my diabetes my way patient access scott cunningham ... · my diabetes my way patient access. scott...

www.mydiabetesmyway.scot.nhs.uk

My Diabetes My Way Patient AccessScott Cunningham – Technical Consultant


IntroductionDiabetes in ScotlandSCI Diabetes CollaborationMy Diabetes My WayPatient AccessFuture Plans


Diabetes in ScotlandCurrently ~220,000 (4.3%) people diagnosed with diabetes in Scotland– Type 1: ~27,500 (12.5%)– Type 2: ~192,500 (87.5%)

Increasing at a rate of 4.9% per yearPeople with diabetes at increased risk of:– Eye disease– Renal failure– Cardiovascular disease

Diabetes accounts for 10% of NHS expenditure


SCI Diabetes CollaborationThe National Diabetes Clinical Information System in Scotland since 2002“The IM&T infrastructure that underpins the diabetes managed clinical networks”Completed rollout across Scotland in 2006Providing clinically useful tools to support the care of patients with Diabetes


SCI Diabetes CollaborationLinks data captured from multiple sources– Primary Care (GPASS, Vision, EMIS, Ascribe)– Secondary Care (SCI-DC Clinical)– Laboratories (SCI Store)– Diabetic Retinopathy Screening Service

Conforms to National Clinical Datasets (NCDDP)Clinically relevant views on dataAd-hoc and pre-defined audit functions


My Diabetes My WayWebsite for patients and carersInformation leafletsInteractive content– Videos– Animations– Patient Journeys

Validated internal/external contentLive since October 2008


Patient AccessLink from Patient Website to the shared diabetes record50-patient pilot funded by Scottish Diabetes GroupUsing ‘Internet Banking’ securityIntegration with Citizen’s AccountLinks to relevant Website informationSimilar processes to Renal PatientView


Enrolment ProcessPatient is invited to sign up for ‘Patient Access’, is provided with information and completes a signup formClinician verifies the patient’s identity and submits their request for data access to SCI-DC.SCI-DC passes details of patients requesting data access to Citizen’s Account


Enrolment ProcessCitizen’s Account create user accounts and authentication details as appropriate and send directly to the patientSCI-DC data is validated and transferred securely to My Diabetes My WayPatient uses authentication details received to access personal information via My Diabetes My Way


Citizen’s AccountScottish Government National Infrastructure sub-programmeAllows citizen’s access to various public servicesDiabetes demonstrator first for NHSAuthentication using OneScotland portal


Patient AccessLimited to key diabetes data initiallyFeedback mechanism to report errorsFull user audit trailPilot available in selected boards (Lothian, Tayside, Fife)


Patient Access – Benefits

Access to the ‘shared’ diabetes record containing data from multiple sourcesLinks to nationally agreed educational materials, tailored to patient’s conditionPatient involvement in their medical careAwareness of guidelines and targets


Patient Access – Completed

Integration with Citizens AccountReview of draft screensPatient information leafletsStaff information leaflets


Patient Access – To Do

Final development of screens for pilotSCI-DC data transfer approvals/releaseLive server configurationPatient recruitment and pre-project evaluation questionnaireFurther national eHealth awarenessGo Live – November 2009


Patient Access – Future Plans

Funding for wider rollout after pilotAutomatic Citizen’s Account registrationPatient notification of new data (email/SMS)Patient-recorded results to SCI-DC– Blood glucose, blood pressure, cholesterol,

weight, waist circumference


Patient Access – Future Plans

Patient queries and feedbackWiden data setAppointment booking for Retinopathy ScreeningLinks with:– Ayrshire & Arran demonstrator– Renal PatientView

Audit and evaluation


Thank you!www.mydiabetesmyway.scot.nhs.uk

my diabetes my way patient access scott cunningham ... · my diabetes my way patient access. scott...

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