives and in the Senate.

To find out more about MS advocacy and how to get involved in public policy issues, visit nationalMSsociety.org/advocacy. Or call our office to find out about state and local issues.

Chapter President Leon LeBuffe met with Congressman Henry Waxman

Photos courtesy of Scott Crawford

ADVOCACY

California MS Activists: Cheryl Roberto-Lvovsky, Mary Ann Braubach, Stewart Ferry, Denise Nowack, Julie Kaufer,

Leon LeBuffe and Kim Phillips (seated)

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BuILDING A FuTuRE FREE OF MSIn early 1967, brothers Albert and Leonard Brutocao, opened the door to their futures by launching Brutoco Engineering & Construction, Inc. Southern California Chapter Board Chair and Golden Circle Committee Member Paul Mahoney has been Brutoco’s lawyer since 1973. In the mid- 2000’s, Paul approached Len and the company and asked for

their willingness to get more involved with the Society. Len Brutocao and his wife Marty initially contributed to Golden Circle personally via their

family foundation. Soon, Mike Murphy,

President of Brutoco, contributed on behalf of the company. Read more.

SADDLING uP TO END MSGrowing up in Norco, California, Tara Maxeiner developed a love of horses at a young age; but she

never imagined those early years of riding lessons and equestrian shows would set the stage for an even greater purpose. Read more.

TOAST FOR A CuREFebruary 11, 2010 marked the 10th annual Recipe for MS Research. For the last decade, trustee Sheri Safan, Linda Ellman, Gary Mandinach and Steven Safan have led their closest friends and family on an unwavering journey to help move forward Dr. Rhonda Voskuhl’s research and fund the Estriol trial at UCLA. This year, long-time

friends, Simone and Lester Freidman, hosted the 10th annual at their beautiful home in the heart of Beverly Hills. Read more.

NEW ADDITIONS TO ThE VIRTuAL DONOR WALLThe Southern California Chapter’s permanent donor wall honors many generous individuals, families, foundations and corporations that have directly helped people with MS through the Chapter’s programs and services, while advancing the Society’s goal to be a driving force in MS research, relentlessly pursuing prevention, treatment, and ultimately the cure. Visit the Chapter’s Virtual Donor Wall and meet a few of the Society’s Benefactors, who have contributed $250,000 to $499,999.

Read the full stories about these and other incredible Golden Circle donors in the newest issue of our Golden Circle Newsletter.

GOLDEN CIRCLE

Teresa Maxwell and Kelley Belt

Linda Ellman & Chapter Trustee

Sheri Safan

GOLDEN CIRCLE

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VOLuNTEERS

Thanks to everyone for “moving it” during MS Awareness Week 2010, catapulting our movement toward a world free of MS. It was a terrific week for visibility, both locally and nationally. Take a look at the MS Awareness Week Recap video of activities that took place throughout the country. Below are just a few of the many local highlights.

Volunteers James O’Rourke, from Boy Scout Troop 484 in Bakersfield, organized MS Service Day for the Society, and, as a result, was just recently awarded the rank of Eagle Scout. O’Rourke wanted to give back after his mother was diagnosed with the disease several years ago. During MS Awareness Week, he and other boy scouts travelled around Bakersfield, completing nine home improvement projects, ranging from yard maintenance to building ramps.

Corporate Support Local Developers Diversified Realty properties – namely Paseo Colorado in Pasadena and The Pike in Long Beach – displayed MS Awareness Week signage, and included information about MS in their emails and webpages. Wells Fargo supported MS Awareness Week in all of their 14 branches throughout Santa Barbara & San Luis Obispo counties. Employees wore orange shirts & ribbons, and branches displayed Walk MS posters and brochures.

health Partners Eisenhower Medical Center in Palm Desert recognized MS Awareness Week with signage at the hospital lobby. Casa Colina Centers for Rehabilitation in Pomona partnered with us to host tours during the week.

Advocacy The CA Senate passed a resolution to recognize MS Awareness Week, SR 37. It was introduced by Senator Carol Liu, Chair of the Human Services Committee and representative for Pasadena. The mayor of Bakersfield spoke at the orange balloon release in Bakersfield, and Fresno elected officials presented two proclamations of MS Awareness Week to the chapter.

Community Outreach Trustee Jamey Power spoke about MS at a Conejo Valley Chamber of Commerce meeting, hosted by Elite Fitness which raised money for MS Awareness Week. A Walk MS rally/program event in Pasadena featured Dr. Barbara Giesser talking about gait research updates, and a top fundraiser with MS spoke about her experiences.

MS AWARENESS WEEk 2010 hIGhLIGhTS

James O’Rourke (left) looks on as his friends finish painting a new ramp

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SPECIAL EVENTS

Save the Date!Saturday, November 13, 2010

The Jack Kramer Club, Rolling Hills Estates, CAProceeds benefit the National MS Society, Southern California Chapter.

For more information, please visit www.serveituptoendMS.orgor contact Chris Ojakian at (310) 770-1918, or chris@ojakiantennis.com

36th Annual

Monday, September 27, 20106:15 PM — HYATT REGENCY CENTURY PLAZA HOTEL

honoring

Adam FogelsonChairman, Universal Pictures

Dinner Chairs: Byron Allen, Joe Roth and Tom Sherak

Reserve your table early—CALL (310) 479-4456

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SPECIAL EVENTS

Thank you to our walkers, donors and volunteers for making Walk MS 2010 a huge success!

It’s never too late to make a move that can

make a difference. Donate to Walk MS today!

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SPECIAL EVENTS

One more… Bakersfield Walk MSBakersfield’s Walk MS moved to the fall for the first time, turning October to Walk-tober! Like the spring Walk MS Southern California events, this one is for the whole family, and money raised supports education, advocacy, research, and local programs that will enhance the quality of life for people with MS and their families.

Join us on October 30 at Yokuts Park. Connect with friends and family, or meet new friends along our Halloween party route, and then celebrate at the finish line.

Walk, give and volunteer to create a world free of MS. Register today at walkMSsocal.org or call 661.321.9512!

Thank you to our sponsors

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SPECIAL EVENTS

your fundraising minimum by creating a customized fundraising plan for you.

Register today! Visit myMSchallenge.com or call Jennifer Gaylord at 909.949.1363 to get started.

BIkE MS: SOuThERN CALIFORNIA RIDE October 16 – 17, 2010 15 – 160 miles, Ventura

Join us for the best ride of your life! Bike MS is Southern California’s premier cycling event. We have route options for every level of cyclist, ranging from 15 - 160 miles; you will surely find a route fit for you. You’ll explore Southern California’s most picturesque areas on your bike. Enjoy delicious meals and strong support, with rest stops every 15 miles and SAG vehicles. A fantastic festival awaits you on Saturday afternoon with great food, music, a beer garden, massage tent and fun games.

A minimum fundraising goal of $350 if required, but we’ll be with you every pedal stroke of the way. We have training and fundraising tools to get you ready for this unforgettable ride. Bring your friends, family and co-workers along for the ride – join or form a team to conquer the Bike MS challenge together.

Accept the challenge! Register now at bikeMSsocal.org or call 310.479.4456.

FREE BIkE MS TRAININGWhether you’re training for your first event or are a seasoned veteran, a training plan will help put more pizzazz in your pedaling.

Bike MS participants get a free TrainingPeaks account and a free training plan by Joe Friel, expert trainer and author of “The Cyclist’s Training Bible.” The plan includes:

• Expert advice and daily instruction from Joe Friel

• Maps and routes to view, share or create your own

• Nutrition tracking to monitor your diet and much more.

Learn more and sign up at bikeMSsocal.org.

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RESEARCh

LATEST RESEARCh hIGhLIGhTSORAL FINGOLIMOD NEARS APPROVAL On June 10th, an FDA advisory committee recommended that the agency approve marketing of fingolimod capsules (formerly called Gilenia, Novartis International AG) for the treatment of relapsing MS. If approved, fingolimod would be the first oral disease-modifying therapy for the treatment of MS. While the FDA is not required to follow the recommendations of its advisory committees, it usually does. According to Novartis, the agency is expected to make a final decision about whether to approve the drug in September 2010.

$2.4 MILLION FOR CCSVI RESEARCh Over $2.4 million has been committed by the National MS Society and the MS Society of Canada to support 7 new research projects focusing on the role of CCSVI (chronic cerebrospinal venous insufficiency) in MS. Together, these studies aim to further understand the role of CCSVI in MS and identify optimal methods for screening for the condition, which would be necessary to determine the next steps required in advancing this CCSVI lead. The 2-year grants will begin July 1st.

BOTOx® FOR SPASTICITYIn March, the FDA approved the use of Botox® (onabotulinumtoxin A, Allergan, Inc.) for treating people with MS or other disorders who may experience spasticity in muscles of the elbow, wrist and fingers. Spasticity is an often painful muscle tightness that can make movements difficult. In clinical trials largely involving people with spasticity after stroke, targeted injections of Botox into muscles were found to be beneficial and safe.

LDN ShOWS MENTAL hEALTh BENEFITSA pilot clinical trial at UC, San Franscisco involving 60 people with all types of MS, tested low-dose Naltrexone, a drug approved for treating addiction. Results suggest that it may improve several measures of mental health quality of life and pain, and that further testing in larger numbers of individuals may be warranted.

EPSTEIN-BARR & MS Two new studies released in March are adding to an increasing body of evidence that shows a possible role for Epstein-Barr virus (EBV) in the development of MS. Alberto Ascherio, MD, DrPH (Harvard School of Public Health, Boston) and colleagues showed that an EBV-positive blood test preceded MS diagnosis in a large sample of MS cases identified through U.S. military databases. Manuel Comabella, MD (Hospital Universitari Vall d’Hebron, Barcelona) and an international team of colleagues reported that reactions to a specific protein associated with EBV were increased in people with MS compared with siblings who did not have MS.

In April, Harvard researchers and collaborators in Australia and Sweden showed that exposure to Epstein-Barr virus and tobacco smoking may interact and multiply to substantially increase the risk of developing MS in those with both risk factors. The results warrant confirmation in further studies.

Read more about these research highlights and additional news on promising treatments and advances at nationalMSsociety.org/news.

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RESEARCh

On May 25, Fast Forward, LLC, the National MS Society’s subsidiary devoted to bridging the gap between research and drug development, and Five Prime Therapeutics, Inc., a leader in the discovery and development of innovative biologics based in San Francisco, announced an alliance to fund the development of a FivePrime pre-clinical stage therapeutic candidate for treatment of MS. Fast Forward will commit up to $1 million to fund the advancement of the innovative biological molecule.

The very next day, Fast Forward and Canbex Therapeutics, Ltd., a spin-off company from University College London, announced a partnership to fund pivotal studies that will support an

Investigational New Drug Application for Canbex’s VSN16R compound. VSN16R has the potential to develop into a well tolerated, effective therapy for muscle spasticity in MS. The agreement with Canbex is the first collaboration between Fast Forward and an early stage biotechnology company to advance a specific symptom treatment for MS.

Bringing treatments to people with MS – FASTER. Read more at fastforward.org.

FAST FORWARD NEWS

Smoczynski (Director of Chapter Programs, Northern California Chapter).

The goals of the forum held in Newport Beach were simple: to share research results, to foster collaborations and communication among California MS researchers, and to attract and retain young investigators in the field of MS research. There was a great deal of excitement in the air as MS researchers from Stanford, UCSF, USC, UCLA, UC Irvine, UC San Diego, UC Riverside, the Burnham Institute, and the Scripps Research Institute presented research results on topics ranging from myelin repair and immune function to imaging, genetics and biomarkers. The informal atmosphere sparked many animated discussions, and participants were reluctant to end the forum on the second day. There was great enthusiasm for the plan

to hold research forums on a regular basis, alternating between locations in northern and southern California.

The forum was supported by generous gifts from Stephen Zamucen, CPA, Walter J. and Betty C. Zable Foundation, the Flora L. Thornton Foundation, and each of the Society’s three California chapters.

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FuNDRAISING

There are many ways that you can plan a gift for the future and join the movement to create a world free of MS.

Bequests. You can create a legacy by naming the Society in your will, charitable remainder trust, charitable lead trust or living trust. Your bequest will provide important support to the Society in the future and may be exempt from federal estate taxes.

Charitable gift annuity. Provide lifetime income for yourself or someone you love while supporting the Society’s mission with a charitable gift annuity. Learn how you can contract to transfer assets to the Society in exchange for payments for life to one or two annuitants.

Life insurance gifts. Designating the National MS Society as owner and beneficiary of an insurance policy is an easy way to make a gift that costs you little while creating your legacy of support to the Society.

Lawry Circle. Let us know of your intention to help create a better future for the MS community through your will, trust or estate plan. The Lawry Circle, named for Society founder Sylvia Lawry, recognizes and honors people who have demonstrated a deep commitment to improving the lives of those with MS by establishing a deferred gift for the Society.

For more information on planned giving opportunities or the Lawry Circle, please contact Kate McIntosh, Vice President of Development at 310.479.4456 or 800.344.4867 or kate.mcintosh@nmss.org.

GENEROuS GRANTORS

The Chapter is grateful to the following foundation and corporate supporters for $68,695 in grants awarded February 1– April 30, 2010:

$20,000 from the • AEGON Transamerica Foundation for The Marilyn Hilton MS Achievement Center at UCLA

$19,010 from • Change A Life Foundation for the special needs of individuals with MS

$12,185 from • Teva Neuroscience for MS Education and Research Programs

$5,000 from the • Jerome and Faith Pearlman Foundation for Teen MS Camp

$5,000 from the • Santa Ynez Band of Chumash Indians Foundation for Financial Assistance and Crisis Management Services in the Channel Islands region

$3,500 from • The Towbes Foundation for general operating support in the Channel Islands Region

$2,500 from the • Livingston Memorial Foundation for general operating support in Ventura County

$1,500 from the • Rotary Club of Fresno for the Optimal Wellness Program in the North San Joaquin Valley region

PLAN A GIFT FOR ThE FuTuRE

18 | JOIN THE MOVEMENT: nationalMSsociety.org

FuNDRAISING

Life can be hard when you are a small fish in a big pond; it is easy to get lost in the hustle and bustle of daily life and feel like you can’t make a difference in the world.

But you can. By joining the 1946 Society your small contribution will make an enormous difference in the MS community. With your help we will be able to fund life-changing programs and services and cutting-edge research initiatives.

If 100 small fish contributed 64 cents a day, or $19.46 a month that would total $23,352 each

year! Imagine what we could accomplish if we all donated 64 cents a day. The results would be astonishing.

Join the 1946 Society today. It’s simple — all you have to do is make monthly gifts of $19.46 or any amount ending in 9.46 (e.g. $29.46, $59.46, $149.46, etc.). Plus, when you become a member of the 1946 Society, we’ll send you a one-of-kind Society tote bag as a warm

thank you for making this important step toward a world free of MS. Visit national mssociety.org/cal1946Society and click on “Join Now” to complete the membership form. Or call Jasmine Tsai at 310.479.4456 ext. 106 to make a gift by phone.

Take time this summer to honor or remember your loved ones through the Tributes & Memorials campaign. Show a friend you care, congratulate newlyweds, wish someone a happy birthday, or remember someone very special.

When you make a tribute or memorial gift, the National MS Society sends a beautifully personalized card to the designated honoree(s), and informs them that your gift was made in their honor. Your donation to the Tributes & Memorials campaign not only shows your loved ones you care but also takes us one step closer to a world free of MS.

Alternatively, you can build a living tribute or memorial webpage through the Society’s

Tribute & Memorial Funds. You can easily design a unique webpage filled with personal photos and stories, thereby creating a place for friends and family to visit and interact. Guests even can post their stories or words of encouragement in your guestbook. Your Fund also allows visitors the opportunity to make an online donation on behalf of your honoree, all while offering easy-to-use tools to help you navigate and track the donations.

To make a gift, learn more about the Society’s Tributes & Memorials campaign, or to create a Fund of your own, visit www.nationalMSsociety.org/calTM or contact Jasmine Tsai at 310.479.4456 ext. 106.

MAkE A SPLASh1946 SOCIETY

SuMMER LOVIN’ TRIBuTES & MEMORIALS

TOLL FREE NUMBER 1 800 344 4867 | 19

VOLuNTEERS

Thanks to the many volunteers who hosted community events this spring to raise MS awareness and funds for the Chapter, including:

The Association of Petroleum Wives (APW) chose the Society as one of its four charities to receive proceeds for its signature events in 2010. The two biggest events by the APW were the Charity Sporting Clay Shoot held in April and a Charity Bunco Night held March 11 during MS Awareness Week. APW member Lynn Califf said, “I think this year was our best year ever.” After the money was divided among four charities, the APW raised more than $13,800 for programs and services for the National MS Society.

On April 24, Terry Beardsley hosted the Dream Cruisers Car & Motorcycle Show in Redlands to raise money for a cure. The show has raised more than $60,000 since its inception nine years ago.

On Tuesday, May 11, Frugatti’s Italian Eatery teamed up with Imbibe Wine & Spirits Merchant for the first “Taste of Hope” in Bakersfield, which raised $2,700. Attendees enjoyed light Italian fare, wine tasting, and live music by well-known local jazz and blues musicians Rick Lincoln and Mike Montano.

BIG kudos also to the many teams who also held creative fundraisers to support their Walk MS efforts.

Christine Grontkowski, APW’s Lynn Califf and Kim Kotrla

AlbertsonsLink your Preferred Savings Card to our Chapter and a percentage of your purchases will help end MS. Register online at www.albertsons.com. Click on the “In the Community” tab for the Community Partners link. Then, simply link your card number with our Community ID# - 49001012451. Or call our office with your Albertsons Preferred Savings Card number and we will register for you.

Ralphs Grocery CompanyThrough Ralphs Community Contribution Program, you can register your Ralphs Club Card with the Chapter. Every time you shop for groceries and use your Ralphs Club Card at checkout, Ralphs will send a 4% rebate on your monthly purchases to our Chapter. Enroll today! Our NPO# for the enrollment form is 80586.

GIVE BACk WITh GROCERIES

Stay in the loop

T@lktoUS

Get the latest on the progress of oral meds and other MS news delivered to your inbox. Visit nationalMSsociety.org/signup to create a user profile and start receiving Society e-mails.

Our Chapter is now on Facebook and Twitter. Stay updated with the latest MS and Chapter news and events.Post comments, share your news, and connect with others.

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2440 S. Sepulveda Blvd., Suite 115Los Angeles, CA 90064

Southern California Chapter 2440 S. Sepulveda Boulevard, Suite 115 Los Angeles, CA 90064 310.479.4456, 800.344.4867 www.nationalMSsociety.org/cal

Channel Islands Office 14 West Valerio Street Santa Barbara, CA 93101 805.682.8783 San Luis Obispo Office 805.772.2046

Inland Empire Office 869 E. Foothill Boulevard, Suite I Upland, CA 91786 909.949.1363

Coachella Valley Office 73-710 Fred Waring Drive, Suite 103 Palm Desert, CA 92260 760.776.5740

Antelope & Santa Clarita Valley Office 1669 West Avenue J, Suite 309 Lancaster, CA 93534 661.945.9111

Kern County Office 1800 30th Street, Suite 105 Bakersfield, CA 93301 661.321.9512

San Joaquin Valley Office 7472 N. Fresno Street, Suite 210 Fresno, CA 93720 559.439.2154